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Experiences with
Deep brain stimulation (DBS)
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It's not brain surgery.
DBS
in the comfort of your own home... https://imshakydad.wordpress.com/2015/10/13/its-not-brain-surgery/
DBS
in the comfort of your own home... https://imshakydad.wordpress.com/2015/10/13/its-not-brain-surgery/
imshakydad
in
Cure Parkinson's
9 years ago
Poole Hospital
(They have Volunteers in the Stroke Ward) Now I have to wait for the
DBS
, and the Occupational Health. Then I will go for my Induction Day, which won't be before the beginning of December.
(They have Volunteers in the Stroke Ward) Now I have to wait for the
DBS
, and the Occupational Health. Then I will go for my Induction Day, which won't be before the beginning of December.
Nutkin33
in
Quit Support
9 years ago
Fainting / black-outs due to ortho - hypotension
Any suggestions, Just had the pair of
DBS
surgeries w some good results. Yesterday had 4 very close calls falling.At the gym, the pizza shop, and twice at home. HELP - this is getting scary
Any suggestions, Just had the pair of
DBS
surgeries w some good results. Yesterday had 4 very close calls falling.At the gym, the pizza shop, and twice at home. HELP - this is getting scary
justaninconvenience
in
Cure Parkinson's
9 years ago
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Subcutaneous vs Intramuscular injections?
I am looking for information that explores the benefits of subcutaneous vs intramuscular injections. I self inject, subcutaneously with a needless pen. Is there any scientific information out there? I was diagnosed with PA nine months ago and six weeks ago decided I needed more regular B12. I inject
I am looking for information that explores the benefits of subcutaneous vs intramuscular injections. I self inject, subcutaneously with a needless pen. Is there any scientific information out there? I was diagnosed with PA nine months ago and six weeks ago decided I needed more regular B12. I inject
BethattheBeach
in
Pernicious Anaemia Society
9 years ago
Mammograms
Does anyone know how long after
DBS
surgery you should wait to have a mammogram. Thank you.
Does anyone know how long after
DBS
surgery you should wait to have a mammogram. Thank you.
BaileyT
in
Cure Parkinson's
9 years ago
News about the future of the community
I’m here to communicate a plan for the future of people who use this community. HEART UK are unable to continue to support this service for reasons mentioned in their recent posts. Up to this point they have supported and moderated hundreds of posts/comments/questions etc generated from all of you.
I’m here to communicate a plan for the future of people who use this community. HEART UK are unable to continue to support this service for reasons mentioned in their recent posts. Up to this point they have supported and moderated hundreds of posts/comments/questions etc generated from all of you.
SimoneHU
HealthUnlocked
in
Cholesterol Support
9 years ago
My husband nightmares
He had
DBS
operation a year ago and he is doing so good ... Is just at night ......
He had
DBS
operation a year ago and he is doing so good ... Is just at night ......
PeruvianFlower
in
Cure Parkinson's
9 years ago
Activa remote error code 006
We are abroad in Majorca and my husband's
DBS
Activa remote is showing code 006 and we can't use . This is devastating because the only way my husband can walk distances is by switching it off. It's also weekend and we can't phone our PD nurse and nobody in the hospital can help.
We are abroad in Majorca and my husband's
DBS
Activa remote is showing code 006 and we can't use . This is devastating because the only way my husband can walk distances is by switching it off. It's also weekend and we can't phone our PD nurse and nobody in the hospital can help.
JeanieBeanie
in
Cure Parkinson's
9 years ago
Colofac or Buscopan ?
Which do you find helps with your IBS cramps & pains the best, I am not sure either helps me, I think peppermint oil sometimes takes the edge of it a bit.
Which do you find helps with your IBS cramps & pains the best, I am not sure either helps me, I think peppermint oil sometimes takes the edge of it a bit.
Nick137
in
IBS Network
9 years ago
DBS post surgery fatigue
I had
DBS
surgery 3 months ago and have had debilitating fatigue since.
I had
DBS
surgery 3 months ago and have had debilitating fatigue since.
BARBMarlow
in
Cure Parkinson's
9 years ago
Broken Places story of Parkinson's
You can view the book at: www.amazon.com/author/nancywhitfield I recently underwent
DBS
at Stanford and I'm so glad I did! Good luck as you begin your own journey. Never give up!
You can view the book at: www.amazon.com/author/nancywhitfield I recently underwent
DBS
at Stanford and I'm so glad I did! Good luck as you begin your own journey. Never give up!
Whitfieldnancy
in
Cure Parkinson's
9 years ago
Night
Does
dbs
help these problems? Has anyone had it who doesn't have tremor?
Does
dbs
help these problems? Has anyone had it who doesn't have tremor?
michaela13
in
Cure Parkinson's
9 years ago
Drained and losing weight
Hi hope your all well. Its just a query to see if anyone else has experienced what is going on with me at moment. I have had diarrhoea now for 3 and a half weeks, at first I was obviously told to stop taking lactulose, to see if it would clear up, it didn't. I have had my bloods done and also given
Hi hope your all well. Its just a query to see if anyone else has experienced what is going on with me at moment. I have had diarrhoea now for 3 and a half weeks, at first I was obviously told to stop taking lactulose, to see if it would clear up, it didn't. I have had my bloods done and also given
jojokarak
in
British Liver Trust
9 years ago
Recumbent trike
Since my
Dbs
success I've been hitting the gym 3x weekly. I actually gained 30 lbs but unfortunately it's been 50/50 muscle:fat according to my bmi scale. I just haven't been able to walk enough to keep the fat down. Today I purchased a Catrike, a recumbent trike.
Since my
Dbs
success I've been hitting the gym 3x weekly. I actually gained 30 lbs but unfortunately it's been 50/50 muscle:fat according to my bmi scale. I just haven't been able to walk enough to keep the fat down. Today I purchased a Catrike, a recumbent trike.
etterus
in
Cure Parkinson's
9 years ago
Deep Brain Stimulation!!
Hi. I hope you can help me!?? In 1998 I suffered a Stroke at the age of 32. This happened in Spain where I spent 1wk in Barcelona Hospital then I was transferred to the QE Hospital here in Birmingham where I spent a further 3mnts. I then had Brain Surgery & then I was given the all clear the following
Hi. I hope you can help me!?? In 1998 I suffered a Stroke at the age of 32. This happened in Spain where I spent 1wk in Barcelona Hospital then I was transferred to the QE Hospital here in Birmingham where I spent a further 3mnts. I then had Brain Surgery & then I was given the all clear the following
SteveHartnett
in
NHS England: A Call to Action
9 years ago
Torchy
Hi everyone.ive just joined this forum and i have been having ibs for months.i have quiet alot of pain killers for the excruciating pain and none of them help.ive colofac long release just prescibed me but it doesnt help my pain much i still have to take tramadol and really really want to come off this.so
Hi everyone.ive just joined this forum and i have been having ibs for months.i have quiet alot of pain killers for the excruciating pain and none of them help.ive colofac long release just prescibed me but it doesnt help my pain much i still have to take tramadol and really really want to come off this.so
Hidden
in
IBS Network
9 years ago
What to expect from DBS
My doctor is recommending
DBS
. I'm terrified. What does it feel like? How long is recovery? I live alone and I'm nervous about being discharged too soon, as hospitals seem so anxious to do these days. Do you have to be awake or do they knock you out?
My doctor is recommending
DBS
. I'm terrified. What does it feel like? How long is recovery? I live alone and I'm nervous about being discharged too soon, as hospitals seem so anxious to do these days. Do you have to be awake or do they knock you out?
Beckey
in
Cure Parkinson's
9 years ago
Online book on Parkinson's is free and lots of fun
But neither is the book so dated as to lose its value--Deep Brain Stimulation, which was just getting started at the time this book came out--and the developments leading up to
DBS
--are described.
But neither is the book so dated as to lose its value--Deep Brain Stimulation, which was just getting started at the time this book came out--and the developments leading up to
DBS
--are described.
lempa_nik
in
Cure Parkinson's
9 years ago
DBS and infection
I'm one of those few patients you read about who developed a brain infection from a
DBS
operation. I now have
DBS
on one side only. i'm fortunate that I came out of it all right. Now I'm going to have to decide if I want to get the other side done.
I'm one of those few patients you read about who developed a brain infection from a
DBS
operation. I now have
DBS
on one side only. i'm fortunate that I came out of it all right. Now I'm going to have to decide if I want to get the other side done.
shopteacher
in
Cure Parkinson's
9 years ago
"Dilemma "Increase meds or take more often? Please help
I was scheduled for
DBS
in December last year but 2 weeks before that I started on Azilect with fantastic results i was almost symptom free and cancelled my surgery ( was also taking Madapar Comtan and Amantodine) now 15 months or so later I am experiencing 6 to 7 OFF times a day lasting anything
I was scheduled for
DBS
in December last year but 2 weeks before that I started on Azilect with fantastic results i was almost symptom free and cancelled my surgery ( was also taking Madapar Comtan and Amantodine) now 15 months or so later I am experiencing 6 to 7 OFF times a day lasting anything
Sunnysky
in
Cure Parkinson's
9 years ago
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