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Cystitis
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Had my first laparoscopy (19th January) 😞
I've now been diagnosed with severe endometriosis (I haven't been told what grade yet) 😞 and interstitial
cystitis
which has resulted in my bladder being severely scarred and has cracked which part of the severe abdominal pain I've been experiencing.
I've now been diagnosed with severe endometriosis (I haven't been told what grade yet) 😞 and interstitial
cystitis
which has resulted in my bladder being severely scarred and has cracked which part of the severe abdominal pain I've been experiencing.
LouLouT
in
Endometriosis UK
6 years ago
Interstitial Cystitis/Low Thyroid Link?
One year ago I was diagnosed with painful Interstitial
cystitis
. (Elmiron works well for me for the interstitial
cystitis
). Some mild antibody issues related to gamma goblin levels showed up in my blood work a year before the Hashimotos was diagnosed .
One year ago I was diagnosed with painful Interstitial
cystitis
. (Elmiron works well for me for the interstitial
cystitis
). Some mild antibody issues related to gamma goblin levels showed up in my blood work a year before the Hashimotos was diagnosed .
MountainMel
in
Thyroid UK
6 years ago
Hypermagnesemia In Hypothyroidism
Hi everyone.. I found myself very sensitive to magnesium supplements and even foods rich in mag . Searching the internet I found hypothyroidism causes Hypermagnesemia. Anyone know more about this subject?
Hi everyone.. I found myself very sensitive to magnesium supplements and even foods rich in mag . Searching the internet I found hypothyroidism causes Hypermagnesemia. Anyone know more about this subject?
Ali1101
in
Thyroid UK
6 years ago
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Pudendal neuralgia and bladder pain
Anyone have bladder pain with pudendal neuralgia? I feel the constant need to urinate but also have classic burning pelvic floor pain
Anyone have bladder pain with pudendal neuralgia? I feel the constant need to urinate but also have classic burning pelvic floor pain
Okiegirl
in
Pelvic Pain Support Network
6 years ago
Hydrea, immune system and Vitamin C
This infection is the latest in a string of infections over the past few months including 2 bouts of
cystitis
and a long lasting cough for which I had an X ray. (all was well). I have PV and I'm on 1 tablet of Hydrea Monday to Friday.
This infection is the latest in a string of infections over the past few months including 2 bouts of
cystitis
and a long lasting cough for which I had an X ray. (all was well). I have PV and I'm on 1 tablet of Hydrea Monday to Friday.
Splb3317
in
MPN Voice
6 years ago
Lung and/or diaphragm endometriosis
Hi ladies, Did anyone had lung or diaphragm endometriosis surgery? If yes, could you pls tell sg about your postoperative experiences? I'm a bit afraid of artificial respiration. Thanks a lot!!! Hope you are doing well and being relatively pain free. (Sorry for my English) Hugs
Hi ladies, Did anyone had lung or diaphragm endometriosis surgery? If yes, could you pls tell sg about your postoperative experiences? I'm a bit afraid of artificial respiration. Thanks a lot!!! Hope you are doing well and being relatively pain free. (Sorry for my English) Hugs
Judit999
in
Endometriosis UK
6 years ago
Willing to share clinical trial experiences.
I've been doing clinical trials for over 5 years for Intercystial
Cystitis
. I am currently in a 12 month trial. I would be happy to share with anyone.
I've been doing clinical trials for over 5 years for Intercystial
Cystitis
. I am currently in a 12 month trial. I would be happy to share with anyone.
DJuliana
in
Understanding Clinical Trials
6 years ago
I have interstitial cystitis also just diagnosed 😢
Hello everyone, On December 11, I had a procedure done that included a cystoscope with the fluid. Well, it came back positive. My bladder was lit up like a Christmas tree. I always suspected I had it but I wasn’t really sure. I’m now on two more medications though I think the Ubel antibiotic is
Hello everyone, On December 11, I had a procedure done that included a cystoscope with the fluid. Well, it came back positive. My bladder was lit up like a Christmas tree. I always suspected I had it but I wasn’t really sure. I’m now on two more medications though I think the Ubel antibiotic is
Debra13
in
Pelvic Pain Support Network
6 years ago
Patient blog: Frank Dutton's Big Day.....
Firstly with the pain in my neck and back beginning to rise and a possible bad case of
cystitis
which makes going to the loo absolute torture.
Firstly with the pain in my neck and back beginning to rise and a possible bad case of
cystitis
which makes going to the loo absolute torture.
Iwan
Administrator
in
Cervical Myelopathy
6 years ago
Blood in the urine
I constantly have blood in my urine but ct scan and blood test results were normal. Definitely not urine infection so I am wondering if it is still my kidneys. Should I insist for a biopsy? Or wait and see like my consultant may Do? Xx
I constantly have blood in my urine but ct scan and blood test results were normal. Definitely not urine infection so I am wondering if it is still my kidneys. Should I insist for a biopsy? Or wait and see like my consultant may Do? Xx
Tulipano
in
LUPUS UK
6 years ago
Is this Bechet's.
Have started getting
cystitis
but lab sample showed no bacteria but white blood cells and latest blood test showed raised inflammatory markers and test was taken when I had a joint flare up. Does anyone else have these symptoms. Don't know what to do.
Have started getting
cystitis
but lab sample showed no bacteria but white blood cells and latest blood test showed raised inflammatory markers and test was taken when I had a joint flare up. Does anyone else have these symptoms. Don't know what to do.
Jamdanaid
in
Behçet's UK
6 years ago
Stool tests
Went bzck to the doctors today for another sick note and i mentioned about a stool sample i had sent to the hospital 3 weeks ago the doctor said a preliminary message had come back saying it was high for infection or inflammation but was being tested now to see if it grew any cultures anybody else had
Went bzck to the doctors today for another sick note and i mentioned about a stool sample i had sent to the hospital 3 weeks ago the doctor said a preliminary message had come back saying it was high for infection or inflammation but was being tested now to see if it grew any cultures anybody else had
Millydog33
in
IBS Network
6 years ago
overactive bladder
i have been prescribed kentera patches 36mg3.9mg have you tried these and have you had any side affects .i have fibromyalgia and many other disabilaties and i find i get more side affects or am imune to medication thank you .
i have been prescribed kentera patches 36mg3.9mg have you tried these and have you had any side affects .i have fibromyalgia and many other disabilaties and i find i get more side affects or am imune to medication thank you .
mason
in
Bladder Health UK
6 years ago
Cold skin warm inside
Does anybody else experience this: My skin can feel icy cold but I am hot on the inside like an oven although I do not have a temperature. I have got nerve damage from back problems a few years ago and have also gone or am still going through the menopause so it could be that. I am on Warfarin so not
Does anybody else experience this: My skin can feel icy cold but I am hot on the inside like an oven although I do not have a temperature. I have got nerve damage from back problems a few years ago and have also gone or am still going through the menopause so it could be that. I am on Warfarin so not
Molly100
in
Hughes Syndrome APS Forum
6 years ago
HELP!!!
I suffer with UTIs quite often and along with other symptoms do wonder if I have intistitual
cystitis
but not sure at the min. I feel like they don’t know what’s wrong now so will leave me suffering.
I suffer with UTIs quite often and along with other symptoms do wonder if I have intistitual
cystitis
but not sure at the min. I feel like they don’t know what’s wrong now so will leave me suffering.
Cat247
in
Pelvic Pain Support Network
6 years ago
Still confused
Hi, I'm not sure where to turn, I actually feel totally lost. So I've been taking peppermint oil tablets since Monday and I've noticed that when I go to the toilet not only does it smell like peppermint but my bum stings a little. Is this normal until your body gets used to it? Plus the cramps are
Hi, I'm not sure where to turn, I actually feel totally lost. So I've been taking peppermint oil tablets since Monday and I've noticed that when I go to the toilet not only does it smell like peppermint but my bum stings a little. Is this normal until your body gets used to it? Plus the cramps are
Jexx
in
IBS Network
6 years ago
UTIs and bowel issues - endo link?
I’ve suffered with chronic UTIs since I was 16, constant
cystitis
. Sometimes infections would show up other times not. There was some inflammation seen on a cystoscopy inside my bladder and bleeding. At this point I had pain free periods but painful sex and constant on going UTIs.
I’ve suffered with chronic UTIs since I was 16, constant
cystitis
. Sometimes infections would show up other times not. There was some inflammation seen on a cystoscopy inside my bladder and bleeding. At this point I had pain free periods but painful sex and constant on going UTIs.
Kate345
in
Endometriosis UK
7 years ago
Essential Oils for Pudendal Nerve Entrapment
Hi everyone. Do you know of any essential oils which can be used to relieve the awful pain of PNE? Thanks, Carol x
Hi everyone. Do you know of any essential oils which can be used to relieve the awful pain of PNE? Thanks, Carol x
hoopwhirl2007
in
Pelvic Pain Support Network
7 years ago
Diagnosed with Hashimoto’s in 2003
In 2007, I was also diagnosed with Fibromyalgia/then in 2012 with Interstitial
Cystitis
. It’s been hell at times! My biggest complaints still today: Brain fog, exhaustion, bladder pressure, hair thinning, dry skin, mood swing (Yes, I’m 50, and going through the change, ugh!)
In 2007, I was also diagnosed with Fibromyalgia/then in 2012 with Interstitial
Cystitis
. It’s been hell at times! My biggest complaints still today: Brain fog, exhaustion, bladder pressure, hair thinning, dry skin, mood swing (Yes, I’m 50, and going through the change, ugh!)
mhere
in
Thyroid UK
6 years ago
Update
change to ultibro.however l was prescribed it.Was'nt long,days,before l was experiencing a worsening of symptoms plus a few new ones.initally l experienced dizziness then breathlessness,swollen ankles wheezing.was scary .l convinced myself that it was my body adjusting to meds.then...for the ladies....
cystitis
change to ultibro.however l was prescribed it.Was'nt long,days,before l was experiencing a worsening of symptoms plus a few new ones.initally l experienced dizziness then breathlessness,swollen ankles wheezing.was scary .l convinced myself that it was my body adjusting to meds.then...for the ladies....
cystitis
nellie15
in
Lung Conditions Community Forum
6 years ago
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