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Rytary update
I may be getting close to going back to regular C/L . Rytary does give me longer ON times, which allow me to eat three times per day. I had lost 20 lbs last year, and had been able to slow the weight loss, but not stop it entirely. Now I’ve gained a couple of pounds. BUT. I had finally stabilized
I may be getting close to going back to regular C/L . Rytary does give me longer ON times, which allow me to eat three times per day. I had lost 20 lbs last year, and had been able to slow the weight loss, but not stop it entirely. Now I’ve gained a couple of pounds. BUT. I had finally stabilized
rebtar
in
Cure Parkinson's
1 year ago
What are ‘off’ periods – and how can they impact people with Parkinson’s disease?
“The ‘off’ state can kick in when levodopa is eliminated from our body – and people begin to express motor symptoms that are related to the low amount of dopamine going to the brain.” Other types include partial ‘on’ or dose failure: “Sometimes, a dose of medication may provide incomplete relief of
“The ‘off’ state can kick in when levodopa is eliminated from our body – and people begin to express motor symptoms that are related to the low amount of dopamine going to the brain.” Other types include partial ‘on’ or dose failure: “Sometimes, a dose of medication may provide incomplete relief of
Farooqji
in
Cure Parkinson's
1 year ago
Advice needed
I have been on Dopamine meds since 2010 and am presently on 2mg Neupro patch which I was switched to in 2016 by a Neurologist. The inevitable Augmentation is now so bad I need to come off it. I had a trial of Gabapentin in 2015 but developed a very serious depression ( never suffered it before or since
I have been on Dopamine meds since 2010 and am presently on 2mg Neupro patch which I was switched to in 2016 by a Neurologist. The inevitable Augmentation is now so bad I need to come off it. I had a trial of Gabapentin in 2015 but developed a very serious depression ( never suffered it before or since
Annieapple
in
Restless Legs Syndrome
1 year ago
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blood dopamine test
Why is the blood dopamine test not useful for diagnosis of Parkinsn?
Why is the blood dopamine test not useful for diagnosis of Parkinsn?
Basilico
in
Cure Parkinson's
1 year ago
Weaning off high dose Pramipexole
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
I have had RLS since the 1970s. Some years ago I had augmentation. At the time I was taking the maximum recommended dose of Pramipexole, .75mg. My neurologist addressed it by a pramipexole vacation and prescribed carbidopa levodopa for 3 months. Seemed odd as it is a dopamine drug but it worked
lessergoldfinch
in
Restless Legs Syndrome
1 year ago
Feeling we are losing control and that things will be worse in the future, adds stress & anxiety which creates a destructive feedback loop.
Apathy (in PD) is because of reduced dopamine. I am struggling with apathy. Having a thought doesn't mean its true. How to Maximize Dopamine & Motivation - Andrew Huberman 11 min https://youtu.be/ha1ZbJIW1f8 Living in SURVIVAL vs. Living in CREATION - Dr. Joe Dispenza https://youtu.be/MtimAuhyP-M
Apathy (in PD) is because of reduced dopamine. I am struggling with apathy. Having a thought doesn't mean its true. How to Maximize Dopamine & Motivation - Andrew Huberman 11 min https://youtu.be/ha1ZbJIW1f8 Living in SURVIVAL vs. Living in CREATION - Dr. Joe Dispenza https://youtu.be/MtimAuhyP-M
MBAnderson
in
Cure Parkinson's
1 year ago
Song 4 about depression
Verse 1 Walk with a smile while you dying on the inside Face all your days while you'd rather just stay inside Keep your shit together while you broken on the inside Don't say a word keep the thoughts on the inside No one can know how you doing on the inside Take all the hate and then point it to
Verse 1 Walk with a smile while you dying on the inside Face all your days while you'd rather just stay inside Keep your shit together while you broken on the inside Don't say a word keep the thoughts on the inside No one can know how you doing on the inside Take all the hate and then point it to
_Mr_Nobody_
in
Anxiety and Depression Support
1 year ago
A cross in the sand
Does anyone else find this explanation helpful -- ? Imagine yourself sitting on the beach and you draw a cross in the sand like an 'x'. The first stroke represents your dopamine deficiency and the second stroke you draw several times as it represents an overactive adrenal response subsequent to the HABIT
Does anyone else find this explanation helpful -- ? Imagine yourself sitting on the beach and you draw a cross in the sand like an 'x'. The first stroke represents your dopamine deficiency and the second stroke you draw several times as it represents an overactive adrenal response subsequent to the HABIT
Meg024
in
Cure Parkinson's
1 year ago
Rytary… might stop??
After 6 days the following impressions… I do get about an hour longer ON per dose. I was on a four hour cycle with IR, with about 2-3.5 ON per dose, depending on food. Rytary gives me 4 hour ON on a 5 hour dose cycle, BUT, the afternoon slump around 3 pm (halfway between doses, but when endogenous
After 6 days the following impressions… I do get about an hour longer ON per dose. I was on a four hour cycle with IR, with about 2-3.5 ON per dose, depending on food. Rytary gives me 4 hour ON on a 5 hour dose cycle, BUT, the afternoon slump around 3 pm (halfway between doses, but when endogenous
rebtar
in
Cure Parkinson's
1 year ago
Iron Infusion Attempt
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
Munroist
in
Restless Legs Syndrome
1 year ago
Mitochondrial failing due to T3 problems
My research online using Artificial Intelligence has firmly linked T3 failing to Mitochondrial failing. Thyroid T4 I note from my blood test results that I have low TSH, the bottom of the acceptable range of 0.45 mu/L At age 65, 0.5 is considered to be the lowest acceptable level. I asked an AI system
My research online using Artificial Intelligence has firmly linked T3 failing to Mitochondrial failing. Thyroid T4 I note from my blood test results that I have low TSH, the bottom of the acceptable range of 0.45 mu/L At age 65, 0.5 is considered to be the lowest acceptable level. I asked an AI system
Simonron
in
Thyroid UK
1 year ago
Confusion over Mayo Clinic report
I am now looking at probably going off gabapentin as it is likely the cause of nervousness that I was also experiencing on pregabalin. Reading the report, it seems the next recommendation is the nonergot dopamine agonists, or the drugs that cause augmentation. Sue Johnson, etc. seem to disagree about
I am now looking at probably going off gabapentin as it is likely the cause of nervousness that I was also experiencing on pregabalin. Reading the report, it seems the next recommendation is the nonergot dopamine agonists, or the drugs that cause augmentation. Sue Johnson, etc. seem to disagree about
wantokporo
in
Restless Legs Syndrome
1 year ago
Mum newly diagnosed with MSA-P and we are all struggling
Hello everyone I hope you don’t mind me starting a post, I’ve never really used a forum before so I am very unsure if this is the correct place to post. My Mum (69) developed a twitch in her finger many years ago which went away. She was a very slow walker but apart from that we didn’t think anything
Hello everyone I hope you don’t mind me starting a post, I’ve never really used a forum before so I am very unsure if this is the correct place to post. My Mum (69) developed a twitch in her finger many years ago which went away. She was a very slow walker but apart from that we didn’t think anything
Purplestar2
in
Multiple System Atrophy Trust
1 year ago
Toxicological Effects of Berberine and Sanguinarine 2018
I have a lot of faith in Berberine, but somebody (you know who you are [Thanks!]) shared this article with me. It is interesting: Toxicological Effects of Berberine and Sanguinarine
2018https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5867333/#:~:text=The%20toxicity%20of%20pure%20compound,immune%20cells
I have a lot of faith in Berberine, but somebody (you know who you are [Thanks!]) shared this article with me. It is interesting: Toxicological Effects of Berberine and Sanguinarine
2018https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5867333/#:~:text=The%20toxicity%20of%20pure%20compound,immune%20cells
Bolt_Upright
in
Cure Parkinson's
1 year ago
New to dialysis; CKD caused by lithium
I started dialysis last August after my kidneys dropped into the Stage 5 range (functioning at less than 10% of normal). I'm 59. Because I'm single and was living by myself, I had few good options but to move into a long-term rehab facility in a nearby suburb that has an on-site hemodialysis clinic.
I started dialysis last August after my kidneys dropped into the Stage 5 range (functioning at less than 10% of normal). I'm 59. Because I'm single and was living by myself, I had few good options but to move into a long-term rehab facility in a nearby suburb that has an on-site hemodialysis clinic.
chicagotrekkie
in
Kidney Dialysis
1 year ago
blood test back - any thoughts?
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
Phantom38
in
Restless Legs Syndrome
1 year ago
Extreme headache and always feeling feverish. I don't think I can get my exam feeling like that
And health system here sucks. I feel like im having a stroke. Insane headache and dizzyness, tight veins, veins spasm. Too much living in survival mode but what can i do - can't go to dad's, mom's scaring me with her drinking saying that if she wasn't drinking she would do something worse, my accommodation
And health system here sucks. I feel like im having a stroke. Insane headache and dizzyness, tight veins, veins spasm. Too much living in survival mode but what can i do - can't go to dad's, mom's scaring me with her drinking saying that if she wasn't drinking she would do something worse, my accommodation
Against_the_current
in
Anxiety and Depression Support
1 year ago
Can damaged/irritated nerves cause RLS?
I've had RLS for a few years now. I've also had to have RFAs in a couple of places around L5 and my sacroiliac joint because of really bad pain from inflamed nerves. The RLS started well before I had the RFAs, but after I started having the pain. The doctors I've asked say RLS isn't caused by that (inflamed
I've had RLS for a few years now. I've also had to have RFAs in a couple of places around L5 and my sacroiliac joint because of really bad pain from inflamed nerves. The RLS started well before I had the RFAs, but after I started having the pain. The doctors I've asked say RLS isn't caused by that (inflamed
kcraig
in
Restless Legs Syndrome
1 year ago
Augmentation
I am sure this is addressed somewhere but I am too tired to look for it. In my years with PLMD, I have taken almost everything, but not dopamine agonists. Is it correct that if you start and have success at a low dose -- and never increase it -- that you could avoid augmentation?
I am sure this is addressed somewhere but I am too tired to look for it. In my years with PLMD, I have taken almost everything, but not dopamine agonists. Is it correct that if you start and have success at a low dose -- and never increase it -- that you could avoid augmentation?
wantokporo
in
Restless Legs Syndrome
1 year ago
I asked Chat GPT "Which foods contain or promote dopamine"?
There are several foods that contain or promote dopamine production in the body. Here are some examples: Tyrosine-Rich Foods: Dopamine is derived from the amino acid tyrosine. Foods high in tyrosine include: Almonds, walnuts, and other nuts Avocados Bananas Eggs Lean meats (chicken, turkey, beef
There are several foods that contain or promote dopamine production in the body. Here are some examples: Tyrosine-Rich Foods: Dopamine is derived from the amino acid tyrosine. Foods high in tyrosine include: Almonds, walnuts, and other nuts Avocados Bananas Eggs Lean meats (chicken, turkey, beef
JustJeff
in
Cure Parkinson's
1 year ago
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