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Do I have P.A
Hi,good day all,
I
am confused whether
I
have P.A.or not.My intrinsic
factor
test
came back as negative but reading other people's post
I
am not sure is that the test that determines whether you have P.A.or not...In a nutshell what is the test that determines whether you have P.A or not..thanks
Hi,good day all,
I
am confused whether
I
have P.A.or not.My intrinsic
factor
test
came back as negative but reading other people's post
I
am not sure is that the test that determines whether you have P.A.or not...In a nutshell what is the test that determines whether you have P.A or not..thanks
Ralphylyn123
in
Pernicious Anaemia Society
7 months ago
my story
My vertigo dissipated and I was able to accomplish so much more
I
felt completely normal !!!! So
I
was eventually given an intrinsic
factor
test
. But all this only surfaced when I’d suffered a minor stroke late August this year, and was admitted to hospital for 4days.
My vertigo dissipated and I was able to accomplish so much more
I
felt completely normal !!!! So
I
was eventually given an intrinsic
factor
test
. But all this only surfaced when I’d suffered a minor stroke late August this year, and was admitted to hospital for 4days.
Beadbuddy
in
Pernicious Anaemia Society
4 months ago
I have PA, all was going well, but now they're trying to mess with my b12 perscipton!!!
Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 years ago, I was fighting to save my right leg due to bone tumors. 12 surgeries later, I lost that fight. During that time, I started losing weight, tons of anxiety, palpitations ect...This would all be normal reaction to this
Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 years ago, I was fighting to save my right leg due to bone tumors. 12 surgeries later, I lost that fight. During that time, I started losing weight, tons of anxiety, palpitations ect...This would all be normal reaction to this
Wowo23
in
Pernicious Anaemia Society
9 days ago
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child with dyslexia
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
Murfie276
in
Pernicious Anaemia Society
22 days ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
1 month ago
Achilles tendonitis and damage due to antibiotic side effect - odd icy sensation?
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
Braecoon
in
NRAS
1 month ago
Pernicious anaemia
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
mully
in
Pernicious Anaemia Society
1 month ago
Pernicious Anemia treatment
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
merfi
in
Pernicious Anaemia Society
1 month ago
⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
1 month ago
Raised MMA result
Hi everyone Have written before about my low active B12 results(medichecks). Latest one had been 36.7 (37.5~188). My previous 3 were slowly dropping from 60s to 50s to 40s. Advised to do MMA by medichecks. Eventually afforded one last week which came back high 38.5 (<32). They are now suggesting
Hi everyone Have written before about my low active B12 results(medichecks). Latest one had been 36.7 (37.5~188). My previous 3 were slowly dropping from 60s to 50s to 40s. Advised to do MMA by medichecks. Eventually afforded one last week which came back high 38.5 (<32). They are now suggesting
Pomart
in
Pernicious Anaemia Society
2 months ago
If taking B12 supps skew's PA Intrinsic Factor test, does it do the same for Gastric Parietal Cell AB too?
Hi Everyone, Im a bit out of my depth here and wondered if you could help please. Ive taken B Complex for nearly 25 years, I do wonder whether serum levels have always been scuppered, as I read again that to do a credible PA , MMA test I needed to be off B12 for minimum 4- 6 moths , possibly longer
Hi Everyone, Im a bit out of my depth here and wondered if you could help please. Ive taken B Complex for nearly 25 years, I do wonder whether serum levels have always been scuppered, as I read again that to do a credible PA , MMA test I needed to be off B12 for minimum 4- 6 moths , possibly longer
Gillybean1
in
Pernicious Anaemia Society
2 months ago
Can anyone shed some light on Anti CCP antibodies result?
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Cheshirecatz
in
NRAS
2 months ago
Zypan?
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
MLJ2024
in
Pernicious Anaemia Society
2 months ago
Help with intrinsic factor results
hi all i was recently told i tested positive for gastro parietal cells. This is my intrinsic factor results. Im confused is this a positive or negative? And what would the parietal cells with this result mean?
hi all i was recently told i tested positive for gastro parietal cells. This is my intrinsic factor results. Im confused is this a positive or negative? And what would the parietal cells with this result mean?
Confused1806
in
Pernicious Anaemia Society
2 months ago
IFABs Borderline?
Hi I've recently had this result Intrinsic Factor Antibodies 1.33 AU/mL Range <1.2 Negative 1.2-1.53 Borderline >1.53 Positive how can this be? surely anything over 1.2 is positive or is my brain too feeble to understand🥴 any thoughts would be appreciated🙃
Hi I've recently had this result Intrinsic Factor Antibodies 1.33 AU/mL Range <1.2 Negative 1.2-1.53 Borderline >1.53 Positive how can this be? surely anything over 1.2 is positive or is my brain too feeble to understand🥴 any thoughts would be appreciated🙃
Doeyditdot
in
Pernicious Anaemia Society
2 months ago
AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
3 months ago
Bone profile?
Hi, could anyone tell me what the doctor means by bone profile? Recently had tests for B12 deficiency, got a telephone call a few days later asking me to come back in for them to do more tests. Said my bone profile was low, and mentioned something about potentially low vitamin d. Apparently my b12 is
Hi, could anyone tell me what the doctor means by bone profile? Recently had tests for B12 deficiency, got a telephone call a few days later asking me to come back in for them to do more tests. Said my bone profile was low, and mentioned something about potentially low vitamin d. Apparently my b12 is
Kayls32
in
Pernicious Anaemia Society
3 months ago
So apparently I'm normal...but I'm definitely perplexed!
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Myoldcat
in
Pernicious Anaemia Society
3 months ago
Thought about Intrinsic factor
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
PaintLadie
in
Pernicious Anaemia Society
3 months ago
Supplement Help Please
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Barley_84
in
Pernicious Anaemia Society
3 months ago
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