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crying out loud for help..
I have deteriorated this 2023; YOPD, diagnosed 12 years ago, delivered a baby four years ago. Will be celebrating (hopefully) 40th birthday in Q4 this year. On Credanil®. (Levodopa/Carbidopa)- 125 mg since then along with dopamine agonists pramipexole 0.375 mg ER. This year tremendous fatigue, brain
I have deteriorated this 2023; YOPD, diagnosed 12 years ago, delivered a baby four years ago. Will be celebrating (hopefully) 40th birthday in Q4 this year. On Credanil®. (Levodopa/Carbidopa)- 125 mg since then along with dopamine agonists pramipexole 0.375 mg ER. This year tremendous fatigue, brain
Divii
in
Cure Parkinson's
1 year ago
Biotin and dopamine transport
Dopamine transport dependent on biotin https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5157066/
Dopamine transport dependent on biotin https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5157066/
Gigi216
in
Cure Parkinson's
1 year ago
Ozempic effects dopamine?
This article implies that Ozempic increases dopamine: https://www.msn.com/en-us/health/medical/some-people-taking-ozempic-say-it-helps-with-addiction-they-could-be-onto-something-according-to-research/ar-AA1bEpxV I'm wondering if anyone here with PD uses Ozempic and if they noticed any positive
This article implies that Ozempic increases dopamine: https://www.msn.com/en-us/health/medical/some-people-taking-ozempic-say-it-helps-with-addiction-they-could-be-onto-something-according-to-research/ar-AA1bEpxV I'm wondering if anyone here with PD uses Ozempic and if they noticed any positive
pvw2
in
Cure Parkinson's
1 year ago
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Will b12 injection interfere with chorea/movement disorder?
I'm thinking of have the b12 injection as my fatigue levels are crippling me. I'm not deficient but on the lower end of the numbers. So I thought this may make a little difference. Only thing that's concern me is I have this seizure, movement disorder going on. I know movement disorders are triggered
I'm thinking of have the b12 injection as my fatigue levels are crippling me. I'm not deficient but on the lower end of the numbers. So I thought this may make a little difference. Only thing that's concern me is I have this seizure, movement disorder going on. I know movement disorders are triggered
Charts
in
Hughes Syndrome APS Forum
1 year ago
Augmentation
Hi, I am trying to come off the dopamine agonist that I have been taking for the past eight years for my RLS, does anybody know if the augmentation I have built up will go when I am clear of the medication, or am I stuck with it for the rest of my life?
Hi, I am trying to come off the dopamine agonist that I have been taking for the past eight years for my RLS, does anybody know if the augmentation I have built up will go when I am clear of the medication, or am I stuck with it for the rest of my life?
Mounta
in
Restless Legs Syndrome
1 year ago
My husbands latest poem, called ‘ French Dressing’
It’s out of my range to do a quick change In moments of passion it’s becoming the fashion, to remain fully dressed, haven’t you guessed? I made up that line to make me feel fine. When it’s time for a shower I need a full hour. The soap is alive, it’s doing the jive. With a dopamine pill, it may
It’s out of my range to do a quick change In moments of passion it’s becoming the fashion, to remain fully dressed, haven’t you guessed? I made up that line to make me feel fine. When it’s time for a shower I need a full hour. The soap is alive, it’s doing the jive. With a dopamine pill, it may
Zella23
in
Cure Parkinson's
1 year ago
Sleepy kidney
Hi all, Am hoping someone can reasure or give me some advice. I received a transplant on the 11th April 2023 and its been a rough ride so far. I spent a week in ITU and was hooked up to dopamine for 3 weeks to help my blood pressure. My urine out has been slow, for a few days I got between 600-800ml
Hi all, Am hoping someone can reasure or give me some advice. I received a transplant on the 11th April 2023 and its been a rough ride so far. I spent a week in ITU and was hooked up to dopamine for 3 weeks to help my blood pressure. My urine out has been slow, for a few days I got between 600-800ml
Gwenkidney
in
Kidney Transplant Patient Support
1 year ago
Stress and RLS
I'm just wondering since RLS is caused by a lack of dopamine in the brain, does stress and anxiety also have the same effect on dopamine and can therefore cause or worsen RLS?
I'm just wondering since RLS is caused by a lack of dopamine in the brain, does stress and anxiety also have the same effect on dopamine and can therefore cause or worsen RLS?
Guitarist235
in
Restless Legs Syndrome
1 year ago
Rytary
1 -25/100 and 145 mg Rytary helps with off time when I run out of dopamine, I have to sit down and wait for pills to kick in, but the Rytary helps with that now, but I’m very stiff and achy in leg and arm since on Rytary, anyone else experiencing stiffness with Rytary? I wish these meds didn’t have
1 -25/100 and 145 mg Rytary helps with off time when I run out of dopamine, I have to sit down and wait for pills to kick in, but the Rytary helps with that now, but I’m very stiff and achy in leg and arm since on Rytary, anyone else experiencing stiffness with Rytary? I wish these meds didn’t have
akgirlsrock
in
Cure Parkinson's
1 year ago
Reducing Augmentation
https://sleepreviewmag.com/sleep-disorders/movement-disorders/restless-legs-syndrome/reduce-augmentation-risk-restless-legs-syndrome/ A useful article on Dopamine Agonists and augmentation by Dr William Ondo. It will be useful to print out & show your doctors/neurologists, especially those who don't
https://sleepreviewmag.com/sleep-disorders/movement-disorders/restless-legs-syndrome/reduce-augmentation-risk-restless-legs-syndrome/ A useful article on Dopamine Agonists and augmentation by Dr William Ondo. It will be useful to print out & show your doctors/neurologists, especially those who don't
Joolsg
in
Restless Legs Syndrome
1 year ago
Pycnogenol® supplementation alleviates symptoms of Parkinson's disease with mild cognitive impairment
Recent article 2022. Not sure if it was posted. I was going to take it to lower my BP which has started to creep up. I worried because I had read [i]Their pharmacodynamic action primarily consists of antioxidant properties and possible anti-inflammatory effects. Pycnogenol may also influence the release
Recent article 2022. Not sure if it was posted. I was going to take it to lower my BP which has started to creep up. I worried because I had read [i]Their pharmacodynamic action primarily consists of antioxidant properties and possible anti-inflammatory effects. Pycnogenol may also influence the release
Sydney75
in
Cure Parkinson's
1 year ago
Dopamine Stem Cell Replacement for Parkinson's - SUMMARY and LONG videos
The short video was released May 7, 2023 summarizing the full presentation which was video'd on February 23, 2023 ------------------------------------------------ https://youtu.be/QZuqXjXtBuo --------------------------------------------- FULL one hour, 11 minute presentation here: https://youtu.be
The short video was released May 7, 2023 summarizing the full presentation which was video'd on February 23, 2023 ------------------------------------------------ https://youtu.be/QZuqXjXtBuo --------------------------------------------- FULL one hour, 11 minute presentation here: https://youtu.be
PDWarrior1900
in
Cure Parkinson's
1 year ago
Dr Andy how to Taper off Dopamine Agonists and telling people they should not be prescribed.
https://youtu.be/_t8U89gy4G0 Some of this information is helpful . Good to show doctors that they should not prescribe dopamine agonists . Also the previous video with Professor Allen apologising for starting people on dopamine agonists before he know it would cause augmentation.
https://youtu.be/_t8U89gy4G0 Some of this information is helpful . Good to show doctors that they should not prescribe dopamine agonists . Also the previous video with Professor Allen apologising for starting people on dopamine agonists before he know it would cause augmentation.
Shumbah
in
Restless Legs Syndrome
1 year ago
My Story Up To Now
Developed RLS in my 70s. Have taken low doses of Duluxomine for 20 years to help with anxiety and depression. Am extremely sensitive to medication. I am convinced that Duluxomine is the primary cause of my RLS, and have been tapering off slowly for two years. Hope to eventually switch to bupropion, the
Developed RLS in my 70s. Have taken low doses of Duluxomine for 20 years to help with anxiety and depression. Am extremely sensitive to medication. I am convinced that Duluxomine is the primary cause of my RLS, and have been tapering off slowly for two years. Hope to eventually switch to bupropion, the
FreeqntFlier
in
Restless Legs Syndrome
1 year ago
Coming off Ropinerol
A family member, after years of taking Ropinerol with resulting augmentation to the point of its no longer having sufficient effect, has abruptly had the prescription for Ropinerol terminated, and another dopamine agonist prescribed in its place. In the initial days, it is proving completely ineffective
A family member, after years of taking Ropinerol with resulting augmentation to the point of its no longer having sufficient effect, has abruptly had the prescription for Ropinerol terminated, and another dopamine agonist prescribed in its place. In the initial days, it is proving completely ineffective
ticheroasteri
in
Restless Legs Syndrome
1 year ago
Daily consumption of methylene blue reduces attentional deficits and dopamine reduction in a 6-OHDA model of Parkinson’s disease
https://www.mwhp.com/methylene-blue-and-red-light-therapy-for-dementia-parkinsons-and-alzheimers-disease/ -------------------------------------------- I never heard of "methylene blue" until 15 minutes ago while watching this Dr. Berg video. He says you can buy it over the counter! https://youtu.be
https://www.mwhp.com/methylene-blue-and-red-light-therapy-for-dementia-parkinsons-and-alzheimers-disease/ -------------------------------------------- I never heard of "methylene blue" until 15 minutes ago while watching this Dr. Berg video. He says you can buy it over the counter! https://youtu.be
PDWarrior1900
in
Cure Parkinson's
1 year ago
Neupro patch advice
ok I posted recently that I am now one week post being off pramipexole. Saw my neurologist today because I have having terrible insomnia and problems staying asleep with increased symptoms. This has been going on for 5 weeks now being as bad as it is now. Can't even get to bed and lay in the bed without
ok I posted recently that I am now one week post being off pramipexole. Saw my neurologist today because I have having terrible insomnia and problems staying asleep with increased symptoms. This has been going on for 5 weeks now being as bad as it is now. Can't even get to bed and lay in the bed without
Aujamw
in
Restless Legs Syndrome
1 year ago
Titrating off of Ropinirole
I've been on ropinirole for 10 years. Got up to 4mg in October 2023 and suddenly it became ineffective. Thank God, I found this site and tge amazing help that you all provide. I began to taper and now I'm down to 1mg. I've been trying to follow the recommendation of 1/2mg every 2 weeks.I also got
I've been on ropinirole for 10 years. Got up to 4mg in October 2023 and suddenly it became ineffective. Thank God, I found this site and tge amazing help that you all provide. I began to taper and now I'm down to 1mg. I've been trying to follow the recommendation of 1/2mg every 2 weeks.I also got
climber54
in
Restless Legs Syndrome
1 year ago
The Relationship Between Dopamine and Melatonin. Bronowski Institute
https://youtu.be/41XIrv0btWc https://bronowski.org/education/
https://youtu.be/41XIrv0btWc https://bronowski.org/education/
Thal
in
Cure Parkinson's
1 year ago
04 am UK time
Far from being a cause of distress as was the case with the untold misery of a month ago walking the house at night feeling that familiar dread that comes with severe sleep deprivation and feeling like you’re teetering on the edge of an abyss, I now feel a certain sense of euphoria knowing that I will
Far from being a cause of distress as was the case with the untold misery of a month ago walking the house at night feeling that familiar dread that comes with severe sleep deprivation and feeling like you’re teetering on the edge of an abyss, I now feel a certain sense of euphoria knowing that I will
HipHop1972
in
Restless Legs Syndrome
1 year ago
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