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Being taking off Pegasys. :( Looking for alternatives
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
JustKeepSw1mming
in
MPN Voice
7 months ago
immune system
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
lindyloulou
in
MPN Voice
7 months ago
Dry achey eyes
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
Pippapot
in
MPN Voice
8 months ago
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diabetic eye infections
partner is losing his sight due to diabetes, he has started on injections had them once a month for 5 months had no issues until the last one on Friday he was fine until this morning, his eye is red and he says it’s burning , also has black floating things in his eye, he hates hospitals, any advice
partner is losing his sight due to diabetes, he has started on injections had them once a month for 5 months had no issues until the last one on Friday he was fine until this morning, his eye is red and he says it’s burning , also has black floating things in his eye, he hates hospitals, any advice
Fozzy81
in
iDEAL Diabetes
1 year ago
Pegasys --> Besremi and HCT
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Swede99
in
MPN Voice
9 months ago
Coping in the heat
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Scarlett500
in
MPN Voice
9 months ago
pegasys and migraines
I see from a recent post response that there are others on Pegasys who have suffered from migraines. I have been on 45 mcg weekly for a few months and have just had an excruciatingly painful migraine. I have had a few less painful ones. I’m hoping some patients will share their experience on this
I see from a recent post response that there are others on Pegasys who have suffered from migraines. I have been on 45 mcg weekly for a few months and have just had an excruciatingly painful migraine. I have had a few less painful ones. I’m hoping some patients will share their experience on this
Smithjoa
in
MPN Voice
9 months ago
Hydroxyurea to give
Since doc change my meds to Jakafi and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
Since doc change my meds to Jakafi and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
william-Indo
in
MPN Voice
11 months ago
US doctor discusses ways to prevent PD
US doctor discusses ways to prevent PD. The estimate is 15% of PwP have a genetic cause and 85% is from environmental exposure to chemicals. Some have been discussed here. I don't think TCE has been. It was used in dry cleaning and semiconductor processing, but for many years now the US and Japan
US doctor discusses ways to prevent PD. The estimate is 15% of PwP have a genetic cause and 85% is from environmental exposure to chemicals. Some have been discussed here. I don't think TCE has been. It was used in dry cleaning and semiconductor processing, but for many years now the US and Japan
pvw2
in
Cure Parkinson's
11 months ago
Pegasys Injection Help
Anyone use insulin needles to inject Pegasys? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
Anyone use insulin needles to inject Pegasys? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
russkatt
in
MPN Voice
11 months ago
Another experience proving we are all different
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
Peacefulneedshelp
in
Atrial Fibrillation Support
19 hours ago
dry eyes and mouth?
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
Lhood08
in
Pernicious Anaemia Society
1 day ago
Treatment changes - Rituximab?
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
whitedog
in
NRAS
5 days ago
Dry eye following Trabeculectomy
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Mitziecat
in
Glaucoma UK
5 days ago
Stretching and exercising after cataract ops
Hi! I did skim this site to see if anyone recently asked about my question, but didn't see anything. I have cataract operations on 12 and 19 June (I also have high IOP but generally below 21; I'm astigmatic (which the ops should correct), and a form of strabismus, where my eye muscles don't line
Hi! I did skim this site to see if anyone recently asked about my question, but didn't see anything. I have cataract operations on 12 and 19 June (I also have high IOP but generally below 21; I'm astigmatic (which the ops should correct), and a form of strabismus, where my eye muscles don't line
711debbie
in
Glaucoma UK
7 days ago
NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
8 days ago
Eye drops
Hello, I would like your advice regarding eye drops. I am very myopic and also have cataracts. I use hyabak often throughout the day but my eyes still feel dry and uncomfortable which I think is making my sight even worse! I’m wondering whether I should try longer lasting eye drops. Any suggestions would
Hello, I would like your advice regarding eye drops. I am very myopic and also have cataracts. I use hyabak often throughout the day but my eyes still feel dry and uncomfortable which I think is making my sight even worse! I’m wondering whether I should try longer lasting eye drops. Any suggestions would
Waddy72
in
Macular Society
10 days ago
Unilateral or bilateral procedure?
I was recently referred by my optician as slight differences were noted since last year’s appointment. My referral outcome letter says my optician was “…… querying cupping of the left eye in particular “ and ends with “… Disc ocular coherence topography shows suspicious optic disc on the left side in
I was recently referred by my optician as slight differences were noted since last year’s appointment. My referral outcome letter says my optician was “…… querying cupping of the left eye in particular “ and ends with “… Disc ocular coherence topography shows suspicious optic disc on the left side in
GreyhoundFriend
in
Glaucoma UK
12 days ago
Low eye pressure
I have Normal Tension Glaucoma and had a Deep Scleretomy operation on my right eye 18 months ago ( I believe this is a similar operation to a trab, the aim being to lower the pressure) and I have a bleb under my eyelid. Immediately after surgery the pressure dropped to 3 but gradually over eight months
I have Normal Tension Glaucoma and had a Deep Scleretomy operation on my right eye 18 months ago ( I believe this is a similar operation to a trab, the aim being to lower the pressure) and I have a bleb under my eyelid. Immediately after surgery the pressure dropped to 3 but gradually over eight months
Ella59
in
Glaucoma UK
13 days ago
onset of symptoms after shot
Hi All, Does anyone experience quick onset of symptoms after injecting? My feet and hands go numb and I get dizzy and nauseous. Sometimes I get arm twitching floaters in my eyes dry eyes and mouth and feels like I’m going to faint . The symptoms do pass after awhile but it definitely is happening after
Hi All, Does anyone experience quick onset of symptoms after injecting? My feet and hands go numb and I get dizzy and nauseous. Sometimes I get arm twitching floaters in my eyes dry eyes and mouth and feels like I’m going to faint . The symptoms do pass after awhile but it definitely is happening after
Jjjmmm
in
Pernicious Anaemia Society
15 days ago
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