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Experiences with
Cyclophosphamide
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Neuro bechets Ireland
I am being treated with steriods and
cyclophosphamide
. I am recovering well but I worry about flare ups in the future. I would like to hear from people in the same boat. Many thanks, Mary.
I am being treated with steriods and
cyclophosphamide
. I am recovering well but I worry about flare ups in the future. I would like to hear from people in the same boat. Many thanks, Mary.
mtmunster
in
Behçet's UK
9 years ago
Update and Further Vasculitis (WG) advice would be welcome
I have read a lot about the side effects of
cyclophosphamide
(and steriods). What have your experiences been and have you found any coping mechanisms which might work for others? Do you have any dietary suggestions that might be worth a try?
I have read a lot about the side effects of
cyclophosphamide
(and steriods). What have your experiences been and have you found any coping mechanisms which might work for others? Do you have any dietary suggestions that might be worth a try?
chsskg
in
Vasculitis UK
9 years ago
Cyclophosphamide and Avastin
Hopefully she will soon be able to start chemo, which will be oral
cyclophosphamide
which she can take at home, not sure how often, and Avastin every 2 weeks. Does anyone have any (hopefully positive) experience of this combination? Hope everyone has had a reasonably good day.
Hopefully she will soon be able to start chemo, which will be oral
cyclophosphamide
which she can take at home, not sure how often, and Avastin every 2 weeks. Does anyone have any (hopefully positive) experience of this combination? Hope everyone has had a reasonably good day.
marymarcy
in
My Ovacome
10 years ago
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FLAIR Trial - ErnieUK Baseline Bloods before FCR
As mentioned in my last post, my final baseline bloods just before starting the FCR treatment (please excuse me the underscore characters here to try to make a simple table):
_______________OCT____NOV____DEC_______Units_____Normal Range
Hg___________11.4_____10.6___10.8________g/dL_____Normal
As mentioned in my last post, my final baseline bloods just before starting the FCR treatment (please excuse me the underscore characters here to try to make a simple table):
_______________OCT____NOV____DEC_______Units_____Normal Range
Hg___________11.4_____10.6___10.8________g/dL_____Normal
Ernest2
in
CLL Support
9 years ago
Dr. O'Brien on Trial Design, CT scans and the one and only place for FCR.
Friends, Please check out my blog: http://bkoffman.blogspot.com to hear my last interview from ASCO 2014: Dr. O'Brien Discusses Improved Trial Designs, CT Scans and the role of Chemo-immunotherapy In Frontline Therapy. And if you haven't yet, and have CLL, please complete the survey at https://cllsociety.questionpro.com
Friends, Please check out my blog: http://bkoffman.blogspot.com to hear my last interview from ASCO 2014: Dr. O'Brien Discusses Improved Trial Designs, CT Scans and the role of Chemo-immunotherapy In Frontline Therapy. And if you haven't yet, and have CLL, please complete the survey at https://cllsociety.questionpro.com
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
IN CASE THIS IS OF INTEREST TO ANYONE.
Response rates of 16% and 21% have been reported when it is used as a single agent and a rate of 24% was shown when it is used in conjunction with oral
cyclophosphamide
.
Response rates of 16% and 21% have been reported when it is used as a single agent and a rate of 24% was shown when it is used in conjunction with oral
cyclophosphamide
.
thehusband
in
My Ovacome
9 years ago
Bone Marrow Exam
Hope the following might help anyone faced with a Bone Marrow Exam for the first time. Just had my first one recently as part of the baseline tests for the CLL10 "FLAIR" trial, I've signed up to. Like some of you I've heard descriptions in the past of Bone Marrow Biopsies BMB that were difficult experiences
Hope the following might help anyone faced with a Bone Marrow Exam for the first time. Just had my first one recently as part of the baseline tests for the CLL10 "FLAIR" trial, I've signed up to. Like some of you I've heard descriptions in the past of Bone Marrow Biopsies BMB that were difficult experiences
Ernest2
in
CLL Support
9 years ago
Atypical CLL
My Dad was diagnosed with CLL but had no symptoms for about 11 years. However, things moved quickly when symptoms did appear. He was started on FCR but it was not as effective as the Dr had hoped. (He had 3 doses.) he then had Rituximab and Bendamustine but again, his lymph nodes and spleen are still
My Dad was diagnosed with CLL but had no symptoms for about 11 years. However, things moved quickly when symptoms did appear. He was started on FCR but it was not as effective as the Dr had hoped. (He had 3 doses.) he then had Rituximab and Bendamustine but again, his lymph nodes and spleen are still
jerryuk
in
CLL Support
9 years ago
CLL with pleural effusions and Ibrutinib
I have had bi-lateral pleural effusions with my CLL since diagnosis earlier this year. FCR had to be stopped. I have recently been on Ibrutinib for two months. Is there any evidence that over time, Ibrutinib will resolve the effusion problem ? David.
I have had bi-lateral pleural effusions with my CLL since diagnosis earlier this year. FCR had to be stopped. I have recently been on Ibrutinib for two months. Is there any evidence that over time, Ibrutinib will resolve the effusion problem ? David.
Haileybury
in
CLL Support
9 years ago
MCTD & NSIP
And I don't know were it starts and ends I'm due to start treatment of
Cyclophosphamide
and steroids soon. And in all honesty I'm clueless and a little frightened. Anybody else with the same or similar disease because apparently it's quite rare. Thank you for reading :)
And I don't know were it starts and ends I'm due to start treatment of
Cyclophosphamide
and steroids soon. And in all honesty I'm clueless and a little frightened. Anybody else with the same or similar disease because apparently it's quite rare. Thank you for reading :)
JyotiSmith
in
Lung Conditions Community Forum
10 years ago
CLL and Fatty Acids
Hi. My husband has CLL. He has had FCR ending in February and is in (partial) remission. His white cell counts are low n = 1.4 l=0.4 and lymphocytes are stable so far so mostly good news. we are getting on with life. However I just found this link http://www.ncbi.nlm.nih.gov/m/pubmed/16473553/ and wondered
Hi. My husband has CLL. He has had FCR ending in February and is in (partial) remission. His white cell counts are low n = 1.4 l=0.4 and lymphocytes are stable so far so mostly good news. we are getting on with life. However I just found this link http://www.ncbi.nlm.nih.gov/m/pubmed/16473553/ and wondered
Hidden
in
CLL Support
9 years ago
Cyclophosphamide
I am considering a trial which includes
cyclophosphamide
as the control arm and would welcome any info anyone may have had this therapy. I could work through the approved menu first which would include weekly paclitaxel or gemcitabine. Or go for the trial if CT scan shows progression.
I am considering a trial which includes
cyclophosphamide
as the control arm and would welcome any info anyone may have had this therapy. I could work through the approved menu first which would include weekly paclitaxel or gemcitabine. Or go for the trial if CT scan shows progression.
hmmartin
in
My Ovacome
10 years ago
The Big C....
Morning all, just wanted to ask if there is anyone who is in the same boat and can offer any explanation apart from " it's the luck of the draw" .... I was diagnosed with CLL at 39, had FCR sailed through it, was in remission for 18 months and then it came back with a vengeance !!! R-chop for 2 cycles
Morning all, just wanted to ask if there is anyone who is in the same boat and can offer any explanation apart from " it's the luck of the draw" .... I was diagnosed with CLL at 39, had FCR sailed through it, was in remission for 18 months and then it came back with a vengeance !!! R-chop for 2 cycles
JanetG
in
CLL Support
10 years ago
Worried
I was discharged last night following my first
cyclophosphamide
treatment on Wednesday. So this has been my first day back at home today.
I was discharged last night following my first
cyclophosphamide
treatment on Wednesday. So this has been my first day back at home today.
Bindy68
in
Vasculitis UK
10 years ago
Heparin trial
He is stopping the aspirin and starting heparin and
cyclophosphamide
. I'm a bit scared, has anyone else been on this? Grateful for your reply Thanks Elfie.
He is stopping the aspirin and starting heparin and
cyclophosphamide
. I'm a bit scared, has anyone else been on this? Grateful for your reply Thanks Elfie.
Elfie1
in
Hughes Syndrome APS Forum
10 years ago
Newcomer
I start on
cyclophosphamide
on Monday. Apparently I'm then going to be coming in for three more treatments, 14 days apart. Any advice anyone can offer me re taking this medication? Any side effects to watch for?
I start on
cyclophosphamide
on Monday. Apparently I'm then going to be coming in for three more treatments, 14 days apart. Any advice anyone can offer me re taking this medication? Any side effects to watch for?
Bindy68
in
Vasculitis UK
10 years ago
What kind of research can we trust?
How can we trust that drugs recommended by our doctors are what's indeed best for us? While being put onto a Watch and Wait 'treatment plan' can be stressful after receiving a cancer diagnosis, at least we can be reassured that in that case, studies have shown that non-treatment will give us a better
How can we trust that drugs recommended by our doctors are what's indeed best for us? While being put onto a Watch and Wait 'treatment plan' can be stressful after receiving a cancer diagnosis, at least we can be reassured that in that case, studies have shown that non-treatment will give us a better
AussieNeil
Administrator
in
CLL Support
10 years ago
Lab Results Explained
One of my favorite people in the world is Susan Leclair PhD, who has, for years, demystified lab results for us patients. Now we are producing an ongoing video series with her. Please watch, send in questions, and tell others. Patient Power paid for this ourselves, but if we can generate viewership –
One of my favorite people in the world is Susan Leclair PhD, who has, for years, demystified lab results for us patients. Now we are producing an ongoing video series with her. Please watch, send in questions, and tell others. Patient Power paid for this ourselves, but if we can generate viewership –
andrewschorr
in
CLL Support
10 years ago
Purpura rash with normal platelets
Just trying to get a take on this. Had ITP 6 months before starting FCR Chemo for CLL. Platelets were up 'n' down during chemo to as low as 38. That was two years ago and still platelets are up 'n' down. In August they were 152 but still in range and no concerns. In September whilst on holiday,
Just trying to get a take on this. Had ITP 6 months before starting FCR Chemo for CLL. Platelets were up 'n' down during chemo to as low as 38. That was two years ago and still platelets are up 'n' down. In August they were 152 but still in range and no concerns. In September whilst on holiday,
Nicebaps
in
ITP Support Association
10 years ago
First day on IBRUTINIB
I feel very fortunate that after 2 courses of FCR which had to be stopped (pleural effusions, bone marrow and neutrophil problems), I have been referred to a CLL specialist in Oxford who has agreed that I am a suitable case for treatment with Ibrutinib on a named person basis. There can't be too many
I feel very fortunate that after 2 courses of FCR which had to be stopped (pleural effusions, bone marrow and neutrophil problems), I have been referred to a CLL specialist in Oxford who has agreed that I am a suitable case for treatment with Ibrutinib on a named person basis. There can't be too many
Haileybury
in
CLL Support
10 years ago
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