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Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
hashimotos and cortisol testing
Hi there because of the fatigue I am experiencing, I am thinking of having some tests done to see if my cortisol is ok. I am aware of the short synachten test, the straight forwards blood test for cortisol or the 4x a day saliva test. Not really sure where to start or if this will be useful to my healing
Hi there because of the fatigue I am experiencing, I am thinking of having some tests done to see if my cortisol is ok. I am aware of the short synachten test, the straight forwards blood test for cortisol or the 4x a day saliva test. Not really sure where to start or if this will be useful to my healing
Sammy333
in
Thyroid UK
7 months ago
PSA Doubled in 2 Months
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
NJWarrior
in
Advanced Prostate Cancer
7 months ago
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stress related relapse?
Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise and then hubby had double bypass operation just over two weeks ago. Am now getting the odd sharp pain in the temples about once a day. Really sharp. Wondering if I should go back up to 10 mgs for a week or two. Really hate
Hi All. Down to 6mgs Pred for GCA/ PMR. was doing well with rest and exercise and then hubby had double bypass operation just over two weeks ago. Am now getting the odd sharp pain in the temples about once a day. Really sharp. Wondering if I should go back up to 10 mgs for a week or two. Really hate
CathyMeg
in
PMRGCAuk
4 months ago
lupus ?
I've been unwell for 5 yrs on and off ..whole body rash,widespread joint pain ,low grade fevers ,photosensitivity ,hair loss and generally feeling rubbish and fatigued and chronic autoimmune urticaria and most recently I am unable to stand for long periods of time as I have horrendous pain in both my
I've been unwell for 5 yrs on and off ..whole body rash,widespread joint pain ,low grade fevers ,photosensitivity ,hair loss and generally feeling rubbish and fatigued and chronic autoimmune urticaria and most recently I am unable to stand for long periods of time as I have horrendous pain in both my
shell9518
in
LUPUS UK
9 months ago
Doctor thinks not pmr
Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of prednisolone, with the recent bloods I had taken the Dr thinks it's not pmr but rheumatoid arthritis, should I still be on steroids or something else?Thanks for reading Peter.
Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of prednisolone, with the recent bloods I had taken the Dr thinks it's not pmr but rheumatoid arthritis, should I still be on steroids or something else?Thanks for reading Peter.
Petertaffy
in
PMRGCAuk
9 months ago
Intercranial hypertension
Hi All,I recently have had issues with migraines. I have had two in the past 8 weeks. The first my vision went blurry in right eye and now I have had a Blind spot (scotoma) ever since. I am currently on hydroxychloroquine and pregabalin. I am being investigated for idiopathic intracranial hypertension
Hi All,I recently have had issues with migraines. I have had two in the past 8 weeks. The first my vision went blurry in right eye and now I have had a Blind spot (scotoma) ever since. I am currently on hydroxychloroquine and pregabalin. I am being investigated for idiopathic intracranial hypertension
BellaC79
in
LUPUS UK
9 months ago
Whats high PSA? ( when you havent been diagnosed with prostate cancer)
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
Daddysgirl83
in
Advanced Prostate Cancer
7 months ago
Ocrevus?
I just had my first visit with an MS specialist at a teaching hospital in California. They concurred with the diagnosis of multiple sclerosis but they recommended ocrevus over tecfidera. I admit to being a little freaked out about the whole getting sick situation while on a B cell depleter. Can any
I just had my first visit with an MS specialist at a teaching hospital in California. They concurred with the diagnosis of multiple sclerosis but they recommended ocrevus over tecfidera. I admit to being a little freaked out about the whole getting sick situation while on a B cell depleter. Can any
Szs3eb
in
My MSAA Community
9 months ago
PSA level six months Eligard
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
toyman79912
in
Advanced Prostate Cancer
7 months ago
here we go again😬
after 8 long months I finally summoned up the courage to run again. Long story short I had an op beg of last August, not allowed to run for 3 months, enforced sitting around aggravated my GTS, and then after physio for that I developed a painful/ weak ankle on the other side so more physio. Finally
after 8 long months I finally summoned up the courage to run again. Long story short I had an op beg of last August, not allowed to run for 3 months, enforced sitting around aggravated my GTS, and then after physio for that I developed a painful/ weak ankle on the other side so more physio. Finally
limberlou
Graduate
in
Couch to 5K
4 months ago
Options After Pluvicto.................
Pluvicto is dropping my PSA, and i will be having my fourth infusion on December 4th, 2023. Has anyone in my situation know what their next option will be ?? What comes after Pluvicto to maintain a low PSA ??
Pluvicto is dropping my PSA, and i will be having my fourth infusion on December 4th, 2023. Has anyone in my situation know what their next option will be ?? What comes after Pluvicto to maintain a low PSA ??
Kian28
in
Advanced Prostate Cancer
7 months ago
Next NoSilverBullet webinar on 11th of December: Prof Bas Bloem on "The importance of nutrition in managing Parkinson's"
I am delighted to announce the next NoSilverBullet Zoom webinar that will be taking place at 5.30 pm London time on Monday, the 11th of December. We will have the pleasure of listening to Professor Bas Bloem on "The importance of nutrition in managing Parkinson's". There is a growing focus on nutrition
I am delighted to announce the next NoSilverBullet Zoom webinar that will be taking place at 5.30 pm London time on Monday, the 11th of December. We will have the pleasure of listening to Professor Bas Bloem on "The importance of nutrition in managing Parkinson's". There is a growing focus on nutrition
Michel0220
in
Cure Parkinson's
7 months ago
elevated lft query possible outcome
hi again I recently posted that my blood test showed ALT 50 and ALP 177. My GP is repeating tests. I’ve been reading a lot about the progression of liver disease from fatty liver onwards. I have read that all types of scans can detect fatty liver and other problems. In 2019 I had a CT scan for
hi again I recently posted that my blood test showed ALT 50 and ALP 177. My GP is repeating tests. I’ve been reading a lot about the progression of liver disease from fatty liver onwards. I have read that all types of scans can detect fatty liver and other problems. In 2019 I had a CT scan for
Watersk
in
British Liver Trust
7 months ago
Liver enzymes
Hi, I had mildly elevated ALT in January so stopped drinking alcohol. It lowered but then went up to 100 with raised AST also. Gradually both went down to normal and Nils blood test and ultrasound were normal. However, ALT has gone back up to 72 and ALT 64. My GP is stumped. Has anyone experienced
Hi, I had mildly elevated ALT in January so stopped drinking alcohol. It lowered but then went up to 100 with raised AST also. Gradually both went down to normal and Nils blood test and ultrasound were normal. However, ALT has gone back up to 72 and ALT 64. My GP is stumped. Has anyone experienced
Tajh
in
British Liver Trust
8 months ago
bilirubin
i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
She-66
in
British Liver Trust
8 months ago
Join us for a Black History Month & Lupus Awareness Month event on 7th October
Join us for a combined Black History Month & Lupus Awareness Month event on 7th October! A great opportunity to meet other people with lupus & learn more about the disease from some excellent speakers. All welcome. Get your free ticket at: https://docs.google.com/forms/d/e/1FAIpQLSeobrCw70Ivwsjb2hLKYOOoafeO07g1sw3cz1Xcw9jUpWiBxQ
Join us for a combined Black History Month & Lupus Awareness Month event on 7th October! A great opportunity to meet other people with lupus & learn more about the disease from some excellent speakers. All welcome. Get your free ticket at: https://docs.google.com/forms/d/e/1FAIpQLSeobrCw70Ivwsjb2hLKYOOoafeO07g1sw3cz1Xcw9jUpWiBxQ
Debbie_kinsey
Administrator
in
LUPUS UK
9 months ago
Cholesterol, pred and PMR?
Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of 5 million people in UK , in order to get a detailed picture.of the nation's health...put in very simple terms. Joining involves completing a questionnaire and an appointment wher you are weighed, measured, BP, heart rate
Hi. I recently joined "Our Future Health" it's a project to get DNA profiles of 5 million people in UK , in order to get a detailed picture.of the nation's health...put in very simple terms. Joining involves completing a questionnaire and an appointment wher you are weighed, measured, BP, heart rate
MamaBeagle
in
PMRGCAuk
4 months ago
bilirubin
i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
i have pbc/aih …. my 3 monthly blood test is back and the bilirubin levels are way up ….. just wondering if anyone knows what this may indicate?
She-66
in
PBC Foundation
8 months ago
Very low blood pressure
Hi again, I went for a recorder loop implant today, which I was quite relaxed in doing. I did go by taxi just in case, but felt quite unsteady in walking to reception. This was no worse than the Saturday just gone, when I checked in at A&E as I felt pretty unsteady also ( they found nothing by the
Hi again, I went for a recorder loop implant today, which I was quite relaxed in doing. I did go by taxi just in case, but felt quite unsteady in walking to reception. This was no worse than the Saturday just gone, when I checked in at A&E as I felt pretty unsteady also ( they found nothing by the
Quovadisuk
in
Atrial Fibrillation Support
4 months ago
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