Search
Search
About
Log in
Join
Experiences with
Cyclophosphamide
Posts
Communities
1,119 public posts
Filter results
Second treatment looming
I ama 70 year old male living in South Africa and was diagnosed with CLL in January 2013. I had no symptoms that I was aware of and after a particularly nasty fever was sent by my GP for a blood count which revealed the CLL . I was referred to an Oncologist and sent for a Catscan and Bone marrow biopsy
I ama 70 year old male living in South Africa and was diagnosed with CLL in January 2013. I had no symptoms that I was aware of and after a particularly nasty fever was sent by my GP for a blood count which revealed the CLL . I was referred to an Oncologist and sent for a Catscan and Bone marrow biopsy
plett1234
in
CLL Support
8 years ago
About to start FCR
Hi everyone, I have made the decision to accept FCR arm of trial even though I'd hoped for Ibrutinib. I'm 46 , mutated and have been w and w for five years. I've 5 days till my treatment starts and to be honest I'm up the walls even though I know I know I could get a good long remission. Anyone got
Hi everyone, I have made the decision to accept FCR arm of trial even though I'd hoped for Ibrutinib. I'm 46 , mutated and have been w and w for five years. I've 5 days till my treatment starts and to be honest I'm up the walls even though I know I know I could get a good long remission. Anyone got
Kenn123
in
CLL Support
8 years ago
pANCA positive, GPA and Anti-GBM (Goodpasture Syndrome)
Cyclophosphamide
is also given. She is unable to get stable, any remission you suggest. I can send you the papers just in case you have a moment to see them please Thanks Gourav (India) +91 9717 961 482
Cyclophosphamide
is also given. She is unable to get stable, any remission you suggest. I can send you the papers just in case you have a moment to see them please Thanks Gourav (India) +91 9717 961 482
gouravjazz
in
Vasculitis UK
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
ACP 196
I'm waiting to find out if I'm IGHV mutated or not. If I am I'm less willing to undertake FCR. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
I'm waiting to find out if I'm IGHV mutated or not. If I am I'm less willing to undertake FCR. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
Kenn123
in
CLL Support
8 years ago
FCR for IGHV unmutated
Hi, I've pulled the FCR arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment. It's only now I've started serious research into FCR and discovered difference between being mutated
Hi, I've pulled the FCR arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment. It's only now I've started serious research into FCR and discovered difference between being mutated
Kenn123
in
CLL Support
8 years ago
About to start FCR
I'm about to start FCR after almost 5 years of watch and wait. Anyone been through it? Any advice?
I'm about to start FCR after almost 5 years of watch and wait. Anyone been through it? Any advice?
Kenn123
in
CLL Support
8 years ago
Shingles with CLL
Hi all Has anyone had shingles post FCR. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Hi all Has anyone had shingles post FCR. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Mick491
in
CLL Support
8 years ago
Need some advice on a new trial
Hi everyone - had the results of my scan today, not the best news, the Caelyx is not working and they have stopped it, ascites coming back and tumours got bigger - going on a new trial next week "low dose
cyclophosphamide
and nintedanib" - will be in tablet form to be taken everyday - does anyone have
Hi everyone - had the results of my scan today, not the best news, the Caelyx is not working and they have stopped it, ascites coming back and tumours got bigger - going on a new trial next week "low dose
cyclophosphamide
and nintedanib" - will be in tablet form to be taken everyday - does anyone have
jennyloc14
in
My Ovacome
8 years ago
FCR vs imbruvica first line
I was wondering what people's opinion was for FCR vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with FCR which is the recommended standard treatment per current guidelines. I feel
I was wondering what people's opinion was for FCR vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with FCR which is the recommended standard treatment per current guidelines. I feel
nkferg
in
CLL Support
8 years ago
Pneumonian prevention
Hi all Over the last 7 winters i have had either full blown pneumonia or severe chest infections requiring hospitalisation. I was treated with FCR in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics
Hi all Over the last 7 winters i have had either full blown pneumonia or severe chest infections requiring hospitalisation. I was treated with FCR in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics
Mick491
in
CLL Support
8 years ago
6-month post FCR
I'm a little late posting this- as I had no choice but to go back to work which has been EXHAUSTING!!! My Oncologist is happy with my blood levels so he released me to go back 8/1- I'm obviously very happy that my levels are good. Unfortunately, the chemo caused other issues (according to my neurologist
I'm a little late posting this- as I had no choice but to go back to work which has been EXHAUSTING!!! My Oncologist is happy with my blood levels so he released me to go back 8/1- I'm obviously very happy that my levels are good. Unfortunately, the chemo caused other issues (according to my neurologist
rlyndecker
in
CLL Support
8 years ago
2nd recurrence. 4 chemo combos all failed. Any suggestions?
Quite devastated and still wanting to fight more I consulted another Oncologist who suggested adding IV
cyclophosphamide
(Cytoxan) to gemzar. But it got worse as the CA125 kept doubling instead. Now I am not even stable. With a CA 125 of 263 I started on carbo /taxol.
Quite devastated and still wanting to fight more I consulted another Oncologist who suggested adding IV
cyclophosphamide
(Cytoxan) to gemzar. But it got worse as the CA125 kept doubling instead. Now I am not even stable. With a CA 125 of 263 I started on carbo /taxol.
GreenSnow
in
My Ovacome
8 years ago
Cyclophosphamide for the elderly
She was going to be infused with low dose Rituximab but this has been changed to
Cyclophosphamide
(50-100mg) orally with an anti-sickness drug while continuing to reduce the steroid dose. Although she is 95 she has had no serious health issues until now.
She was going to be infused with low dose Rituximab but this has been changed to
Cyclophosphamide
(50-100mg) orally with an anti-sickness drug while continuing to reduce the steroid dose. Although she is 95 she has had no serious health issues until now.
nigeldodd
in
CLL Support
8 years ago
For those with vasculitis AND pain in the stomach
Hi all, I recently have been undergoing tests to get a specific diagnosis of GPA/Wegeners & have been told that I do have a generalise ANCA positive small cell vasculitis but that we need to be specific and to rule out ALL other problems or possibilities so that I can be treated with
cyclophosphamide
Hi all, I recently have been undergoing tests to get a specific diagnosis of GPA/Wegeners & have been told that I do have a generalise ANCA positive small cell vasculitis but that we need to be specific and to rule out ALL other problems or possibilities so that I can be treated with
cyclophosphamide
Jools52
in
Vasculitis UK
8 years ago
4 weeks post FCR
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
jackhammer
in
CLL Support
8 years ago
FCR stopped after cycle 5
What joy I was told at haematology clinic on Monday that I would not be having cycle 6 of FCR because there was no need. I had responded well and why put more chemo into me when associated with secondary cancer malignancies. For the past 3 cycles my lympocyctes have been below 0.5. Started at 265. Can't
What joy I was told at haematology clinic on Monday that I would not be having cycle 6 of FCR because there was no need. I had responded well and why put more chemo into me when associated with secondary cancer malignancies. For the past 3 cycles my lympocyctes have been below 0.5. Started at 265. Can't
devonrr
in
CLL Support
8 years ago
Untreated Aussies needing treatment - great clinical trial just for you
I just saw Con Tam at the Peter Mac in Melbourne today - I asked him when he thinks the trial of ibrutinib plus Venetoclax will open here for CLL patients (it's open for MCL and they're all doing well) and he said it's opening for treatment naieve in 3 months. Anyone approaching treatment here really
I just saw Con Tam at the Peter Mac in Melbourne today - I asked him when he thinks the trial of ibrutinib plus Venetoclax will open here for CLL patients (it's open for MCL and they're all doing well) and he said it's opening for treatment naieve in 3 months. Anyone approaching treatment here really
Debinoz
in
CLL Support
8 years ago
cyclophosphamide
Been to see Consultant today with my daughter of 12 years old thing haven't got worse but no better too she's on
cyclophosphamide
infusion every 3 weeks she's had 4 of these so far but nothings changed so far.
Been to see Consultant today with my daughter of 12 years old thing haven't got worse but no better too she's on
cyclophosphamide
infusion every 3 weeks she's had 4 of these so far but nothings changed so far.
shine78
in
Behçet's UK
8 years ago
FCR Cycle 1
Hi, My dad is on day 2 of cycle 1 of FCR. Should he expect hair loss? If not, great and if yes then how long did it take for hair loss to occur? Thank you
Hi, My dad is on day 2 of cycle 1 of FCR. Should he expect hair loss? If not, great and if yes then how long did it take for hair loss to occur? Thank you
Lena2016
in
CLL Support
8 years ago
Churg Strauss new diagnosis.
I have recently been diagnosed with churg-strauss and have one more cycle of
cyclophosphamide
to go I'm coping ok but the pain in my legs is getting me down. Has anyone used a tens machine or similar and did it help? Just wondering if it is worth the investment. Tracey
I have recently been diagnosed with churg-strauss and have one more cycle of
cyclophosphamide
to go I'm coping ok but the pain in my legs is getting me down. Has anyone used a tens machine or similar and did it help? Just wondering if it is worth the investment. Tracey
Tiss
in
Vasculitis UK
8 years ago
1
...
37
38
39
...
56
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
CLL Support
742 results
Vasculitis UK
163 results
LUPUS UK
46 results
View top 10 communities
Sort by
Most Relevant
Newest