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Sharing DBS Journey
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
pdkid
in
Cure Parkinson's
3 years ago
Do I still have angina?
I was diagnosed with angina about 7 years ago and after quite a few lifestyle changes I had it under control....I haven't needed to use my spray for years. Three months ago I had a heart attack and had two stents fitted to my LAD, apart from a couple of minor issues with dizziness if I stand up too quickly
I was diagnosed with angina about 7 years ago and after quite a few lifestyle changes I had it under control....I haven't needed to use my spray for years. Three months ago I had a heart attack and had two stents fitted to my LAD, apart from a couple of minor issues with dizziness if I stand up too quickly
Hidden
in
Sudden Cardiac Arrest & Heart Attack
3 years ago
Bypass needed???
Hi all, my husband had a severe heart attack a few months back. They gotten a stent and we were advised that two of the main arteries were still severely diseased and he would need a bypass with open heart surgery. All the doctors we spoke to agreed that the severity of disease meant a bypass. When
Hi all, my husband had a severe heart attack a few months back. They gotten a stent and we were advised that two of the main arteries were still severely diseased and he would need a bypass with open heart surgery. All the doctors we spoke to agreed that the severity of disease meant a bypass. When
BlueOctopus
in
British Heart Foundation
3 years ago
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Update and advice please - new blood results
So I started levothyroxine about 4 months ago. A couple of months at 25mg. Then onto 50mg. At the time my vit D was low at 22. And my cholesterol high at 8.1mmol and my triglycerides at 6.45. My endo put me on fenofibrate to bring the triglycerides down. My latest results attached. Please note,
So I started levothyroxine about 4 months ago. A couple of months at 25mg. Then onto 50mg. At the time my vit D was low at 22. And my cholesterol high at 8.1mmol and my triglycerides at 6.45. My endo put me on fenofibrate to bring the triglycerides down. My latest results attached. Please note,
Quyejoyce1
in
Thyroid UK
3 years ago
Shortness of breath and pounding heart?
Hi, for the last week or so I have been feeling extremely short of breath both at rest, but is exacerbated by exercise. My heart is also constantly pounding, its not beating any faster than usual but it just feels like its working a lot harder and I can hear it at all times of the day, and also feel
Hi, for the last week or so I have been feeling extremely short of breath both at rest, but is exacerbated by exercise. My heart is also constantly pounding, its not beating any faster than usual but it just feels like its working a lot harder and I can hear it at all times of the day, and also feel
sarah4856
in
Anxiety Support
3 years ago
Alcoholism
Hi I had a heart attack in February of this year and a triple heart bypass, I am also, extremely ashamed, to admit I am a functioning alcoholic. I have always drank a lot but since coming out of Hospital I am drinking 3 bottles of wine each day, sometimes more. I Iie to my wife, who I adore, my alcoholism
Hi I had a heart attack in February of this year and a triple heart bypass, I am also, extremely ashamed, to admit I am a functioning alcoholic. I have always drank a lot but since coming out of Hospital I am drinking 3 bottles of wine each day, sometimes more. I Iie to my wife, who I adore, my alcoholism
FRANKIENCOCO
in
British Heart Foundation
3 years ago
Checking pulse daily hugely beneficial
When my GP diagnosed AFib I was given Bisopropol 😔 swiftly changed to Nebivolol and Apixaban and for weeks I just felt rotten most of the time. I then subscribed to technology which gave me unlimited reports on what my heart was up to at any time of the day or night. Reports were consistently showing
When my GP diagnosed AFib I was given Bisopropol 😔 swiftly changed to Nebivolol and Apixaban and for weeks I just felt rotten most of the time. I then subscribed to technology which gave me unlimited reports on what my heart was up to at any time of the day or night. Reports were consistently showing
Loafinabout
in
Atrial Fibrillation Support
3 years ago
Chronic osteomyelitis and systemic sclerosis
Hello everyone!! I have 2 questions related to systemic sclerosis and Raynaud's. 1. Does anyone with systemic sclerosis and Raynaud's phenomenon have a non-healing ulcer and chronic osteomyelitis in their feet? 2. Is there anyone with Raynud's phenomenon and systemic sclerosis who has cold hands and
Hello everyone!! I have 2 questions related to systemic sclerosis and Raynaud's. 1. Does anyone with systemic sclerosis and Raynaud's phenomenon have a non-healing ulcer and chronic osteomyelitis in their feet? 2. Is there anyone with Raynud's phenomenon and systemic sclerosis who has cold hands and
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Dronederone
Hi all Two months ago I was prescribed 400mg Dronederone twice daily to slow down the frequency of AF episodes and also their duration. These were coupled with 5mg Bisoprolol and my usual Apixiban. Sunday evening at 7pm an episode started and as I write Tuesday 11am still ongoing. So it would seem this
Hi all Two months ago I was prescribed 400mg Dronederone twice daily to slow down the frequency of AF episodes and also their duration. These were coupled with 5mg Bisoprolol and my usual Apixiban. Sunday evening at 7pm an episode started and as I write Tuesday 11am still ongoing. So it would seem this
Kia62
in
AF Association
3 years ago
Are you able to help the A F Association?
The AF Association has been approached by leading researchers based in London, UK to involve people with AF in a research study, as to high or low risk they maybe of developing heart rhythm disorders such as AF following cardiac surgery. Researchers are looking for 4-8 volunteers to take part in a 1
The AF Association has been approached by leading researchers based in London, UK to involve people with AF in a research study, as to high or low risk they maybe of developing heart rhythm disorders such as AF following cardiac surgery. Researchers are looking for 4-8 volunteers to take part in a 1
TracyAdmin
Partner
in
AF Association
3 years ago
I’m in the exact situation as you are. You say all the things I have going through my head .
I had a lupus anticoagulant test same as you and they space it out as You said every 3 months . I have had a huge clot in my subclavian which was so big it had spread from subclavian to side of my breast and under my arm pit . I was in hospital for a week . They put me on heparin IV drip and Coumadin
I had a lupus anticoagulant test same as you and they space it out as You said every 3 months . I have had a huge clot in my subclavian which was so big it had spread from subclavian to side of my breast and under my arm pit . I was in hospital for a week . They put me on heparin IV drip and Coumadin
Dianehunt212
in
Hughes Syndrome APS Forum
3 years ago
Coping with what could have been
My husband has recently been very ill and had a liver transplant which is working wonderfully. I can't stop thinking about what could have happened if he had not had the transplant. He had sepsis in March and almost died and was going downhill fast just before his transplant. I'm driving myself crazy
My husband has recently been very ill and had a liver transplant which is working wonderfully. I can't stop thinking about what could have happened if he had not had the transplant. He had sepsis in March and almost died and was going downhill fast just before his transplant. I'm driving myself crazy
Whip_pet
in
British Liver Trust
3 years ago
Beta blockers and r l s
I had heart surgery 2 months ago and now because my heart is not steady I'm going to be prescribed beta blockers. Does anyone know if they upset the RLS??
I had heart surgery 2 months ago and now because my heart is not steady I'm going to be prescribed beta blockers. Does anyone know if they upset the RLS??
funnyfennel
in
Restless Legs Syndrome
3 years ago
Systemic sclerosis and vein
Good day, everyone. I'm curious whether anyone with scleroderma or systemic sclerosis has trouble opening veins for IV drugs?, And if anyone has established a cvp line for IV medications?
Good day, everyone. I'm curious whether anyone with scleroderma or systemic sclerosis has trouble opening veins for IV drugs?, And if anyone has established a cvp line for IV medications?
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
PVC’s or ectopic beats
Hi, I was diagnosed with paroxysmal afib at 43 in 2017 and had catheter ablation in March this year. Afib returned for a couple of hours twice but was in the 3 month blanking period so was ok. Stopped the flecainide and verapamil 2 months after procedure as advised by surgeon and need to say it feels
Hi, I was diagnosed with paroxysmal afib at 43 in 2017 and had catheter ablation in March this year. Afib returned for a couple of hours twice but was in the 3 month blanking period so was ok. Stopped the flecainide and verapamil 2 months after procedure as advised by surgeon and need to say it feels
rayc99
in
AF Association
3 years ago
Colestyramine
Hi, I've tried taking this in water, juice and mashed banana with a touch of milk and find it impossible. Has anyone tried putting it in glycerine capsules and drinking plenty of water? My itch is driving me nuts!!!! Hope you're all keeping well
Hi, I've tried taking this in water, juice and mashed banana with a touch of milk and find it impossible. Has anyone tried putting it in glycerine capsules and drinking plenty of water? My itch is driving me nuts!!!! Hope you're all keeping well
Wallsend
in
PBC Foundation
3 years ago
AFIB ATTACK
Hi, I’m in AFIB attack , have been for 10 hours now, HR is between 98/137 , I usually go hospital but should I if HR is low.I’m confused as I worry about stroke , I was told to take extra beta blocker but it did nothing. Can anyone advise please.
Hi, I’m in AFIB attack , have been for 10 hours now, HR is between 98/137 , I usually go hospital but should I if HR is low.I’m confused as I worry about stroke , I was told to take extra beta blocker but it did nothing. Can anyone advise please.
Electricblue1
in
AF Association
3 years ago
Different AF Types
I have noticed that I get two types of AF periods. One is where my heart goes into an irregular beat but stays within the normal pulse rate. The other is where it jumps to around 160bpm and is irregular. Is there a difference in the two and how long can you leave the high heart rate before thinking
I have noticed that I get two types of AF periods. One is where my heart goes into an irregular beat but stays within the normal pulse rate. The other is where it jumps to around 160bpm and is irregular. Is there a difference in the two and how long can you leave the high heart rate before thinking
Firstbusman
in
AF Association
3 years ago
4 month old with VSD
I found out just over a week ago that my baby girl, who is a twin born in March 2021, has a large VSD - and now requires heart surgery for it. I know that I should feel better that I keep reading that it’s a routine procedure etc etc but I cannot help but feel dread, worry, anxiousness to name but
I found out just over a week ago that my baby girl, who is a twin born in March 2021, has a large VSD - and now requires heart surgery for it. I know that I should feel better that I keep reading that it’s a routine procedure etc etc but I cannot help but feel dread, worry, anxiousness to name but
FlowerofLondon
in
British Heart Foundation
3 years ago
New Anticoagulant looks promising
There's a new anticoagulant that's in trials on people with AF. It appears to cause minimal bleeding. This is an extract from a Times article: Blood clot treatment may help reduce hospital deaths Tom Whipple, Science Editor Tuesday July 20 2021, 12.01am, The Times Blood clots are responsible for one
There's a new anticoagulant that's in trials on people with AF. It appears to cause minimal bleeding. This is an extract from a Times article: Blood clot treatment may help reduce hospital deaths Tom Whipple, Science Editor Tuesday July 20 2021, 12.01am, The Times Blood clots are responsible for one
MarkS
in
AF Association
3 years ago
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