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Post Surgery Relapse
Hi everyone, Having managed my RLS very satisfactorily for several months without having to resort to taking dopamine agonists, I am now suffering a dreadful relapse following a total hip replacement (THR) last week and, as many of us are of a certain age, wondered if any of you guys had any similar
Hi everyone, Having managed my RLS very satisfactorily for several months without having to resort to taking dopamine agonists, I am now suffering a dreadful relapse following a total hip replacement (THR) last week and, as many of us are of a certain age, wondered if any of you guys had any similar
Peterdh2u
in
Restless Legs Syndrome
5 years ago
Depakote?
I'm currently on Pristiq, Wellbutrin and trazodone. My MH provider is considering Depakote. I've never taken a mood stabilizer as I'm not the bipolar type. Any words out there about Depakote?
I'm currently on Pristiq, Wellbutrin and trazodone. My MH provider is considering Depakote. I've never taken a mood stabilizer as I'm not the bipolar type. Any words out there about Depakote?
Carlee1962
in
Anxiety and Depression Support
5 years ago
My RLS happens only when I fall asleep, any ideas?
My legs jump and jolt ONLY when I doze off, at night. The actually falling asleep triggers it. Otherwise my legs are fine. Does that mean that my RLS is relatively mild, or...? Also curious as to why the dozing off is the trigger. Dopamine a factor? Thanks for any insights :)
My legs jump and jolt ONLY when I doze off, at night. The actually falling asleep triggers it. Otherwise my legs are fine. Does that mean that my RLS is relatively mild, or...? Also curious as to why the dozing off is the trigger. Dopamine a factor? Thanks for any insights :)
KenBR
in
Restless Legs Syndrome
5 years ago
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A question about pain in legs.
I've just read the post from jimandgil about pain in the groin and legs and didn't want to hijack his post so will start from scratch. I have been having severe pain in my legs very much like one would describe if one had the flu. I have had similar before and it's been a side effect of some medications
I've just read the post from jimandgil about pain in the groin and legs and didn't want to hijack his post so will start from scratch. I have been having severe pain in my legs very much like one would describe if one had the flu. I have had similar before and it's been a side effect of some medications
restlessstoz
in
Restless Legs Syndrome
5 years ago
Heresy? Elevated circulating magnesium levels in patients with PD
Elevated circulating magnesium levels in patients with Parkinson’s disease: a meta-analysis. 2018. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6250112/ [The researchers present a range of citations. Here we go again: Mg subtypes.] "...worth noting that high Mg CSF concentrations, in turn, accelerated
Elevated circulating magnesium levels in patients with Parkinson’s disease: a meta-analysis. 2018. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6250112/ [The researchers present a range of citations. Here we go again: Mg subtypes.] "...worth noting that high Mg CSF concentrations, in turn, accelerated
aspergerian13
in
Cure Parkinson's
5 years ago
MMS DMSO for treatment of Parkinson's
My father has been diagnosed with Parkinson's in september 2017. He is 74 years old and took Madopar (Levodopa/carbidopa) for 6 month. Before the diagnose we saw that he might have Parkinson because he walked slowly with small steps(around10cm and close to the ground( around 10cm) -in contrast with
My father has been diagnosed with Parkinson's in september 2017. He is 74 years old and took Madopar (Levodopa/carbidopa) for 6 month. Before the diagnose we saw that he might have Parkinson because he walked slowly with small steps(around10cm and close to the ground( around 10cm) -in contrast with
Parkinsonfight
in
Cure Parkinson's
5 years ago
Dystonia and Parkinson's disease: What is the relationship?
Dystonia and Parkinson's disease are closely linked disorders sharing many pathophysiological overlaps. Dystonia can be seen in 30% or more of the patients suffering with PD and sometimes can precede the overt parkinsonism. The response of early dystonia to the introduction of dopamine replacement therapy
Dystonia and Parkinson's disease are closely linked disorders sharing many pathophysiological overlaps. Dystonia can be seen in 30% or more of the patients suffering with PD and sometimes can precede the overt parkinsonism. The response of early dystonia to the introduction of dopamine replacement therapy
Farooqji
in
Cure Parkinson's
5 years ago
Evidence of the need for patient investigation Part 1 of 2
This post has more than one part because of its length. I am an advocate of people being given the tools to do their own research on the health disability they live with. I am not sure what all these tools are. I am still working on the problem. There is a need for the person with the health disability
This post has more than one part because of its length. I am an advocate of people being given the tools to do their own research on the health disability they live with. I am not sure what all these tools are. I am still working on the problem. There is a need for the person with the health disability
johnsmith
in
Pain Concern
5 years ago
Has anyone tried Wellbutrin / bupropion and has it helped?
I have OCD, but cannot take SSRIs. Even SNRIs probably won't be good as I have thrombocytopenia and am pretty sure it has the same mechanism on certain aspects so could cause bleeding for me (which SSRIs did). I am not on anything now, but still sometimes think it would help whilst I am learning all
I have OCD, but cannot take SSRIs. Even SNRIs probably won't be good as I have thrombocytopenia and am pretty sure it has the same mechanism on certain aspects so could cause bleeding for me (which SSRIs did). I am not on anything now, but still sometimes think it would help whilst I am learning all
Cellothere
in
OCD-UK
5 years ago
On Off -- "dopamine overdose hypothesis" -- tremor tydbyt
Distinct alterations in Parkinson's medication-state and disease-state connectivity. - tremor. https://www.ncbi.nlm.nih.gov/pubmed/28971008 Connections that correlate with only tremor severity are anchored by the cerebellum and the supplemental motor area, but only those connections that include the
Distinct alterations in Parkinson's medication-state and disease-state connectivity. - tremor. https://www.ncbi.nlm.nih.gov/pubmed/28971008 Connections that correlate with only tremor severity are anchored by the cerebellum and the supplemental motor area, but only those connections that include the
aspergerian
in
Cure Parkinson's
5 years ago
Energenesis
Here is a new supplement which has most of everything that isn’t a vitamin or mineral in it. Expensive but maybe convenient if you want to try all these things at once? https://www.theenergyblueprint.com/energenesis “Energenesis is like a 5-star MEAL for your Mitochondria (LOADED with rare nutrients
Here is a new supplement which has most of everything that isn’t a vitamin or mineral in it. Expensive but maybe convenient if you want to try all these things at once? https://www.theenergyblueprint.com/energenesis “Energenesis is like a 5-star MEAL for your Mitochondria (LOADED with rare nutrients
LAJ12345
in
Cure Parkinson's
5 years ago
Quit Smoking!
I quit smoking!😊 This is my second day nicotine free. I have had 10 quits this year (the longest for 2 months.) All of them cold turkey, as is this one. I felt so amazing during all those times. So pure, so athletic, so calm...I felt like my life was heading 100% towards healing and true success.
I quit smoking!😊 This is my second day nicotine free. I have had 10 quits this year (the longest for 2 months.) All of them cold turkey, as is this one. I felt so amazing during all those times. So pure, so athletic, so calm...I felt like my life was heading 100% towards healing and true success.
FranxLove
100 Days Smoke Free
in
No Smoking Day
5 years ago
Nicotinamide Exacerbates Motor Symptoms of Parkinson’s Disease in Mice
https://parkinsonsnewstoday.com/2018/10/10/nicotinamide-exacerbates-motor-symptoms-of-parkinsons-disease-in-mice/ Nicotinamide a form of B3 and precursor of NAD+ that is essential for energy production in cells mitochondria, failed to produce neuroprotection in a study with PD induced rats that we're
https://parkinsonsnewstoday.com/2018/10/10/nicotinamide-exacerbates-motor-symptoms-of-parkinsons-disease-in-mice/ Nicotinamide a form of B3 and precursor of NAD+ that is essential for energy production in cells mitochondria, failed to produce neuroprotection in a study with PD induced rats that we're
Greenday
in
Cure Parkinson's
5 years ago
Watchdog sues FDA for dragging its feet on Parkinson's drug warnings
Moving the FDA's gears can be a lengthy process, particularly when it comes to citizen petitions. But after waiting two and a half years for regulators to stiffen impulse-control warnings on dopamine-driving Parkinson's drugs, one watchdog group ran out of patience. Public Citizen sued the agency Monday
Moving the FDA's gears can be a lengthy process, particularly when it comes to citizen petitions. But after waiting two and a half years for regulators to stiffen impulse-control warnings on dopamine-driving Parkinson's drugs, one watchdog group ran out of patience. Public Citizen sued the agency Monday
Farooqji
in
Cure Parkinson's
5 years ago
Stress and anxiety in Parkinson's - my 2 pennies worth
In response to a spam post about stress causing Parkinson's I started this answer which became too long winded as a response. I don't think stress causes Parkinson's as claimed (in fact I think it's a nonsense idea) but definitely stress causes problems in Parkinson's. Alongside the fact that stress
In response to a spam post about stress causing Parkinson's I started this answer which became too long winded as a response. I don't think stress causes Parkinson's as claimed (in fact I think it's a nonsense idea) but definitely stress causes problems in Parkinson's. Alongside the fact that stress
Jmwg45
in
Cure Parkinson's
5 years ago
Treat breast enlargement without radiation and fight PCa?
Subject: A Proposed Efficacious Treatment with Clioquinol (Zinc Ionophore) and Cabergoline (Prolactin Dopamine Agonist) for the Treatment of Terminal Androgen-independent Prostate Cancer. Why and How? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6392423/
Subject: A Proposed Efficacious Treatment with Clioquinol (Zinc Ionophore) and Cabergoline (Prolactin Dopamine Agonist) for the Treatment of Terminal Androgen-independent Prostate Cancer. Why and How? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6392423/
sammamish
in
Advanced Prostate Cancer
5 years ago
Could ADHD drugs ultimately harm children’s brains?
My 17 year old daughter has ADHD Inattentive. She took Strattera for nearly 2 years but it lost effectiveness. She just tried Vyvanse again (which she briefly tried age 13 but stopped due to anxiety). So age 17 she tried Vyvanse 20mg, 30mg and 40 mg. None worked at all. I started reading how ADHD drugs
My 17 year old daughter has ADHD Inattentive. She took Strattera for nearly 2 years but it lost effectiveness. She just tried Vyvanse again (which she briefly tried age 13 but stopped due to anxiety). So age 17 she tried Vyvanse 20mg, 30mg and 40 mg. None worked at all. I started reading how ADHD drugs
Cleome
in
CHADD's ADHD Parents Together
5 years ago
DL‑3‑n‑butylphthalide therapy for Parkinson's disease: A randomized controlled trial
Currently available treatments for Parkinson's disease (PD) do not delay or prevent disease development and progression. DL‑3‑n‑butylphthalide (NBP), isolated from Apium graveolens seeds, alleviates oxidative damage and mitochondrial dysfunction. It has been revealed to reduce the loss of dopamine neurons
Currently available treatments for Parkinson's disease (PD) do not delay or prevent disease development and progression. DL‑3‑n‑butylphthalide (NBP), isolated from Apium graveolens seeds, alleviates oxidative damage and mitochondrial dysfunction. It has been revealed to reduce the loss of dopamine neurons
Farooqji
in
Cure Parkinson's
5 years ago
Focused Ultrasound in Switzerland
I have decided to see if I can have focused ultrasound at Sonimodul clinic in Switzerland. The neurologist there has the most experienced and 2 friends have had excellent results. I’ve collated lots of information for anyone who’s interested. https://sonimodul.ch https://www.frontiersin.org/articles
I have decided to see if I can have focused ultrasound at Sonimodul clinic in Switzerland. The neurologist there has the most experienced and 2 friends have had excellent results. I’ve collated lots of information for anyone who’s interested. https://sonimodul.ch https://www.frontiersin.org/articles
Trixiedee
in
Cure Parkinson's
5 years ago
This is working for us! Want to help someone else if this story looks similar to your child or teen
I am posting this because there has to be someone else out there this may help. I have hope right now for my teen and I want to share this. I can't tell you how happy I am right now. We still have a long road I'm sure, and we have had a tremendous number of ups and downs over the years. We tried everything
I am posting this because there has to be someone else out there this may help. I have hope right now for my teen and I want to share this. I can't tell you how happy I am right now. We still have a long road I'm sure, and we have had a tremendous number of ups and downs over the years. We tried everything
Birdie7
in
CHADD's ADHD Parents Together
5 years ago
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