just had a craniotomy : hello I joined... - Meningioma Support

Meningioma Support

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just had a craniotomy

Meningioma12 profile image
8 Replies

hello I joined this group to hear how others are recovering from their crainotomy.

I had my surgery 3 weeks ago to remove a meningioma which I’ve known about and had annual MRIs for the last 12 years.

I’m kicking goals with my recovery was sent home 24 hrs after surgery due to no space in hospital . I’m still sleeping sitting up in bed as I feel a bit light headed if I lay down for to long but apart from that no headaches or pain.

Would be great to here what I can expect with my recovery after a couple more weeks

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8 Replies
Satishouse profile image
Satishouse

Hi there I am glad you got your surgery and are recovering ok. I had a craniotomy in November 2023 for a front lobal menengioma and have also recovered really well. Once the staples are removed the wound has healed ok and have had hair coloured etc , still taking keppra and waiting for dvla to drive again.

Meningioma12 profile image
Meningioma12 in reply to Satishouse

So good to hear you also recovering well but since November sounds like an awful long time to not be able to drive that must be very difficult for you. I’ve been told 3 months until I can drive again but that yet to be confirmed after my follow up appointment in 3weeks , I don’t think I will manage mentally to well if they stretch no driving out for any longer than that.

Thank you for your message

Simply71 profile image
Simply71

Good morning, good to hear you’re recovering well. I had my craniotomy three weeks ago tomorrow and am also recovering well but still have limited eye movement in my left side and face is still pretty numb but told this could take weeks to recover. I’ve also been told I will not be driving for 6 months so just keep your fingers crossed and hope they don’t take too long.

Speedy recovery to all.

Misty122 profile image
Misty122

Hi, so glad your recovering well. Had mine in January 2024 and healing well apart from a sore feeling as it is the back of my head and hard not to lie down on it, the scar has lots of bumps and dips on it and it and feels spongy, but happy its over with and not driving is a nitemare too. All the best... take it slow and rest when you can 👍

Meningioma12 profile image
Meningioma12 in reply to Misty122

Thank you for your message and won’t it be wonderful when we can lay in a comfortable position in bed and get a decent nights sleep but yes that nothing compared to not be able to drive for months making the recovery feel much longer than necessary

MadTrucker profile image
MadTrucker

Morning Glad to hear your surgery went well 👍I had a craniotomy Nov 2022 and the sleeping position is really frustrating as broken sleep is no good for recovery 😴😀

I too have lumps and bumps,behind and above my left ear, and it is difficult to get comfy when trying to sleep and I am still waking every 2-3hrs at night.

However, we always find ways of doing things differently!

I wish you well in a speedy recovery!

Strictly22 profile image
Strictly22

Hi, I had a craniotomy March 2024 and like you was only in hospital for 24 hours. It was scary going home so quickly but each day got better and the wound healed okay once the staples were removed.It is getting more comfortable to sleep now but there are dips in my head. I was also told I won’t be able to drive for 6 months post surgery.

Hope you recover well

Meningioma12 profile image
Meningioma12 in reply to Strictly22

Thank you for your message, I think my husband was more horrified than me when I was sent home 24 hrs after surgery. It was like he was watching me like a hawk just waiting for something to go wrong and I had to keep reassuring him I was ok. Having the staples out definitely relieved the pressure on my head and have been feeling great since then.

Sounds like I’ve been one of the lucky ones with 3 months restrictions on driving every one else seems to be 6 months so I really do feel for you all

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