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my story
My vertigo dissipated and I was able to accomplish so much more
I
felt completely normal !!!! So
I
was eventually given an intrinsic
factor
test
. But all this only surfaced when I’d suffered a minor stroke late August this year, and was admitted to hospital for 4days.
My vertigo dissipated and I was able to accomplish so much more
I
felt completely normal !!!! So
I
was eventually given an intrinsic
factor
test
. But all this only surfaced when I’d suffered a minor stroke late August this year, and was admitted to hospital for 4days.
Beadbuddy
in
Pernicious Anaemia Society
9 months ago
Do I have P.A
Hi,good day all,
I
am confused whether
I
have P.A.or not.My intrinsic
factor
test
came back as negative but reading other people's post
I
am not sure is that the test that determines whether you have P.A.or not...In a nutshell what is the test that determines whether you have P.A or not..thanks
Hi,good day all,
I
am confused whether
I
have P.A.or not.My intrinsic
factor
test
came back as negative but reading other people's post
I
am not sure is that the test that determines whether you have P.A.or not...In a nutshell what is the test that determines whether you have P.A or not..thanks
Ralphylyn123
in
Pernicious Anaemia Society
1 year ago
AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
8 months ago
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Bone profile?
Hi, could anyone tell me what the doctor means by bone profile? Recently had tests for B12 deficiency, got a telephone call a few days later asking me to come back in for them to do more tests. Said my bone profile was low, and mentioned something about potentially low vitamin d. Apparently my b12 is
Hi, could anyone tell me what the doctor means by bone profile? Recently had tests for B12 deficiency, got a telephone call a few days later asking me to come back in for them to do more tests. Said my bone profile was low, and mentioned something about potentially low vitamin d. Apparently my b12 is
Kayls32
in
Pernicious Anaemia Society
8 months ago
So apparently I'm normal...but I'm definitely perplexed!
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Myoldcat
in
Pernicious Anaemia Society
8 months ago
Thought about Intrinsic factor
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
PaintLadie
in
Pernicious Anaemia Society
8 months ago
Supplement Help Please
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Barley_84
in
Pernicious Anaemia Society
8 months ago
Daughters repeat bloods , off to Rapid Access this afternoon.
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Previous post https://healthunlocked.com/pasoc/posts/150279394/the-saga-continues-daughters-bloods so at surgery this am, 5th jab, asked for latest bloods print out , told but it hasn't been reported on so can't, said look need it for appointment this afternoon at Alder Hey. Went in to get her jab
Polo22
in
Pernicious Anaemia Society
9 months ago
What does it mean to have raised Homocysteine but normal MMA?
Hi After some wonderful support here and from my neurologist, I am now a week into eod B12 injections. The last time I posted I didn’t have my actual results. I do now: MMA: 0.21 umol/L (Ref < 0.43) Homocysteine 22 umol/L (Ref 0-20) Can anyone help me understand what it means to have raised homocysteine
Hi After some wonderful support here and from my neurologist, I am now a week into eod B12 injections. The last time I posted I didn’t have my actual results. I do now: MMA: 0.21 umol/L (Ref < 0.43) Homocysteine 22 umol/L (Ref 0-20) Can anyone help me understand what it means to have raised homocysteine
GW1000
in
Pernicious Anaemia Society
9 months ago
B12 how much and how often
Finally from Israel
I
was advised to get the Intrinsic
Factor
Antibody Blood
Test
and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily.
Finally from Israel
I
was advised to get the Intrinsic
Factor
Antibody Blood
Test
and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily.
Jeep13
in
Pernicious Anaemia Society
2 months ago
copy of letter sent to GP surgery
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
Beadbuddy
in
Pernicious Anaemia Society
9 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
9 months ago
Have I got RA ?
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
5goFlotilla
in
NRAS
9 months ago
Full-text article from 1969
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
WiscGuy
in
Pernicious Anaemia Society
9 months ago
Query of whether I have Pernicious Anaemia
I have been told by one Dr that I have Pernicious Anaemia as my B12 was low this year and last year. My ferritin was also low. I had been on a high dose of PPis for 4 years and intermittently for many years before that. Intrinsic factor this year was negative and when I had a gastroscopy last year
I have been told by one Dr that I have Pernicious Anaemia as my B12 was low this year and last year. My ferritin was also low. I had been on a high dose of PPis for 4 years and intermittently for many years before that. Intrinsic factor this year was negative and when I had a gastroscopy last year
Jacklover
in
Pernicious Anaemia Society
4 days ago
Yet another clueless G.P. - I despair!
So, I've been getting symptoms that I'm pretty sure are down to my thyroid being on the fritz. I was recommended a new G.P. at the practice who takes an interest in autoimmune problems. So I sit down, tell her that my hair is falling out, I'm gaining weight, tired, palpitations etc and that I have autoimmune
So, I've been getting symptoms that I'm pretty sure are down to my thyroid being on the fritz. I was recommended a new G.P. at the practice who takes an interest in autoimmune problems. So I sit down, tell her that my hair is falling out, I'm gaining weight, tired, palpitations etc and that I have autoimmune
topazrat
in
Pernicious Anaemia Society
9 months ago
intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
9 months ago
Latest results and my plan...
Hello I am symptomatic of low B12 and/or Hypothyroidism. GP isn't concerned and advised me to take B12 supplements, but will retest Thyroid in 6 months time. My plan is to raise B12, Ferretin, Foltate, and Vit D to the top 25% of range and then see how I feel and redo TFTs. I am happy to pay
Hello I am symptomatic of low B12 and/or Hypothyroidism. GP isn't concerned and advised me to take B12 supplements, but will retest Thyroid in 6 months time. My plan is to raise B12, Ferretin, Foltate, and Vit D to the top 25% of range and then see how I feel and redo TFTs. I am happy to pay
Spritze
in
Thyroid UK
10 months ago
Hypothesis II
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Blackseed oil
Hi, is it safe to rub blackssed oil on your neck over your thyroid as a moisturiser? I've heard you shouldn't use castor oil over it, so was wondering if it's the same for blackseed oil. TIA
Hi, is it safe to rub blackssed oil on your neck over your thyroid as a moisturiser? I've heard you shouldn't use castor oil over it, so was wondering if it's the same for blackseed oil. TIA
SmokieTorre
in
Thyroid UK
15 days ago
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