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CLL - Leukemia Cutis
Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5 months, but I was never at MRD. A biopsy of a "rash" on my scalp shows Leukemia Cutis - most likely CLL related. Has anyone else had this? How
Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5 months, but I was never at MRD. A biopsy of a "rash" on my scalp shows Leukemia Cutis - most likely CLL related. Has anyone else had this? How
misterbee
in
CLL Support
6 months ago
wk7run3(revisited)
wow!! That wind!! I lay awake last night listening to it blow people’s recycling up and down the street and thought to myself “ I probably won’t run”. Then this morning the forecast said it was gonna die down so I ate breakfast and let that go down and then ran. I would have run yesterday but I do
wow!! That wind!! I lay awake last night listening to it blow people’s recycling up and down the street and thought to myself “ I probably won’t run”. Then this morning the forecast said it was gonna die down so I ate breakfast and let that go down and then ran. I would have run yesterday but I do
limberlou
Graduate
in
Couch to 5K
6 months ago
Does Maxidex steroid add to Pred dose?
I had a new lens fitted on 2 April and have to use Dexamethasomex or Maxidex four times a day. Does this add to my total steroid intake with the Pred. Am on 10 mg after a flare and trying to get back to 7.5 as soon as possible. I also have a preventative asthma inhaler which is a steroid presumably
I had a new lens fitted on 2 April and have to use Dexamethasomex or Maxidex four times a day. Does this add to my total steroid intake with the Pred. Am on 10 mg after a flare and trying to get back to 7.5 as soon as possible. I also have a preventative asthma inhaler which is a steroid presumably
Motida
in
PMRGCAuk
6 months ago
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Kerfufalmelodious
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
Kerfufalmelodious
in
PMRGCAuk
6 months ago
Weight Training
Hi, After some advice or thoughts really. I have glaucoma in one eye, damage already done, had a couple of surgeries to help with pressure (MIGS) and am now 6 months removed from that last one. Is like to start building muscle as I am not getting younger (49 at the moment) and have read conflicting
Hi, After some advice or thoughts really. I have glaucoma in one eye, damage already done, had a couple of surgeries to help with pressure (MIGS) and am now 6 months removed from that last one. Is like to start building muscle as I am not getting younger (49 at the moment) and have read conflicting
Jeffvader
in
Glaucoma UK
6 months ago
Drops affecting eyelashes
I'm 41, had a combined trab & lens replacement in right eye 2 years ago and just lens replacement in left eye a few months later. Now the only drops I take are Dorzolamide timolol in the left eye, twice a day.I switched to the preservative free drops a few months ago but I think it's negatively affecting
I'm 41, had a combined trab & lens replacement in right eye 2 years ago and just lens replacement in left eye a few months later. Now the only drops I take are Dorzolamide timolol in the left eye, twice a day.I switched to the preservative free drops a few months ago but I think it's negatively affecting
LyndseyMoo
in
Glaucoma UK
6 months ago
EXCESSIVE WATERING EYES
I have had normal tension glaucoma for about 12 years, I’ve had a variety of eye drops for 10 years and a Deep Scleretomy operation on my right eye 18 months ago which now needs a Bleb adjustment. For the last few years I have had a real problem with watering eyes which has gone worse in my right eye
I have had normal tension glaucoma for about 12 years, I’ve had a variety of eye drops for 10 years and a Deep Scleretomy operation on my right eye 18 months ago which now needs a Bleb adjustment. For the last few years I have had a real problem with watering eyes which has gone worse in my right eye
Ella59
in
Glaucoma UK
6 months ago
IOP question
Last month,after a allergic conjuctivitis treatment which includes steroids drop,I measured my intraocular pressure,it's 16 in both eyes.Today,I measured it again and it's 18mmHg.My eye pressure was measured at 10am, why is there a difference?
Last month,after a allergic conjuctivitis treatment which includes steroids drop,I measured my intraocular pressure,it's 16 in both eyes.Today,I measured it again and it's 18mmHg.My eye pressure was measured at 10am, why is there a difference?
Our-poor-guys
in
Glaucoma UK
6 months ago
How accurate is a visual field test?
Hello I am new to this site but have been a member of Health Unlocked for some time. I have had glaucoma in both eyes for approximately 11 years and was well controlled until about 3.5 years ago when I developed uveitis in my left eye (my worse eye for glaucoma). It was treated as an acute emergency
Hello I am new to this site but have been a member of Health Unlocked for some time. I have had glaucoma in both eyes for approximately 11 years and was well controlled until about 3.5 years ago when I developed uveitis in my left eye (my worse eye for glaucoma). It was treated as an acute emergency
Mitziecat
in
Glaucoma UK
6 months ago
Edoxaban and dreams and nightmares
Hi all, Hope you all have a great Easter ... plenty of chocolate and bunnies ..... or even warm, sunny, dry weather ! Have any of you who take Edoxaban experienced the worst most sleep destroying nightmares of a violent topic ? Or even any nondescript dreams or nightmares. I did put a post on here
Hi all, Hope you all have a great Easter ... plenty of chocolate and bunnies ..... or even warm, sunny, dry weather ! Have any of you who take Edoxaban experienced the worst most sleep destroying nightmares of a violent topic ? Or even any nondescript dreams or nightmares. I did put a post on here
BenHall1
in
Atrial Fibrillation Support
6 months ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
6 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
6 months ago
Webinar: Is it possible to slow myopia progression in childhood and adolescence?
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Carol_MacularSociety
Partner
in
Macular Society
6 months ago
Still no photo
Short episode for tonight. Mum's life has not always followed a smooth course and she has never been one to complain. It was only after several months of poor vision that she finally went to the optician only to discover too late that she had a badly detached retina. She was quickly admitted to hospital
Short episode for tonight. Mum's life has not always followed a smooth course and she has never been one to complain. It was only after several months of poor vision that she finally went to the optician only to discover too late that she had a badly detached retina. She was quickly admitted to hospital
LissacFrance
in
Lung Conditions Community Forum
6 months ago
How long to wait for trabeculectomy?
I'm wondering how long people have waited for a trabeculectomy operation, once they have been told they need one, either through NHS or going private? I'm asking because when I saw my consultant ( privately) in Feb he said that the visual fields test showed there was some deterioration ( normal tension
I'm wondering how long people have waited for a trabeculectomy operation, once they have been told they need one, either through NHS or going private? I'm asking because when I saw my consultant ( privately) in Feb he said that the visual fields test showed there was some deterioration ( normal tension
Iona57
in
Glaucoma UK
6 months ago
Biologic and methotrexate injections
hi I have had an infection and had to delay my methotrexate by a few days which is fine apart from it’s now on the same day as my Biologic/Adalimumab. Does anyone know what time gap there should be between the two injections? Thank you x
hi I have had an infection and had to delay my methotrexate by a few days which is fine apart from it’s now on the same day as my Biologic/Adalimumab. Does anyone know what time gap there should be between the two injections? Thank you x
Amb1xkr
in
NRAS
6 months ago
Urgent Synarel - help!
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
MollyHar
in
Fertility Network UK
6 months ago
Unsure how to proceed after flare continues
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
Donna5658
in
PMRGCAuk
6 months ago
help with results please
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
I’d be grateful if anyone could help with results please. I’m on combined therapy 50mg T4 and 35mg T3 TFT 0.02 (0.35-4.94) FT3 4.5 (2.4-6.00) FT4 8.1 (9.00-19.00) B12 433 (187-883) Vit D 126.1 >50 Thank you :)
Bollieforme
in
Thyroid UK
6 months ago
Headaches!
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Tescohednesford
in
PMRGCAuk
6 months ago
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