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so excited today
Hi all , i was so excited today i took delivery of my Anti TNF enbrel , sharps bin and a huge huge pack so i have lots of reading to do this weekend. But am smiling from ear to ear.It was a very long journey to get here in fact 3 months. first the funding needed to be a approved , then the chest x ray
Hi all , i was so excited today i took delivery of my Anti TNF enbrel , sharps bin and a huge huge pack so i have lots of reading to do this weekend. But am smiling from ear to ear.It was a very long journey to get here in fact 3 months. first the funding needed to be a approved , then the chest x ray
sarah1967
in
NRAS
11 years ago
Two ex-rays and the go ahead with Etanercept (Enbrel) .......
Hi all, I had my appointment with Clinical Nurse this morning at 9.30 ( me, in a car at 8.30 in the morning, that was a feat in its-self !) My das 28 score was 6.2 this morning and with my last one being 6.1 I've past that part of the criterior. All my blood results are clear, which is good to know
Hi all, I had my appointment with Clinical Nurse this morning at 9.30 ( me, in a car at 8.30 in the morning, that was a feat in its-self !) My das 28 score was 6.2 this morning and with my last one being 6.1 I've past that part of the criterior. All my blood results are clear, which is good to know
petalnumber2
in
NRAS
11 years ago
3rd
hi guys hope u all doing ok, everyone having a bad day sending u lots of hugs just had 3rd Enbrel left it out for 30 mins today was ok didnt sting as much n dare i say it ?? i m feeling quite good so i asume its working yayyyyy remember 2wks ago when i had a mega melt down at the hospital and then
hi guys hope u all doing ok, everyone having a bad day sending u lots of hugs just had 3rd Enbrel left it out for 30 mins today was ok didnt sting as much n dare i say it ?? i m feeling quite good so i asume its working yayyyyy remember 2wks ago when i had a mega melt down at the hospital and then
alibonura
in
NRAS
11 years ago
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enbrel nurse coming
not looking fowardrd for the early start tomorrow takes me quite a while to get moving in the mornings but i do have the nurse coming to show me how to do the enbrel injections
not looking fowardrd for the early start tomorrow takes me quite a while to get moving in the mornings but i do have the nurse coming to show me how to do the enbrel injections
Hidden
in
NRAS
11 years ago
Follow-up discussion regarding 2013 research article about diagnosing Behcet's using a point system
I'm always pleased to see further refinement of the diagnosis classification systems for Behcet's. It's particularly important to have robust definitions in order to identify who should be included in wider research studies (such as the ongoing Behcet's studies at NIH and around the world). However
I'm always pleased to see further refinement of the diagnosis classification systems for Behcet's. It's particularly important to have robust definitions in order to identify who should be included in wider research studies (such as the ongoing Behcet's studies at NIH and around the world). However
amietamant
in
Behçet's UK
11 years ago
choice
IF an infusion was offered for ra injectable enbrel, cimza or humira, which would you chose and why? I Value advice and opinions on this one. Thanks particularly concerned about side effects and effectiveness, I have discounted infusion at this stage as it will interfer with trying to work Thank
IF an infusion was offered for ra injectable enbrel, cimza or humira, which would you chose and why? I Value advice and opinions on this one. Thanks particularly concerned about side effects and effectiveness, I have discounted infusion at this stage as it will interfer with trying to work Thank
Hidden
in
NRAS
11 years ago
Small receptacles for disposal of syringes when travelling/holidaying abroad ?
Hi folks, Paula C has been so helpful telling me much about travel with syringes etc and we were both interested in a cool bag Julie49 spoke of. I have read through my info packs from Enbrel, Humira and Simponi whilst making my decision on which to take (think it will be Enbrel) and lots of info
Hi folks, Paula C has been so helpful telling me much about travel with syringes etc and we were both interested in a cool bag Julie49 spoke of. I have read through my info packs from Enbrel, Humira and Simponi whilst making my decision on which to take (think it will be Enbrel) and lots of info
Neonkitty
in
NRAS
11 years ago
first enbrel box delivered but need advice
i received my first box today, put every thing away as ordered to enbrel in fridge and so on, but now im confused am i meant to wait for a nurse or some thing or do i just go ahead and do the the treatment its my first time any advice please thankyou,,,, vicky
i received my first box today, put every thing away as ordered to enbrel in fridge and so on, but now im confused am i meant to wait for a nurse or some thing or do i just go ahead and do the the treatment its my first time any advice please thankyou,,,, vicky
Hidden
in
NRAS
11 years ago
Confused.com ENBREL
Hi guys, I will be having my 9th injection of enbrel today and to be honest I'm not sure it's working or if my expectations are too high! I still have pain and swelling in both my hands and wrists. Some days are worse than others but I do have some good days where I feel almost normal... Is this how
Hi guys, I will be having my 9th injection of enbrel today and to be honest I'm not sure it's working or if my expectations are too high! I still have pain and swelling in both my hands and wrists. Some days are worse than others but I do have some good days where I feel almost normal... Is this how
donnalouisec
in
NRAS
11 years ago
enbrel
hi guys 2nd enbrel jab today, good it hurts when i do it, anyone else hurt wen the needle goes in ? A few seconds of pain is much worth days free of pain, am hoping it keeps working xxx hope all you guys are doing ok xx
hi guys 2nd enbrel jab today, good it hurts when i do it, anyone else hurt wen the needle goes in ? A few seconds of pain is much worth days free of pain, am hoping it keeps working xxx hope all you guys are doing ok xx
alibonura
in
NRAS
11 years ago
Active RA!!!
Hi Haven't blogged for a while, mainly due to not being well & quite frankly I've been suffering from depression on & off when I'm sick mainly. Up shot is my biological CIMZIA is not working as well & I'm still vit D deficient, so I have been flaring once again. I am recovering from last
Hi Haven't blogged for a while, mainly due to not being well & quite frankly I've been suffering from depression on & off when I'm sick mainly. Up shot is my biological CIMZIA is not working as well & I'm still vit D deficient, so I have been flaring once again. I am recovering from last
sciqueen
in
NRAS
11 years ago
enbrel happy
had a letter through today saying that they have tried to contact me on an old number ,,,so phoned back on number given on the letter lol well i start enbrel injections on thursday woo hoo im so happy just the though i may get rid of some pain ive been having
had a letter through today saying that they have tried to contact me on an old number ,,,so phoned back on number given on the letter lol well i start enbrel injections on thursday woo hoo im so happy just the though i may get rid of some pain ive been having
Hidden
in
NRAS
11 years ago
Desperate for advice
Hi all. I'm beginning to get to my wits end and really don't know which way to turn. I've been on here a few times asking for advice and need some more please. I've been trying for a baby since last October, managed to fall pregnant straight away, sadly miscarried and am back to trying again. At
Hi all. I'm beginning to get to my wits end and really don't know which way to turn. I've been on here a few times asking for advice and need some more please. I've been trying for a baby since last October, managed to fall pregnant straight away, sadly miscarried and am back to trying again. At
Janeye
in
NRAS
11 years ago
Enbrel, Humira or Simponi?
That is the question! I have had a first meeting with my Rneumatology nurse (despite idiot taxi company trying to scupper my chances of getting there. Went to pick me up from the hospital instead of taking me there as I had asked! I despair) yesterday afternoon. She was lovely and laid back and
That is the question! I have had a first meeting with my Rneumatology nurse (despite idiot taxi company trying to scupper my chances of getting there. Went to pick me up from the hospital instead of taking me there as I had asked! I despair) yesterday afternoon. She was lovely and laid back and
Neonkitty
in
NRAS
11 years ago
first blood results ,, since starting enbrel ..
today , i got the results from my first blood test since starting enbrel .. i started enbrel in january , and felt a differnce straight away ,, i just couldnt believe how fast it started to work .. i wanted to wait untill i got some blood results ,, before i came on line and started telling people
today , i got the results from my first blood test since starting enbrel .. i started enbrel in january , and felt a differnce straight away ,, i just couldnt believe how fast it started to work .. i wanted to wait untill i got some blood results ,, before i came on line and started telling people
_andy_
in
NRAS
11 years ago
alibonura
hi im new on here, hello everyone im Ali, i am 47, ive had RA for 7yrs ive been on salazopyrin 5oomg 2 twice a day for almost all of that time,Leflunomide 10mg 1 a day, lots of different pain killers, many steriod jabs that were amazing but now have no affect, arthritisis so active i was also started
hi im new on here, hello everyone im Ali, i am 47, ive had RA for 7yrs ive been on salazopyrin 5oomg 2 twice a day for almost all of that time,Leflunomide 10mg 1 a day, lots of different pain killers, many steriod jabs that were amazing but now have no affect, arthritisis so active i was also started
alibonura
in
NRAS
11 years ago
I've made RA more aware today :))))))))
Hi everybody,firstly thanks for all the well wishes for today's interview with my local paper and also many thanks to shirl for her blog:))) I set off with a load off thoughts,questions in my head wondering what the experience was going to be like,and it was so much easier and so much more relaxed than
Hi everybody,firstly thanks for all the well wishes for today's interview with my local paper and also many thanks to shirl for her blog:))) I set off with a load off thoughts,questions in my head wondering what the experience was going to be like,and it was so much easier and so much more relaxed than
Shell1967
in
NRAS
11 years ago
Can anyone help with info please....
have been on Enbrel injections for three weeks now but have started to get a raised red rash around the injection site since thursday of this week, taking antiestamines to help with the itching and reddness. The nursing team who contact me have assured me that this is normal ??? Has anyone else who
have been on Enbrel injections for three weeks now but have started to get a raised red rash around the injection site since thursday of this week, taking antiestamines to help with the itching and reddness. The nursing team who contact me have assured me that this is normal ??? Has anyone else who
jellybean14
in
NRAS
11 years ago
Sulfasalazine and trying to conceive
Hi all. Has anyone been on Sulfasalazine whilst trying to conceive? I've been off my usual Enbrel medication for some time but am regularly flaing and feel I need something to help me along. I am on a low dose of steroid but it's not holding things as well as i hoped. I know I should trust the
Hi all. Has anyone been on Sulfasalazine whilst trying to conceive? I've been off my usual Enbrel medication for some time but am regularly flaing and feel I need something to help me along. I am on a low dose of steroid but it's not holding things as well as i hoped. I know I should trust the
Janeye
in
NRAS
11 years ago
medication review
Had a doctors appointment today and was freezeing cold out their, they wanted to review my medication and see how i was, i had to be truthful and tell them the medication is not working and i am meant to be starting enbrel injection and havent heard from the rhuemy department, so the doctor
Had a doctors appointment today and was freezeing cold out their, they wanted to review my medication and see how i was, i had to be truthful and tell them the medication is not working and i am meant to be starting enbrel injection and havent heard from the rhuemy department, so the doctor
Hidden
in
NRAS
11 years ago
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