Experiences with

Decompressive craniectomy

They had to do an emergency decompressive craniectomy surgery on his 6th day as the pressure of his brain was too high.

Hello, I had a craniotomy in 2020 for Atypical meningioma grade 2. At present, the cyst of the tumour cavity is enlarged and now the size is 4.5 cm. Along with Post-surgical hemorrhagic collection and compression by an enlargement of the tumor cavity, there is bleeding in the brain. I am going through

My husband has just been diagnosed with a brain tumour aged 32. He had a seizure back in March and they didn’t do a CT, and then no symptoms until now, which he had all symptoms of a migraine last week, they did a CT scan which showed a 6cm tumour in temporal/frontal lobe which they believe is low grade

Sharing, how in life something can simply change your life. And do the best we can to carry on, the way we are now in life! That was a the day , a decision for operation date. Did have a further MRI in August ,before operation 3 September 2018, Eye sight was fine until 2 weeks before op ,my left eye

Hi, I had a craniotomy and resection of petroclival meningioma in May 2022 but as attached to brain stem it can’t be fully removed. Due to minor growth and change of shape I am having radiotherapy starting on 22nd for 6 weeks, Monday - Friday, what has been other peoples experience? They say possible

Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered

hello I joined this group to hear how others are recovering from their crainotomy. I had my surgery 3 weeks ago to remove a meningioma which I’ve known about and had annual MRIs for the last 12 years. I’m kicking goals with my recovery was sent home 24 hrs after surgery due to no space in hospital

Hey, I had a craniotomy on my left temporal lobe just over 8 weeks ago now. I always have headaches but for the past few days my headache has got worse and has changed slightly to more pressure and pounding. Has anyone else had this?

I had a TBI a few weeks ago, after a work related car accident. It resulted in a craniotomy and I was in an induced coma for a couple of days. I'm slowly beginning to feel better but I just don't feel like myself. I'm tired all the time and I get angry over nothing. Any support or advice would be

Hey Everyone Just wanted to introduce myself I'm Valentina I'm 25 and a history teacher. I'm also currently pregnant with my first, it's a little girl and her nickname is Olive. My boyfriend Dan is a police officer and last week he was involved in a car crash whilst at work. He was knocked unconscious

Hi all. Recently I have seen some very negative posts/responses to people with regards the NHS and it's lack of performance, commitment, etc., to TBI sufferers. It is so bad that like a used car forum where people only post when they have a problem, never to say they have a great car, I'd like to somewhat

Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before

I had a Craniotomy procedure 10 months ago I still have the right side of my scull exposed awaiting reconstructive surgery My head seems to swell quite a bit at the moment again where it’s exposed does anyone else have this problem

I recently posted regarding my son having to attend court and was so grateful for the advice and replies that I received. We used Thomson Solicitors who were recommend to us through Headway, and they were great. My son plead guilty and received a hefty fine, and we all breathed a huge sigh of relief

Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye

Hi I’m new to this forum. I was diagnosed with a 3cm benign Meningioma last March after suffering with severe vertigo.. Saw my Neurosurgeon last month for a follow up and he has advised me he doesn’t want to operate just now but I should be on watch and wait with a follow up scan in November as I

Hi all I don’t know whether you recall our story… my husband was in a RTA on 24/11 and woke from coma on 22/12. He has now at 9 weeks been discharged from ICU and moved to a Neuro/rehab ward and is waiting assessment. After a tricky weaning off the ventilator he has now had his trachy removed.

My adult child was in a bad car accident and had to have craniotomy and craniectomy. They are doing better now it's been two months but the psch Dr keeps trying different meds that don't help or make them more tired. They have also been put in propranolol for headaches. They weren't on any meds before

9/21, Craniotomy, removed tumor (PC). 6 months later, 3 lesions, brain, PC. 5/22, SAS of tumors, subscribed Lupron & Erleada. Since then, all's well. The lupron keeps the PC out of the lymph system in the body, the Erleada penetrates the brain. The VA has consistently had problems getting the Erleada

My son, following meningitis and a craniotomy last month, has informed me that he has started seeing a large black figure at the end of his bed whilst he is awake and it's making him fearful to sleep. He has been on anti seizure medication since the incident. So along with possible side effects of the