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My 22yr old son was diagnosed with Pulmonary Langerhans Cell Histiocytosis. Anyone suffering from this and what treatments are you doing?
MLinder
in
Lung Conditions Community Forum
10 years ago
Raynoids and under active thyroid with ingrowing toenail?
I think I have a ingrowing toenail my toe is very painful is it ok for me to try dig this out myself with raynauds and under active thyroid or should I be going to a doctor to do it x
I think I have a ingrowing toenail my toe is very painful is it ok for me to try dig this out myself with raynauds and under active thyroid or should I be going to a doctor to do it x
Emma020884
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Nocturia is this another worry or just part of the long game .. I can see from all of the group stress of Christmas has set flares off .
Dopeydillis
in
LUPUS UK
10 years ago
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How do I ask for a review from wrag to support group, and how can you know if you should be in support group? What are the requirements?
I have major depression bpd, bipolar, hypertension fibro, herniated discs L4/5 bladder prolapse and thoracic spine wear and tear etc can anyone explain how I would get a review on esa from wrag to support group. If my health probs don't qualify that's fine. Merry Christmas to all
I have major depression bpd, bipolar, hypertension fibro, herniated discs L4/5 bladder prolapse and thoracic spine wear and tear etc can anyone explain how I would get a review on esa from wrag to support group. If my health probs don't qualify that's fine. Merry Christmas to all
margie70
in
Fibromyalgia Action UK
11 years ago
Does anyone have Post Hydrotherapy Flare up ?
I had some hydrotherapy on Friday, immediately after I began feeling unwell and weak and just made it to sit in the car. As the hours progressed I began having pains in my lower back and waist, legs and arms. Previous hydro sessions left me out of energy for days. I don't know what to make of it. I do
I had some hydrotherapy on Friday, immediately after I began feeling unwell and weak and just made it to sit in the car. As the hours progressed I began having pains in my lower back and waist, legs and arms. Previous hydro sessions left me out of energy for days. I don't know what to make of it. I do
lizzc
in
NRAS
11 years ago
Winter Fuel Allowance petition.
Hi thanks for getting the momentum going to everybody who has signed the petition below. Please encourage others to sign. It is helping raise awareness of Raynaud's and Scleroderma at least which is just perfect. http://you.38degrees.org.uk/petitions/winter-fuel-allowance-for-the-disabled-and-vunerable
Hi thanks for getting the momentum going to everybody who has signed the petition below. Please encourage others to sign. It is helping raise awareness of Raynaud's and Scleroderma at least which is just perfect. http://you.38degrees.org.uk/petitions/winter-fuel-allowance-for-the-disabled-and-vunerable
bluesgirl
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Was tested positive for Romberg's at Royal Free last month.
I have been feeling unsteady on my feet for over a year and was finally given the Romberg's test which proved positive. MRI on 7 December. Have searched the web for the causes and am dreading that the cerabellum (?) is being affected by Scleroderma. Mine is ss. Does anybody know of an incidence
I have been feeling unsteady on my feet for over a year and was finally given the Romberg's test which proved positive. MRI on 7 December. Have searched the web for the causes and am dreading that the cerabellum (?) is being affected by Scleroderma. Mine is ss. Does anybody know of an incidence
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
Bronchiectasis and innoculation for HIB /meningitis??!!
Hi all Have recently seen a consultant who suggested I have a vaccination against the HIB bacteria (which coincidentally comes combined with the added bonus(?!) of the meningitis vaccine) as I seem to be very susceptible to HIB. Has anyone else had this and, if so, did it work/did you have a reaction
Hi all Have recently seen a consultant who suggested I have a vaccination against the HIB bacteria (which coincidentally comes combined with the added bonus(?!) of the meningitis vaccine) as I seem to be very susceptible to HIB. Has anyone else had this and, if so, did it work/did you have a reaction
swimmer
in
Lung Conditions Community Forum
11 years ago
Has antone else had a Pleurectomy and still experiencing pain, years after?
After a pleurectomy about 7 years ago, I still experience pain in my lung,ribs and surrounding skin(nerve damage) I was very poorly after the op and took months to recover, I found it traumatising and it was the onset of Chronic Fatigue Syndrome.. Anyone else been through this op?
After a pleurectomy about 7 years ago, I still experience pain in my lung,ribs and surrounding skin(nerve damage) I was very poorly after the op and took months to recover, I found it traumatising and it was the onset of Chronic Fatigue Syndrome.. Anyone else been through this op?
woofneigh
in
Lung Conditions Community Forum
11 years ago
Hypermobility.......what are the symptoms and how do you find out if you have it?
Im wondering, after reading several posts, if i too have this issue. Its especially in my knee and if often feels as though it is literally going to dislocate. I am a Fibromyalgia sufferer and wondered if this is connected or a totally seperate issue? Any help/advice/suggestions ? :-)
Im wondering, after reading several posts, if i too have this issue. Its especially in my knee and if often feels as though it is literally going to dislocate. I am a Fibromyalgia sufferer and wondered if this is connected or a totally seperate issue? Any help/advice/suggestions ? :-)
Lorraine1966
in
Fibromyalgia Action UK
11 years ago
Flutter Device
Hello all, Long time no speak!! I was just wondering firstly how you all are?! Secondly, I was just wondering if anyone has ever been given a flutter device from their physio...if you have one of course. If so, how have you found it, has it been better than postural drainage or equally as good?!
Hello all, Long time no speak!! I was just wondering firstly how you all are?! Secondly, I was just wondering if anyone has ever been given a flutter device from their physio...if you have one of course. If so, how have you found it, has it been better than postural drainage or equally as good?!
Hidden
in
Asthma Community Forum
11 years ago
When is the best time to take St johns Wort if I take my thyroxinne 1st thing each morn, ?
Stopped fluoxetine over 12 weeks ago with a graduated reduction. Last 4 weeks have been dire. Got some St johns wort in the hope it will help my anxiety and tearfulness.
Stopped fluoxetine over 12 weeks ago with a graduated reduction. Last 4 weeks have been dire. Got some St johns wort in the hope it will help my anxiety and tearfulness.
pottyrai
in
Thyroid UK
11 years ago
Fatigue research
Dear all, just got back from hospital where I was asked if I'd be happy to join research program starting in January looking into whether cognitive behaviour therapy helps with experience of fatigue. I said yes I'll happily get on board. I'm up for anything that will help me, or others.
Dear all, just got back from hospital where I was asked if I'd be happy to join research program starting in January looking into whether cognitive behaviour therapy helps with experience of fatigue. I said yes I'll happily get on board. I'm up for anything that will help me, or others.
Case
in
NRAS
11 years ago
Is anyone else really Emotional ?
I find that I'm extremely emotional, smallest things make me cry. I cannot be around children without having an incredible urge to hold them, care for them, cuddle them, or if a child is taken away from me while holding them etc I get angry :/ I suffer with phantom pregnancy also... :/ is there anything
I find that I'm extremely emotional, smallest things make me cry. I cannot be around children without having an incredible urge to hold them, care for them, cuddle them, or if a child is taken away from me while holding them etc I get angry :/ I suffer with phantom pregnancy also... :/ is there anything
Kymmy
in
Endometriosis UK
11 years ago
Hi everyone. I have fibro and arthritis and ichthyosis(skin cond.born with) its always a battle between all 3 for right treatment.
I have had clinical depression since 14yr old. My GP struggles to help and im now seeing mental health team. But itfeels like im going round in circles. Nothing realy gets "looked at" properly. Any ideas anyone? 44yrs old now but nothing improved since i was 28. History of intercranial hypertension and
I have had clinical depression since 14yr old. My GP struggles to help and im now seeing mental health team. But itfeels like im going round in circles. Nothing realy gets "looked at" properly. Any ideas anyone? 44yrs old now but nothing improved since i was 28. History of intercranial hypertension and
michabc
in
Fibromyalgia Action UK
11 years ago
Just wondering, what supplements .....
...... extras and/or vitamins do you take to boost your immune systems, to keep well and infections at bay? Enjoy the rest of your weekend . peeg I take Manuka, Eskimo Oil, B12, D3, Multivit, Co-Q-10 (re statins), Beroca or similar with a dash of echinacea when iffy, glucosamine, plant sterols, devils
...... extras and/or vitamins do you take to boost your immune systems, to keep well and infections at bay? Enjoy the rest of your weekend . peeg I take Manuka, Eskimo Oil, B12, D3, Multivit, Co-Q-10 (re statins), Beroca or similar with a dash of echinacea when iffy, glucosamine, plant sterols, devils
peege
in
Lung Conditions Community Forum
11 years ago
DLA APPEAL... Please Help
I have my DLA appeal on the 14th October, my original claim was in November 2012 which was turned down.. since then my condition has gotten worst, I now mobilise with 2 sticks over short distances, and in a wheel chair for longer ones. A local charity worked who helped me throughout this process
I have my DLA appeal on the 14th October, my original claim was in November 2012 which was turned down.. since then my condition has gotten worst, I now mobilise with 2 sticks over short distances, and in a wheel chair for longer ones. A local charity worked who helped me throughout this process
jordan681
in
Fibromyalgia Action UK
11 years ago
anyone else have a rectocele (recto-vaginal prolapse)? burning vaginal pain and stabbing pelvic pain. also- advice on conceiving without sex
Brief History: Endo for 3 years, diagnosis 3years ago, age: 26. I was just wondering has anyone else got severe pelvic AND vaginal pain? Its crazy caus I often find its painful to sit down, to walk, to go to the toilet...pretty much anything. I keep reading that exercize helps, but for me it makes
Brief History: Endo for 3 years, diagnosis 3years ago, age: 26. I was just wondering has anyone else got severe pelvic AND vaginal pain? Its crazy caus I often find its painful to sit down, to walk, to go to the toilet...pretty much anything. I keep reading that exercize helps, but for me it makes
lm330
in
Endometriosis UK
11 years ago
Acceptance
I have been so depressed lately and have had a couple of meltdowns (one at Walmart and one with my Neuro). I decided the most important thing I can do for my emotional well being, in addition to Paxil, is to quit thinking about "what was". I came across this poster and thought it very fitting so I printed
I have been so depressed lately and have had a couple of meltdowns (one at Walmart and one with my Neuro). I decided the most important thing I can do for my emotional well being, in addition to Paxil, is to quit thinking about "what was". I came across this poster and thought it very fitting so I printed
tlongmire
in
Fibromyalgia Action UK
11 years ago
Acceptance
I have been so depressed lately and have had a couple of meltdowns (one at Walmart and one with my Neuro). I decided the most important thing I can do for my emotional well being, in addition to Paxil, is to quit thinking about "what was". I came across this poster and thought it very fitting so I printed
I have been so depressed lately and have had a couple of meltdowns (one at Walmart and one with my Neuro). I decided the most important thing I can do for my emotional well being, in addition to Paxil, is to quit thinking about "what was". I came across this poster and thought it very fitting so I printed
tlongmire
in
Fibromyalgia Action UK
11 years ago
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