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should I go to A&E
dr will not give me any pain killers until I attend face to face appointment. I have just started a new job and I’m scared of missing work. I haven’t slept in 2 weeks the pain is numbing now I cry myself to sleep I vomit constantly I feel Dizzy and faint. My full pelvic area is in agony I feel so Dismissed
dr will not give me any pain killers until I attend face to face appointment. I have just started a new job and I’m scared of missing work. I haven’t slept in 2 weeks the pain is numbing now I cry myself to sleep I vomit constantly I feel Dizzy and faint. My full pelvic area is in agony I feel so Dismissed
Littlebug77
in
Endometriosis UK
2 years ago
Pelvic Physio in Manchester on the NHS?
Hello! After watching The Women's Health Programme on channel 5 last night and a woman on there saying Pelvic Physio has basically changed her life and reduced the amount of pain killers she needs to take I am going to ask my GP if I can be referred. However, is anyone aware of any places that offer
Hello! After watching The Women's Health Programme on channel 5 last night and a woman on there saying Pelvic Physio has basically changed her life and reduced the amount of pain killers she needs to take I am going to ask my GP if I can be referred. However, is anyone aware of any places that offer
JadeH92
in
Endometriosis UK
2 years ago
Pelvic Physio in Manchester on the NHS?
Hello! QgterAfter watching The Women's Health Programme on channel 5 last night and a woman on there saying Pelvic Physio has basically changed her life and reduced the amount of pain killers she needs to take I am going to ask my GP if I can be referred. However, is anyone aware of any places that
Hello! QgterAfter watching The Women's Health Programme on channel 5 last night and a woman on there saying Pelvic Physio has basically changed her life and reduced the amount of pain killers she needs to take I am going to ask my GP if I can be referred. However, is anyone aware of any places that
JadeH92
in
Pelvic Pain Support Network
2 years ago
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Myopic macular degeneration
Hi all. After treatment (18 months and 10 Lucentis injections) for what I’d assumed was ‘age related’ MD, a consultant today told me, no, it was ‘myopic’ MD. I’ve always (since teens) been extremely short sighted so maybe no surprise there. Has anyone else been diagnosed with ‘myopic’ MD and, if so
Hi all. After treatment (18 months and 10 Lucentis injections) for what I’d assumed was ‘age related’ MD, a consultant today told me, no, it was ‘myopic’ MD. I’ve always (since teens) been extremely short sighted so maybe no surprise there. Has anyone else been diagnosed with ‘myopic’ MD and, if so
Fuzzbox100
in
Macular Society
2 years ago
What's this in my RPE after Eyleas injections?
Had CNV/AMD in left eye 2016, didn't know if I could hold still for injections, hence no central vision in that eye. CNV/AMD started in right eye in January 2018. No choice about going for injections. Had injections until March 2020 when oedema stopped. The small bump in my RPE, as in the first of my
Had CNV/AMD in left eye 2016, didn't know if I could hold still for injections, hence no central vision in that eye. CNV/AMD started in right eye in January 2018. No choice about going for injections. Had injections until March 2020 when oedema stopped. The small bump in my RPE, as in the first of my
ironbrain
in
Macular Society
2 years ago
No Period after Zoladex?
Hi all. I hope you’re enjoying the UK heatwave! ☀️ I (22F) have just completed my 2nd course of Zoladex treatment for my Adenomyosis & Endometriosis. I had my last Injection 17th March 2022. A bit of back story… I was diagnosed with Stage 1 Endo and Pelvic Congestion Syndrome via Laparoscopy in
Hi all. I hope you’re enjoying the UK heatwave! ☀️ I (22F) have just completed my 2nd course of Zoladex treatment for my Adenomyosis & Endometriosis. I had my last Injection 17th March 2022. A bit of back story… I was diagnosed with Stage 1 Endo and Pelvic Congestion Syndrome via Laparoscopy in
LuceRM
in
Endometriosis UK
2 years ago
Clear ultrasound- feeling deflated
Hello, I had an ultrasound last week and as expected they said they couldn’t see any obvious signs to suggest endometriosis, and said everything looked normal. However, the lady was very nice and told me to keep pushing my doctor for further tests and a referral to a gynaecologist as an ultrasound isn
Hello, I had an ultrasound last week and as expected they said they couldn’t see any obvious signs to suggest endometriosis, and said everything looked normal. However, the lady was very nice and told me to keep pushing my doctor for further tests and a referral to a gynaecologist as an ultrasound isn
Lotus95x
in
Endometriosis UK
2 years ago
sensitive feet?
Does anyone else have really sensitive feet.?It's happened this last year. It hurts to wear shoes. The softest shoes cause bruises or blisters after just a short while. I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or pilocarpine. I'm early fifties so it can't
Does anyone else have really sensitive feet.?It's happened this last year. It hurts to wear shoes. The softest shoes cause bruises or blisters after just a short while. I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or pilocarpine. I'm early fifties so it can't
dg70
in
LUPUS UK
2 years ago
HCQS for joint pain vs eye problem
Hi everyone- has anyone gone through the dilemma of stopping HCQS due to increasing eye problems-
eye
ache/hyper photo sensitivity vs compromising on finger swelling /joint
pain
relief from HCQS?
Hi everyone- has anyone gone through the dilemma of stopping HCQS due to increasing eye problems-
eye
ache/hyper photo sensitivity vs compromising on finger swelling /joint
pain
relief from HCQS?
NY22
in
LUPUS UK
2 years ago
Prednisone and CSR - wondering about the connection
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Sunnyday365
in
PMRGCAuk
2 years ago
Update on referral post
Hi everyone, Just an update on my last post.i have got my gynaecology appointment next Sunday. I've been trying to forget about it but now I'm feeling really anxious about it and what they might want to do. I tried to go back on the pill a couple of months ago but the side effects are worse than
Hi everyone, Just an update on my last post.i have got my gynaecology appointment next Sunday. I've been trying to forget about it but now I'm feeling really anxious about it and what they might want to do. I tried to go back on the pill a couple of months ago but the side effects are worse than
Sheep2
in
Endometriosis UK
2 years ago
we are waiting for diagnosis. And I am so scared…
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures. It went away after 2 weeks, then he started suffering from daily headache. He always had migraine
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures. It went away after 2 weeks, then he started suffering from daily headache. He always had migraine
Springbunny
in
Meningioma Support
2 years ago
Connecting with someone with similar diagnoses
I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome
I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome
Led_zepplin
in
The Australian Sjögren's Syndrome Association
2 years ago
Dangers of treatment for mild symptoms
Hello all. My PET scan showed evidence of PMR and my rheumatologist wants me to go onto steroids although I have very little pain or stiffness at present. This is to guard against GCA. If I understood her correctly the options include local injections and Depo Medrone. The rheumatologist also mentioned
Hello all. My PET scan showed evidence of PMR and my rheumatologist wants me to go onto steroids although I have very little pain or stiffness at present. This is to guard against GCA. If I understood her correctly the options include local injections and Depo Medrone. The rheumatologist also mentioned
Donaloge
in
PMRGCAuk
2 years ago
Deteriorating eyesight...........
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hidden
in
Macular Society
2 years ago
two weeks and told to cut meds
Hi I'm new to this as I've said in my previous post so learning all the time. I have been told that after two weeks on 15mg prednisone I should come down to 12.5 mg and so on . Curious what would taking steroids in two weeks only have done for my polymyalgia I thought they were just pain killers
Hi I'm new to this as I've said in my previous post so learning all the time. I have been told that after two weeks on 15mg prednisone I should come down to 12.5 mg and so on . Curious what would taking steroids in two weeks only have done for my polymyalgia I thought they were just pain killers
rachelbell
in
PMRGCAuk
2 years ago
ESA ending - put in Work Related Activity group
I’m feeling absolutely hopeless, useless and pointless right now. Had the dreaded health assessment for Employment Support Allowance a few days ago and have been notified that I have been placed in the Work Related Activity group rather than the Support group. Not only does this mean that the DWP think
I’m feeling absolutely hopeless, useless and pointless right now. Had the dreaded health assessment for Employment Support Allowance a few days ago and have been notified that I have been placed in the Work Related Activity group rather than the Support group. Not only does this mean that the DWP think
Purple_Badgers
in
Endometriosis UK
2 years ago
Comparing two INFs
This is mostly for science nerds, a comparison of the old PEG-Intron (no longer available) to Pegasys, shedding some light on what the Besremi guys are doing with longer dosing intervals. --- A 2004 report in context of hepatitis therapy: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2036.2004.02170
This is mostly for science nerds, a comparison of the old PEG-Intron (no longer available) to Pegasys, shedding some light on what the Besremi guys are doing with longer dosing intervals. --- A 2004 report in context of hepatitis therapy: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2036.2004.02170
EPguy
in
MPN Voice
2 years ago
Low fodmap diet - ap? Pain came back
Does anyone use an ap to track their diet?I have been reading Dian shepperton mills book on diet and ebdo but haven't finished it. I have reduced gluten right down and was low dairy, low meat, whole food anyway. I had a month pretty much pain free without painkillers but am having severe pain again
Does anyone use an ap to track their diet?I have been reading Dian shepperton mills book on diet and ebdo but haven't finished it. I have reduced gluten right down and was low dairy, low meat, whole food anyway. I had a month pretty much pain free without painkillers but am having severe pain again
MalachiteAli
in
Endometriosis UK
2 years ago
A recent review of the failings of the currently held model for thyroid treatment
I don't think I've already posted this. This review again sets out the failings of the TSH-T4 dominated model of thyroid therapy and treatment. Open to download Endocrine https://doi.org/10.1007/s12020-021-02851-6 VIEWPOINT Thyroid testing paradigm switch from thyrotropin to thyroidhormones—Future
I don't think I've already posted this. This review again sets out the failings of the TSH-T4 dominated model of thyroid therapy and treatment. Open to download Endocrine https://doi.org/10.1007/s12020-021-02851-6 VIEWPOINT Thyroid testing paradigm switch from thyrotropin to thyroidhormones—Future
diogenes
in
Thyroid UK
2 years ago
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