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Post DBS experience by Benjamin stretcher
https://tmrwedition.com/2021/08/28/gratitude/amp/
https://tmrwedition.com/2021/08/28/gratitude/amp/
Farooqji
in
Cure Parkinson's
3 years ago
Underactive thyroid and what food to avoid
Hi everyone. I was diagnosed with autoimmune hypothyroidism 2 weeks ago. Was then started on 100mg levothyroxine. After my second blood tests (don't have access to the results, sorry) the dose was increased to 150mg levothyroxine and I was told my kidney function is off, as well (having a kidney and
Hi everyone. I was diagnosed with autoimmune hypothyroidism 2 weeks ago. Was then started on 100mg levothyroxine. After my second blood tests (don't have access to the results, sorry) the dose was increased to 150mg levothyroxine and I was told my kidney function is off, as well (having a kidney and
AnaLopes9
in
Thyroid UK
3 years ago
AMANTADINE FOR DYSKINESIA. HAVE YOU AN EXPERIENCE WITH THIS DRUG? PLEASE HELP.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
OREOLU
in
Cure Parkinson's
3 years ago
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Hashimoto's and not feeling better
Hi there! I'm wondering if it is possible to just never feel better (lethargic, mentally slow, unable to concentrate/difficulty reading, fatigued, short of breath, etc) when having hashimoto's? Like do some people just feel bad for their entire life despite doing all the right things? I know other people
Hi there! I'm wondering if it is possible to just never feel better (lethargic, mentally slow, unable to concentrate/difficulty reading, fatigued, short of breath, etc) when having hashimoto's? Like do some people just feel bad for their entire life despite doing all the right things? I know other people
KittyKitten
in
Thyroid UK
3 years ago
What I have learned from 1 year with Early Onset PD - "Glass Half Full"
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
blazyb
in
Cure Parkinson's
3 years ago
Have I a good argument for T3?
My Endo is desperate to discharge me. We had a discussion on the 4th may about reducing my Levo from 125 to alternating 100/125, told him I’m unwell on that dosage. I also queried the possibility of T3, apparently he does prescribe it He arranged numerous blood tests which later I discovered didn't
My Endo is desperate to discharge me. We had a discussion on the 4th may about reducing my Levo from 125 to alternating 100/125, told him I’m unwell on that dosage. I also queried the possibility of T3, apparently he does prescribe it He arranged numerous blood tests which later I discovered didn't
Roulette26
in
Thyroid UK
3 years ago
Is Carbidopa/Levodopa 8x’s a day to much when you have the DBS?
My setting is on 3.30 left side, 1.00 right side. My doctor seems to give me more medicine instead of turning it up and I feel like it is causing a lot more symptoms.
My setting is on 3.30 left side, 1.00 right side. My doctor seems to give me more medicine instead of turning it up and I feel like it is causing a lot more symptoms.
Squarles2
in
Cure Parkinson's
3 years ago
Advice please
I would be grateful if anyone has experienced having two kinds of Mercury pharma thyroxine. I started having some 25mcg out of a big bottle that I was told was Mercury pharma and then given 25mcg in a blister pack with eltroxin on the box. I have been experiencing acute diarrhoea and at times complete
I would be grateful if anyone has experienced having two kinds of Mercury pharma thyroxine. I started having some 25mcg out of a big bottle that I was told was Mercury pharma and then given 25mcg in a blister pack with eltroxin on the box. I have been experiencing acute diarrhoea and at times complete
Ann-Simpson
in
Thyroid UK
3 years ago
Sharing DBS Journey
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
Hi, Just wanted to share my dad's process in case it will help anyone... He was diagnosed at 54 years old and will be 70 next month. He is rigidity dominant, experiences freezing of gait (mainly in initiating) and has dyskinesias from his meds (among many other PD symptoms!). Up until almost two years
pdkid
in
Cure Parkinson's
3 years ago
Arthritis or hyper mobility?
Hi, I’m new to this and to be honest I’m not even sure if I’m in the right place but here goes. A little bit of background, I used to do a lot of judo when I was in my early 20’s and I used to work in a shop, lugging in deliveries etc. Did this for a lot of years and then got a second job in a Post
Hi, I’m new to this and to be honest I’m not even sure if I’m in the right place but here goes. A little bit of background, I used to do a lot of judo when I was in my early 20’s and I used to work in a shop, lugging in deliveries etc. Did this for a lot of years and then got a second job in a Post
JustLauraT1985
in
Arthritis Action
3 years ago
Please could anyone give me advice was told I have celiac disease 8 weeks ago .. bad lower right pain
hi, please could anyone give me some advice? I was told I have celiac disease about 2 months ago, I was constipated so much pain in my lower right, and aches in my body, I have been on a gluten free diet since I was told to eat gluten free . My aches stopped after 2 weeks but the constipation seems to
hi, please could anyone give me some advice? I was told I have celiac disease about 2 months ago, I was constipated so much pain in my lower right, and aches in my body, I have been on a gluten free diet since I was told to eat gluten free . My aches stopped after 2 weeks but the constipation seems to
Pink44
in
Gluten Free Guerrillas
3 years ago
OMG I CANT BELIEVE I DID THIS 😱
I’ve had a really good few days mid week the best for manny years. Thursday night felt a bit off very stiff in the evening blamed fibro. Friday night tired and again stiff had to use hot water bottle and paracetamol. Had a busy week so thought I had over did it. Woke yesterday with a flare that wiped
I’ve had a really good few days mid week the best for manny years. Thursday night felt a bit off very stiff in the evening blamed fibro. Friday night tired and again stiff had to use hot water bottle and paracetamol. Had a busy week so thought I had over did it. Woke yesterday with a flare that wiped
Hidden
in
NRAS
3 years ago
Texas deep freeze pictures
Off my back porch 9 degrees New record
Off my back porch 9 degrees New record
getdowngetup
in
Anxiety and Depression Support
3 years ago
Texas deep freeze pictures
Off my back porch 9 degrees 2-15-2021 6:30am Laying hens coop with infared heat lamp in distance
Off my back porch 9 degrees 2-15-2021 6:30am Laying hens coop with infared heat lamp in distance
getdowngetup
in
Anxiety and Depression Support
3 years ago
New here and very anxious!
Hi, my name is Saba, I’m 39 and have been diagnosed with celiac disease just a week ago. I’m very hypochondriac person and get my check ups every 6 months. In February I’ve noticed that my ferritin level dropped a lot, I thought maybe it was cause by diet I was on to lose weight. Then in my July’s check
Hi, my name is Saba, I’m 39 and have been diagnosed with celiac disease just a week ago. I’m very hypochondriac person and get my check ups every 6 months. In February I’ve noticed that my ferritin level dropped a lot, I thought maybe it was cause by diet I was on to lose weight. Then in my July’s check
Saba82
in
Gluten Free Guerrillas
3 years ago
Botox success for dystonia; how long did it last ?… and other ?’s
It’s been a long time since I approached this site. I just got overwhelmed with the summation of the pandemic, the environment, the degradation of our political leadership and my own 20+ years of declining success with living the life of PIGD pd. However I’m faced with an acceleration of the decline
It’s been a long time since I approached this site. I just got overwhelmed with the summation of the pandemic, the environment, the degradation of our political leadership and my own 20+ years of declining success with living the life of PIGD pd. However I’m faced with an acceleration of the decline
etterus
in
Cure Parkinson's
3 years ago
Blood results help
I have had hashimotos now for 8 years. I developed it post partum and was positive for TPO antibodies. Labs previously tested have only ever been TSH and T4, only TPO antibodies at initial diagnosis, have never looked at T3 or antibodies again. Anyway generally feel ok but weight loss still a problem
I have had hashimotos now for 8 years. I developed it post partum and was positive for TPO antibodies. Labs previously tested have only ever been TSH and T4, only TPO antibodies at initial diagnosis, have never looked at T3 or antibodies again. Anyway generally feel ok but weight loss still a problem
CharlieH
in
Thyroid UK
3 years ago
Yea!! Back at work -UBER- after Texas deep freeze!
!Feeling better! DV
!Feeling better! DV
getdowngetup
in
Anxiety and Depression Support
3 years ago
FUS PTT Surgery. 6 months update
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
Markbit
in
Cure Parkinson's
3 years ago
Newby
Just realized I might have Coeliac disease. I had radio therapy for prostate cancer a couple of years ago, which blasts the surrounding organs including the bowel. So I thought my symptoms were due to that. But reading all the coeliac symptoms I wondered if that's what it is. So I'm trying a gluten free
Just realized I might have Coeliac disease. I had radio therapy for prostate cancer a couple of years ago, which blasts the surrounding organs including the bowel. So I thought my symptoms were due to that. But reading all the coeliac symptoms I wondered if that's what it is. So I'm trying a gluten free
Chasbury
in
Gluten Free Guerrillas
3 years ago
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