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More advice please prior to GP consultation
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Pocketdog
in
PMRGCAuk
3 years ago
Pine bark extract supplement?
Has anyone tried a supplement with pine bark extract? The book Finally Focused highly recommends it. Just had a bad experience with Aderol after methylphenidate messed with my son’s sleep so I’m not really into this expensive trial & error method of drug experimentation. Of course supplements are expensive
Has anyone tried a supplement with pine bark extract? The book Finally Focused highly recommends it. Just had a bad experience with Aderol after methylphenidate messed with my son’s sleep so I’m not really into this expensive trial & error method of drug experimentation. Of course supplements are expensive
StellarMom
in
CHADD's ADHD Parents Together
3 years ago
To Work or Not to Work.
There has been some recent discussions around the subject of returning to work and how compatible this might be with a diagnosis of PMRGCA. I too am currently having this mental debate as I prepare for a 3rd and final attempt at returning to work in a primary school. I'm not posting this particularly
There has been some recent discussions around the subject of returning to work and how compatible this might be with a diagnosis of PMRGCA. I too am currently having this mental debate as I prepare for a 3rd and final attempt at returning to work in a primary school. I'm not posting this particularly
Kendrew
in
PMRGCAuk
3 years ago
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Experiences of paracentesis (drainage of ascites)
Hello As you may remember, Ovacome are working with Dr Roshan Agarwal, consultant oncologist at Northampton General Hospital, to help clinicians better understand the patient experience of paracentesis, also known as ascites drainage. Last year we carried out a survey into experiences of paracentesis
Hello As you may remember, Ovacome are working with Dr Roshan Agarwal, consultant oncologist at Northampton General Hospital, to help clinicians better understand the patient experience of paracentesis, also known as ascites drainage. Last year we carried out a survey into experiences of paracentesis
OvacomeSupport
Administrator
in
My Ovacome
3 years ago
Doctor visit
Hi everyone hope all is well. We finally had our Dr. visit with Dr Bang from John Hopkins after over a year. She said that Rick is in the last stage and told me to take him off Tramadol and to only give him clonazepam only when needed. She also gave him some new medicine Trazodone 50 mg for his sleeping
Hi everyone hope all is well. We finally had our Dr. visit with Dr Bang from John Hopkins after over a year. She said that Rick is in the last stage and told me to take him off Tramadol and to only give him clonazepam only when needed. She also gave him some new medicine Trazodone 50 mg for his sleeping
Hidden
in
PSP Association
3 years ago
Rifaximin to treat SIBO
Hi everyone Has anybody ever been prescribed Rifaximin by an endo/doctor for treating sibo. My result for sibo came back positive and my endocrinologist has suggested trying Rifaximin antibiotic for a course of 14 days. However, irs incredibly expensive and I’m just worried my GP won’t prescribe it
Hi everyone Has anybody ever been prescribed Rifaximin by an endo/doctor for treating sibo. My result for sibo came back positive and my endocrinologist has suggested trying Rifaximin antibiotic for a course of 14 days. However, irs incredibly expensive and I’m just worried my GP won’t prescribe it
Hafsah2345
in
Thyroid UK
3 years ago
Diagnosed with otosclerosis
Hello, I have been just diagnosed with otosclerosis , i went to the the doctor complaining that i found hearing in my right ear is muffled compared to the left and mild tinnitus so after doing tympanometry (which was normal but with absent stapedial reflex) and pure tone audiometry (showed that sadly
Hello, I have been just diagnosed with otosclerosis , i went to the the doctor complaining that i found hearing in my right ear is muffled compared to the left and mild tinnitus so after doing tympanometry (which was normal but with absent stapedial reflex) and pure tone audiometry (showed that sadly
Kiloa
in
British Tinnitus Association
3 years ago
Doctors
If pain treatment and/or desperately needed referrals are refused where can you get help? As a result of this treatment (or lack of it) in June 2019, I quickly needed to use crutches. Nov 2020, my severe bone on bone hip gave way, and I broke the good leg. Reluctance to answer my calls for help
If pain treatment and/or desperately needed referrals are refused where can you get help? As a result of this treatment (or lack of it) in June 2019, I quickly needed to use crutches. Nov 2020, my severe bone on bone hip gave way, and I broke the good leg. Reluctance to answer my calls for help
Desperata
in
Fibromyalgia Action UK
3 years ago
G6PD blood deficiency
Hi everyone, I have G6PD deficiency and although not life-threatening as long as I stay clear of the list of substances that can cause an allergic reaction, I have recently been reading about some studies that highlight a concerning correlation between Coronavirus and people with the same condition as
Hi everyone, I have G6PD deficiency and although not life-threatening as long as I stay clear of the list of substances that can cause an allergic reaction, I have recently been reading about some studies that highlight a concerning correlation between Coronavirus and people with the same condition as
Sash-K
in
Lung Conditions Community Forum
3 years ago
chronic biochemical non inflammatory pain ?
you may remember weeks ago I have been supporting a dear friend of mine who has been suffering with PMR for 4 years. Currently her pain is still not under control but she refuses to increase her pred more than 12.5 mgs. I have encouraged her to seek medical advice and she has an appointment to have her
you may remember weeks ago I have been supporting a dear friend of mine who has been suffering with PMR for 4 years. Currently her pain is still not under control but she refuses to increase her pred more than 12.5 mgs. I have encouraged her to seek medical advice and she has an appointment to have her
larkthebark
in
PMRGCAuk
3 years ago
Anti inflammatory pain killers
Last year I developed back and tendon issues with severe sciatica. Apart from a cortisone injection in my back that I had sourced privately the only help I received from GP and consultant was to take anti inflammatory pain killers like Ibruprofen, Namoxen etc. I took their advice against my better judgement
Last year I developed back and tendon issues with severe sciatica. Apart from a cortisone injection in my back that I had sourced privately the only help I received from GP and consultant was to take anti inflammatory pain killers like Ibruprofen, Namoxen etc. I took their advice against my better judgement
Soakie
in
British Tinnitus Association
3 years ago
Pip review stress
Hi Iv got my pip review stressed as got fill form in again Nothing changed only got worse the stress going through this causes anxiety Iv got borderline personality disorder and depression and degerated back disorder on tip fibromyalgia secondary
Hi Iv got my pip review stressed as got fill form in again Nothing changed only got worse the stress going through this causes anxiety Iv got borderline personality disorder and depression and degerated back disorder on tip fibromyalgia secondary
Blacki
in
Fibromyalgia Action UK
3 years ago
Negopam
I started today on 30 mg 3 times a day nefopam my gp gave me ,but i normally take codien or tramadol as the pain is bad at times but nefopam is not helping will it start to work as im in pain with my ibs
I started today on 30 mg 3 times a day nefopam my gp gave me ,but i normally take codien or tramadol as the pain is bad at times but nefopam is not helping will it start to work as im in pain with my ibs
Supermammy
in
Pain Concern
3 years ago
Allodynia
Morning all, I’m new to this Forum. I’ve had Fibromyalgia for over 20 yrs, but was only diagnosed with it in 2007. I’ve also only recently been told that I have Allodynia? Mechanical & Tactile? Does anyone know or suffer with this please? Zahida
Morning all, I’m new to this Forum. I’ve had Fibromyalgia for over 20 yrs, but was only diagnosed with it in 2007. I’ve also only recently been told that I have Allodynia? Mechanical & Tactile? Does anyone know or suffer with this please? Zahida
ZipsPain
in
Fibromyalgia Action UK
3 years ago
Tinnitus gone (for 2hours) the sound of silence!
I have had Tinnitus and Hyperacusis since Nov 2019, I am resigned to having this forever and do my best to habituate and despite the inevitable spikes I’m getting on with my life. I woke this morning at 3am and it suddenly struck me that it was quiet!!!!! OMG I couldn’t believe it, I’d forgotten how
I have had Tinnitus and Hyperacusis since Nov 2019, I am resigned to having this forever and do my best to habituate and despite the inevitable spikes I’m getting on with my life. I woke this morning at 3am and it suddenly struck me that it was quiet!!!!! OMG I couldn’t believe it, I’d forgotten how
Hidden
in
Tinnitus UK
3 years ago
Re: Hair colour dye for sensitive skin to cover grey hair regrowth after Chemotherapy?
Hello ladies, I've finished chemo 4 months ago and my hair has now grown back to about just over an inch long. I'm very pleased that it's grown back again, although it's grown back mostly silver-grey now whereas it was 75% dark brown before the chemo. I wondered if any of you ladies who's hair has
Hello ladies, I've finished chemo 4 months ago and my hair has now grown back to about just over an inch long. I'm very pleased that it's grown back again, although it's grown back mostly silver-grey now whereas it was 75% dark brown before the chemo. I wondered if any of you ladies who's hair has
Doughnut21
in
My Ovacome
3 years ago
Will this have you in stitches?
Just as a surgeon was finishing up an operation and was about to close, the patient awakes, sits up, and demands to know what is going on. "I'm about to close,' the surgeon says. The patient grabs the surgeon's hand and says, "I'm not going to let you do that! I'll close my own incision!" The doctor
Just as a surgeon was finishing up an operation and was about to close, the patient awakes, sits up, and demands to know what is going on. "I'm about to close,' the surgeon says. The patient grabs the surgeon's hand and says, "I'm not going to let you do that! I'll close my own incision!" The doctor
2greys
in
Lung Conditions Community Forum
3 years ago
Out of the Loop
Hi All, thank you for your lovely messages and PMs. Yesterday was a very, very difficult day for me since I had my first Covid jab. An opportunity my husband didn't get by a matter of days / weeks. Had my son not been with me I would have driven away. The advantage of my hysteria meant I jumped the
Hi All, thank you for your lovely messages and PMs. Yesterday was a very, very difficult day for me since I had my first Covid jab. An opportunity my husband didn't get by a matter of days / weeks. Had my son not been with me I would have driven away. The advantage of my hysteria meant I jumped the
Marilyn1959
in
PMRGCAuk
3 years ago
Chronic pain
Hi, I have had 4 Prostrap injections and now gyny has discontinued and put me on depot provera. I’m really sick of the pain I’m in every day! I have just been to Sainsbury’s and to a couple other shops and have had to take myself to bed with ankle, leg and hip pain. Does anyone else suffer with this?
Hi, I have had 4 Prostrap injections and now gyny has discontinued and put me on depot provera. I’m really sick of the pain I’m in every day! I have just been to Sainsbury’s and to a couple other shops and have had to take myself to bed with ankle, leg and hip pain. Does anyone else suffer with this?
Bethrussell
in
Endometriosis UK
3 years ago
Hydroxyurea or Busulfan
Hello MPN community I was diagnosed with PV in 2020. I am JAK2+ and am currently being treated with Phlebotomies as needed and baby aspirin . I am thinking about going on low dose Busulfan 2mg per day or 500mg Hydroxyurea.I would appreciate any input on side effects . Does it help fatigue or add to it
Hello MPN community I was diagnosed with PV in 2020. I am JAK2+ and am currently being treated with Phlebotomies as needed and baby aspirin . I am thinking about going on low dose Busulfan 2mg per day or 500mg Hydroxyurea.I would appreciate any input on side effects . Does it help fatigue or add to it
Ridenez
in
MPN Voice
3 years ago
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