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Experiences with
Cystitis
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Are my symptoms endometriosis?
Hi ladies, Yesterday, after 22 years of "interstitial
cystitis
", 15 years of vaginal pain (I was told it was all in my head), and 14 years of suffering with "IBS", I was told by a consultant I have endometriosis and a polycystic ovary. I'm gobsmacked and don't know how to feel.
Hi ladies, Yesterday, after 22 years of "interstitial
cystitis
", 15 years of vaginal pain (I was told it was all in my head), and 14 years of suffering with "IBS", I was told by a consultant I have endometriosis and a polycystic ovary. I'm gobsmacked and don't know how to feel.
TenForward
in
Endometriosis UK
9 years ago
Chronic bladder & urinary pain 😭
Cystitis
like feeling when emptying my bladder and such. Can't get all of the urine out. Been waking up all hours of the night to wee despite not drinking too much because it makes me need the toilet every 10 minutes.
Cystitis
like feeling when emptying my bladder and such. Can't get all of the urine out. Been waking up all hours of the night to wee despite not drinking too much because it makes me need the toilet every 10 minutes.
avelvetcrowbar
in
Endometriosis UK
9 years ago
Endo and sacroiliitis
In July I had been off my pill for few months and the buttock/lower back/hip pain started , also have groin pain one side,
cystitis
feeling and ibs symptoms etc and all the other symptoms of when I was first diagnosed with minor endo.
In July I had been off my pill for few months and the buttock/lower back/hip pain started , also have groin pain one side,
cystitis
feeling and ibs symptoms etc and all the other symptoms of when I was first diagnosed with minor endo.
Vicky0311
in
Endometriosis UK
9 years ago
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I'm worried
A GP in training turned up, made 3 mistakes just in writing a script for
cystitis
, which I only spotted because I know more than I want to from a long history of
cystitis
. Scary, I dont think he should be doing visits on his own.
A GP in training turned up, made 3 mistakes just in writing a script for
cystitis
, which I only spotted because I know more than I want to from a long history of
cystitis
. Scary, I dont think he should be doing visits on his own.
tulips123
in
Fibromyalgia Action UK
9 years ago
Neurontin advice
Hi guys and gals, this is my first post here and I do hope you don't mind me asking your advice. I have suffered with fibromyalgia for many years but only recently diagnosed 12 months ago and have been taking amitriptyline since then (with very little side effects apart from night paralysis). Today
Hi guys and gals, this is my first post here and I do hope you don't mind me asking your advice. I have suffered with fibromyalgia for many years but only recently diagnosed 12 months ago and have been taking amitriptyline since then (with very little side effects apart from night paralysis). Today
peacelily1972
in
Fibromyalgia Action UK
9 years ago
S2/S3 root nerve block
Hi everyone, I am having 2 sacral nerve blocks (S2/S3) to try and identify the source of my buttock pain. The Dr thinks I may have Posterior Femoral Cutaneous and Middle Cluneal nerve pain. Since I got home, I have been researching these nerves and see that they can come out of S1 and S4 as well. So
Hi everyone, I am having 2 sacral nerve blocks (S2/S3) to try and identify the source of my buttock pain. The Dr thinks I may have Posterior Femoral Cutaneous and Middle Cluneal nerve pain. Since I got home, I have been researching these nerves and see that they can come out of S1 and S4 as well. So
Jeremy1969
in
Pelvic Pain Support Network
9 years ago
Female Complex Pelvic Problems need desperate help. I live in Georgia too.
Drs. say Interstitial
Cystitis
. Within 6 months time, it progressed to tingly in my labias, acheing or pins and needles in my thighs and ankle,butt,hip,sacrum,and persistant genital arousal disorder. Supposed interstital
cystitis
although no one amhas officially diagnosed it.
Drs. say Interstitial
Cystitis
. Within 6 months time, it progressed to tingly in my labias, acheing or pins and needles in my thighs and ankle,butt,hip,sacrum,and persistant genital arousal disorder. Supposed interstital
cystitis
although no one amhas officially diagnosed it.
Lindsey_D
in
Pelvic Pain Support Network
9 years ago
Anastrazole or Zoladex
Hello- 1st time on here but diagnosed for 13 years! I hoped people might be able to help? My Drs are suggesting Anastrazole or Zoladex- have done Zoladex already for 12 months 10 years ago and very reluctant to go on it again as side effects were pretty unbearable- has anyone used Anastrazole? How was
Hello- 1st time on here but diagnosed for 13 years! I hoped people might be able to help? My Drs are suggesting Anastrazole or Zoladex- have done Zoladex already for 12 months 10 years ago and very reluctant to go on it again as side effects were pretty unbearable- has anyone used Anastrazole? How was
Hidden
in
Endometriosis UK
9 years ago
Interstitial cystitis....what a pain :-( help
Finally managed to get a referral for my symptoms of interstitial
cystitis
which have plagued me on and off for 12 years but Have in the past been continually fobbed off with antibiotics.
Finally managed to get a referral for my symptoms of interstitial
cystitis
which have plagued me on and off for 12 years but Have in the past been continually fobbed off with antibiotics.
Chablis
in
LUPUS UK
9 years ago
Worried is Endo back already?
My bladder
cystitis
is back and the pains are unbearable again, I hate the burning and stabbing pains, I can't sleep now, have to keep going for a wee during the night. I'm so tired all the time, loss of appetite, I can go a whole day without eating.
My bladder
cystitis
is back and the pains are unbearable again, I hate the burning and stabbing pains, I can't sleep now, have to keep going for a wee during the night. I'm so tired all the time, loss of appetite, I can go a whole day without eating.
Sweetyassi
in
Endometriosis UK
9 years ago
Fed up with pains
Hi, Fed up with Endo, adhesions,
cystitis
returning so many times after having so many operations. I'm wondering if it's food related. I am getting panic attacks, getting scared just before I eat in case it makes the pains worse.
Hi, Fed up with Endo, adhesions,
cystitis
returning so many times after having so many operations. I'm wondering if it's food related. I am getting panic attacks, getting scared just before I eat in case it makes the pains worse.
Sweetyassi
in
Endometriosis UK
9 years ago
Possible endometriosis/early stages of diagnosis. Newbie.
. - one or two bouts of UTI a year - and suffers from
cystitis
(following intercourse) since I was 16, but I know the signs and follow a routine to try and prevent this. - had copper coil inserted summer 2013 (didn't want hormones even though I know copper coil isn't ideal for heavy periods) -before
. - one or two bouts of UTI a year - and suffers from
cystitis
(following intercourse) since I was 16, but I know the signs and follow a routine to try and prevent this. - had copper coil inserted summer 2013 (didn't want hormones even though I know copper coil isn't ideal for heavy periods) -before
KWJ2
in
Endometriosis UK
9 years ago
M.E, low ferritin, low vitamin D, any advice on blood tests would be really appreciated please?
Last Autumn after months of
cystitis
and feeling generally rotten I requested some blood tests and these were as follow...
Last Autumn after months of
cystitis
and feeling generally rotten I requested some blood tests and these were as follow...
Jo5454
in
Thyroid UK
9 years ago
Autonomic Neuropathy
Has anyone been diagnosed with an autonomic neuropathy as a result of lupus or sjogrens? I would be really interested to hear from you. Thanks Jenny
Has anyone been diagnosed with an autonomic neuropathy as a result of lupus or sjogrens? I would be really interested to hear from you. Thanks Jenny
Galaxy2
in
LUPUS UK
9 years ago
Pain pain pain!!!!
The thing is that I have an infection feel s like
cystitis
gone through 2 boxes of the
cystitis
sachets you get from the chemist and no joy so I went to my gp he gave me a weeks worth of citral opram and it didn't work so went back to my go and got some more antibiotics and I'm
The thing is that I have an infection feel s like
cystitis
gone through 2 boxes of the
cystitis
sachets you get from the chemist and no joy so I went to my gp he gave me a weeks worth of citral opram and it didn't work so went back to my go and got some more antibiotics and I'm
Hidden
in
Endometriosis UK
10 years ago
Post Lap Vaginal Pain and Spasms
Hi Ladies, I hope you are all well and not suffering too much. Three weeks ago I had my third lap which went really well. Since then I've been doing great bar one concern. On four separate occasions I've experienced a sharpe shooting pain in what I can only presume is my vaginal wall on the right hand
Hi Ladies, I hope you are all well and not suffering too much. Three weeks ago I had my third lap which went really well. Since then I've been doing great bar one concern. On four separate occasions I've experienced a sharpe shooting pain in what I can only presume is my vaginal wall on the right hand
ShortStuff88
in
Endometriosis UK
9 years ago
Vagus nerve stimulation Radi4 program
I listened to "Frontier" on Radio 4 last Tuesday @ 21:00. It was about inflammatory disease and alternatives to DMARDs and biological drugs. There are trials happening in the USA and Europe which look very promising. It might be worth listening to the program on IPlayer if you are interested. This is
I listened to "Frontier" on Radio 4 last Tuesday @ 21:00. It was about inflammatory disease and alternatives to DMARDs and biological drugs. There are trials happening in the USA and Europe which look very promising. It might be worth listening to the program on IPlayer if you are interested. This is
stbernhard
in
NRAS
10 years ago
Lupus and interstitial cystitis-crumbs it is painful
For many years, I have suffered from what were thought to be recurrent uti's but my recent bout ( 6 in 5 months) have all come back negative for infection I cannot describe how painful it can be at times, it really comes on quickly and feels like my insides are going to explode..... Other times, it
For many years, I have suffered from what were thought to be recurrent uti's but my recent bout ( 6 in 5 months) have all come back negative for infection I cannot describe how painful it can be at times, it really comes on quickly and feels like my insides are going to explode..... Other times, it
Chablis
in
LUPUS UK
9 years ago
2nd Lap. Numb leg?
Mainly excision this time rather than diathermy and a biopsy was taken from my bladder to rule out interstitial
cystitis
. I'm in the usual amount of pain - stayed in hospital for one night but am regretting not staying longer now as my pain management seems to be not very good.
Mainly excision this time rather than diathermy and a biopsy was taken from my bladder to rule out interstitial
cystitis
. I'm in the usual amount of pain - stayed in hospital for one night but am regretting not staying longer now as my pain management seems to be not very good.
sophie89
in
Endometriosis UK
10 years ago
Cystitis sachets ok with Urso?
Does anyone suffer with
cystitis
? And if so, does anyone know whether taking the over-the-counter sachets which you dissolve in water are ok with Urso/PBC? Any help appreciated....until I can call the doctor in the morning!!!
Does anyone suffer with
cystitis
? And if so, does anyone know whether taking the over-the-counter sachets which you dissolve in water are ok with Urso/PBC? Any help appreciated....until I can call the doctor in the morning!!!
KK72
in
PBC Foundation
10 years ago
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