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GCA and Elevation
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
I have had PMR for 5 years and was diagnosed with GCA in September of 2023. I presently am on 4mg of prednisone. I am feeling good and continue to be pretty active and just turned 70 year old. I walk at least 3 miles a day, bike long distances and kayak. I plan on taking a hike up to 10,000 feet
Mooreby
in
PMRGCAuk
2 months ago
b 1 Therapy
Hello fellow readers. My name is Sakina. I am soo confused about the b1 therapy. I have been taking b1 sublingual 100 mg three times in a week under the tongue for quite a while l, but have noticed no difference. So now I am taking 100mgs of Thiamine Mononitrate. Which is better Thiamine Hydrochloride
Hello fellow readers. My name is Sakina. I am soo confused about the b1 therapy. I have been taking b1 sublingual 100 mg three times in a week under the tongue for quite a while l, but have noticed no difference. So now I am taking 100mgs of Thiamine Mononitrate. Which is better Thiamine Hydrochloride
Springbreak
in
Cure Parkinson's
3 months ago
Safe eye makeup
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
I'm a 69 y/o female taking Lumigan eye drops for dx of Glaucoma suspect and IOP (took Latanoprost drops previously but my pressure was increasing a bit so changed drops). My pressures have been pretty consistent at 17 in both eyes, so I feel pretty lucky right now. I had a S/P LPI procedure in 2012 (
Marocean
in
Glaucoma UK
3 months ago
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Eye Supplement Concern
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Eye doctor highly recommended taking supplement Preservision. I cleared with hematology re peginterferon but after buying it, researching ingredients and checking interactions am concerned. Twice a day ingredients: C = 250 mg, E = 90 mg, zinc= 40 mg, copper = 1 mg, Lutein = 5 mg. Except Lutein,
Mishie14
in
MPN Voice
3 months ago
Mixed messages
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Does anyone have glaucoma and also suffer with migraines auras . I have both ,taking drops for the glaucoma, but just paracetamol for the migraines.?My neurologist won't treat them unless I have more than 5 Attacks a month. I am getting 2/3 . Wondering how you cope, as I am getting a bit depressed
Lancashirelass07
in
Glaucoma UK
3 months ago
cataract surgery
hi - I am healthy & 65. Very myopic (-10 & -9) with glaucoma in left eye). I have just dropped below DVLA driving limit so consultant is recommending cataract surgery in both eyes (NHS). My question is would it be worth it in terms of quality of vision improvement to go private as I understand that various
hi - I am healthy & 65. Very myopic (-10 & -9) with glaucoma in left eye). I have just dropped below DVLA driving limit so consultant is recommending cataract surgery in both eyes (NHS). My question is would it be worth it in terms of quality of vision improvement to go private as I understand that various
t55ddy
in
Glaucoma UK
3 months ago
Dark shadows from glaucoma eye drops
Hi I was diagnosed almost 3 yrs ago and simply handed a leaflet and a prescription. I now have to use them 3 times a day as the pressure has worsened.The dark shadows in my eye sockets now look so bad, although I did read about this I have never been told if there is an alternative. The nurse at the
Hi I was diagnosed almost 3 yrs ago and simply handed a leaflet and a prescription. I now have to use them 3 times a day as the pressure has worsened.The dark shadows in my eye sockets now look so bad, although I did read about this I have never been told if there is an alternative. The nurse at the
doileyqueen
in
Glaucoma UK
3 months ago
Rituximab and Denosumab
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Has anyone had a Denosumab injection after having a Retuximab infusion. I have just had my second infusion and due a Denosumab injection soon. Just read that Denosumab can increase the risk of serious infection with Rituximab. Rheumatology have said that it's OK, but I don't trust them.
Jacko37
in
NRAS
3 months ago
Sjorgren syndrome
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Pippapot
in
MPN Voice
3 months ago
Puffy eyes
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Hi 👋 Has anyone experienced puffy eyelids and a bit of swelling under the eyes? I have lupus and sjogrens so not sure which would cause this.. I am having a painful flare at the moment. Quite new to this as diognosed Dec 2022. Only seen rheumatologist once and due to see them again this month but have
Lucylou72
in
LUPUS UK
3 months ago
Dry Eye Webinar
Hello everyone, I wanted to let you all know about our next Digital Glaucoma Support Group - this session will be discussing Dry Eye. This is a topic that is often requested when we ask for topic suggestions, and we get lots of phone calls to the Glaucoma UK helpline about Dry Eye. This is your chance
Hello everyone, I wanted to let you all know about our next Digital Glaucoma Support Group - this session will be discussing Dry Eye. This is a topic that is often requested when we ask for topic suggestions, and we get lots of phone calls to the Glaucoma UK helpline about Dry Eye. This is your chance
Robyn_GlaucomaUK
in
Glaucoma UK
3 months ago
Faricimab injections and exercise
I’ve just been diagnosed with wet AMD R eye - my long sighted eye I used to use for driving - sadly no more - and dry AMD L eye (shortsighted) After each injection we are instructed to not do a variety of things including physical exertion for 5 days. No one has yet explained why no exertion and what
I’ve just been diagnosed with wet AMD R eye - my long sighted eye I used to use for driving - sadly no more - and dry AMD L eye (shortsighted) After each injection we are instructed to not do a variety of things including physical exertion for 5 days. No one has yet explained why no exertion and what
Birchermu
in
Macular Society
3 months ago
SECOND CATARACT SURGERY- LEFT EYE
Gmorning all! Had my second cataract done early yesterday morning. Typing this without glasses today. Yay! Op took 15 minutes. This time he injected the antibiotics and Pred instead of sending me home with 3 bottles of eye drops. The injection is into the bottom lid, not the actual eyeball which was
Gmorning all! Had my second cataract done early yesterday morning. Typing this without glasses today. Yay! Op took 15 minutes. This time he injected the antibiotics and Pred instead of sending me home with 3 bottles of eye drops. The injection is into the bottom lid, not the actual eyeball which was
Missus835
in
PMRGCAuk
3 months ago
'glasses/lenses' for driving at night
Hello everyone a it of background. Just over a year ago I was diagnosed with closed angles in my right eye and mild cataracts in both eyes I had an iridotomy in both eyes shortly after, side effect suffered was a permanent white 'line' in right eye. No drops given but Hycosan drops form optician
Hello everyone a it of background. Just over a year ago I was diagnosed with closed angles in my right eye and mild cataracts in both eyes I had an iridotomy in both eyes shortly after, side effect suffered was a permanent white 'line' in right eye. No drops given but Hycosan drops form optician
Seahorse0
in
Glaucoma UK
3 months ago
Post-op FAQs
Hello Glaucoma UK community, I am currently in the process of creating a page on our website for the most commonly asked questions with regards to glaucoma treatments and surgeries. As you might know, we operate a buddy scheme at Glaucoma UK, which allows us to put people who are due to have a glaucoma
Hello Glaucoma UK community, I am currently in the process of creating a page on our website for the most commonly asked questions with regards to glaucoma treatments and surgeries. As you might know, we operate a buddy scheme at Glaucoma UK, which allows us to put people who are due to have a glaucoma
KieranGlaucomaUK
Administrator
in
Glaucoma UK
3 months ago
Adult disability payment for CRVO
Hello 👋🏻 I’m not looking for any in-depth information but wondered if anyone has applied and awarded ADP (the PIP equivalent in Scotland), for CRVO and glaucoma, where you have regular injections and have slight vision loss. thanks 🙏🏻
Hello 👋🏻 I’m not looking for any in-depth information but wondered if anyone has applied and awarded ADP (the PIP equivalent in Scotland), for CRVO and glaucoma, where you have regular injections and have slight vision loss. thanks 🙏🏻
Vich81
in
Macular Society
3 months ago
bleb needling procedure recovery time
Hi, I had a Trabeculectomy just shy of 2 years ago which has been stable however I’ve now got a build up of scar tissue which has caused the pressure to spike. After 8 weeks on steroid eye drops with no change in eye pressure I’m now to have a needling procedure on the bleb on Monday coming. I’m just
Hi, I had a Trabeculectomy just shy of 2 years ago which has been stable however I’ve now got a build up of scar tissue which has caused the pressure to spike. After 8 weeks on steroid eye drops with no change in eye pressure I’m now to have a needling procedure on the bleb on Monday coming. I’m just
Eyehelp5
in
Glaucoma UK
3 months ago
Info needed please
Hi Has anyone got any information on low blood pressure/nocturnal hypertension linked with optic nerve loss and glaucoma as I have been reading that this could be a cause of vision loss I have also been looking at new treatments for vision loss linked to Glaucoma and have come across a clinic in
Hi Has anyone got any information on low blood pressure/nocturnal hypertension linked with optic nerve loss and glaucoma as I have been reading that this could be a cause of vision loss I have also been looking at new treatments for vision loss linked to Glaucoma and have come across a clinic in
Bazzer65
in
Glaucoma UK
3 months ago
Advice on Cataract surgery / narrow angle
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Martyn321
in
Glaucoma UK
3 months ago
Thyroid Dysfunction and PD
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
Dabaa
in
Cure Parkinson's
3 months ago
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