4 month old with VSD

[FlowerofLondon]

I found out just over a week ago that my baby girl, who is a twin born in March 2021, has a large VSD - and now requires heart surgery for it.

I know that I should feel better that I keep reading that it’s a routine procedure etc etc but I cannot help but feel dread, worry, anxiousness to name but a few

After a 3 year journey with IVF on my own and finally falling pregnant with twins last year I honestly thought the struggle was behind me.

I am trying to hold it together as I know I have no choice but to, for the sake of my little girl and also her twin brother - both of whom are relying on me

It’s all early days though I’ve been told 4-6 weeks. I used this forum when I was going through the cycles of ivf and it helped me at the time. Though I am not sure yet what questions I have and what I need help with yet.

Does anyone know of any other forums or support groups for parents of children with VSDs?

Just getting this out there now, whilst I have 5 minutes, lying here in the dark, in between feeding both babies.

[Milkfairy Heart Star]

Hello,

I am really sorry to hear that you are facing the challenge of one of your twins needing heart surgery.

There are several heart charities providing support for parents and children born with heart problems who hopefully will be able to help you.

I wish you and your babies the very best.

tinytickers.org/

chfed.org.uk/about-us/

[PeterpPiper]

She is a beautiful creation. your love for her is all she understands so she has got everything she needs.Blessings

[Qualipop]

Oh congratulations on your beautiful babies after what must have been a stressful time. I know it sounds really scary such a tiny mite having a heart operation but the surgeons really are experts at this . It's routine for them. Praying all goes well and you get the reassurance you need .