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Metaxalone.
I was diagnosed with PMR September 2023 but I'm unable to have steroids. Due to a heart condition I'm also unable to have Immuno suppresants. My Rheumy has now prescribed Metaxalone for pain relief. Reading the side effects I'm not sure I'm happy to take them as they can affect your kidneys and liver
I was diagnosed with PMR September 2023 but I'm unable to have steroids. Due to a heart condition I'm also unable to have Immuno suppresants. My Rheumy has now prescribed Metaxalone for pain relief. Reading the side effects I'm not sure I'm happy to take them as they can affect your kidneys and liver
Joann63
in
PMRGCAuk
3 months ago
Is it safe to take mesalazine/octasa long term?
Hi everyone, I'm Claire and was diagnosed with mild/moderative ulcerative colitis last year. Apart from an initial flare up (followed by diagnostic procedures leading to the diagnosis), my only symptoms have been an uncomfortable/slightly painful feeling in my stomach/upper intestine. My gastroenterologist
Hi everyone, I'm Claire and was diagnosed with mild/moderative ulcerative colitis last year. Apart from an initial flare up (followed by diagnostic procedures leading to the diagnosis), my only symptoms have been an uncomfortable/slightly painful feeling in my stomach/upper intestine. My gastroenterologist
Claire_lc
in
Crohn's and Colitis Support
3 months ago
Iron plus zinc better for iron deficiency anemia
reading about zinc I came across the following article. I mean it focuses on chronic kidney desease but I found this gem of info stating that zinc combined with iron is better than iron alone. Now I'm not iron deficient. But I thought this might be interesting for those who are. Beware too much zinc
reading about zinc I came across the following article. I mean it focuses on chronic kidney desease but I found this gem of info stating that zinc combined with iron is better than iron alone. Now I'm not iron deficient. But I thought this might be interesting for those who are. Beware too much zinc
B12life
in
Pernicious Anaemia Society
3 months ago
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I have RLS and recently updated iron labs revealed the following: Ferritin=59.2ng/mL & Transferrin Saturation = 53%.
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
DTache
in
Restless Legs Syndrome
3 months ago
Is it safe to take mesalazine/octasa long term for ulcerative colitis?
Hi everyone, I'm Claire and was diagnosed with mild/moderative ulcerative colitis last year. Apart from an initial flare up (followed by diagnostic procedures leading to a diagnosis), my only symptoms have been an uncomfortable/slightly painful feeling in my stomach/upper intestine. My gastroenterologist
Hi everyone, I'm Claire and was diagnosed with mild/moderative ulcerative colitis last year. Apart from an initial flare up (followed by diagnostic procedures leading to a diagnosis), my only symptoms have been an uncomfortable/slightly painful feeling in my stomach/upper intestine. My gastroenterologist
Claire_lc
in
IBS Network
3 months ago
New to Forum, but not to IBS
Hi all, I was diagnosed with IBS some 30 years ago, but think I had it a long time before that. I used to have flare ups, but now I have symptoms most days and not having stomach discomfort takes me by surprise.Had lots of tests, blood and stools, nothing found. But GP thought upper right quadrant
Hi all, I was diagnosed with IBS some 30 years ago, but think I had it a long time before that. I used to have flare ups, but now I have symptoms most days and not having stomach discomfort takes me by surprise.Had lots of tests, blood and stools, nothing found. But GP thought upper right quadrant
Linpin63
in
IBS Network
3 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
24 days ago
Help I don’t understand
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
So for the last 4 months I’ve been having pain in my muscles and head as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil. Now before
Jadaboo4
in
LUPUS UK
25 days ago
CRS4PC and Zytiga side effects ?
My hubby is 69 and recently started Zytiga three weeks ago and it seems that he has developed moderate fatigue and low appetite since one week ago. I’m wondering if this could be a side effect of the Zytiga or if anyone thinks it’s an immunity infection attack.
My hubby is 69 and recently started Zytiga three weeks ago and it seems that he has developed moderate fatigue and low appetite since one week ago. I’m wondering if this could be a side effect of the Zytiga or if anyone thinks it’s an immunity infection attack.
Corgi16
in
Advanced Prostate Cancer
3 months ago
Colonoscopy
Hello, I’ve been having various bowel issues for the past few months, ie. constipation, bloating, slight pain in lower back, bit of diarrhoea and my Dr would like me to go for a colonoscopy. As there’s no bleeding, I assumed it could be something else. Am I wrong to think this? Any advice welcome
Hello, I’ve been having various bowel issues for the past few months, ie. constipation, bloating, slight pain in lower back, bit of diarrhoea and my Dr would like me to go for a colonoscopy. As there’s no bleeding, I assumed it could be something else. Am I wrong to think this? Any advice welcome
CoffeeLover55
in
Bowel Disease Support
3 months ago
Airing Pain 141: Living with Childhood and Young Adult Cancer
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
PainConcernProjects
Pain Concern
in
Pain Concern
5 months ago
Oxynorm
I'm too .... shattered... to give a nicely put story even a short n sweet would be too much right now. So in the meantime I would love to hear your thoughts on Oxynorm as pain relief for brutal endometriosis. It's helping reasonably well for me (though not fully I may add) Many thanks in advance
I'm too .... shattered... to give a nicely put story even a short n sweet would be too much right now. So in the meantime I would love to hear your thoughts on Oxynorm as pain relief for brutal endometriosis. It's helping reasonably well for me (though not fully I may add) Many thanks in advance
Roellen
in
Endometriosis UK
3 months ago
Long time sufferer from gastric problems
I am female, 83 years old and have had stomach problems for most of my life, I have not been diagnosed with IBS but have all the symptoms. I keep trying probiotics, imodium , kaolin and morphine mixture but nothing helps for long.
I am female, 83 years old and have had stomach problems for most of my life, I have not been diagnosed with IBS but have all the symptoms. I keep trying probiotics, imodium , kaolin and morphine mixture but nothing helps for long.
cal428orie
in
IBS Network
3 months ago
carbimazole and iron supplements
hi all, I have very low ferritin and need to supplement iron. Do I need to take my carbimazole away from iron or it doesn’t matter?
hi all, I have very low ferritin and need to supplement iron. Do I need to take my carbimazole away from iron or it doesn’t matter?
Kari55
in
Thyroid UK
3 months ago
Haven’t posted for a while 😊
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Eirinik
in
CLL Support
5 months ago
Antidepressants
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Hi all, Increased anxiety has become one of my worst symptoms of B12 deficiency and (possible*) PA. I’m on 4 weekly B12 injections (Hydrocobalamin 1mg) on the NHS but I’ve not noticed any improvements so far. I’ve had the 6 loading doses and 2 further injections so far. I’m taking D3/K2 (3000iu/100ug
Pa234aw
in
Pernicious Anaemia Society
3 months ago
Severe coronary atherosclerosis and ADT
My recent PET / CT scan mentions severe coronary atherosclerosis. Previous one only said The heart is normal in size with scattered coronary artery calcifications. Also the new PET ? CT said something about heart enlargement but the last one said size normal. Previous scans also said there was an enlarged
My recent PET / CT scan mentions severe coronary atherosclerosis. Previous one only said The heart is normal in size with scattered coronary artery calcifications. Also the new PET ? CT said something about heart enlargement but the last one said size normal. Previous scans also said there was an enlarged
spencoid2
in
Advanced Prostate Cancer
6 months ago
A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
6 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
1 month ago
Incomplete Evacuation and Diarrhoea
Hi there, 26yo female suffering with debilitating daily morning diarrhoea followed by incomplete evacuation, where it feels like my muscles just stop moving and there's an obstruction. I was diagnosed with IBS in 2020 when symptoms started, tried fodmap diet, mebeverine, linseeds, anitbiotics for suspected
Hi there, 26yo female suffering with debilitating daily morning diarrhoea followed by incomplete evacuation, where it feels like my muscles just stop moving and there's an obstruction. I was diagnosed with IBS in 2020 when symptoms started, tried fodmap diet, mebeverine, linseeds, anitbiotics for suspected
UnroolyGut
in
IBS Network
3 months ago
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