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Research project update: COVID-19 vaccine responses in lupus patients
We have an update from one of the research projects LUPUS UK funded, which was looking at the response of people with lupus to COVID-19 vaccines. You can read about what they found on our website here: https://www.lupusuk.org.uk/understanding-covid-19-vaccine-responses-in-lupus-patients/ Feel free
We have an update from one of the research projects LUPUS UK funded, which was looking at the response of people with lupus to COVID-19 vaccines. You can read about what they found on our website here: https://www.lupusuk.org.uk/understanding-covid-19-vaccine-responses-in-lupus-patients/ Feel free
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
CLL and Covid experiences
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
Hi, I am 65, have relapsed CLL after FCR treatment, made no antibodies to 6 Covid vaccinations. Otherwise I am healthy and physically very active. I'm so tire of the mask everywhere and so is my wife. Can anyone tell me if they have had Covid and how it went for them? Or anyone that can
skipro
in
CLL Support
1 year ago
6 months post Covid and running shoes back on!
Well, it’s 6 months since I had Covid and then long Covid and at last I managed a 5 minute ‘jog’. It was slow but felt good. I mustn’t push it as until a month ago, I couldn’t even walk round the block without getting out of breath. So, I will soon be back doing C25K but may do each week twice!
Well, it’s 6 months since I had Covid and then long Covid and at last I managed a 5 minute ‘jog’. It was slow but felt good. I mustn’t push it as until a month ago, I couldn’t even walk round the block without getting out of breath. So, I will soon be back doing C25K but may do each week twice!
Phdgranny
Graduate
in
Couch to 5K
1 year ago
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Reaction between thyroid meds and antibiotics and increased sensitivity to prescription drugs
I have really been suffering with a sinus infection following Covid in December last year. My gp prescribed Doxycycline 100 mg capsules. This was at my request. I had suffered with a sinus infection for almost eighteen months following a previous bout of Covid. The side affects were not pleasant but
I have really been suffering with a sinus infection following Covid in December last year. My gp prescribed Doxycycline 100 mg capsules. This was at my request. I had suffered with a sinus infection for almost eighteen months following a previous bout of Covid. The side affects were not pleasant but
dizzy864
in
Thyroid UK
1 year ago
Making a Comeback from Covid ??? We Will but it may take a While ...
Despite some reports to the contrary, a lot of people are still getting the
coronavirus
.
Despite some reports to the contrary, a lot of people are still getting the
coronavirus
.
Oldfloss
Administrator
in
Bridge to 10K
1 year ago
ectopic beats
hi I’m 18 years old and I have always been in perfect health until around 2 years ago when I got covid for the first time, around 7-8 months after having covid i started experiencing rapid heart rate upon standing and suspect I have POTS but my beta blockers help massively in keeping my heart rate down
hi I’m 18 years old and I have always been in perfect health until around 2 years ago when I got covid for the first time, around 7-8 months after having covid i started experiencing rapid heart rate upon standing and suspect I have POTS but my beta blockers help massively in keeping my heart rate down
Maix
in
British Heart Foundation
1 year ago
post covid ibs/ digestive problems
Post covid (1mth). Weakness headaches tension light coloured poo acid reflux feel terrible. Anyone else s digestive probs worse after covid. Hoping will settle soon depressed and struggling daily.
Post covid (1mth). Weakness headaches tension light coloured poo acid reflux feel terrible. Anyone else s digestive probs worse after covid. Hoping will settle soon depressed and struggling daily.
Music2
in
IBS Network
1 year ago
NICE share draft final recommendations for COVID-19 treatments
Hi everyone, NICE has published their draft final recommendations for COVID-19 treatments. We are pleased that they have included sotrovimab for people who are at high risk of severe COVID-19 but cannot have Paxlovid. This hopefully means most people with lupus will have a viable treatment option.
Hi everyone, NICE has published their draft final recommendations for COVID-19 treatments. We are pleased that they have included sotrovimab for people who are at high risk of severe COVID-19 but cannot have Paxlovid. This hopefully means most people with lupus will have a viable treatment option.
Paul_Howard
LUPUS UK
in
LUPUS UK
1 year ago
covid
hi, has anyone been given antiviral drugs for Covid? I am so ill, terrible throat and cough nurse said it will help prevent complications
hi, has anyone been given antiviral drugs for Covid? I am so ill, terrible throat and cough nurse said it will help prevent complications
jarujuda
in
NRAS
1 year ago
Good covid, bad downside.
I have refractory RLS and have been taking 20 mg of hydrocodone right before bed. The symptoms actually cycle during the year with the colder months coincide with reduced symptoms. A month ago I came down with covid. I was really sick for about a week and it took me another week to test negative. I took
I have refractory RLS and have been taking 20 mg of hydrocodone right before bed. The symptoms actually cycle during the year with the colder months coincide with reduced symptoms. A month ago I came down with covid. I was really sick for about a week and it took me another week to test negative. I took
JakeRLS
in
Restless Legs Syndrome
1 year ago
PMR pain and siatica post covid
I had a minor dose of covid in September last year. Following it I developed agonising siatica. I thought I’d broken my hip at least. This was all mixed in with a PMR flare. I’ve tapered back from a higher dose of 5 mg to 2mg of prednisolone only to have to give in again and try 6mg which is only just
I had a minor dose of covid in September last year. Following it I developed agonising siatica. I thought I’d broken my hip at least. This was all mixed in with a PMR flare. I’ve tapered back from a higher dose of 5 mg to 2mg of prednisolone only to have to give in again and try 6mg which is only just
Headwood
in
PMRGCAuk
1 year ago
Has anyone else had 10-13 hour seizures from covid?
Hello all, I am used to having 2-4 hours seizures regularly, but after I tested positive for Covid they now last 10-13 hours every single day for the last week. Has this happened to anyone else? Please tell me this won't last forever! No doctors are helping. Thank you!
Hello all, I am used to having 2-4 hours seizures regularly, but after I tested positive for Covid they now last 10-13 hours every single day for the last week. Has this happened to anyone else? Please tell me this won't last forever! No doctors are helping. Thank you!
Pattydancer2023
in
Functional Neurological Disorder - FND Hope
1 year ago
COVID-19 treatment options for those taking Warfarin
Hello. I have not contracted COVID-19, but most others I know have had it, and many treat successfully with Paxlovid. I learned recently that Paxlovid interacts with Warfarin in that it suppresses the body's ability to metabolize the Warfarin, thereby possibly causing increased INR while taking COVID
Hello. I have not contracted COVID-19, but most others I know have had it, and many treat successfully with Paxlovid. I learned recently that Paxlovid interacts with Warfarin in that it suppresses the body's ability to metabolize the Warfarin, thereby possibly causing increased INR while taking COVID
olleberj
in
Hughes Syndrome APS Forum
1 year ago
Struggling after heart attack and covid
Had a heart attack In September, did not have a stent inserted as hospital said that due to the ambulance taking 5 hours to arrive it was too late for treatment. Was recovering and getting stronger but then my husband caught covid and gave it to me. No longer testing positive but it is 2 weeks now
Had a heart attack In September, did not have a stent inserted as hospital said that due to the ambulance taking 5 hours to arrive it was too late for treatment. Was recovering and getting stronger but then my husband caught covid and gave it to me. No longer testing positive but it is 2 weeks now
BSA20
in
British Heart Foundation
1 year ago
Covid /Flu Jabs
I have recently been diagnosed after being misdiagnosed for rotator cuff! It seems odd this started after Covid/Flu jabs and my Doctor also said she had heard of this, depending how high up the arm the jabs were given. I do not think I will have any more jabs whilst having PMR. Could be coincidence
I have recently been diagnosed after being misdiagnosed for rotator cuff! It seems odd this started after Covid/Flu jabs and my Doctor also said she had heard of this, depending how high up the arm the jabs were given. I do not think I will have any more jabs whilst having PMR. Could be coincidence
JAC1947
in
PMRGCAuk
1 year ago
MTX and Covid Vaccine
I’m sure this topic has been discussed previously but to save me searching I would like to ask whether anyone has been given advice around withholding MTX before having a Covid vaccine. I have already had six vaccinations and have never been given advice to withhold MTX before having it. A friend recently
I’m sure this topic has been discussed previously but to save me searching I would like to ask whether anyone has been given advice around withholding MTX before having a Covid vaccine. I have already had six vaccinations and have never been given advice to withhold MTX before having it. A friend recently
Hightower62
in
NRAS
1 year ago
Getting Covid antivirals when traveling
Firstly thanks to everyone who responded to my last question about Covid. You really helped me get through the week, whilst I worried that I had Covid. I’m still not feeling 100%, but I’m negative. I really want to travel abroad this year to see relatives and to go sightseeing again. But I’m afraid
Firstly thanks to everyone who responded to my last question about Covid. You really helped me get through the week, whilst I worried that I had Covid. I’m still not feeling 100%, but I’m negative. I really want to travel abroad this year to see relatives and to go sightseeing again. But I’m afraid
LilyMistri2
in
LUPUS UK
1 year ago
antiviral letter (covid)
I have only just this week received an email notifying me that I’m elegible for antivirals if I test positive for covid. This is the first time I’ve been notified of this, and I was a bit taken aback as I’ve had covid twice now, with no offer of antivirals. Has anyone else only recently had this
I have only just this week received an email notifying me that I’m elegible for antivirals if I test positive for covid. This is the first time I’ve been notified of this, and I was a bit taken aback as I’ve had covid twice now, with no offer of antivirals. Has anyone else only recently had this
girli1111
in
NRAS
1 year ago
NICE publish draft recommendation for Evusheld
Earlier this week, NICE published their draft recommendation for Evusheld. They are currently recommending that it should not be used by the NHS for the prevention of COVID-19 infection. Unfortunately they feel there is insufficient evidence that this treatment is effective against the current dominant
Earlier this week, NICE published their draft recommendation for Evusheld. They are currently recommending that it should not be used by the NHS for the prevention of COVID-19 infection. Unfortunately they feel there is insufficient evidence that this treatment is effective against the current dominant
Paul_Howard
LUPUS UK
in
LUPUS UK
1 year ago
Update
Hi everyone. I thought I’d drop in on the forum , I haven’t been on for a while but I am still interested to know how people are getting on. It’s now 15 months since I stopped taking Prednisolone and thankfully I am still doing well and haven’t had a relapse. I just happened to read this article
Hi everyone. I thought I’d drop in on the forum , I haven’t been on for a while but I am still interested to know how people are getting on. It’s now 15 months since I stopped taking Prednisolone and thankfully I am still doing well and haven’t had a relapse. I just happened to read this article
Liby57
in
PMRGCAuk
1 year ago
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