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Pudendal Nerve Entrapment
Hi, I have been suffering with pudendal nerve entrapment since June 2015 and to date am still in pain. I take Gabapentin and amiltriptyline for the pain but to be perfectly honest, they are not that effective. I have had every single test done under the sun including xrays, ultrasounds, Scans, MRIs
Hi, I have been suffering with pudendal nerve entrapment since June 2015 and to date am still in pain. I take Gabapentin and amiltriptyline for the pain but to be perfectly honest, they are not that effective. I have had every single test done under the sun including xrays, ultrasounds, Scans, MRIs
hoopwhirl2007
in
Pelvic Pain Support Network
5 years ago
What has been working for me with PMR
Thought I would post this, just in case it might assist someone else out there. PMR since June 2019 and at one point managed to get off of pred to try another drug, although it was too hard on my stomach, so back on pred and now it's been 7 months and I'm at 8 mg and feel pretty good, my ESR is down
Thought I would post this, just in case it might assist someone else out there. PMR since June 2019 and at one point managed to get off of pred to try another drug, although it was too hard on my stomach, so back on pred and now it's been 7 months and I'm at 8 mg and feel pretty good, my ESR is down
remission
in
PMRGCAuk
5 years ago
Help, need advice
Hi, I've just been diagnosed with fm, which explains a lot over the years, but I've struggled for years with severe pain and tiredness. I've been started on 75mg pregabalin, paracetamol, naproxen and codeine, as yet, I don't feel any benefit. I've been told they can help treat some symptoms, but not
Hi, I've just been diagnosed with fm, which explains a lot over the years, but I've struggled for years with severe pain and tiredness. I've been started on 75mg pregabalin, paracetamol, naproxen and codeine, as yet, I don't feel any benefit. I've been told they can help treat some symptoms, but not
Nooby
in
Fibromyalgia Action UK
5 years ago
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Biogen PASSPORT study discontinued
At the end of last week pharmaceutical company Biogen announced they would be discontinuing their PASSPORT study, developing a drug treatment for PSP. During the 12-month study involving 490 participants, it was found that the drug gosuranemab, an intravenously infused antibody, failed to slow down
At the end of last week pharmaceutical company Biogen announced they would be discontinuing their PASSPORT study, developing a drug treatment for PSP. During the 12-month study involving 490 participants, it was found that the drug gosuranemab, an intravenously infused antibody, failed to slow down
HelenPSPA
in
PSP Association
5 years ago
CBD and thrombocytopenia
I just found this community on here and I was just looking for information, I wasn't trying to step on toes. I've had ITP for 20 years I have always went to the doctors on a regular basis. I have read lots of reviews on here, trying to read any tips I can get. I read what this sight was for, I get it
I just found this community on here and I was just looking for information, I wasn't trying to step on toes. I've had ITP for 20 years I have always went to the doctors on a regular basis. I have read lots of reviews on here, trying to read any tips I can get. I read what this sight was for, I get it
Nono1948
in
MPN Voice
5 years ago
CBD Clinical Trial
Hello all, My husband is entering the UCSF Clinical Trial for CBD this week (in California). He's going to meet one of the doctors who's an expert in the field, who will do an assessment (with his previous MRIs) to decide on the first day if it's likely CBD or not. If yes, then they run a whole gamut
Hello all, My husband is entering the UCSF Clinical Trial for CBD this week (in California). He's going to meet one of the doctors who's an expert in the field, who will do an assessment (with his previous MRIs) to decide on the first day if it's likely CBD or not. If yes, then they run a whole gamut
LostinHeadSpace
in
PSP Association
5 years ago
CBD and PD tremor?
Anybody has tried CBD to reduce tremor? What worked or not?
Anybody has tried CBD to reduce tremor? What worked or not?
Kitefli
in
Cure Parkinson's
5 years ago
Palliative Care..
Hi all my lovely Mum with CBD (10th year) has been 4 weeks in hospital. She was initially admitted with abdominal blockage, then urine infection, then aspiration pneumonia. During the throes of awful pneumonia she lost her already weak ability to swallow. We were told it wouldn't be humane to put a PEG
Hi all my lovely Mum with CBD (10th year) has been 4 weeks in hospital. She was initially admitted with abdominal blockage, then urine infection, then aspiration pneumonia. During the throes of awful pneumonia she lost her already weak ability to swallow. We were told it wouldn't be humane to put a PEG
Hidden
in
PSP Association
5 years ago
CBD oil effectiveness
Is CBD oil effective for people with mild social anxiety? What are the side effects?
Is CBD oil effective for people with mild social anxiety? What are the side effects?
Santos82
in
Anxiety and Depression Support
5 years ago
I’m new to the site. My husband has CBD
I guess I’m just looking for support through this process from people that understand it better than I do. My husband was diagnosed a year and a half ago. He has horrible apraxia and needs help with nearly everything.... dressing, showering, shaving, etc. I feel blessed that I have the time and freedom
I guess I’m just looking for support through this process from people that understand it better than I do. My husband was diagnosed a year and a half ago. He has horrible apraxia and needs help with nearly everything.... dressing, showering, shaving, etc. I feel blessed that I have the time and freedom
Strawhalos
in
PSP Association
5 years ago
My pain
Thanks I'm sorry if I got in the wrong conversation. I know it won't help my ITP, just wondering if I could use the CBD oil, I can not. It effects the platelets, and lowers them. Thank you my apologies again
Thanks I'm sorry if I got in the wrong conversation. I know it won't help my ITP, just wondering if I could use the CBD oil, I can not. It effects the platelets, and lowers them. Thank you my apologies again
Nono1948
in
MPN Voice
5 years ago
CBD oil US Amazon link for PD
Can anyone provide Amazon link or product to buy CBD oil which is working effectively for PD USA Amazon preferably
Can anyone provide Amazon link or product to buy CBD oil which is working effectively for PD USA Amazon preferably
Vishwa228
in
Cure Parkinson's
5 years ago
Trimbow & CBD oil
I use Trimbow for copd and it is working well but l get very stressed and feel unable to cope l am thinking of trying cbd oil but l want to be sure it is compatible with Trimbow any help would be welcome.
I use Trimbow for copd and it is working well but l get very stressed and feel unable to cope l am thinking of trying cbd oil but l want to be sure it is compatible with Trimbow any help would be welcome.
huyton174
in
Asthma Community Forum
5 years ago
Interesting Clinical Data
Hello, I don't post much but thought I'd bring this to everyone's attention. A very small biotech, Cassava Sciences, has a drug they are investigating to treat Alzheimer's. They reported phase 2a data recently. The link to the press release is below. The reason I find this interesting and encouraging
Hello, I don't post much but thought I'd bring this to everyone's attention. A very small biotech, Cassava Sciences, has a drug they are investigating to treat Alzheimer's. They reported phase 2a data recently. The link to the press release is below. The reason I find this interesting and encouraging
choclab511
in
PSP Association
5 years ago
High platelets
Hello, my wife had very high blood platelets. We are looking for something that will lower them. I am wondering if CBD might help. Thank you
Hello, my wife had very high blood platelets. We are looking for something that will lower them. I am wondering if CBD might help. Thank you
Indianrider
in
MPN Voice
5 years ago
CBD Oil
I am looking into cbd oil and if it helps in anyway with my ET. I take hydroxyurea and asprin.? Anyone?
I am looking into cbd oil and if it helps in anyway with my ET. I take hydroxyurea and asprin.? Anyone?
Klys
in
MPN Voice
5 years ago
Meduallry Sponge Kidney
I was diagnosed with MSK. Meduallry Sponge Kidney. I just turned 31 and just got married. I'm on gabapentin for pain, Augmentin for antibiotics and Listopril for BP. I do take thc and CBD. No dialysis yet.
I was diagnosed with MSK. Meduallry Sponge Kidney. I just turned 31 and just got married. I'm on gabapentin for pain, Augmentin for antibiotics and Listopril for BP. I do take thc and CBD. No dialysis yet.
PurdySelph88
in
Kidney Disease
5 years ago
Looking for Advice re IPF .
Hi , I am a 66 year old male living in the UK , I have just been diagnosed with IPF and have been offered Nintedanib to start early in 2020 after my hernia Op . I would like to hear from anyone who can offer any advice regarding the side affects of Nintedanib and how long do they last , I would like
Hi , I am a 66 year old male living in the UK , I have just been diagnosed with IPF and have been offered Nintedanib to start early in 2020 after my hernia Op . I would like to hear from anyone who can offer any advice regarding the side affects of Nintedanib and how long do they last , I would like
Jaxleo
in
Lung Conditions Community Forum
5 years ago
CBD oil
Also, I use CBD oil from cannabis. Not hemp. I don’t know anything about hemp based oil.
Also, I use CBD oil from cannabis. Not hemp. I don’t know anything about hemp based oil.
Gwennie123
in
SHARE Metastatic Breast Cancer
5 years ago
CBD
A while back I talked about CBD oil. A few people have asked me what it is that I take and what 4:1 to one or 8 to 1 means. I will try to answer. First of all I take something called care by design. I get it in California at a dispensary. The one I take 4 to 1 is 4 parts CBD oil and one part THC. THC
A while back I talked about CBD oil. A few people have asked me what it is that I take and what 4:1 to one or 8 to 1 means. I will try to answer. First of all I take something called care by design. I get it in California at a dispensary. The one I take 4 to 1 is 4 parts CBD oil and one part THC. THC
Gwennie123
in
SHARE Metastatic Breast Cancer
5 years ago
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