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Experiences with
Diamine oxidase (DAO) deficiency
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Chillblains
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
GerryPL
in
CLL Support
11 months ago
FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
DesertOasis
in
Restless Legs Syndrome
11 months ago
b12 iron relationship?
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
MuppDog
in
Pernicious Anaemia Society
11 months ago
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Iron deficiency
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
sewingroom
in
Thyroid UK
11 months ago
Results Advice
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
PrincessAnnie
in
Thyroid UK
11 months ago
Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
11 months ago
Promethazine Hydrochloride
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
Hoochybaby
in
Restless Legs Syndrome
11 months ago
Erfa swap update
my ferritin has just come back as 28 (5-204) I think this is my iron store so it’s clearly deficient. I’ve struggled with anaemia since I was about 18 (maybe before but no cause before then for a blood test it was discovered when I became a donor) No one has ever given me a reason for this! And I
my ferritin has just come back as 28 (5-204) I think this is my iron store so it’s clearly deficient. I’ve struggled with anaemia since I was about 18 (maybe before but no cause before then for a blood test it was discovered when I became a donor) No one has ever given me a reason for this! And I
Starseed56
in
Thyroid UK
11 months ago
High B12 result.
Hello all you Trusty Advisers, Anyone please able to help give me any idea what these results mean to me? GP fast tracked me for bloods & pelvic scan due to a cpl sml vaginal bleeds/spotting (I'm 67) Results have only just been put on my record but GP not spoken to me regarding it. (Report says Satisfactory
Hello all you Trusty Advisers, Anyone please able to help give me any idea what these results mean to me? GP fast tracked me for bloods & pelvic scan due to a cpl sml vaginal bleeds/spotting (I'm 67) Results have only just been put on my record but GP not spoken to me regarding it. (Report says Satisfactory
Klawd
in
Thyroid UK
11 months ago
Intrinsic factor antibodys
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
suzybear
in
Thyroid UK
11 months ago
Correct me if I am wrong. Please
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Correctly written prescription...do they exist? 🫤
My pharmacist requested that I get my prescription altered to state Vencamil now that Aristo has been dropped by Alliance to stave of future confusion ( it currently mentions both)... I did say that I had tried in the past to get it named but they say that they can't... So I spoke with the Surgery and
My pharmacist requested that I get my prescription altered to state Vencamil now that Aristo has been dropped by Alliance to stave of future confusion ( it currently mentions both)... I did say that I had tried in the past to get it named but they say that they can't... So I spoke with the Surgery and
TiggerMe
in
Thyroid UK
1 year ago
Good news re. blood tests
Good evening , Well the good news is I have had blood test results today and there is improvement in the haemoglobin, now normal and normal white cell count also normal ! Several of the other results which were abnormal seem to have settled down. Red platelet count is still quite high 479 and
Good evening , Well the good news is I have had blood test results today and there is improvement in the haemoglobin, now normal and normal white cell count also normal ! Several of the other results which were abnormal seem to have settled down. Red platelet count is still quite high 479 and
gillsky8
in
PMRGCAuk
1 year ago
Taking Metformin?
This MHRA advice was published last year: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
[/i] [i]Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
This MHRA advice was published last year: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
[/i] [i]Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Iron results help
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Nellie2016
in
Thyroid UK
1 year ago
iron supplements
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
Kowbie
in
Pernicious Anaemia Society
1 year ago
RSL - has anyone had severe side effects
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
Paul2905
in
Restless Legs Syndrome
1 year ago
Iron Bisglycinate
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
Dires
in
Restless Legs Syndrome
1 year ago
Oral Iron supplements, doing it wrong!
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
WideBody
in
Restless Legs Syndrome
1 year ago
pramixipole YOU MUST READ THIS!!!!
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
Paul2905
in
Restless Legs Syndrome
1 year ago
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