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Supplement Help Please
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Barley_84
in
Pernicious Anaemia Society
4 months ago
Daughters repeat bloods , off to Rapid Access this afternoon.
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Polo22
in
Pernicious Anaemia Society
4 months ago
What does it mean to have raised Homocysteine but normal MMA?
Hi After some wonderful support here and from my neurologist, I am now a week into eod B12 injections. The last time I posted I didn’t have my actual results. I do now: MMA: 0.21 umol/L (Ref < 0.43) Homocysteine 22 umol/L (Ref 0-20) Can anyone help me understand what it means to have raised homocysteine
Hi After some wonderful support here and from my neurologist, I am now a week into eod B12 injections. The last time I posted I didn’t have my actual results. I do now: MMA: 0.21 umol/L (Ref < 0.43) Homocysteine 22 umol/L (Ref 0-20) Can anyone help me understand what it means to have raised homocysteine
GW1000
in
Pernicious Anaemia Society
4 months ago
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copy of letter sent to GP surgery
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
Beadbuddy
in
Pernicious Anaemia Society
5 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
5 months ago
Have I got RA ?
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
5goFlotilla
in
NRAS
5 months ago
Full-text article from 1969
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
WiscGuy
in
Pernicious Anaemia Society
5 months ago
Yet another clueless G.P. - I despair!
So, I've been getting symptoms that I'm pretty sure are down to my thyroid being on the fritz. I was recommended a new G.P. at the practice who takes an interest in autoimmune problems. So I sit down, tell her that my hair is falling out, I'm gaining weight, tired, palpitations etc and that I have autoimmune
So, I've been getting symptoms that I'm pretty sure are down to my thyroid being on the fritz. I was recommended a new G.P. at the practice who takes an interest in autoimmune problems. So I sit down, tell her that my hair is falling out, I'm gaining weight, tired, palpitations etc and that I have autoimmune
topazrat
in
Pernicious Anaemia Society
5 months ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
5 months ago
positive then negative intrinsic factor
hi guys,
I
had a positive intrinsic
factor
blood
test
back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
hi guys,
I
had a positive intrinsic
factor
blood
test
back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
Ellamae2
in
Pernicious Anaemia Society
6 months ago
Latest results and my plan...
Hello I am symptomatic of low B12 and/or Hypothyroidism. GP isn't concerned and advised me to take B12 supplements, but will retest Thyroid in 6 months time. My plan is to raise B12, Ferretin, Foltate, and Vit D to the top 25% of range and then see how I feel and redo TFTs. I am happy to pay
Hello I am symptomatic of low B12 and/or Hypothyroidism. GP isn't concerned and advised me to take B12 supplements, but will retest Thyroid in 6 months time. My plan is to raise B12, Ferretin, Foltate, and Vit D to the top 25% of range and then see how I feel and redo TFTs. I am happy to pay
Spritze
in
Thyroid UK
5 months ago
Hypothesis II
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Folic Acid does not cause PA
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
MEguy
in
Thyroid UK
6 months ago
Learning and Careers with B12 Anemia
Hi everyone, I wanted to know what everyone studied and does for a living here. I am feeling down because I have not done well with college and keeping a job because of my anemia. I just want to know if anyone else went thru that, still is dealing with that, and/or is able to live a normal life. I
Hi everyone, I wanted to know what everyone studied and does for a living here. I am feeling down because I have not done well with college and keeping a job because of my anemia. I just want to know if anyone else went thru that, still is dealing with that, and/or is able to live a normal life. I
GreenTamales
in
Pernicious Anaemia Society
6 months ago
one last question ( hopefully)
I have finally managed to get an appointment with my GP where I hope to convince him to give me B12 injections more often that once every 8 weeks and I never had a loading doses so am hoping for that too. I hope I can get him to do some tests, like size shape and number of red blood cells, intrinsic
I have finally managed to get an appointment with my GP where I hope to convince him to give me B12 injections more often that once every 8 weeks and I never had a loading doses so am hoping for that too. I hope I can get him to do some tests, like size shape and number of red blood cells, intrinsic
totallyFrustrated
in
Pernicious Anaemia Society
7 months ago
antibodies
Is it possible to have antibodies to parietal cells but not to intrinsic factor? I have no intrinsic factor.
Is it possible to have antibodies to parietal cells but not to intrinsic factor? I have no intrinsic factor.
Sissiotto
in
Pernicious Anaemia Society
7 months ago
Au/ml help
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
AlmWales
in
Pernicious Anaemia Society
7 months ago
Examining the Pathology of the Parietal cells
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
wedgewood
in
Pernicious Anaemia Society
7 months ago
Depression and PA
HelloI started the PA journey in 2021, positive intrinsic factor and gastric parietal cell antibodies. I am hypothyroid. I thought my low mood would resolve after starting injections and at first it seemed to. I was taking B1 and B2, but stopped. I'm not sure that stopping the extra Bs has caused the
HelloI started the PA journey in 2021, positive intrinsic factor and gastric parietal cell antibodies. I am hypothyroid. I thought my low mood would resolve after starting injections and at first it seemed to. I was taking B1 and B2, but stopped. I'm not sure that stopping the extra Bs has caused the
Aumshantii
in
Pernicious Anaemia Society
7 months ago
Intrinsic Factor
It occurred to me that it must be possible to synthesise Intrinsic Factor as a supplement to replace what PA people have lost. Does anyone of a scientific bent have any thoughts on this idea?
It occurred to me that it must be possible to synthesise Intrinsic Factor as a supplement to replace what PA people have lost. Does anyone of a scientific bent have any thoughts on this idea?
Orchard33
in
Pernicious Anaemia Society
7 months ago
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