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New research
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
Did anyone listen to the piece on talk radio today about new lupus research? So exciting for all autoimmune diseases! Here is an article I found about it. https://lens.monash.edu/@medicine-health/2024/02/06/1386418/breakthrough-heralds-immune-personalised-medicine-for-lupus?amp=1
EllsBells591
in
LUPUS UK
4 months ago
Arx517 updates about the trial for metastatic castration resistant prostate cancer
”Following completion of the 21-day observation period at 3.4 mg/kg (Cohort 9), no dose limiting toxicities (DLTs) or serious adverse events (SAEs) were observed Two patients in Cohort 9 experienced rapid PSA reduction at three weeks post-treatment following the first ARX517 dose” https://www.biospace.com
”Following completion of the 21-day observation period at 3.4 mg/kg (Cohort 9), no dose limiting toxicities (DLTs) or serious adverse events (SAEs) were observed Two patients in Cohort 9 experienced rapid PSA reduction at three weeks post-treatment following the first ARX517 dose” https://www.biospace.com
Maxone73
in
Advanced Prostate Cancer
7 months ago
Bisoprolol - is it ok to stop taking altogether?
Hi all. First post here and I wish you all well.My story: 55 year old male. Overweight and desperately trying to change that! 6 ft 2 inches and 17 stone 7 currently. Diagnosed with AF after a bout of COVID in April 2022. A period on apixaban and bisoprolol and then a successful cardioversion in August
Hi all. First post here and I wish you all well.My story: 55 year old male. Overweight and desperately trying to change that! 6 ft 2 inches and 17 stone 7 currently. Diagnosed with AF after a bout of COVID in April 2022. A period on apixaban and bisoprolol and then a successful cardioversion in August
Jacko68
in
Atrial Fibrillation Support
3 months ago
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Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
4 months ago
Palpitations, chest pain, dizziness
Iv had two heart surgeries for pulmonary valve replacement. Had my last echo a month ago and everything looks normal. About a week after that iv been having heart palpitations every single day and extreme tiredness and slight chest discomfort. Iv had it before but last times was because I was pregnant
Iv had two heart surgeries for pulmonary valve replacement. Had my last echo a month ago and everything looks normal. About a week after that iv been having heart palpitations every single day and extreme tiredness and slight chest discomfort. Iv had it before but last times was because I was pregnant
Spammy123
in
Heart Rhythm Disorders Support
3 months ago
What is BIG DATA? Demystifying the use of patient health data in research - FREE online Event
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
Australian research - possible cure?
I don’t like raising false hope among our community about ‘cures’ toted in the media, but I found this article interesting. It’s about the T-cells, which many of us already know is involved in autoimmune activity: https://www.sbs.com.au/news/podcast-episode/australian-researchers-develop-world-first-method-of-treating-lupus
I don’t like raising false hope among our community about ‘cures’ toted in the media, but I found this article interesting. It’s about the T-cells, which many of us already know is involved in autoimmune activity: https://www.sbs.com.au/news/podcast-episode/australian-researchers-develop-world-first-method-of-treating-lupus
MusicalFurbaby
in
LUPUS UK
4 months ago
Carvedilol and Urso bowl changes
I’ve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
I’ve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
anonymous987656384
in
British Liver Trust
7 months ago
Do you know your pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
PSA rising
Hi to the most incredible and informative group. I have been on hormone injections every 3 months. Abiraterone 500 mg with food and 5mg pred. psa 0.8 has increased to 0.17 in 2 months. questions. Should I up Abiraterone to 1000mg to help lower psa or am I on the downward slope now? Diagnosed 2019
Hi to the most incredible and informative group. I have been on hormone injections every 3 months. Abiraterone 500 mg with food and 5mg pred. psa 0.8 has increased to 0.17 in 2 months. questions. Should I up Abiraterone to 1000mg to help lower psa or am I on the downward slope now? Diagnosed 2019
Lion321
in
Advanced Prostate Cancer
7 months ago
Just one chilli flake!
I am having my first face to face meeting with the cardiologist next month, but he has been working closely with my GP and advising on medication for the past few months. Following a 24 hour ECG my Verapamil dose was increased at the end of last week and I feel so much better. My heart is calm, my
I am having my first face to face meeting with the cardiologist next month, but he has been working closely with my GP and advising on medication for the past few months. Following a 24 hour ECG my Verapamil dose was increased at the end of last week and I feel so much better. My heart is calm, my
Ilovedogs12
in
Atrial Fibrillation Support
3 months ago
eating gluten prior to biopsy
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
lauram1978
in
Gluten Free Guerrillas
6 months ago
varices grade 2
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
oap74
in
British Liver Trust
7 months ago
LAST CALL: In-person Liverpool workshop tomorrow for those living with advanced liver disease (and carers/relatives)
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
I am waiting to find out if I have Lupus but I haven’t got my ANA result back yet and I want to know if people think this could be lupus
Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative however I am experiencing more symptoms this year and I have taken another blood test and so far the bloods again are normal but I have currently
Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative however I am experiencing more symptoms this year and I have taken another blood test and so far the bloods again are normal but I have currently
katiepops2004
in
LUPUS UK
4 months ago
Does Flecainide Work for Persistent Afib
Hello. In February, I had a cardioversion after being in persistent afib for 5 months. While I was in NSR, I saw my cardiologist and he took me off of metoprolol and prescribed Ditilizem and Flecainide. Several days after I saw him, I went back into persistent afib, but had not yet started taking
Hello. In February, I had a cardioversion after being in persistent afib for 5 months. While I was in NSR, I saw my cardiologist and he took me off of metoprolol and prescribed Ditilizem and Flecainide. Several days after I saw him, I went back into persistent afib, but had not yet started taking
DogLover9987
in
Atrial Fibrillation Support
3 months ago
FREE Arthritis Self-Management Event
I thought some of you may be interested in this event on Wed 6th March, 6.00pm (GMT); its aimed at young people or anyone supporting a young person with arthritis. Tickets can be booked here: https://www.eventbrite.co.uk/e/arthritis-me-tickets-811392285167 Ann Arthritis Action Comms Team,
I thought some of you may be interested in this event on Wed 6th March, 6.00pm (GMT); its aimed at young people or anyone supporting a young person with arthritis. Tickets can be booked here: https://www.eventbrite.co.uk/e/arthritis-me-tickets-811392285167 Ann Arthritis Action Comms Team,
arthritis_action
Partner
in
Arthritis Action
4 months ago
Living with alcohol related cirrhosis- I know it varies but whats "normal"?
I was hospitalised with decompensated liver failure in July this year. Diagnosis is cirrhosis,portal hypertension and hypertensive gastropathy. My liver biochemistry was very deranged in July (Bilirubin 400 which explains the jaundice, itching,fatigue and confusion I was experiencing),the ascites and
I was hospitalised with decompensated liver failure in July this year. Diagnosis is cirrhosis,portal hypertension and hypertensive gastropathy. My liver biochemistry was very deranged in July (Bilirubin 400 which explains the jaundice, itching,fatigue and confusion I was experiencing),the ascites and
BoHo73
in
British Liver Trust
7 months ago
Bolt this ones for you, binaural beats and Parkinson’s tremor.
In this study, we found an improvement of resting tremor when applying BBS in the gamma frequency band OFF medication. Moreover, the positive effects of CAS underline the general positive potential for improvement of motor function by acoustically supported therapeutic approaches. https://www.ncbi.nlm.nih.gov
In this study, we found an improvement of resting tremor when applying BBS in the gamma frequency band OFF medication. Moreover, the positive effects of CAS underline the general positive potential for improvement of motor function by acoustically supported therapeutic approaches. https://www.ncbi.nlm.nih.gov
House2
in
Cure Parkinson's
7 months ago
Study Offers New Clues to Why Most People with Autoimmune Diseases Are Women
[i]Caption:[/i] [i]Purple chromosomes fill the scene but a greyed-out chromosome locked up with chains labeled "Xist" is in the foreground. One of the Xist chains is covered with sharp thorns.[/i] [i]Xist molecules shut down one of two female X chromosomes to avoid toxic protein levels, but they
[i]Caption:[/i] [i]Purple chromosomes fill the scene but a greyed-out chromosome locked up with chains labeled "Xist" is in the foreground. One of the Xist chains is covered with sharp thorns.[/i] [i]Xist molecules shut down one of two female X chromosomes to avoid toxic protein levels, but they
helvella
Thyroid UK
in
Thyroid UK
4 months ago
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