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RA and live flu vaccine
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
Julia31
in
NRAS
9 months ago
Has anyone had more fertilised eggs 2nd time round with ICSI?
Hi everyone, I'm wondering if anyone undergoing ICSI had a more successful round of fertilised eggs 2nd time round and if there was anything you done differently? We had our first round in August and they managed to use 10 mature eggs after collecting 15 eggs, 24 hours later we were told that only
Hi everyone, I'm wondering if anyone undergoing ICSI had a more successful round of fertilised eggs 2nd time round and if there was anything you done differently? We had our first round in August and they managed to use 10 mature eggs after collecting 15 eggs, 24 hours later we were told that only
WMolly88
in
Fertility Network UK
6 months ago
Flu and lupus flare
Hi everyone hope this finds you as well as can be expected, Has anyone had the Flu and had an odd flare when you get pains under rib cage but can take deep breath okay but the at random chest goes tight and feel lightheaded and have to rest on bed? Blood pressure seems normal. this has been going on
Hi everyone hope this finds you as well as can be expected, Has anyone had the Flu and had an odd flare when you get pains under rib cage but can take deep breath okay but the at random chest goes tight and feel lightheaded and have to rest on bed? Blood pressure seems normal. this has been going on
Geeforce99
in
LUPUS UK
9 months ago
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Sorry for the absence and new shoes!
I’m still a bit wobbly from Covid, day by day recovering but some days are wobblier than others. But I did manage to get out in the morning and evening every day over this week and do a bit of gardening or do a bit of walking in the evening. But I still cannot do this for long as exhaustion and wobblieness
I’m still a bit wobbly from Covid, day by day recovering but some days are wobblier than others. But I did manage to get out in the morning and evening every day over this week and do a bit of gardening or do a bit of walking in the evening. But I still cannot do this for long as exhaustion and wobblieness
CBDB
Administrator
in
Active 10
1 year ago
Ibs bam
Hi i am new to this group for years i have suffered with ibs am borderline ibd i have recently been diagnosed with bile acid malabsorption it has had me ill for the last 2_3 years all doctors use to say is that its your ibs playing up before i got diagnosed with bam any one else suffer with bile acid
Hi i am new to this group for years i have suffered with ibs am borderline ibd i have recently been diagnosed with bile acid malabsorption it has had me ill for the last 2_3 years all doctors use to say is that its your ibs playing up before i got diagnosed with bam any one else suffer with bile acid
Netbet22
in
IBS Network
1 year ago
Having a Covid Booster vaccination and Flu vaccination at the same time with Lupus (SLE)
Hi everyone, I need to get a Covid booster vaccination and also a Flu jab. The WHO suggests that it’s safe to have both vaccinations at the same time (in different arms) but I was wondering if there was anyone here with personal experience of having SLE and getting both of these vaccinations. Thanks
Hi everyone, I need to get a Covid booster vaccination and also a Flu jab. The WHO suggests that it’s safe to have both vaccinations at the same time (in different arms) but I was wondering if there was anyone here with personal experience of having SLE and getting both of these vaccinations. Thanks
MariaVT
in
LUPUS UK
9 months ago
What are your thoughts on B1? Have you tried it?
I have long covid, and everyday the neuro symptoms and mechanisms seem to approach Parkinson's disease. So, given the lack of treatments on long covid, I was thinking on trying the options for Parkinson's, and this is what I found: I recently found this link: B1Parkinsons.org where they recommend
I have long covid, and everyday the neuro symptoms and mechanisms seem to approach Parkinson's disease. So, given the lack of treatments on long covid, I was thinking on trying the options for Parkinson's, and this is what I found: I recently found this link: B1Parkinsons.org where they recommend
Mau1997
in
Cure Parkinson's
1 year ago
Involvement Opportunity - Media Request (UK)
Do you live with NAFLD or Hepatitis C and are you interested in sharing your story?
We’ve been contacted by media outlets who want to interview someone of a healthy weight who was shocked to be diagnosed with NAFLD. They also want to raise awareness of hepatitis C and are looking for women
Do you live with NAFLD or Hepatitis C and are you interested in sharing your story?
We’ve been contacted by media outlets who want to interview someone of a healthy weight who was shocked to be diagnosed with NAFLD. They also want to raise awareness of hepatitis C and are looking for women
BritishLiverTrust1
Partner
in
British Liver Trust
11 months ago
Permanent Antibiotics
I have had troubles with sinusitis since half a year.We tried antibiotics 6 times- last time prolonged for 3 weeks. After ohne week the infection is back. Could be that eventually I need a surgery. I had this problem already in 2012 and 2015 (it took me 1 - 2 years each time to get rid if this condition
I have had troubles with sinusitis since half a year.We tried antibiotics 6 times- last time prolonged for 3 weeks. After ohne week the infection is back. Could be that eventually I need a surgery. I had this problem already in 2012 and 2015 (it took me 1 - 2 years each time to get rid if this condition
Reinhard
in
CLL Support
1 year ago
The Flu Jab.
The Flu Jab. Good afternoon everyone. I went along along for my yearly Flu Jab yesterday morning early doors and had mine done. I had a fairly busy day so when my jab was complete I put it to the back of my mind. As yesterday went on I felt a little more tired that usual so I went to bed a little earlier
The Flu Jab. Good afternoon everyone. I went along along for my yearly Flu Jab yesterday morning early doors and had mine done. I had a fairly busy day so when my jab was complete I put it to the back of my mind. As yesterday went on I felt a little more tired that usual so I went to bed a little earlier
Joseph260268
in
Lung Conditions Community Forum
9 months ago
Share your experience of hepatitis E (UK)
We are about to start updating our information on hepatitis E. We are looking for people with experience of this condition who can help make sure the new information is useful and clear for those who need it. This could mean answering a few questions by email, having a quick online chat, or sharing
We are about to start updating our information on hepatitis E. We are looking for people with experience of this condition who can help make sure the new information is useful and clear for those who need it. This could mean answering a few questions by email, having a quick online chat, or sharing
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
covid
hello, My legs were badly effected by covid, since they they sting consistently and ache. Nothing helps. Doctor wanted to prescribe anti depressants which I refused. Any help would be greatly appreciated.
hello, My legs were badly effected by covid, since they they sting consistently and ache. Nothing helps. Doctor wanted to prescribe anti depressants which I refused. Any help would be greatly appreciated.
2021Milo
in
Restless Legs Syndrome
1 year ago
anti anxiety with Eliquis
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. I’ve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and it’s a gray area for
I started having a fibs in 2007 after having Lyme disease and also possibly too much thyroid medication. I’ve managed it all these years and after I turned 65 2 1/2 years ago, the doctor started pressuring me to go on blood thinner because of stroke risk. my score is only a two and it’s a gray area for
Fblue
in
Atrial Fibrillation Support
9 months ago
Pelvic pain may be entrapped nerves
Dear friends. For anyone with pelvic pain which is undiagnosed. Please look up ACNES which stands for abdominal cutanous nerve entrapment syndrome. I've suffered from abdominal / pelvic pain for the last 3 years. All tests done with urology, gynaecology, and gastroenterology came back negative.
Dear friends. For anyone with pelvic pain which is undiagnosed. Please look up ACNES which stands for abdominal cutanous nerve entrapment syndrome. I've suffered from abdominal / pelvic pain for the last 3 years. All tests done with urology, gynaecology, and gastroenterology came back negative.
Sunrach
in
Pelvic Pain Support Network
1 year ago
Shingles Vaccine
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose
Rose54
in
PMRGCAuk
11 months ago
Antihistamine and probiotics
I have had long covid for 16 months now, and in the absence of any treatments on the horizon am thinking of trying antihistamine tablets and/or probiotic supplements. My RLS is currently much more controlled than it was, after iron infusion and am taking Gabapentin 400 mg- though insomnia still bad
I have had long covid for 16 months now, and in the absence of any treatments on the horizon am thinking of trying antihistamine tablets and/or probiotic supplements. My RLS is currently much more controlled than it was, after iron infusion and am taking Gabapentin 400 mg- though insomnia still bad
Edengirl58
in
Restless Legs Syndrome
1 year ago
Ah...I am breathing easier
This is for everyone (though it is old news for most) but I haven't ordered Pan Pharma hydroxy for a year...in fact I believe I got the end of the lot and when it finally came it had a very short expiration. It also took 6 nail-biting weeks to get here. I was worried but have noticed the trend of it
This is for everyone (though it is old news for most) but I haven't ordered Pan Pharma hydroxy for a year...in fact I believe I got the end of the lot and when it finally came it had a very short expiration. It also took 6 nail-biting weeks to get here. I was worried but have noticed the trend of it
EiCa
in
Pernicious Anaemia Society
8 months ago
Hydroxyurea to give
Since doc change my meds to Jakafi and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
Since doc change my meds to Jakafi and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
william-Indo
in
MPN Voice
1 year ago
Another cold . 2 nd one in the last month. On methotrexate and lefluamide .Fed up
I’ve got another cold .Checked for Covid ,negative. This is the 2 nd one in a month. Very careful where I go and keep hands gelled but I’ve got a runny nose and cough. Fed up.
I’ve got another cold .Checked for Covid ,negative. This is the 2 nd one in a month. Very careful where I go and keep hands gelled but I’ve got a runny nose and cough. Fed up.
Cal48
in
NRAS
9 months ago
Effect of a bad cold?
I was comfortably working my way down via DSNS from 8.5 to 8 when I caught a nasty cold (negative for covid). The morning pain in my shoulders became very unpleasant, though not to the level of what I would call a flare, which I have experienced before. The pain subsided but never really left all day
I was comfortably working my way down via DSNS from 8.5 to 8 when I caught a nasty cold (negative for covid). The morning pain in my shoulders became very unpleasant, though not to the level of what I would call a flare, which I have experienced before. The pain subsided but never really left all day
papadapadoo
in
PMRGCAuk
9 months ago
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