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Tapering problem
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Raewynne
in
PMRGCAuk
7 months ago
Demodex Blepharitis treatments?
Hello, all. Glaucoma diagnosed late 2019. Initially drops tolerated ok think Latanoprost plus other.After a while developed bad red eyes, itching. Tried various drops since including preservative free, had both cataracts done. Tablets Azetazoloimide? Worked well, not able stay on them! Stopped taking
Hello, all. Glaucoma diagnosed late 2019. Initially drops tolerated ok think Latanoprost plus other.After a while developed bad red eyes, itching. Tried various drops since including preservative free, had both cataracts done. Tablets Azetazoloimide? Worked well, not able stay on them! Stopped taking
TVTech
in
Glaucoma UK
7 months ago
PV and AMD?
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
sbs_patient
in
MPN Voice
7 months ago
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PIC - Punctate Inner Choroidopathy
Hi. I have just received a diagnosis for the above condition. I understand it’s extremely rare and would like to hear about other people’s experiences. I’m literally just on the journey and have had the first of 3 ‘rescue’ injections to prevent further sight loss. Would be good to connect with others
Hi. I have just received a diagnosis for the above condition. I understand it’s extremely rare and would like to hear about other people’s experiences. I’m literally just on the journey and have had the first of 3 ‘rescue’ injections to prevent further sight loss. Would be good to connect with others
Rome2023
in
Macular Society
7 months ago
small eyey
I don’t look like my eyes are normal size but the consultant says they are small, not deep and short ??? Says cataract op would be difficult when the time comes . Says further laser surgery not possible. has anyone else been told this ? I worries me for the future
I don’t look like my eyes are normal size but the consultant says they are small, not deep and short ??? Says cataract op would be difficult when the time comes . Says further laser surgery not possible. has anyone else been told this ? I worries me for the future
Sufitzy
in
Glaucoma UK
7 months ago
Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
7 months ago
Hashi symptoms still or tired/dry eyes?
Hey everyone, Still on my journey to "optimal" health and lab's whilst having Hashimoto's. Diagnosed 18 month ago. I have a strange one for you, or, not so strange, right now I'm not sure. So, currently on 162.5mcg of Levo and 10 mcg of Lio. I would say symptom wise I am feeling the best I have in
Hey everyone, Still on my journey to "optimal" health and lab's whilst having Hashimoto's. Diagnosed 18 month ago. I have a strange one for you, or, not so strange, right now I'm not sure. So, currently on 162.5mcg of Levo and 10 mcg of Lio. I would say symptom wise I am feeling the best I have in
dexterholland91
in
Thyroid UK
7 months ago
Delayed injection
I have wet md and glaucoma in both eyes. I was scheduled for left eye injection 1/10. I called to confirm my appointment that was made in Nov. and was told it had been cancelled. They said something about my insurance being FFS and I need CAP to get treatment. I have been going to this facility for
I have wet md and glaucoma in both eyes. I was scheduled for left eye injection 1/10. I called to confirm my appointment that was made in Nov. and was told it had been cancelled. They said something about my insurance being FFS and I need CAP to get treatment. I have been going to this facility for
eyeseeu
in
Macular Society
7 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
7 months ago
Nafarelin
Hi! I’m about to enter my second cycle of IVF, a frozen transfer this time. I’ve been subscribed Nafarelin nasal spray. I didn’t know a nasal spray was on the agenda (not that I’m phased!). Has anyone else had this? I googled and it’s instead of buserelin injections. Does this mean I might not have to
Hi! I’m about to enter my second cycle of IVF, a frozen transfer this time. I’ve been subscribed Nafarelin nasal spray. I didn’t know a nasal spray was on the agenda (not that I’m phased!). Has anyone else had this? I googled and it’s instead of buserelin injections. Does this mean I might not have to
Here4ivfinfo
in
Fertility Network UK
8 months ago
Bruising
I noticed someone mentioned bruising. I have hurt my right thump two weeks back cutting up veg. The whole of the thumb pad is dark mauve The pharmacist said it was a circulation problem and I bought a tube of Hirudoid cream 5 mg to put on 4 times a day. This is the first day. He knew I was on
I noticed someone mentioned bruising. I have hurt my right thump two weeks back cutting up veg. The whole of the thumb pad is dark mauve The pharmacist said it was a circulation problem and I bought a tube of Hirudoid cream 5 mg to put on 4 times a day. This is the first day. He knew I was on
Motida
in
PMRGCAuk
8 months ago
Pegasys is applying for formal approval in MPN treatment
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
Dear friends, I came across a EMA document recently and found that Pegasys is applying for indication extension to PV and ET. It provides, on page 53: “Grouped application consisting of: Extension of indication to include treatment of Polycythaemia Vera (PV) and Essential thrombocytopenia (ET) for
TimothyHLuff
in
MPN Voice
8 months ago
what next?
I was diagnosed with PMR five years ago and my gp kept me on Prednisolone for two years which resulted in a catalogue of side effects including glaucoma and cataracts. My diagnosis was confirmed as RA shortly after. I have been taking methotrexate successfully since. However my condition has worsened
I was diagnosed with PMR five years ago and my gp kept me on Prednisolone for two years which resulted in a catalogue of side effects including glaucoma and cataracts. My diagnosis was confirmed as RA shortly after. I have been taking methotrexate successfully since. However my condition has worsened
Pange63
in
NRAS
8 months ago
Recent Glaucoma diagnose
Recently diagnosed with bilateral chronic simple glaucoma, which I have presumed is open angle? Not had much information and also not one person has told me that I need to inform the dvla!After reading posts on here I'm so worried that I may lose my driving licence. I've completed the form and waiting
Recently diagnosed with bilateral chronic simple glaucoma, which I have presumed is open angle? Not had much information and also not one person has told me that I need to inform the dvla!After reading posts on here I'm so worried that I may lose my driving licence. I've completed the form and waiting
Lucky200
in
Glaucoma UK
8 months ago
Flare up or just Fatigue?
I have tapered to 7.5 mg this month using Dorset Lady's table, but in the last few days I have pains around the hips which is only relieved by sitting down. I wake up around 4.30 a.m. and so have several spells of faitigue/deep sleeps in the early evening. When I am out I lean against counters
I have tapered to 7.5 mg this month using Dorset Lady's table, but in the last few days I have pains around the hips which is only relieved by sitting down. I wake up around 4.30 a.m. and so have several spells of faitigue/deep sleeps in the early evening. When I am out I lean against counters
Motida
in
PMRGCAuk
8 months ago
Dry eye medication
For several years since eye surgery I have been prescribed eye lubricants. The prescriptions always say Thealoz Duo Gel yet I have always been given the Thealoz Duo UD even when I questioned this several times. Recently I was given the Gel form and nothing else. Of course this is excellent at night
For several years since eye surgery I have been prescribed eye lubricants. The prescriptions always say Thealoz Duo Gel yet I have always been given the Thealoz Duo UD even when I questioned this several times. Recently I was given the Gel form and nothing else. Of course this is excellent at night
muddledme
in
Glaucoma UK
8 months ago
Starting Pegasys soon
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
Hi all and merry belated Christmas So… chemo…. I was diagnosed with ET about a year ago and finally found an MPN specialist in Montreal after a few months with a hemo who, unfortunately, knew very little about ET. I should be starting Pegasys sometime in January and I have a few questions :
IsabelleHo
in
MPN Voice
8 months ago
ThyroidDisease and Cataracts
Has anyone had any experience with developing cataracts and is there a potential link to thyroid disease? My ophthalmologist has told me my thyroid eye disease makes me a poor surgical candidate.and getting a second opinion is pretty much out of the question. I am 61 and an active sewer and the prospect
Has anyone had any experience with developing cataracts and is there a potential link to thyroid disease? My ophthalmologist has told me my thyroid eye disease makes me a poor surgical candidate.and getting a second opinion is pretty much out of the question. I am 61 and an active sewer and the prospect
Vernonwendy
in
Thyroid UK
8 months ago
Simbrinza shortage?
Over the years my opthamologist and I have settled on Simbrinza eye drops as the best for my glaucoma. Yesterday my pharmacist tells me he can't find the drops anywhere and he's going to keep looking. We're in SE London area. Any suggestions? Thanks
Over the years my opthamologist and I have settled on Simbrinza eye drops as the best for my glaucoma. Yesterday my pharmacist tells me he can't find the drops anywhere and he's going to keep looking. We're in SE London area. Any suggestions? Thanks
meandpd
in
Glaucoma UK
7 months ago
ubiquinone vs ubiquinol
I have just realised my Coq10 I’ve been taking for three months is ubiquinone form. I just thought I was taking ubiquinol 😫 Been doing 300mg twice a day. I’m worried I’ve missed a trick now. I’ve ordered some ubiquinol now but I’m starting downreg in about three weeks. Thoughts please lovely people
I have just realised my Coq10 I’ve been taking for three months is ubiquinone form. I just thought I was taking ubiquinol 😫 Been doing 300mg twice a day. I’m worried I’ve missed a trick now. I’ve ordered some ubiquinol now but I’m starting downreg in about three weeks. Thoughts please lovely people
Cuppppatea
in
Fertility Network UK
8 months ago
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