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PSP Treatment
We live in a small country town and my husband is only able to see a neurologist every six months. At the last visit he said he thought John had PSP and an MRI has confirmed this. He has been treated for PD for five years and is still taking dopamine. These tablets usually make him feel awful. I
We live in a small country town and my husband is only able to see a neurologist every six months. At the last visit he said he thought John had PSP and an MRI has confirmed this. He has been treated for PD for five years and is still taking dopamine. These tablets usually make him feel awful. I
tasha1944
in
PSP Association
5 years ago
Wellbutrin
Hello all. I am writing about my 88 year old husband who has suffered from RLS for about 8 years....very severe. He has tried everything and is now on 7.25 mg of methadone plus three iron infusions in the past 12 months. . Those really helped but his ferretin levels are too high now for another infusion
Hello all. I am writing about my 88 year old husband who has suffered from RLS for about 8 years....very severe. He has tried everything and is now on 7.25 mg of methadone plus three iron infusions in the past 12 months. . Those really helped but his ferretin levels are too high now for another infusion
williesophie
in
Restless Legs Syndrome
5 years ago
FOLATE DEFICIENCY VERY SYMPTOMATIC ASKING FOR ANSWERS, OPINIONS, REASONS ETC..!!
My folic acid test was 8 ng/ml reference ranges from 1.6 to 8.8 ng/ml. I have poor concentration, loss of.balance, feeling disoriented, double vision, muscle weakness, numbness and tingling in hands and legs.and feet, cold hands, my level Of consciousness is very decreased, shortness od breath dizziness
My folic acid test was 8 ng/ml reference ranges from 1.6 to 8.8 ng/ml. I have poor concentration, loss of.balance, feeling disoriented, double vision, muscle weakness, numbness and tingling in hands and legs.and feet, cold hands, my level Of consciousness is very decreased, shortness od breath dizziness
G0raN
in
Pernicious Anaemia Society
5 years ago
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Ways various PD treatments deplete essential chemicals.
https://www.dovepress.com/parkinsonrsquos-disease-managing-reversible-neurodegeneration-peer-reviewed-fulltext-article-NDT The above is an interesting read, including various pathways that are depleted with PD treatments. Also this was interesting: Should mucuna and 5-HTP be used instead of sinemet
https://www.dovepress.com/parkinsonrsquos-disease-managing-reversible-neurodegeneration-peer-reviewed-fulltext-article-NDT The above is an interesting read, including various pathways that are depleted with PD treatments. Also this was interesting: Should mucuna and 5-HTP be used instead of sinemet
LAJ12345
in
Cure Parkinson's
5 years ago
Apples and orange juice
Apples and orange juice are both good sources of dopamine I always feel better after eating apples I have just had a couple of English apples I recommend them to you all if you need a boost
Apples and orange juice are both good sources of dopamine I always feel better after eating apples I have just had a couple of English apples I recommend them to you all if you need a boost
lillyofthevalley37
in
Anxiety and Depression Support
5 years ago
80 ice cold baths - UPDATE
Two months ago I started and tomorrow I will grit my teeth for the last time. I have managed one a day, occasionally two but not often 😳. They have become considerably colder as the weather gets frostier and so does my water tank in the attic!! I've made it, even though halfway I felt I couldn't go
Two months ago I started and tomorrow I will grit my teeth for the last time. I have managed one a day, occasionally two but not often 😳. They have become considerably colder as the weather gets frostier and so does my water tank in the attic!! I've made it, even though halfway I felt I couldn't go
Tuccatoo
in
Restless Legs Syndrome
5 years ago
Autologous IP Stem Cell Update
🔬 “Aspen Neuroscience looks to combine its expertise in stem cell biology, genomics and neurology to offer the first autologous cell therapy for Parkinson’s disease—while others in the space have pursued allogeneic routes, or therapies derived from donors other than the patient. “We can say without
🔬 “Aspen Neuroscience looks to combine its expertise in stem cell biology, genomics and neurology to offer the first autologous cell therapy for Parkinson’s disease—while others in the space have pursued allogeneic routes, or therapies derived from donors other than the patient. “We can say without
PDConscience
in
Cure Parkinson's
5 years ago
Confusion and Memory loss
Hi there - just wondering if any of you have experienced confusion / memory loss as a result of being on dopamine agonists such as Pramipexole? Thanks!
Hi there - just wondering if any of you have experienced confusion / memory loss as a result of being on dopamine agonists such as Pramipexole? Thanks!
Boldgirl45
in
Restless Legs Syndrome
5 years ago
Neurologist
Hi everyone I saw my third neurologist today a young female who seemed a lot more understanding than the previous two. When I told her I didn't want to go down the path of trying another dopamine agonist she suggested that I goin to Gabapentin tarting with 100mg three times a day end increasing gradually
Hi everyone I saw my third neurologist today a young female who seemed a lot more understanding than the previous two. When I told her I didn't want to go down the path of trying another dopamine agonist she suggested that I goin to Gabapentin tarting with 100mg three times a day end increasing gradually
Hoochybaby
in
Restless Legs Syndrome
5 years ago
L tyrosine best treatment for dopamine
L tyrosine instead of levopoda. i ve difficulties to walk after taking sinemet. I ve tried l TYROSINE instead and can walk almost normally. before i used to take L tyrosine and sinemet. found not to take together. tried only sinemet couldn't walk. tried L tyrosine alone. it works perfectly. Try it
L tyrosine instead of levopoda. i ve difficulties to walk after taking sinemet. I ve tried l TYROSINE instead and can walk almost normally. before i used to take L tyrosine and sinemet. found not to take together. tried only sinemet couldn't walk. tried L tyrosine alone. it works perfectly. Try it
b-bar
in
Cure Parkinson's
5 years ago
Question about Supplements
I've read numerous articles about how children with ADHD lack dopamine...has anyone ever given their child either dopamine or GABA supplements?? Thanks in advance!
I've read numerous articles about how children with ADHD lack dopamine...has anyone ever given their child either dopamine or GABA supplements?? Thanks in advance!
workoutmom
in
CHADD's ADHD Parents Together
5 years ago
Agonist vs Dopamine
Being recently diagnosed with PD ( June 2019 ), I am confused. My first Neurologist prescribed Sinemet. 1 pill 2 x per day, upping this dosage after 2 weeks to 2 pills twice a day. I noticed a " fog clearing " after the first night. Encouraging. We sought a second opinion because of difficulties
Being recently diagnosed with PD ( June 2019 ), I am confused. My first Neurologist prescribed Sinemet. 1 pill 2 x per day, upping this dosage after 2 weeks to 2 pills twice a day. I noticed a " fog clearing " after the first night. Encouraging. We sought a second opinion because of difficulties
TR8Man
in
Cure Parkinson's
5 years ago
Does L-Tyrosine also cause augmentation
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Early Hypo/Hashi's Complicated By Adrenal/Low Cortisol
Greetings everyone: Finally got fed up with my family doctor who knows nothing and went two routes - endocrinologist (my doctor reluctantly gave a referral) and naturopath. Symptoms I have just about every symptom of hypothyroidism I have ever read and I am confirmed Hashi's by antibodies and ultrasound
Greetings everyone: Finally got fed up with my family doctor who knows nothing and went two routes - endocrinologist (my doctor reluctantly gave a referral) and naturopath. Symptoms I have just about every symptom of hypothyroidism I have ever read and I am confirmed Hashi's by antibodies and ultrasound
ASkepticalConsumer
in
Thyroid UK
5 years ago
Dopamine video
This might be helpful to some. How to increase your dopamine naturally. I’ve only just watched it, but it looks interesting. https://youtu.be/T9GU3SOf_sY The interesting part starts just over six minutes in. Not specifically RLS, but we all know this awful affliction is dopamine related.
This might be helpful to some. How to increase your dopamine naturally. I’ve only just watched it, but it looks interesting. https://youtu.be/T9GU3SOf_sY The interesting part starts just over six minutes in. Not specifically RLS, but we all know this awful affliction is dopamine related.
Gmc54
in
Restless Legs Syndrome
5 years ago
More help please
I have posted here several times and have had wonderful help. Now I need more please. I have been trying to get back to more sleep , having gone through hell getting off the dopamine agonists. It is over 3 months since I began withdrawal, which took 6 weeks to be totally clear. Currently I am on Gabapentin
I have posted here several times and have had wonderful help. Now I need more please. I have been trying to get back to more sleep , having gone through hell getting off the dopamine agonists. It is over 3 months since I began withdrawal, which took 6 weeks to be totally clear. Currently I am on Gabapentin
wairoa36
in
Restless Legs Syndrome
5 years ago
Nourianz new medication to reduce off time
I would appreciate any feedback on Nourianz from anyone who used it. This is the new class of medication: adenosine A24 inhibitor. It doesn't have anything to do with dopamine. It can reduce OFF time by as much as 2 hours. It was used in Japan for quite awhile and now it has been approved in US
I would appreciate any feedback on Nourianz from anyone who used it. This is the new class of medication: adenosine A24 inhibitor. It doesn't have anything to do with dopamine. It can reduce OFF time by as much as 2 hours. It was used in Japan for quite awhile and now it has been approved in US
felixned
in
Cure Parkinson's
5 years ago
Pramipexole no longer working
I have been taking pramipexole, successfully, for 2.5 years. As of November 1, 2019, it stopped working and my symptoms became. I have read posts here and see that this is augmentation, or so it seems. My symptoms begin earlier, around 5:00 pm, and I am noticing that they are affecting other areas
I have been taking pramipexole, successfully, for 2.5 years. As of November 1, 2019, it stopped working and my symptoms became. I have read posts here and see that this is augmentation, or so it seems. My symptoms begin earlier, around 5:00 pm, and I am noticing that they are affecting other areas
Briar2020
in
Restless Legs Syndrome
5 years ago
Dopamine fasting latest silicone valley trend.
Hi everyone, I have read a few articles about this and basically its what we used to call switching off by disengaging from external stimuli. I'm fascinated that you can now get phone apps to help with dopamine fasting. My phone has an off switch and I can switch the ring tone off so I don't need an
Hi everyone, I have read a few articles about this and basically its what we used to call switching off by disengaging from external stimuli. I'm fascinated that you can now get phone apps to help with dopamine fasting. My phone has an off switch and I can switch the ring tone off so I don't need an
Hidden
Administrator
in
Healthy Eating
5 years ago
Is there a list of alternative treatments of PD?
the usual story is always the same. You are diagnosed PD and then you take artidficial dopamine ? When it wors you can enjoy a honeymoon lasting a fzw months or a few years and then eveythiing worsens until you lose mobility andfall down in dementia . I agrée it's a pessimisitic view but it seems
the usual story is always the same. You are diagnosed PD and then you take artidficial dopamine ? When it wors you can enjoy a honeymoon lasting a fzw months or a few years and then eveythiing worsens until you lose mobility andfall down in dementia . I agrée it's a pessimisitic view but it seems
PARKINPONS2
in
Cure Parkinson's
5 years ago
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