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Experiences with
Cyclophosphamide
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50 yr old son had 6 cycles of FCR in 2017. In complete remission over a year. Recent wbc and platelets way down. What is happening?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
Back to onco-hemo dr in 2weeks. BWB biopsy will be needed if counts do not go up. Son feels fine. Any thoughts?
jumper23
in
CLL Support
6 years ago
Aortitis, now might have to start cyclophosphamide
Has anyone here had
cyclophosphamide
and seen good results? Also, i would like to ask if anyone has had side effects and what happens as regards further treatment, if the
cyclophosphamide
works.
Has anyone here had
cyclophosphamide
and seen good results? Also, i would like to ask if anyone has had side effects and what happens as regards further treatment, if the
cyclophosphamide
works.
Suzycat
in
Vasculitis UK
6 years ago
Systemic therapy - FCR: Day One
Chemo was way too eventful today. For the first treatment the nurses give the iv chemo slowly over a period of hours so that they can monitor for any allergic reactions...well, I ended up having an allergic reaction to it so they stopped and gave me Benadryl and steroids to help calm my body down. It
Chemo was way too eventful today. For the first treatment the nurses give the iv chemo slowly over a period of hours so that they can monitor for any allergic reactions...well, I ended up having an allergic reaction to it so they stopped and gave me Benadryl and steroids to help calm my body down. It
Famburt
in
CLL Support
6 years ago
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28 Days on Ibrutinib
Yesterday was exactly 4 weeks since beginning Ibrutinib for my leukaemia. It’s a journey I should have started many months before I did. But previous NHS England guidelines of preventing those having been in remission following chemotherapy for more than 3 years from being treated with this drug saw
Yesterday was exactly 4 weeks since beginning Ibrutinib for my leukaemia. It’s a journey I should have started many months before I did. But previous NHS England guidelines of preventing those having been in remission following chemotherapy for more than 3 years from being treated with this drug saw
Mick491
in
CLL Support
6 years ago
Status update 17 months post-FCR
I've seen a few posts recently from folks starting or considering starting FCR. I wanted to give you some thoughts re: my experience in hopes they might help someone. Background: I am a 66yr old male, diagnosed at 59. Short story of FISH and other tests is that I have the "good" things and don't have
I've seen a few posts recently from folks starting or considering starting FCR. I wanted to give you some thoughts re: my experience in hopes they might help someone. Background: I am a 66yr old male, diagnosed at 59. Short story of FISH and other tests is that I have the "good" things and don't have
cwturley
in
CLL Support
6 years ago
Can a SLL patient become CLL?
Was wondering if an SLL can turn into CLL? would that mean it’s invasive? My WBC have always been within the normal range except when I did that FCR treatment they went down to 1. They are presently at 3.9 the highest they have ever been since March of 2014!
Was wondering if an SLL can turn into CLL? would that mean it’s invasive? My WBC have always been within the normal range except when I did that FCR treatment they went down to 1. They are presently at 3.9 the highest they have ever been since March of 2014!
Lola69
in
CLL Support
6 years ago
Very anxious about having IV Cyclophosphamide. need to hear of your experience with this drug.
The docs have advised me to have IV
Cyclophosphamide
, however I am very anxious about this as I have previously been on Mycophonolate and Azathioprine, both of which are chemo drugs and have had very bad reactions to them.
The docs have advised me to have IV
Cyclophosphamide
, however I am very anxious about this as I have previously been on Mycophonolate and Azathioprine, both of which are chemo drugs and have had very bad reactions to them.
field
in
LUPUS UK
6 years ago
MRD Results.
MRD results are in after 3 rounds of FCR. I am wondering if any other members of this group achieved MRD after partial treatment and what your MRD numbers were. I achieved a 1% according to my Dr. any info would be greatly appreciated. Thanks in advance
MRD results are in after 3 rounds of FCR. I am wondering if any other members of this group achieved MRD after partial treatment and what your MRD numbers were. I achieved a 1% according to my Dr. any info would be greatly appreciated. Thanks in advance
BEN61
in
CLL America Support
6 years ago
Fcr round 4 icthing
Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes it
Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes it
Jsk1950
in
CLL Support
6 years ago
Test Results FCR- Remission!
Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next
Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next
GMa27
in
CLL Support
6 years ago
Help please what to expect
I was given
cyclophosphamide
Initially as 6 X weekly infusions . Since July 2017 I have been on azathyoprine tabLet's 175 mg daily and prednisilone which has fluctuated between 5-30 mg depending on how I feel.
I was given
cyclophosphamide
Initially as 6 X weekly infusions . Since July 2017 I have been on azathyoprine tabLet's 175 mg daily and prednisilone which has fluctuated between 5-30 mg depending on how I feel.
stuc
in
Vasculitis UK
6 years ago
Fcr and flu jab
Should I have a flu jab while on fcr ?
Should I have a flu jab while on fcr ?
dandelup
in
CLL Support
6 years ago
Ibrutinib
My husband’s side effects are worse late afternoon early evening. I stay awake until I am sure he is more settled. He has horrible chills. He’s beginning to have head aches as well. He had headaches with FCR. Any advice on how to best comfort him or make life easier during Ibrutinib?
My husband’s side effects are worse late afternoon early evening. I stay awake until I am sure he is more settled. He has horrible chills. He’s beginning to have head aches as well. He had headaches with FCR. Any advice on how to best comfort him or make life easier during Ibrutinib?
Zappymom12
in
CLL Support
6 years ago
Newbie
Howdy. Pretty cool site with a lot of info, suggestions. I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms
Howdy. Pretty cool site with a lot of info, suggestions. I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms
gesch83ag
in
CLL Support
6 years ago
Post 4 cycles FCR side effects
FCR vasculitis & fungal pneumonia after 4 cycle
FCR vasculitis & fungal pneumonia after 4 cycle
Mathild
in
CLL Support
6 years ago
Fcr update
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
dandelup
in
CLL Support
6 years ago
Cheap Ibrutinib?
Hi Everyone, I started doing research on treatments and how I can handle the cost, since our insurance does not cover anything. We are doing the bone marrow this week and we will know for sure, but our doctor assumes Ibrutinib, combination or FCR, I prefer the first. However the cost is insane, I found
Hi Everyone, I started doing research on treatments and how I can handle the cost, since our insurance does not cover anything. We are doing the bone marrow this week and we will know for sure, but our doctor assumes Ibrutinib, combination or FCR, I prefer the first. However the cost is insane, I found
paula_dae
in
CLL Support
6 years ago
adverse reaction to aromatherapy?
The cancer nurse at my GP practise suggested I might like to take advantage of various treatments our local hospice provides for cancer sufferers. I went today for a chat with the therapist to discuss the options. She had a diffuser, puffing out essential oils, mixed with water. My lungs started to
The cancer nurse at my GP practise suggested I might like to take advantage of various treatments our local hospice provides for cancer sufferers. I went today for a chat with the therapist to discuss the options. She had a diffuser, puffing out essential oils, mixed with water. My lungs started to
Mandy56
in
CLL Support
6 years ago
Just got my FISH results
Hi everyone, I've just been to see my haematologist for my FISH results, the first since diagnosed 3 weeks ago. He says I have both the 11q and 13 deletions. I know the 11q isnt very good so we were pretty disappointed. I am starting FCR treatment next week. Could someone let me know what to expect?
Hi everyone, I've just been to see my haematologist for my FISH results, the first since diagnosed 3 weeks ago. He says I have both the 11q and 13 deletions. I know the 11q isnt very good so we were pretty disappointed. I am starting FCR treatment next week. Could someone let me know what to expect?
fugazi
in
CLL Support
6 years ago
2 nd fcr day over
A big thank you for all your good wishes and advice, I sailed through second day no reactions at all, now a break till October once again thank you for all your kind words of support.
A big thank you for all your good wishes and advice, I sailed through second day no reactions at all, now a break till October once again thank you for all your kind words of support.
dandelup
in
CLL Support
6 years ago
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