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Experiences with
Continuous Ambulatory Peritoneal Dialysis
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Skin problems
I have lost weight since the auto immune and kidney problem and the dialysis has made my skin loose, dry and dehydrated. I'm all crinkly with no collagen present. I use organic coconut oil in the bath and a thick body cream, but nothing appears to make my skin look how it was. Any suggestions?
I have lost weight since the auto immune and kidney problem and the dialysis has made my skin loose, dry and dehydrated. I'm all crinkly with no collagen present. I use organic coconut oil in the bath and a thick body cream, but nothing appears to make my skin look how it was. Any suggestions?
Norfickgal
in
Kidney Disease
3 years ago
Dialysis and/or Donor's List
My GFR is at 20 and the creatinine is around 2.49. I am wondering is my gfr going to drop faster now that I'm closer to dialysis, or will it continue to drop at the same rate? And for the people who got a donor kidney, how has that been for you? I'm trying to decide if I want to be on the list. I need
My GFR is at 20 and the creatinine is around 2.49. I am wondering is my gfr going to drop faster now that I'm closer to dialysis, or will it continue to drop at the same rate? And for the people who got a donor kidney, how has that been for you? I'm trying to decide if I want to be on the list. I need
verdogo
in
Kidney Disease
3 years ago
No Sleep Thanks to Afib
Hi Folks, Just wondering what I can do about my increasing sleep deprivation and anxiety about afib. I was diagnosed in 2017 after hyperthyroidism pushed me into Afib. In 2019 I had 3 carioversions including two a week apart. In both instances I woke up middle of night heart racing and it became Afib
Hi Folks, Just wondering what I can do about my increasing sleep deprivation and anxiety about afib. I was diagnosed in 2017 after hyperthyroidism pushed me into Afib. In 2019 I had 3 carioversions including two a week apart. In both instances I woke up middle of night heart racing and it became Afib
KevJenn
in
AF Association
3 years ago
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My wife says that I have a lot of ASTHMA TOYS
My wonderful wife who looks after me and knows all of my asthma symptoms and how to cope with them says I HAVE TOO MANY TOYS FOR MY ASTHMA {Even though they all help me with my problems related to my lungs etc.} I am a bit of a gadget freak. I use my spacer for my inhalers. I have watch {Not an apple
My wonderful wife who looks after me and knows all of my asthma symptoms and how to cope with them says I HAVE TOO MANY TOYS FOR MY ASTHMA {Even though they all help me with my problems related to my lungs etc.} I am a bit of a gadget freak. I use my spacer for my inhalers. I have watch {Not an apple
Wheesy
in
Asthma Community Forum
3 years ago
Myoclonus?
Hi, does anyone else here suffer from severe bouts of full-body myoclonus? It started when I was on peritoneal dialysis, in connection with a medication called ropinerole. It continued after I stopped the medication, and even 3 years after my transplant. I've seen neurologists, had EEGs, done everything
Hi, does anyone else here suffer from severe bouts of full-body myoclonus? It started when I was on peritoneal dialysis, in connection with a medication called ropinerole. It continued after I stopped the medication, and even 3 years after my transplant. I've seen neurologists, had EEGs, done everything
galfieri
in
Kidney Transplant
3 years ago
Hemodialysis Side Effects
90days into Hemodialysis 3 times a week, 3h 15 mins duration. 1. Head ace starts 15 mins after treatments, which last hours, sometimes days. 2. Within 30 mins into headache it changes to an Ocular Migraine. 3. Dizziness starts within the hour. 4. Extreme fatigue starts around 3 hours after, which
90days into Hemodialysis 3 times a week, 3h 15 mins duration. 1. Head ace starts 15 mins after treatments, which last hours, sometimes days. 2. Within 30 mins into headache it changes to an Ocular Migraine. 3. Dizziness starts within the hour. 4. Extreme fatigue starts around 3 hours after, which
AlanKx5
in
Kidney Dialysis
3 years ago
Covid ICU Septic Shock No response
My mom has been vented since 12/7/20 and in hospital since 11/19/20 due to Covid. On 12/31/20, she got a trach and started to really improve in the right direction. They got her vent down to 40-50% FiO2. Two days after her trach surgery, though she was still on fentanyl and precedex, we were able to
My mom has been vented since 12/7/20 and in hospital since 11/19/20 due to Covid. On 12/31/20, she got a trach and started to really improve in the right direction. They got her vent down to 40-50% FiO2. Two days after her trach surgery, though she was still on fentanyl and precedex, we were able to
Texbenji
in
ICUsteps
3 years ago
Obstructive Sleep Aonoea or not?
Hello I have seen other posts on here that suggests people with mild obstructive sleep apnoea can be provided with CPAP. I have just been turned down by Yeovil hospital as they say I only have mild sleep apnoea and they will not provide CPAP on NHS because it is only mild. I have a SleepOn ring which
Hello I have seen other posts on here that suggests people with mild obstructive sleep apnoea can be provided with CPAP. I have just been turned down by Yeovil hospital as they say I only have mild sleep apnoea and they will not provide CPAP on NHS because it is only mild. I have a SleepOn ring which
JaneChapple
in
Lung Conditions Community Forum
3 years ago
My dad 64 with a tracheostomy - Sedation? Steroids? progress
Hi all, My father is currently at a London Hospital in ICU with covid. What began with CPAP then turned into being fully sedated for over 4 weeks and even called in on the 2nd Feb as they did not think he would make it. We have had 4 calls like that! Only once where we had to go in, He seems to stabilize
Hi all, My father is currently at a London Hospital in ICU with covid. What began with CPAP then turned into being fully sedated for over 4 weeks and even called in on the 2nd Feb as they did not think he would make it. We have had 4 calls like that! Only once where we had to go in, He seems to stabilize
Psp007
in
ICUsteps
3 years ago
Advice
Advice I’m on dialysis now and I’m really have my blood pressure very low and cramps all over is anyone can advise me please ? Thank sylvia
Advice I’m on dialysis now and I’m really have my blood pressure very low and cramps all over is anyone can advise me please ? Thank sylvia
Sylren
in
Kidney Donation
3 years ago
Sleeping kidney after transplant
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Kwatts87
in
Kidney Transplant
3 years ago
Husband in Critical care with covid19
Hi my husband has been ventilated for 5 now after contracting covid,he is frontline NHS. He was firstly intubated, then more recently was fitted with a tracheostomy.He was doing really well with weaning but then got another chest infection.He was previously on 35% oxygen on CPAP mode and is now on 50%
Hi my husband has been ventilated for 5 now after contracting covid,he is frontline NHS. He was firstly intubated, then more recently was fitted with a tracheostomy.He was doing really well with weaning but then got another chest infection.He was previously on 35% oxygen on CPAP mode and is now on 50%
Popsicle1
in
ICUsteps
3 years ago
Need advice for backup power supply for doing home dialysis
My husband has been on home hemodialysis for two years. We want to get a backup power supply for the dialyzer in the event of a power failure. We know nothing about how to go about this. Does anyone else have a backup power unit for their home equipment? Thanks.
My husband has been on home hemodialysis for two years. We want to get a backup power supply for the dialyzer in the event of a power failure. We know nothing about how to go about this. Does anyone else have a backup power unit for their home equipment? Thanks.
Hidden
in
Kidney Disease
3 years ago
Getting PD surgery soon and would love some advice!!
Good Afternoon everyone this is my second go at dialysis after having a transplant for 15 years fail :( positive thing is how long the transplant lasted so I cant complain. Anyways I started HD again for the past 2 years and now Im giving PD dialysis a chance and will have surgery on the 27th of January
Good Afternoon everyone this is my second go at dialysis after having a transplant for 15 years fail :( positive thing is how long the transplant lasted so I cant complain. Anyways I started HD again for the past 2 years and now Im giving PD dialysis a chance and will have surgery on the 27th of January
delila1977
in
Dialysis Support
3 years ago
Creatine
Hi, does it take some time for the creatine levels to normalize after surgery? My brothers is still very high but he just had the transplant a week and a half ago. The doctors are debating wether to do one more dialysis to help.
Hi, does it take some time for the creatine levels to normalize after surgery? My brothers is still very high but he just had the transplant a week and a half ago. The doctors are debating wether to do one more dialysis to help.
Hopebel
in
Kidney Transplant
3 years ago
Extreme Arm Pain at Fistula site while Doing Dialysis
Sept 9,2019 my husband was diagnosed with End Stage V kidney Renal failure. He had no symptoms or complications of kidney failure up until the blood test for a yearly check up with his GP. A year in to struggling thru this, we are at a point now, where he does dialysis 3 times per week in center and
Sept 9,2019 my husband was diagnosed with End Stage V kidney Renal failure. He had no symptoms or complications of kidney failure up until the blood test for a yearly check up with his GP. A year in to struggling thru this, we are at a point now, where he does dialysis 3 times per week in center and
Strugglingthruthis
in
Kidney Dialysis
3 years ago
l want to know about side effects of Dialysis?
What are the side effects
What are the side effects
AlanKx5
in
Kidney Dialysis
3 years ago
Love donors
I'm amazed by all of the people who have donated their kidney. What a wonderful, selfless gift. I am 31 years old, and a single mom who is on dialysis, and dreaming of getting a transplant. Hopefully, in my future I will find a donor and get the transplant I so desperately need and want. Thanks to all
I'm amazed by all of the people who have donated their kidney. What a wonderful, selfless gift. I am 31 years old, and a single mom who is on dialysis, and dreaming of getting a transplant. Hopefully, in my future I will find a donor and get the transplant I so desperately need and want. Thanks to all
Snadine
in
Kidney Donation
3 years ago
7 Months on a ventilator and counting due to covid
Hello everyone, it's been a while since I last posted an update on my mother. Shes going on 7 months being hospitalized on February 24th due to covid. It seems like an eternity but i'm just glad she has made improvements. After months of not being able to move and doctor's stopping PT/OT because it
Hello everyone, it's been a while since I last posted an update on my mother. Shes going on 7 months being hospitalized on February 24th due to covid. It seems like an eternity but i'm just glad she has made improvements. After months of not being able to move and doctor's stopping PT/OT because it
Livinglifeachday
in
ICUsteps
3 years ago
65year old man ICU 5 weeks on CPAP but stuck on oxygen level and days left..
My dad whose 65 has been in icu 5 and half weeks CPAP ventillation at 35%oxygen (some mechanical at night) but doctors noting hes stuck and cant make more progress and need to turn off support in few days They say likely scarring of lungs but trying some steriods as he has high white blood cells and
My dad whose 65 has been in icu 5 and half weeks CPAP ventillation at 35%oxygen (some mechanical at night) but doctors noting hes stuck and cant make more progress and need to turn off support in few days They say likely scarring of lungs but trying some steriods as he has high white blood cells and
Paulosull
in
ICUsteps
3 years ago
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