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No longer in NED.
I am freaking out right now. Right before I decide to celebrate with friends for my 5 year milestone, the cancer is active again and I feel defeated. I want to cancel the party next week. It’s all very overwhelming. I am ER/PR pos, HER2 neg. I’m in a lot of pain and although I am awaiting a chest
I am freaking out right now. Right before I decide to celebrate with friends for my 5 year milestone, the cancer is active again and I feel defeated. I want to cancel the party next week. It’s all very overwhelming. I am ER/PR pos, HER2 neg. I’m in a lot of pain and although I am awaiting a chest
Casual
in
SHARE Metastatic Breast Cancer
8 months ago
DX 5 years on Dec 26th. What I’ve learned about my PD. Please Read! It might be helpful.
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
PD is very common in my family. My dad and his dad had it. I have almost no hope they will ever cure it because it’s so complex. Here is what caused my Parkinson’s. (IMO) 1.Genetics. This is something you cannot change. I know my genes have issues with clearing out toxins? PD is a man made disease
38yroldmale
in
Cure Parkinson's
5 months ago
First six-month blood test, and my lymphocytes have gone down!
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
Jazzandblues
in
CLL Support
5 months ago
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Suppliments that help with chemo?
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
A friend on their own chemo journey recommended the following - wondering if anyone agrees, or is this the equivalent of snake oil? Thanks for any help you can give. Pao V “FM”® is a dietary supplement composed of Pao pereira extract (Geissospermum vellosii) and "Quassia amara" powder. Ginkgo V® is
Tinuriel
in
Advanced Prostate Cancer
8 months ago
Still can’t lose weight - on NDT for 3 months
My mother is severely hypo and was untreated while she was pregnant with me. I’ve been hypo literally my whole life, though I was misdiagnosed earlier in life until I figured it out myself 1yr ago after a couple miscarriages and 18 months of creeping weight gain. I take 120mg or 2 grains of Thyroid-S
My mother is severely hypo and was untreated while she was pregnant with me. I’ve been hypo literally my whole life, though I was misdiagnosed earlier in life until I figured it out myself 1yr ago after a couple miscarriages and 18 months of creeping weight gain. I take 120mg or 2 grains of Thyroid-S
CountryMidwife
in
Thyroid UK
2 months ago
Fibromyalgia help! Please
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
sunflower022
in
Fibromyalgia Action UK
9 months ago
Prednisone tapering
I've been tapering off prednisone which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg. My question is: the last 2 days
I've been tapering off prednisone which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg. My question is: the last 2 days
Monkey321
in
PMRGCAuk
9 months ago
From a Gleason 9 to a clean CT scan in 18 mos.
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
18 mos ago, my husband was told by his dr. that he "most likely had two or three good years left." (WHY do they say stupid things like that?) I think that a lot of people believe whatever the dr. says and subconsciously program themselves accordingly. I, on the other hand, thought to myself, "We'll
jtango
in
Advanced Prostate Cancer
7 months ago
CBD Capsules
Can I take this while on the Pred My anxiety is through the roof and this used to help Also are we allowed Tumeric capsules to help with immflamation?
Can I take this while on the Pred My anxiety is through the roof and this used to help Also are we allowed Tumeric capsules to help with immflamation?
Northernnugget
in
PMRGCAuk
10 months ago
Vitamins/supplements for cll?
I found out AFTER I was diagnosed with CLL that low vitamin D is a risk factor for getting CLL. I have had chronically low vitamin D even though I worked outside for half my working life. I was haphazard in supplementing the past 30 years. With recent research, I'm seeing all kinds of supposedly helpful
I found out AFTER I was diagnosed with CLL that low vitamin D is a risk factor for getting CLL. I have had chronically low vitamin D even though I worked outside for half my working life. I was haphazard in supplementing the past 30 years. With recent research, I'm seeing all kinds of supposedly helpful
Vivikaye1
in
CLL Support
7 months ago
Trialling magnesium
Been looking for an answer to RLS since my twenties. At one stage I thought the cause might be beer but managed to eliminate that as the prime suspect, thank goodness. Tried ginko biloba tablets, thought we were doing well but eventually lost faith in that. Over the years it was only intermittent and
Been looking for an answer to RLS since my twenties. At one stage I thought the cause might be beer but managed to eliminate that as the prime suspect, thank goodness. Tried ginko biloba tablets, thought we were doing well but eventually lost faith in that. Over the years it was only intermittent and
50568789
in
Restless Legs Syndrome
10 months ago
2nd short term Ginkgo trial underway
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
Ray200
in
Tinnitus UK
7 months ago
Distribution of medication and supplements throughout the day.
In my efforts to optimise the effect of C/L medication and oral supplements, I would like advice on this, to promote positive drug / supplements interactions if possible and to prevent any negative interactions. For example, I am familiar with the interaction carbidopa <> B6, but what is the best time
In my efforts to optimise the effect of C/L medication and oral supplements, I would like advice on this, to promote positive drug / supplements interactions if possible and to prevent any negative interactions. For example, I am familiar with the interaction carbidopa <> B6, but what is the best time
Esperanto
in
Cure Parkinson's
10 months ago
Supplements in food: Proanthocyanidin
Art cites Proanthocyanidin (PA) in grapefruit seed extract (GSPE) as a potential remedy in very interesting contributions about Atherosclerosis: https://healthunlocked.com/cure-parkinsons/posts/149678604/a-few-words-about-atherosclerosis-and-a-potential-remedy and insulin resistance: healthunlocked.com
Art cites Proanthocyanidin (PA) in grapefruit seed extract (GSPE) as a potential remedy in very interesting contributions about Atherosclerosis: https://healthunlocked.com/cure-parkinsons/posts/149678604/a-few-words-about-atherosclerosis-and-a-potential-remedy and insulin resistance: healthunlocked.com
Esperanto
in
Cure Parkinson's
10 months ago
Prostatitis advice
My partner (in his mid 60s) had prostate biopsies (over 60 samples) done in summer 2023. He needed a catheter for many weeks afterwards and was in a lot of pain and passing many blood clots. Over the last year since the biopsies he's had recurrent bouts of slow and intermittent urine flow, now having
My partner (in his mid 60s) had prostate biopsies (over 60 samples) done in summer 2023. He needed a catheter for many weeks afterwards and was in a lot of pain and passing many blood clots. Over the last year since the biopsies he's had recurrent bouts of slow and intermittent urine flow, now having
ConcernedOtherHalf
in
Men's Health Forum
9 months ago
Lanzoprazole and low B12
Hi guys I am worried and I don’t know if I am worried about nothing. In a nutshell, in 2018 hubby starts heart meds and has done so ever since. One of which is landoprazole 15mg every day. Purpose to protect his stomach from the potential harm from taking 75mg asprin to thin his blood. A couple
Hi guys I am worried and I don’t know if I am worried about nothing. In a nutshell, in 2018 hubby starts heart meds and has done so ever since. One of which is landoprazole 15mg every day. Purpose to protect his stomach from the potential harm from taking 75mg asprin to thin his blood. A couple
Wwwdot
in
Pernicious Anaemia Society
11 months ago
New to PMR
Hi, just joined up. I'm coming up 48 and my GP has recently diagnosed me with PMR. I've had pains now since May 2021 so been 2 years of pains, scans, bloods, ultrasounds, pregabelin. The ultrasounds showed up I have calcification and bursitis in both my hips (trocherantic) and both shoulders. I've been
Hi, just joined up. I'm coming up 48 and my GP has recently diagnosed me with PMR. I've had pains now since May 2021 so been 2 years of pains, scans, bloods, ultrasounds, pregabelin. The ultrasounds showed up I have calcification and bursitis in both my hips (trocherantic) and both shoulders. I've been
Monkey321
in
PMRGCAuk
11 months ago
Help find a post
There was a post listing the supplements pwp take vs supplements most effective wherein Ginkgo Biloba topped the list as most effective. I can't seem to find it. 😔
There was a post listing the supplements pwp take vs supplements most effective wherein Ginkgo Biloba topped the list as most effective. I can't seem to find it. 😔
JayPwP
in
Cure Parkinson's
11 months ago
Foods for cold
I heard hot milk and tumeric helps. Other wise oranges and lemons Ginger and garlic Is there anything else that helps with cold?
I heard hot milk and tumeric helps. Other wise oranges and lemons Ginger and garlic Is there anything else that helps with cold?
Hidden
in
Healthy Eating
11 months ago
Anxiety Strategies
Hi folks, After reading the excellent article posted four months ago by Sydney75 (link below), it got me thinking about a few things... https://www.sciencedirect.com/science/article/pii/S0753332220309690 2 years post-diagnosis I'd still say anxiety is my main issue. Motor stuff not giving me too
Hi folks, After reading the excellent article posted four months ago by Sydney75 (link below), it got me thinking about a few things... https://www.sciencedirect.com/science/article/pii/S0753332220309690 2 years post-diagnosis I'd still say anxiety is my main issue. Motor stuff not giving me too
AndyMu72
in
Cure Parkinson's
11 months ago
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