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Decompressive craniectomy
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Boyfriend has a TBI
Hey Everyone Just wanted to introduce myself I'm Valentina I'm 25 and a history teacher. I'm also currently pregnant with my first, it's a little girl and her nickname is Olive. My boyfriend Dan is a police officer and last week he was involved in a car crash whilst at work. He was knocked unconscious
Hey Everyone Just wanted to introduce myself I'm Valentina I'm 25 and a history teacher. I'm also currently pregnant with my first, it's a little girl and her nickname is Olive. My boyfriend Dan is a police officer and last week he was involved in a car crash whilst at work. He was knocked unconscious
Valentina98
in
Headway
4 days ago
Negative Posting About the NHS
Hi all. Recently I have seen some very negative posts/responses to people with regards the NHS and it's lack of performance, commitment, etc., to TBI sufferers. It is so bad that like a used car forum where people only post when they have a problem, never to say they have a great car, I'd like to somewhat
Hi all. Recently I have seen some very negative posts/responses to people with regards the NHS and it's lack of performance, commitment, etc., to TBI sufferers. It is so bad that like a used car forum where people only post when they have a problem, never to say they have a great car, I'd like to somewhat
Hidden
in
Headway
22 days ago
Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
2 months ago
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craniotomy swelling
I had a Craniotomy procedure 10 months ago I still have the right side of my scull exposed awaiting reconstructive surgery My head seems to swell quite a bit at the moment again where it’s exposed does anyone else have this problem
I had a Craniotomy procedure 10 months ago I still have the right side of my scull exposed awaiting reconstructive surgery My head seems to swell quite a bit at the moment again where it’s exposed does anyone else have this problem
Jodieb73
in
Headway
2 months ago
The stress and worry continue
I recently posted regarding my son having to attend court and was so grateful for the advice and replies that I received. We used Thomson Solicitors who were recommend to us through Headway, and they were great. My son plead guilty and received a hefty fine, and we all breathed a huge sigh of relief
I recently posted regarding my son having to attend court and was so grateful for the advice and replies that I received. We used Thomson Solicitors who were recommend to us through Headway, and they were great. My son plead guilty and received a hefty fine, and we all breathed a huge sigh of relief
Lisamarsh
in
Headway
2 months ago
Seeking information about encephalomalacia
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Jasper65
in
Headway
3 months ago
Watch and wait
Hi I’m new to this forum. I was diagnosed with a 3cm benign Meningioma last March after suffering with severe vertigo.. Saw my Neurosurgeon last month for a follow up and he has advised me he doesn’t want to operate just now but I should be on watch and wait with a follow up scan in November as I
Hi I’m new to this forum. I was diagnosed with a 3cm benign Meningioma last March after suffering with severe vertigo.. Saw my Neurosurgeon last month for a follow up and he has advised me he doesn’t want to operate just now but I should be on watch and wait with a follow up scan in November as I
Limegreen2024
in
Meningioma Support
3 months ago
Update on progress and advice needed
Hi all I don’t know whether you recall our story… my husband was in a RTA on 24/11 and woke from coma on 22/12. He has now at 9 weeks been discharged from ICU and moved to a Neuro/rehab ward and is waiting assessment. After a tricky weaning off the ventilator he has now had his trachy removed.
Hi all I don’t know whether you recall our story… my husband was in a RTA on 24/11 and woke from coma on 22/12. He has now at 9 weeks been discharged from ICU and moved to a Neuro/rehab ward and is waiting assessment. After a tricky weaning off the ventilator he has now had his trachy removed.
Lunalg
in
Headway
3 months ago
Bad car accident
My adult child was in a bad car accident and had to have craniotomy and craniectomy. They are doing better now it's been two months but the psch Dr keeps trying different meds that don't help or make them more tired. They have also been put in propranolol for headaches. They weren't on any meds before
My adult child was in a bad car accident and had to have craniotomy and craniectomy. They are doing better now it's been two months but the psch Dr keeps trying different meds that don't help or make them more tired. They have also been put in propranolol for headaches. They weren't on any meds before
Barleythere
in
Neuro Support
3 months ago
Erleada
9/21, Craniotomy, removed tumor (PC). 6 months later, 3 lesions, brain, PC. 5/22, SAS of tumors, subscribed Lupron & Erleada. Since then, all's well. The lupron keeps the PC out of the lymph system in the body, the Erleada penetrates the brain. The VA has consistently had problems getting the Erleada
9/21, Craniotomy, removed tumor (PC). 6 months later, 3 lesions, brain, PC. 5/22, SAS of tumors, subscribed Lupron & Erleada. Since then, all's well. The lupron keeps the PC out of the lymph system in the body, the Erleada penetrates the brain. The VA has consistently had problems getting the Erleada
tayninhtom
in
Advanced Prostate Cancer
3 months ago
Post brain injury hallucinations?
My son, following meningitis and a craniotomy last month, has informed me that he has started seeing a large black figure at the end of his bed whilst he is awake and it's making him fearful to sleep. He has been on anti seizure medication since the incident. So along with possible side effects of the
My son, following meningitis and a craniotomy last month, has informed me that he has started seeing a large black figure at the end of his bed whilst he is awake and it's making him fearful to sleep. He has been on anti seizure medication since the incident. So along with possible side effects of the
Team-MJ4
in
Headway
4 months ago
update / husband
Hi and merry Christmas everyone My husband has been gradually waking up over the last week from a coma following a road traffic accident on the 24/11. He sustained a severe head injury and had a craniotomy. He can only open his right eye at the moment (his injury is on the left side) He now has a
Hi and merry Christmas everyone My husband has been gradually waking up over the last week from a coma following a road traffic accident on the 24/11. He sustained a severe head injury and had a craniotomy. He can only open his right eye at the moment (his injury is on the left side) He now has a
Lunalg
in
Headway
4 months ago
Epilepsy resulting from surgery to temporal lobe
Tests revealed unknown type of brain tumours - gliomas or cysts . Surgery in 1989 showed they were benign epidermoid cysts which were removed. However, the craniotomy triggered epilepsy.... infrequent daytime absences and regular nocturnal seizures. Absences were quickly controlled with AED medication
Tests revealed unknown type of brain tumours - gliomas or cysts . Surgery in 1989 showed they were benign epidermoid cysts which were removed. However, the craniotomy triggered epilepsy.... infrequent daytime absences and regular nocturnal seizures. Absences were quickly controlled with AED medication
Mybraveface
in
Epilepsy Action
5 months ago
Extreme temperature deregulation post craniotomy
So I have been experiencing extreme deregulation in body temperature for the last 21 month since my craniotomy and subsequent ABI. It not in response to the environment around me and can be sweating through my clothing outdoors at -3 degrees or wrapped in everything I can and heat pads etc in the middle
So I have been experiencing extreme deregulation in body temperature for the last 21 month since my craniotomy and subsequent ABI. It not in response to the environment around me and can be sweating through my clothing outdoors at -3 degrees or wrapped in everything I can and heat pads etc in the middle
ZeeandMe
in
Headway
6 months ago
any one had to stop work due to health?
Iam 61, had thought I’d work until I was at least 65. I’ve just had a year off during which I had a craniotomy and RT as well as dealing with taking steroids for GCA which isn’t helping! I have just started a phased return to work. Work have been amazing and my return is very flexible. However, I don
Iam 61, had thought I’d work until I was at least 65. I’ve just had a year off during which I had a craniotomy and RT as well as dealing with taking steroids for GCA which isn’t helping! I have just started a phased return to work. Work have been amazing and my return is very flexible. However, I don
susieb627
in
PMRGCAuk
6 months ago
Anyone had to stop work on Heath grounds?
I am 61, had thought I’d work until I was at least 65. I’ve just had a year off during which I had a craniotomy and RT.( also taking steroids for GCA which isn’t helping!) I have just started a phased return to work. Work have been amazing and my return is very flexible. However, I don’t know if I can
I am 61, had thought I’d work until I was at least 65. I’ve just had a year off during which I had a craniotomy and RT.( also taking steroids for GCA which isn’t helping!) I have just started a phased return to work. Work have been amazing and my return is very flexible. However, I don’t know if I can
susieb627
in
Meningioma Support
6 months ago
I sight needed
I had a craniotomy 2014. Acquired TBI. My husband is a veteran. He too has ptsd but there is no way he will admit it. I have ptsd too. The horrible world situation is too much for me. I can no longer discuss it with him. It is triggering. But he does not stop. He discusses with his brother daily. I have
I had a craniotomy 2014. Acquired TBI. My husband is a veteran. He too has ptsd but there is no way he will admit it. I have ptsd too. The horrible world situation is too much for me. I can no longer discuss it with him. It is triggering. But he does not stop. He discusses with his brother daily. I have
Hidden
in
Headway
7 months ago
At risk of manipulation
Any survivors feel they are at risk of manipulation? By the media other people etc. I have been since 2014. Acquired TBI. Craniotomy . Access left temporal lobe. Bacterial meningitis of my brain.
Any survivors feel they are at risk of manipulation? By the media other people etc. I have been since 2014. Acquired TBI. Craniotomy . Access left temporal lobe. Bacterial meningitis of my brain.
Hidden
in
Headway
7 months ago
Going through recurrent meningioma and growth in cystic encephalomalacia. Please share if anyone is going through cystic encephalomalacia.
HelloI had a craniotomy in 2020 for Atypical meningioma grade 2. Last week MRI showed recurrent meningioma and growth in cystic encephalomalacia. I am suffering from neuropathic pain. Please share if anyone is going through the same situation.
HelloI had a craniotomy in 2020 for Atypical meningioma grade 2. Last week MRI showed recurrent meningioma and growth in cystic encephalomalacia. I am suffering from neuropathic pain. Please share if anyone is going through the same situation.
nidhi123
in
Meningioma Support
8 months ago
Acoustic Neuroma - MRI Report After 1.5y of Surgery
Hi All. My wife(28y) was diagnosed with 1.3cm large Acoustic Neuroma and it's surgically removed in 2022 March. after surgery she is having deafness in right side and weakness of facial movement on right side. but those are manageable and now she is working as usual. only few symptoms are noticed
Hi All. My wife(28y) was diagnosed with 1.3cm large Acoustic Neuroma and it's surgically removed in 2022 March. after surgery she is having deafness in right side and weakness of facial movement on right side. but those are manageable and now she is working as usual. only few symptoms are noticed
siva_s
in
Acoustic Neuroma Support
9 months ago
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