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Rapid Decline - anyone experience this?
I am an 82 year old woman who was diagnosed two years ago with SCA6 which my mother and grandmother also had. For the last two years tho I was dizzy all the time, my speech increasingly slurred, and I had eye problems and issues with balance, I still walked three miles a day, drove (sometimes 1 1/2
I am an 82 year old woman who was diagnosed two years ago with SCA6 which my mother and grandmother also had. For the last two years tho I was dizzy all the time, my speech increasingly slurred, and I had eye problems and issues with balance, I still walked three miles a day, drove (sometimes 1 1/2
Hickox
in
Ataxia UK
4 months ago
Tinnitus and visual disturbances?
Does anyone else suffer from both tinnitus and visual disturbances? I don't mean synchronised in any way, just generally. I get classic visual migraines (with aura) every few weeks but get other visual disturbances more regularly that can occasionally be quite dramatic. My visual migraines pre-date my
Does anyone else suffer from both tinnitus and visual disturbances? I don't mean synchronised in any way, just generally. I get classic visual migraines (with aura) every few weeks but get other visual disturbances more regularly that can occasionally be quite dramatic. My visual migraines pre-date my
Fridays_Child_62
in
Tinnitus UK
4 months ago
Stress, again taking a comeback....
So I have been at work for 10 months and I have had to move rooms that I work in, honestly to help out that room and put the managers mind at rest I would be OK doing it. Well I thought it was lasting a couple of months but it hasn't. I ended up getting stressed out because of the noise and doing nothing
So I have been at work for 10 months and I have had to move rooms that I work in, honestly to help out that room and put the managers mind at rest I would be OK doing it. Well I thought it was lasting a couple of months but it hasn't. I ended up getting stressed out because of the noise and doing nothing
Hidden
in
Headway
4 months ago
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hello 👋
just introducing myself to this fabulous group, looking forward to finding out new ways to cope with Tinnitus/dizziness
just introducing myself to this fabulous group, looking forward to finding out new ways to cope with Tinnitus/dizziness
Positivevibes24
in
Tinnitus UK
4 months ago
advice please
I am having checks for possible PMR at my request. Having suffered for the past four years with neck shoulder jaw and face pain eye disturbance and terrible drenching night sweats. I have almost self diagnosed. Although I am awaiting an appointment with Max facial as my ENT consultant said it was TMJ
I am having checks for possible PMR at my request. Having suffered for the past four years with neck shoulder jaw and face pain eye disturbance and terrible drenching night sweats. I have almost self diagnosed. Although I am awaiting an appointment with Max facial as my ENT consultant said it was TMJ
Nonameme
in
PMRGCAuk
4 months ago
Cladribine
I have recently been diagnosed as having RRMS. I have only had 2 relapses in the past year, both of which involved temporary loss of eyesight. On both occasions, my vision returned to normal by itself, without any need or medication to be prescribed. However, my most recent MRI contrast scan shows that
I have recently been diagnosed as having RRMS. I have only had 2 relapses in the past year, both of which involved temporary loss of eyesight. On both occasions, my vision returned to normal by itself, without any need or medication to be prescribed. However, my most recent MRI contrast scan shows that
max011
in
My MSAA Community
4 months ago
Mobility aid
I have fibromyalgia also suspected PoTs and just recently got diagnosed with me/cfs. I have been having some difficulty with walking and getting around the house, I am finding myself holding on to the walls and kitchen counter for some support/ balance as the pain is getting really bad, is it time for
I have fibromyalgia also suspected PoTs and just recently got diagnosed with me/cfs. I have been having some difficulty with walking and getting around the house, I am finding myself holding on to the walls and kitchen counter for some support/ balance as the pain is getting really bad, is it time for
Forgetmenot88
in
Fibromyalgia Action UK
4 months ago
Tinnutus Suddenly
So a year ago I had a virus that bought on tinnitus it seemed to go after a couple of months, though I think it was still there at some very low level and forgot about it I also have vertigo randomly for a few seconds if I roll over in bed or sit up fast and if I bend over and look under a desk say
So a year ago I had a virus that bought on tinnitus it seemed to go after a couple of months, though I think it was still there at some very low level and forgot about it I also have vertigo randomly for a few seconds if I roll over in bed or sit up fast and if I bend over and look under a desk say
Downup24
in
Tinnitus UK
4 months ago
Had my 13-YRO T-Tube grommet removed and new one put in put in last week, still feel nauseous/ill...is this normal or to be expected?
[i]
Is this normal to still be in pain / feeling like this a 9 days after?
[/i] Last Wednesday I had my old T-bar Grommet removed from my ear and another new T-bar Grommet inserted straight after. I was awake and was done with a general anaesthetic injection in the affected ear. The ear was
[i]
Is this normal to still be in pain / feeling like this a 9 days after?
[/i] Last Wednesday I had my old T-bar Grommet removed from my ear and another new T-bar Grommet inserted straight after. I was awake and was done with a general anaesthetic injection in the affected ear. The ear was
accidentalglixch
in
deafPLUS
4 months ago
wax treatments
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
Clangerscat
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Head tingling face, legs, and arms
Hi, I am a newbie here, so hope you are all doing as well as can be expected. for the last 12 months I have had 24/7 head tingling in random parts of the head with weird sensations too, plus head pain and now headaches daily. Went to GP who sent me for an MRI and Neurologist who was absolutely useless
Hi, I am a newbie here, so hope you are all doing as well as can be expected. for the last 12 months I have had 24/7 head tingling in random parts of the head with weird sensations too, plus head pain and now headaches daily. Went to GP who sent me for an MRI and Neurologist who was absolutely useless
bubbatetley
in
Acoustic Neuroma Support
4 months ago
AF with Bisoprolol
I have been switched from Disopyramide to Bisoprolol because Disopyramide was out of stock. I am now in AF and while Bisoprolol seems to be constraining my Heart Rate, I have been in AF nearly all day, and it’s not great. With Disopyramide twice a day, the next dose would resolve any AF, the Bisoprolol
I have been switched from Disopyramide to Bisoprolol because Disopyramide was out of stock. I am now in AF and while Bisoprolol seems to be constraining my Heart Rate, I have been in AF nearly all day, and it’s not great. With Disopyramide twice a day, the next dose would resolve any AF, the Bisoprolol
DE-AF
in
AF Association
4 months ago
not coping well
I am partially deaf in left ear. Damage to inner ear from strep an infection over a year ago & have very loud tinnitus which has got worse since December. Have had a hearing aid with the tinnitus app, in the past the hearing aid has masked the tinnitus during the day as there are other sounds, but at
I am partially deaf in left ear. Damage to inner ear from strep an infection over a year ago & have very loud tinnitus which has got worse since December. Have had a hearing aid with the tinnitus app, in the past the hearing aid has masked the tinnitus during the day as there are other sounds, but at
091960
in
Tinnitus UK
4 months ago
Carotid Artery Ultrasound Scan?
Good evening Could anyone tell me if they were sent for a Ultrasound scan prior to an MRI? My consultant said he was sending me for an urgent MRI and Radiography have downgraded it to Ultrasound first? I have no symptoms or medical history (diabetes, smoker, hypertension etc) that would point towards
Good evening Could anyone tell me if they were sent for a Ultrasound scan prior to an MRI? My consultant said he was sending me for an urgent MRI and Radiography have downgraded it to Ultrasound first? I have no symptoms or medical history (diabetes, smoker, hypertension etc) that would point towards
BrainyJanie
in
Acoustic Neuroma Support
4 months ago
ENT Appointment
Hello I have just received my appointment date for ENT, April 2024. I still waiting for Audiology Appointment to come through. I noticed on my ENT appointment I was due to been seen at the Physio Balance clinic. My balance has only been affected twice, once in October and secondly in November
Hello I have just received my appointment date for ENT, April 2024. I still waiting for Audiology Appointment to come through. I noticed on my ENT appointment I was due to been seen at the Physio Balance clinic. My balance has only been affected twice, once in October and secondly in November
Choralmusic
in
Tinnitus UK
4 months ago
looking for help
I am in the middle of a battle at work and I wondered if any of my T family might be able to help? I am a primary teacher and trying my best to stay in teaching to get closer to my pension. (I am 53). I have applied for and got Access to Work grants twice but my employer has refused to fund their portion
I am in the middle of a battle at work and I wondered if any of my T family might be able to help? I am a primary teacher and trying my best to stay in teaching to get closer to my pension. (I am 53). I have applied for and got Access to Work grants twice but my employer has refused to fund their portion
Crazylady6
in
Tinnitus UK
4 months ago
Echinacea
Does anyone know if its safe to take Echinacea tablets when taking Rivoraxaban .I've had cold after cold and a very annoying cough on and off for a few weeks now and thought this might boost my immunity. TIA
Does anyone know if its safe to take Echinacea tablets when taking Rivoraxaban .I've had cold after cold and a very annoying cough on and off for a few weeks now and thought this might boost my immunity. TIA
Ladypaula
in
AF Association
4 months ago
Tinnitus, anxiety and ADHD-like symptoms
Following frequent episodes of amnesia, including two major episodes where I lost several days, I found memory/auditory processing issues, increased anxiety, insomnia, nausea and vertigo has taken it toll. So I started to research the link between mind and brain. I think it's safe to say many of us -
Following frequent episodes of amnesia, including two major episodes where I lost several days, I found memory/auditory processing issues, increased anxiety, insomnia, nausea and vertigo has taken it toll. So I started to research the link between mind and brain. I think it's safe to say many of us -
daverussell
in
Tinnitus UK
4 months ago
flutter not fibrillation
Hi all I have paid to see an EP (privately) today who has confirmed 100% I have atrial flutter and no fibrillation? Anyone else just have flutter? He has recommended an ablation to sort it out and told me to stop taking Flecainide which makes me nervous. He says it probably isn’t doing much and could
Hi all I have paid to see an EP (privately) today who has confirmed 100% I have atrial flutter and no fibrillation? Anyone else just have flutter? He has recommended an ablation to sort it out and told me to stop taking Flecainide which makes me nervous. He says it probably isn’t doing much and could
Dogmad2
in
AF Association
4 months ago
Sigmoid Sinus Diverticulum
Hello, So I've been suffering from tinnitus since 2022 and from pulsatile tinnitus since 2023. I've been to ENT and had an MRI scan with and without contrast. My results with contrast show that I have a small transverse sinus diverticulum. Which from looking online is a rare vascular disorder. I
Hello, So I've been suffering from tinnitus since 2022 and from pulsatile tinnitus since 2023. I've been to ENT and had an MRI scan with and without contrast. My results with contrast show that I have a small transverse sinus diverticulum. Which from looking online is a rare vascular disorder. I
Shantelle00
in
Tinnitus UK
4 months ago
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