Search
Search
About
Log in
Join
Experiences with
Cutaneous T cell lymphoma (CTCL)
Posts
Communities
1,629 public posts
Filter results
CAR-T Therapy Inquiry
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
Naka
in
CLL Support
6 years ago
Taking A Deep Breath
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
7 years ago
Value of bone marrow biopsies in Follicular Lymphoma
Hope everyone is having a good weekend and feeling well. I go for my six monthly checkup on Tue 28th. Bloods look ok so hoping nothing else will crop up. This is a short blog post summarising results of a study re value of bone marrow biopsies in follicular lymphoma patients. https://cornell-lymphoma.com
Hope everyone is having a good weekend and feeling well. I go for my six monthly checkup on Tue 28th. Bloods look ok so hoping nothing else will crop up. This is a short blog post summarising results of a study re value of bone marrow biopsies in follicular lymphoma patients. https://cornell-lymphoma.com
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Bone Marrow Transplant Begins
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
Beauxman
in
Advanced Prostate Cancer
7 years ago
11 year old son ITP
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
Bishoprena
in
ITP Support Association
7 years ago
Stem cell transplant
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
DebLeeCox
in
CLL Support
7 years ago
B12 deficient steak lover
HI everyone, I am new here. I am a 27yr old female in the UK. Recently, I went to my GP with what I thought were Hypothyroid symptoms on my Mother's advice since she has this condition. I was shocked to learn that my thyroid was fine (given a family history of thyroid problems) but found that I had
HI everyone, I am new here. I am a 27yr old female in the UK. Recently, I went to my GP with what I thought were Hypothyroid symptoms on my Mother's advice since she has this condition. I was shocked to learn that my thyroid was fine (given a family history of thyroid problems) but found that I had
TMur1990
in
Pernicious Anaemia Society
7 years ago
Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition. Kate Gilbert PhD
Just finished this book... I HIGHLY recommend to someone newly diagnosed like me!
Just finished this book... I HIGHLY recommend to someone newly diagnosed like me!
Hidden
in
PMRGCAuk
7 years ago
Urgent question: low platelets
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
Glees
in
CLL Support
7 years ago
Tocilizumab is not approved by NHS England for GCA on cost grounds
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of tocilizumab for GCA. Their decision is open to consultation, and we would like as many GCA patients as possible to comment on their website about this decision. Tocilizumab
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of tocilizumab for GCA. Their decision is open to consultation, and we would like as many GCA patients as possible to comment on their website about this decision. Tocilizumab
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
7 years ago
High Alt, fibroscan 7.7 CT scan now biopsy scared
Hi everyone, I'm hoping you help can ease my mind or help me with these results! back in July I had a bout of gastritis I was in hospital for a week as my ATL was in the 400's eventually it returned to 37 now it's started to rise again. Doctors are worried as they don't know what's causing it. two weeks
Hi everyone, I'm hoping you help can ease my mind or help me with these results! back in July I had a bout of gastritis I was in hospital for a week as my ATL was in the 400's eventually it returned to 37 now it's started to rise again. Doctors are worried as they don't know what's causing it. two weeks
GillyGangGong
in
British Liver Trust
7 years ago
CMV Risk in Donor Stem Cell Transplant
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Inflammatory Breast Cancer with Her2+ and ErPr -
My wife diagnosed with the above carcinoma and has been administered TCH two cycles.Clinically the response seems to be good.She has been advised six cycles of TCH if response is good then followed by surgery. Need to bounce it off from this community regarding the prognosis of such carcinoma with the
My wife diagnosed with the above carcinoma and has been administered TCH two cycles.Clinically the response seems to be good.She has been advised six cycles of TCH if response is good then followed by surgery. Need to bounce it off from this community regarding the prognosis of such carcinoma with the
vikrantparhi
in
Breast Cancer India
7 years ago
Rejection of claim for daycare rituximab cancer treatment by United India Insurance Co
I had stage IV mantle cell Non hodgkins lymphoma. Got chemotherapy treatment at mumbai . Now under full remission but i am taking rituximab inj in day care every 2 months.All my earlier chemo costs were paid by United India Insurance under their gold policy. I am 61 yrs old male. I have coverage of 6.5
I had stage IV mantle cell Non hodgkins lymphoma. Got chemotherapy treatment at mumbai . Now under full remission but i am taking rituximab inj in day care every 2 months.All my earlier chemo costs were paid by United India Insurance under their gold policy. I am 61 yrs old male. I have coverage of 6.5
munjalbom8
in
Breast Cancer India
7 years ago
Lymphoma
Just got results from my pet scan, all my lymph nodes have got bigger, my biggest one is 7cm goi gang to see my Dr next week to talk about treatment, anyone know what treatment I’ll need???
Just got results from my pet scan, all my lymph nodes have got bigger, my biggest one is 7cm goi gang to see my Dr next week to talk about treatment, anyone know what treatment I’ll need???
Esther66
in
Non Hodgkin's Lymphoma Friends
7 years ago
2017 sees several new drugs for rheumatic illnesses - including GCA
2017 has been a good year for new drugs for inflammatory rheumatoid conditions, and at last tocilizumab has been approved by the FDA in the US for Giant Cell Arteritis. Let's hope that before long it's approved by NICE for the UK too! http://bit.ly/2z94Pxi
2017 has been a good year for new drugs for inflammatory rheumatoid conditions, and at last tocilizumab has been approved by the FDA in the US for Giant Cell Arteritis. Let's hope that before long it's approved by NICE for the UK too! http://bit.ly/2z94Pxi
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
7 years ago
Baby with sickle cell
My baby is currently 2 months and was diagnosed with scd ss. The doctor told me that she will still live a normal healthy life but would just require more medical attention. I want to know how early does pain episodes start and what are signs to look for? She is currently on antibiotics.
My baby is currently 2 months and was diagnosed with scd ss. The doctor told me that she will still live a normal healthy life but would just require more medical attention. I want to know how early does pain episodes start and what are signs to look for? She is currently on antibiotics.
Coucouvg3
in
Sickle Cell Society
7 years ago
Triple Negative came back in lymph nodes.
Hello, my wife was diagnosed with triple negative stage 1. She had chemo first A/C then Taxol was told nothing in the nodes. After chemo she had a full mass where then they told us 3 nodes showed signs the next 12 was clear. Then they said she would need radiation which she did. A few months later she
Hello, my wife was diagnosed with triple negative stage 1. She had chemo first A/C then Taxol was told nothing in the nodes. After chemo she had a full mass where then they told us 3 nodes showed signs the next 12 was clear. Then they said she would need radiation which she did. A few months later she
Chad-23
in
Breast Cancer India
7 years ago
Road to a BMT... oops just got there
Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come back to it. Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. 2017 and he was going to start Venetoclax
Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come back to it. Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. 2017 and he was going to start Venetoclax
NMMP
in
CLL Support
7 years ago
Lenolidamide
I had a relapse of CD20 positive large B Cell lymphoma in left forearm last October after being in remission for 8 years following R-CHOP. Recently finished 5 months of Bendamustine/Rituximab infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in
I had a relapse of CD20 positive large B Cell lymphoma in left forearm last October after being in remission for 8 years following R-CHOP. Recently finished 5 months of Bendamustine/Rituximab infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in
Howie40
in
Lymphoma Canada
7 years ago
1
...
46
47
48
...
82
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
CLL Support
541 results
PMRGCAuk
199 results
MPN Voice
129 results
View top 10 communities
Sort by
Most Relevant
Newest