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GCA relief of symptoms?
Hi, help please.I have had a GCA flare, headaches, sore temples, total fatigue, dizzy spells and jaw pain. Rheumatologist appt 20 Sept 2023 increased pred to 40mgs a day for 3 weeks, then reducing. 16 days later though, I still have the symptoms. Does that sound ok? Previously I had been on 3mgs of
Hi, help please.I have had a GCA flare, headaches, sore temples, total fatigue, dizzy spells and jaw pain. Rheumatologist appt 20 Sept 2023 increased pred to 40mgs a day for 3 weeks, then reducing. 16 days later though, I still have the symptoms. Does that sound ok? Previously I had been on 3mgs of
Chespoll
in
PMRGCAuk
8 months ago
It’s not hearing loss, it’s Eustachian Tube Dysfunction (they think)
Since having bacterial meningitis in January 2023, my ears have felt sort of blocked. After my follow up appointment a couple of weeks of coming out of hospital, they thought I had lost some hearing. I had a hearing test today- hearing is absolutely fine. They think I may have Eustachian Tube Dysfunction
Since having bacterial meningitis in January 2023, my ears have felt sort of blocked. After my follow up appointment a couple of weeks of coming out of hospital, they thought I had lost some hearing. I had a hearing test today- hearing is absolutely fine. They think I may have Eustachian Tube Dysfunction
ElephantLover2023
in
Meningitis Now
1 year ago
Menieres tinnitus
I have recently been diagnosed as having Menieres disease . Although we seem to have got the vertigo under control, for now at least, my tinnitus is driving me insane. I'm struggling more than anything withe the aural fullness and ear pain, as if it's going to burst. The pressure in my ear greatly affects
I have recently been diagnosed as having Menieres disease . Although we seem to have got the vertigo under control, for now at least, my tinnitus is driving me insane. I'm struggling more than anything withe the aural fullness and ear pain, as if it's going to burst. The pressure in my ear greatly affects
Tiggywinkle23
in
Tinnitus UK
1 year ago
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Curious in the USA
I know this is a British site, and I'm a Brit permanently living in the USA, so moderators please feel free not to post if this contravenes your rules. And it's mainly for US people to answer, as I know I'm not the only one. I have moderate Tinnitus. Very annoying, but liveable, doesn't change too
I know this is a British site, and I'm a Brit permanently living in the USA, so moderators please feel free not to post if this contravenes your rules. And it's mainly for US people to answer, as I know I'm not the only one. I have moderate Tinnitus. Very annoying, but liveable, doesn't change too
PABLR
in
Tinnitus UK
1 year ago
thyroid and tinnitus
I was diagnosed with under active thyroid about 9 years ago and take 75 mg levothyroxine daily. I have been experiencing tinnitus for many years now, but wonder if there is a link between thyroid disorders and tinnitus?
I was diagnosed with under active thyroid about 9 years ago and take 75 mg levothyroxine daily. I have been experiencing tinnitus for many years now, but wonder if there is a link between thyroid disorders and tinnitus?
Rockyport
in
Thyroid UK
1 year ago
Anyone got endolymphatic hydrops but not Ménière’s?
Just curious to hear what symptoms and treatment are like? I’ve been diagnosed with chronic vestibular migraine but consultant now thinking it could be EH due to my symptoms- persistent vertigo/dizziness, constant T but fluctuating in pitch, pressure feeling in head, fullness, popping and what I call
Just curious to hear what symptoms and treatment are like? I’ve been diagnosed with chronic vestibular migraine but consultant now thinking it could be EH due to my symptoms- persistent vertigo/dizziness, constant T but fluctuating in pitch, pressure feeling in head, fullness, popping and what I call
ArtyPants46
in
Tinnitus UK
1 year ago
Carbocisteine 375mg
I’ve been taking 4 daily of this medication for several years. However last couple of weeks I’m coughing lot and not always able to get up mucus, including after using Aerobika. My physiotherapist says when she listens to chest there are more noises than used to be. The product leaflet says two capsules
I’ve been taking 4 daily of this medication for several years. However last couple of weeks I’m coughing lot and not always able to get up mucus, including after using Aerobika. My physiotherapist says when she listens to chest there are more noises than used to be. The product leaflet says two capsules
Morrison10
in
Lung Conditions Community Forum
1 year ago
Pulsatile tinnitus, headaches and Eustachian tube dysfunction??
HelloStarted with constant T early in New Year, with intermittent PT, mainly when I went to bed. Had audiology test and waiting for ENT appt which he said is likely to be next summer. I've been getting increasing headaches....I've seen GP re headaches in the past quite alot, including after the T became
HelloStarted with constant T early in New Year, with intermittent PT, mainly when I went to bed. Had audiology test and waiting for ENT appt which he said is likely to be next summer. I've been getting increasing headaches....I've seen GP re headaches in the past quite alot, including after the T became
hollyrain
in
Tinnitus UK
11 months ago
Deaf in one Ear but it still aches!
About 25 years ago I had an experimental grommet fitted into my left ear. Within few hours it was totally blocked, but I had to wait 7 months for it to be removed, by which time I was told that the nerve was dead and I wouldn’t be able to hear through it. However now I still get earache in it! Does anyone
About 25 years ago I had an experimental grommet fitted into my left ear. Within few hours it was totally blocked, but I had to wait 7 months for it to be removed, by which time I was told that the nerve was dead and I wouldn’t be able to hear through it. However now I still get earache in it! Does anyone
Morrison10
in
Lung Conditions Community Forum
1 year ago
2 years post-thyroidectomy - Struggling with Tirosint and finding the right dose
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Sophie4506
in
Thyroid UK
10 months ago
seeing a nephrologist 9/20
Hi just wanted to let everyone know I had my ear surgery.. my intestinal issues Hzve gotten alittle better no dairy. I pray that part is over on a probiotic. Saw my cardiologist last Monday n now I was told I Hzve stage 3b chronic kidney disease n seeing a nephrologist tomorrow,..fingers crossed n
Hi just wanted to let everyone know I had my ear surgery.. my intestinal issues Hzve gotten alittle better no dairy. I pray that part is over on a probiotic. Saw my cardiologist last Monday n now I was told I Hzve stage 3b chronic kidney disease n seeing a nephrologist tomorrow,..fingers crossed n
Dancing
in
SHARE Metastatic Breast Cancer
9 months ago
phone call at last
Hello all you kind , knowledgeable people out there. Some may remember that l have posted before and that l am currently on Temgesic. At the moment l take 600mcg at 5 pm and 800mcgs at 10.30 pm. It has taken about 10 months or so to titrate up to this dosage. Although Temgesic has never fully covered
Hello all you kind , knowledgeable people out there. Some may remember that l have posted before and that l am currently on Temgesic. At the moment l take 600mcg at 5 pm and 800mcgs at 10.30 pm. It has taken about 10 months or so to titrate up to this dosage. Although Temgesic has never fully covered
bedith6
in
Restless Legs Syndrome
1 year ago
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
3 months ago
Propafenone and taste
Anyone have any firsthand experience with Propafenone and taste? Everything tastes disgusting this morning and I hope its a side effect that fades.😬. Still not convinced it is going to even stop the Atrial Tachycardia as I am still having it, but now this.... Ugh.
Anyone have any firsthand experience with Propafenone and taste? Everything tastes disgusting this morning and I hope its a side effect that fades.😬. Still not convinced it is going to even stop the Atrial Tachycardia as I am still having it, but now this.... Ugh.
MeganMN
in
AF Association
9 months ago
MRI/MRE
we’ll, I was stressing for nothing. The MRI was nothing. They use the 3T which is a little larger, not much, than the traditional MRI and did nit have the loud banging and clanging. It had a little noise but my country music drowned most of it out. Now the MRE is a little different story. Because I’
we’ll, I was stressing for nothing. The MRI was nothing. They use the 3T which is a little larger, not much, than the traditional MRI and did nit have the loud banging and clanging. It had a little noise but my country music drowned most of it out. Now the MRE is a little different story. Because I’
gwillistexas
in
PBC Foundation
1 year ago
autoimmune hearing problems
I’ve posted this on SRUK forum too. Sorry this goes on a bit. Along with my UCTD with systemic sclerosis gut problems I’ve developed, I’ve had hearing problems for years. I’ve never really thought it could be another autoimmune problem but recently I couldn’t hear my own voice. I wear hearing aids and
I’ve posted this on SRUK forum too. Sorry this goes on a bit. Along with my UCTD with systemic sclerosis gut problems I’ve developed, I’ve had hearing problems for years. I’ve never really thought it could be another autoimmune problem but recently I couldn’t hear my own voice. I wear hearing aids and
Halfwayuphill
in
LUPUS UK
1 year ago
autoimmune ear problems?
Sorry this goes on a bit. Along with my UCTD with systemic sclerosis gut problems I’ve developed, I’ve had hearing problems for years. I’ve never really thought it could be another autoimmune problem but recently I couldn’t hear my own voice. I wear hearing aids and have just got new ones and thought
Sorry this goes on a bit. Along with my UCTD with systemic sclerosis gut problems I’ve developed, I’ve had hearing problems for years. I’ve never really thought it could be another autoimmune problem but recently I couldn’t hear my own voice. I wear hearing aids and have just got new ones and thought
Halfwayuphill
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Please, help. Eustaquian tube obstruction instead of tinnitus?
I was almost surely diagnosed with tinnitus after seeing a couple of doctors but I'm experiencing things that make me positive I instead just have my Eustaquian tube closed either by wax or mucus from a large series of un-properly cured colds. 1. I've been having this mucus sensation in the back of
I was almost surely diagnosed with tinnitus after seeing a couple of doctors but I'm experiencing things that make me positive I instead just have my Eustaquian tube closed either by wax or mucus from a large series of un-properly cured colds. 1. I've been having this mucus sensation in the back of
Mirror665
in
Tinnitus UK
1 year ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
6 months ago
Pulsatile tinnitus, headaches and sleep!
Hello Had my audiology test. No deafness but ENT referral that he said could take 18 months, on the pulsatile tinnitus. I spoke to him about the headaches but he said what I described wasn't a red flag. So now we wait. Can I please ask about these headaches and sleeping? I read to try to sleep with
Hello Had my audiology test. No deafness but ENT referral that he said could take 18 months, on the pulsatile tinnitus. I spoke to him about the headaches but he said what I described wasn't a red flag. So now we wait. Can I please ask about these headaches and sleeping? I read to try to sleep with
hollyrain
in
Tinnitus UK
1 year ago
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