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I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
I have been dealing with a skin condition for almost 3 years. I have seen other posts like mine. One person was even trying to get on a talk show. I too have been dismissed by health providers. I have had one person mention Reactive perforating collagenosis (RPC) Reactive perforating collagenosis (RPC
Mystery20
in
MY SKIN
7 months ago
Glaucoma after transplant
Within that time I have had gout and
eye
infections
which included the use of steroids for inflammation. One of these responses to steroid use has been steroid induced glaucoma. Presently I am on 2 eye drops, lanaprost and rhopressa.
Within that time I have had gout and
eye
infections
which included the use of steroids for inflammation. One of these responses to steroid use has been steroid induced glaucoma. Presently I am on 2 eye drops, lanaprost and rhopressa.
Eyak1971
in
Kidney Transplant
5 months ago
Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
8 months ago
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Pegasys is applying for formal approval in MPN treatment
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
TimothyHLuff
in
MPN Voice
8 months ago
Starting Pegasys soon
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
IsabelleHo
in
MPN Voice
8 months ago
Sun protection. Mineral sun lotion on a budget
Staying protected from UV rays is high on many peoples list this week, with layering and staying in the shade so important. I’ve read that mineral based sun lotion is better than chemical as it creates a barrier on your skin that reflects UV light so t hey don't absorb into the skin. Mineral sunscreens
Staying protected from UV rays is high on many peoples list this week, with layering and staying in the shade so important. I’ve read that mineral based sun lotion is better than chemical as it creates a barrier on your skin that reflects UV light so t hey don't absorb into the skin. Mineral sunscreens
IsleofWight1
in
LUPUS UK
26 days ago
Sinemet Plus 25mg/100mg tablets Side effects?
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
Sarah106
in
Cure Parkinson's
9 months ago
sjogens?
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
Yanico
in
MPN Voice
9 months ago
Sinus and eye infection
Are there any other options in your experiences with
eye
infections
?
Are there any other options in your experiences with
eye
infections
?
Eyak1971
in
Kidney Transplant
1 year ago
Bam ibs
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
Netbet22
in
IBS Network
10 months ago
autoimmunity
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
rebtar
in
Cure Parkinson's
10 months ago
Perindopril
Howdy all, me again.Had a telephone appt with my EP following April's cardioversion. All has been well, touch wood, but still waiting for my valve repair op, so the EP is going to chat to the surgeon (I've left messages on his secretary's voicemail but she hasn't got back to me). Meantime, he has advised
Howdy all, me again.Had a telephone appt with my EP following April's cardioversion. All has been well, touch wood, but still waiting for my valve repair op, so the EP is going to chat to the surgeon (I've left messages on his secretary's voicemail but she hasn't got back to me). Meantime, he has advised
Ducky2003
in
Atrial Fibrillation Support
22 hours ago
Update and Double Vision Query
Hi Thanks for all the replies I have received. My update: I had a trabulectomy revision on my right eye in May 2024. Eye sight has been restored in my right eye - however the right eye lid was always droopy but is now worse and if I try to open the eyelid up I get double vision or ghost vision
Hi Thanks for all the replies I have received. My update: I had a trabulectomy revision on my right eye in May 2024. Eye sight has been restored in my right eye - however the right eye lid was always droopy but is now worse and if I try to open the eyelid up I get double vision or ghost vision
Mimi987
in
Glaucoma UK
1 day ago
Short sighted
Has anybody gone from being long sighted to short sighted even allow long distance lens had been put in after cataract surgery or so they say
Has anybody gone from being long sighted to short sighted even allow long distance lens had been put in after cataract surgery or so they say
Janebirch1
in
Glaucoma UK
4 days ago
Drainage Tube Surgery
Hi. I had primary open angle glaucoma in both eyes diagnosed in 2017. Had right eye trabeculectomy in 2019 and that eye has been fairly stable since. The left eye had a XEN implant In 2019, cataract surgery in 2022, retinal detachment in 2023, and selective laser trabeculectomy in July 2024. Despite
Hi. I had primary open angle glaucoma in both eyes diagnosed in 2017. Had right eye trabeculectomy in 2019 and that eye has been fairly stable since. The left eye had a XEN implant In 2019, cataract surgery in 2022, retinal detachment in 2023, and selective laser trabeculectomy in July 2024. Despite
GCPizza
in
Glaucoma UK
4 days ago
Neck mass
Hi guys,I am new to this site and was wondering if anyone can tell me if a person can have graves disease even I f blood test at doctors came back as normal.am waiting to see an endocrinologist but was surprised when there was no mention of graves disease.my ultrasound showed a neck mass on right of
Hi guys,I am new to this site and was wondering if anyone can tell me if a person can have graves disease even I f blood test at doctors came back as normal.am waiting to see an endocrinologist but was surprised when there was no mention of graves disease.my ultrasound showed a neck mass on right of
PastaPrincess52
in
Thyroid UK
4 days ago
I stent and cataract surgery 🥲
my consultant has now said I have the start of cataracts bin both eyes 🥲my NTG is progressing despite being in maximum eye drops for3 months Visual field tests have shown progression So I’m due to have i stent and cataract surgery in next few weeks I’m trying to stay positive but also worried
my consultant has now said I have the start of cataracts bin both eyes 🥲my NTG is progressing despite being in maximum eye drops for3 months Visual field tests have shown progression So I’m due to have i stent and cataract surgery in next few weeks I’m trying to stay positive but also worried
Crafty-gran
in
Glaucoma UK
5 days ago
I’m new!
hello, I am new here, and just been diagnosed with glaucoma in both eyes. Apparently early stages, I’m 43, and my dad has it too. I am wondering if anyone here has found natural/ alternative ways to lower eye pressure? I’m aware this might not work but I really don’t like putting medicine in my
hello, I am new here, and just been diagnosed with glaucoma in both eyes. Apparently early stages, I’m 43, and my dad has it too. I am wondering if anyone here has found natural/ alternative ways to lower eye pressure? I’m aware this might not work but I really don’t like putting medicine in my
Townyowl
in
Glaucoma UK
5 days ago
I am feeling great!
So, a few months ago , I was struggling to get below 2 mgs of prednisone. I have had pmr for 4 years. I did the keto diet, vegan diet, gluten free, and every other diet, to control my inflammation. Two months ago I started the Carnivore diet. I eat steak, chicken, all fish, eggs, and some dairy. I
So, a few months ago , I was struggling to get below 2 mgs of prednisone. I have had pmr for 4 years. I did the keto diet, vegan diet, gluten free, and every other diet, to control my inflammation. Two months ago I started the Carnivore diet. I eat steak, chicken, all fish, eggs, and some dairy. I
paleolady
in
PMRGCAuk
5 days ago
SubCu Injection - Absorption?
Hi Folks I have the excellent Chandy book on B12 Def. I recommend it anyone with PA/B12 Def. issues. From reading it....I have a question ref B12 absorption, using subcutaneous injection. Dr Chandy ( book ref 3.5.1.2) says that "...some people may observe a red bruising at the injection
Hi Folks I have the excellent Chandy book on B12 Def. I recommend it anyone with PA/B12 Def. issues. From reading it....I have a question ref B12 absorption, using subcutaneous injection. Dr Chandy ( book ref 3.5.1.2) says that "...some people may observe a red bruising at the injection
Treesong2023
in
Pernicious Anaemia Society
6 days ago
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