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Pegasys Side Effects
Hello All - Two months ago I started injecting 45mcg of Pegasys weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water. So the issue doesn't seem to be very
Hello All - Two months ago I started injecting 45mcg of Pegasys weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water. So the issue doesn't seem to be very
Proton_1
in
MPN Voice
3 months ago
Uvetis and Glaucoma and detached retinas
Hi, wondering what treatment people are having if they have uveitis and secondary glaucoma as result of this? I'm asthmatic so only one type of drop is suitable for me. Can't have drugs or SLT to bring pressure down. I heard GATT had successful outcomes but not sure if available outside of Birmingham
Hi, wondering what treatment people are having if they have uveitis and secondary glaucoma as result of this? I'm asthmatic so only one type of drop is suitable for me. Can't have drugs or SLT to bring pressure down. I heard GATT had successful outcomes but not sure if available outside of Birmingham
Wholeofthe
in
Glaucoma UK
3 months ago
Bolts Brainwave Entrainment Protocol
So... on today's Zoom call I was asked to re-post the link to the 40 HZ brainwave entrainment audio file I created and have been using. So here it is, plus some info:
I apologize for going off of memory, but there are a number of reasons for using this audio file (or something like it or something
So... on today's Zoom call I was asked to re-post the link to the 40 HZ brainwave entrainment audio file I created and have been using. So here it is, plus some info:
I apologize for going off of memory, but there are a number of reasons for using this audio file (or something like it or something
Bolt_Upright
in
Cure Parkinson's
3 months ago
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Cataract surgery
I often read the experiences on CLL shared by our group on HealthUnlocked, and it's reassuring. I was diagnosed with CLL in 2013. After a long period of watch and wait (W&W), I was given only 2 cycles of chemo (BR) in 2019 instead of the planned 6 cycles due to severe side effects. Fortunately, I experienced
I often read the experiences on CLL shared by our group on HealthUnlocked, and it's reassuring. I was diagnosed with CLL in 2013. After a long period of watch and wait (W&W), I was given only 2 cycles of chemo (BR) in 2019 instead of the planned 6 cycles due to severe side effects. Fortunately, I experienced
attarintiki
in
CLL Support
3 months ago
DVLA Esterman test
I am 73 and as my licence was coming up for renewal I received a letter from the DVLA to apply for a new one. In the letter it stated that I could simply complete the online questionaire or, if I had any of the listed conditions (one being Glaucoma) I should complete the form and return it to them
I am 73 and as my licence was coming up for renewal I received a letter from the DVLA to apply for a new one. In the letter it stated that I could simply complete the online questionaire or, if I had any of the listed conditions (one being Glaucoma) I should complete the form and return it to them
monks100
in
Glaucoma UK
3 months ago
Post Preserflo implant
I recently had a Preserflo implant and have been applying the steroid and antibiotic drops. Is it okay to use dry eye drops as well? The eye is itchy and it could do with some extra lubrication.
I recently had a Preserflo implant and have been applying the steroid and antibiotic drops. Is it okay to use dry eye drops as well? The eye is itchy and it could do with some extra lubrication.
hirsey12
in
Glaucoma UK
3 months ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
LeoTravels
in
MPN Voice
3 months ago
Normal pressure glaucoma -having a rant
I’ve just recently been diagnosed with normal pressure glaucoma. I’ve always been very short sighted so Ive always had regular eye checks from a contact lens optician and a different specs optician. I go to the same place every year. About 18months ago my contact lens optician said that the thinning
I’ve just recently been diagnosed with normal pressure glaucoma. I’ve always been very short sighted so Ive always had regular eye checks from a contact lens optician and a different specs optician. I go to the same place every year. About 18months ago my contact lens optician said that the thinning
WaitandSee
in
Glaucoma UK
3 months ago
Photosensitivity, eye pain and headache.
I have been photosensitive for about three years now but this year I seem to be struggling with quite intense eye pain and subsequent headache (around the forehead) when outside. The headache goes upon going into deep shade or into the house. I do however, find myself squinting even in the home. I do
I have been photosensitive for about three years now but this year I seem to be struggling with quite intense eye pain and subsequent headache (around the forehead) when outside. The headache goes upon going into deep shade or into the house. I do however, find myself squinting even in the home. I do
RosieA
in
LUPUS UK
3 months ago
Nafarelin/Synarel down reg - when did you get period?
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Prettypenny1
in
Fertility Network UK
3 months ago
Eye surgery
my doctor told me he wants to do surgery on my eye to straighten out a crease on the retina membrane. At the same time he said he will do a procedure that might eliminate the need for the injections I’ve been having for AMD. is anyone familiar with this?
my doctor told me he wants to do surgery on my eye to straighten out a crease on the retina membrane. At the same time he said he will do a procedure that might eliminate the need for the injections I’ve been having for AMD. is anyone familiar with this?
Blindbasset
in
Macular Society
3 months ago
Posterior vitreous detachment
I had an unexpected issue in the last few days which started with large black flashes then the following day black ‘squiggles’ - went to Eye AandE and they said nothing to do with my normal tension glaucoma and I will have to live with this annoying condition which is very distracting. Has anyone else
I had an unexpected issue in the last few days which started with large black flashes then the following day black ‘squiggles’ - went to Eye AandE and they said nothing to do with my normal tension glaucoma and I will have to live with this annoying condition which is very distracting. Has anyone else
Gillian36
in
Glaucoma UK
3 months ago
Retinal Vein Occlusion Treatments?
Hi. I am looking for people who have or have had RVO (retinal vein occlusion) and have had Ozurdex injections to treat this issue. I'm working with a pharma client on an educational video for their website and I need to connect with people with RVO who would like to share their experience. I can provide
Hi. I am looking for people who have or have had RVO (retinal vein occlusion) and have had Ozurdex injections to treat this issue. I'm working with a pharma client on an educational video for their website and I need to connect with people with RVO who would like to share their experience. I can provide
BluePE
in
Glaucoma UK
3 months ago
Prednisone vs Acterma with steroid induced diabetes. Really terrified
Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to have steroid induced diabetes which makes the general anesthesia too risky at this point. Rescheduled for August tentatively while we work on
Update: April 2024 was scheduled for eye surgery for Strabismus which was canceled days before when in the same week I was determined by my Endocrinologist to have steroid induced diabetes which makes the general anesthesia too risky at this point. Rescheduled for August tentatively while we work on
JanetGarrettN
in
PMRGCAuk
3 months ago
Trabeculectomy tips?
Hi I was diagnosed two or three years ago just prior to my 50th birthday. Drops have been ok but left eye seems to be deteriorating quite rapidly. I am having a trabeculectomy in my left eye in a couple of weeks. I know surgery is experienced differently for everyone but wondered if anyone had any tips
Hi I was diagnosed two or three years ago just prior to my 50th birthday. Drops have been ok but left eye seems to be deteriorating quite rapidly. I am having a trabeculectomy in my left eye in a couple of weeks. I know surgery is experienced differently for everyone but wondered if anyone had any tips
RobMitchell
in
Glaucoma UK
3 months ago
Glaucoma dvla test
Hi, just have been getting treatment for pigment dispersion glaucoma for 6 year. I've had full field of vision. I've had one lot of bilateral selective laser surgery back in 2017.I've recently had a new doctor and he has decided it's time to inform the dvla although my tests have been fine. I'm getting
Hi, just have been getting treatment for pigment dispersion glaucoma for 6 year. I've had full field of vision. I've had one lot of bilateral selective laser surgery back in 2017.I've recently had a new doctor and he has decided it's time to inform the dvla although my tests have been fine. I'm getting
WillyC75
in
Glaucoma UK
3 months ago
Avastin + Taxol + Carbo & eye problems
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge floater thats driving me mad! Anyone else experience this? I had a head scan which came back normal. 4 days ago had round 5, so currently suffering
Kazzh
in
My Ovacome
3 months ago
Never ending circle
Morning everyone, just looking for advice and to vent a little. I have posted a few times about my journey but finally thought I had got some answers. Quick recap- after years of being fobbed off by my GP, I eventually went private to see a rheumatologist who actually listened. Initially he diagnosed
Morning everyone, just looking for advice and to vent a little. I have posted a few times about my journey but finally thought I had got some answers. Quick recap- after years of being fobbed off by my GP, I eventually went private to see a rheumatologist who actually listened. Initially he diagnosed
Mctd
in
LUPUS UK
4 months ago
Can you help regarding symptoms?
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
FreeWolf
in
PMRGCAuk
4 months ago
Paul Tube implant for Glaucoma
Hello, I am new here and wonder if anyone else has experience of having this surgery? After many years of using various eye drops and also an unsuccessful SLT on my right eye, my consultant advised me to have this surgery in an attempt to lower my IOP thus preventing even further loss of vision. He chose
Hello, I am new here and wonder if anyone else has experience of having this surgery? After many years of using various eye drops and also an unsuccessful SLT on my right eye, my consultant advised me to have this surgery in an attempt to lower my IOP thus preventing even further loss of vision. He chose
Rainyday2024
in
Glaucoma UK
4 months ago
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