Search
Search
About
Log in
Join
Experiences with
Connective tissue diseases
Posts
Communities
43,185 public posts
Filter results
HISTORY OF PERNICIOUS ANAEMIA
our new CEO has written a blog post about the history of Pernicious Anaemia and you can read it here https://pernicious-anaemia-society.org/pernicious-anaemia/one-history-of-pernicious-anaemia/ we have an impressive list of guest bloggers for the future too so watch this space!
our new CEO has written a blog post about the history of Pernicious Anaemia and you can read it here https://pernicious-anaemia-society.org/pernicious-anaemia/one-history-of-pernicious-anaemia/ we have an impressive list of guest bloggers for the future too so watch this space!
PAScomms
in
Pernicious Anaemia Society
9 months ago
frustrating!!
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
Blister4
in
Pernicious Anaemia Society
9 months ago
Statins
I have AF but it’s controlled so far with daily flecainide and bisoprolol. I get a three monthly blood test for iron overload but this week the doctor advised me to get a cholesterol blood test as well. All of my results for cholesterol were within the ranges but my doc advised that it’s recommended
I have AF but it’s controlled so far with daily flecainide and bisoprolol. I get a three monthly blood test for iron overload but this week the doctor advised me to get a cholesterol blood test as well. All of my results for cholesterol were within the ranges but my doc advised that it’s recommended
Profound15
in
Atrial Fibrillation Support
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
What is BIG DATA? Demystifying the use of patient health data in research - FREE online Event
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
Carvedilol and Urso bowl changes
I’ve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
I’ve been on cavedilol medication since May 2023 and Urso since 2022, up until a few weeks ago I’ve suffered a lot of dioreah which started when at the same time when when the Dr prescribed me ferris sulphate for low iron. I know this has a lot of gastric issue so stopped that a week ago. I still have
Dexter786
in
British Liver Trust
7 months ago
PSA rising
Hi to the most incredible and informative group. I have been on hormone injections every 3 months. Abiraterone 500 mg with food and 5mg pred. psa 0.8 has increased to 0.17 in 2 months. questions. Should I up Abiraterone to 1000mg to help lower psa or am I on the downward slope now? Diagnosed 2019
Hi to the most incredible and informative group. I have been on hormone injections every 3 months. Abiraterone 500 mg with food and 5mg pred. psa 0.8 has increased to 0.17 in 2 months. questions. Should I up Abiraterone to 1000mg to help lower psa or am I on the downward slope now? Diagnosed 2019
Lion321
in
Advanced Prostate Cancer
7 months ago
varices grade 2
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
My consultant physician did a surveillance Gastroscopy which showed 2 varices grade 2, as I was taking Carvedilol twice daily he has decided no further action is required. Having had a burst varice in the past which put me in hospital for a week. I am confused to why he’s decided not to band them surely
oap74
in
British Liver Trust
7 months ago
LAST CALL: In-person Liverpool workshop tomorrow for those living with advanced liver disease (and carers/relatives)
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. There is an afternoon workshop in Liverpool tomorrow
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
Cardioversion with amiodarone or straight to ablation?
CV 24/2 failed after 1 week. Heart function team suggest course of amiodarone combined with further CV after a few months of this medication. They have left it with me to consider what I would prefer to do. Either proceed with the above ( with a list of potential side effects which are impossible
CV 24/2 failed after 1 week. Heart function team suggest course of amiodarone combined with further CV after a few months of this medication. They have left it with me to consider what I would prefer to do. Either proceed with the above ( with a list of potential side effects which are impossible
Hallane
in
Atrial Fibrillation Support
4 months ago
Commenced Bisoprolol
Hi I suffer from Paroxysmal AF. I have been taking Rivaroxaban for 2 months. I saw the cardiologist and he has started me on 2.5mg Bisoprolol daily. I took my first dose at 10am and by 2.30pm my Heart Rate had dropped to 50 bpm. My question is to others who take Bisoprolol for rhythm control and who
Hi I suffer from Paroxysmal AF. I have been taking Rivaroxaban for 2 months. I saw the cardiologist and he has started me on 2.5mg Bisoprolol daily. I took my first dose at 10am and by 2.30pm my Heart Rate had dropped to 50 bpm. My question is to others who take Bisoprolol for rhythm control and who
Cat715
in
Atrial Fibrillation Support
4 months ago
Advice and explanation pls
I've had hashi's for 30 + years, last few years my thyroxine dose has been increased then reduced a few times. I had to wait 5 weeks for my bi-annual blood test got the results today, TSH mu/l 0.29 free t4 p/mol 19.0 and a text from gp of a telephone appt in 4 wks time 🙄 I am taking 125mcgs daily for
I've had hashi's for 30 + years, last few years my thyroxine dose has been increased then reduced a few times. I had to wait 5 weeks for my bi-annual blood test got the results today, TSH mu/l 0.29 free t4 p/mol 19.0 and a text from gp of a telephone appt in 4 wks time 🙄 I am taking 125mcgs daily for
Charlie27612
in
Thyroid UK
9 months ago
Black History Month and Lupus Awareness Month event this Saturday 7th October - some tickets still remaining!
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
michaellasmith
Administrator
in
LUPUS UK
9 months ago
Treadmill test
As an aid to diagnosing persistent chest pains - the consultant thinks they are non-cardiac but wants to investigate a bit more-I’m to be given a treadmill test in a few weeks. I asked for this instead of the more rigourous but not very pleasant “stress test”. The heart rate will be raised to 100 during
As an aid to diagnosing persistent chest pains - the consultant thinks they are non-cardiac but wants to investigate a bit more-I’m to be given a treadmill test in a few weeks. I asked for this instead of the more rigourous but not very pleasant “stress test”. The heart rate will be raised to 100 during
Samazeuilh2
in
Atrial Fibrillation Support
4 months ago
Living with alcohol related cirrhosis- I know it varies but whats "normal"?
I was hospitalised with decompensated liver failure in July this year. Diagnosis is cirrhosis,portal hypertension and hypertensive gastropathy. My liver biochemistry was very deranged in July (Bilirubin 400 which explains the jaundice, itching,fatigue and confusion I was experiencing),the ascites and
I was hospitalised with decompensated liver failure in July this year. Diagnosis is cirrhosis,portal hypertension and hypertensive gastropathy. My liver biochemistry was very deranged in July (Bilirubin 400 which explains the jaundice, itching,fatigue and confusion I was experiencing),the ascites and
BoHo73
in
British Liver Trust
7 months ago
Bolt this ones for you, binaural beats and Parkinson’s tremor.
In this study, we found an improvement of resting tremor when applying BBS in the gamma frequency band OFF medication. Moreover, the positive effects of CAS underline the general positive potential for improvement of motor function by acoustically supported therapeutic approaches. https://www.ncbi.nlm.nih.gov
In this study, we found an improvement of resting tremor when applying BBS in the gamma frequency band OFF medication. Moreover, the positive effects of CAS underline the general positive potential for improvement of motor function by acoustically supported therapeutic approaches. https://www.ncbi.nlm.nih.gov
House2
in
Cure Parkinson's
7 months ago
Low dose <5mg eliquis
I am taking Eliquis 5 mg twice a day. I get some significant bruising. I am also taking ibrutinib 140 mg which is lowest dose...blood counts are good. I was also diagnosed with afib. I'm wondering if anyone is taking less than 5 mg Eliquis twice daily and if that works? I've talked with a couple friends
I am taking Eliquis 5 mg twice a day. I get some significant bruising. I am also taking ibrutinib 140 mg which is lowest dose...blood counts are good. I was also diagnosed with afib. I'm wondering if anyone is taking less than 5 mg Eliquis twice daily and if that works? I've talked with a couple friends
Bobsterguy
in
Atrial Fibrillation Support
4 months ago
Worried about these results please help
Had this blood test done in January and had text to say book a non urgent appointment and just put it off also getting print out from docs they’ve requested a telephone consultation which I’ve eventually booked but looking at it I know the TSH is low in their opinion and obviously cholesterol too high
Had this blood test done in January and had text to say book a non urgent appointment and just put it off also getting print out from docs they’ve requested a telephone consultation which I’ve eventually booked but looking at it I know the TSH is low in their opinion and obviously cholesterol too high
Silverlady5
in
Thyroid UK
4 months ago
Arrhythmias
Hi Everyone,I have Afib, 1st episode in December 2022 resolved by cardioversion followed by 2 episodes in July 2023, lasting 24 and 12 hours respectively. I am currently on 1.25 bisoporal daily. Over recent nights I have been getting arrhythmias which my scan watch and omron devices don't classify as
Hi Everyone,I have Afib, 1st episode in December 2022 resolved by cardioversion followed by 2 episodes in July 2023, lasting 24 and 12 hours respectively. I am currently on 1.25 bisoporal daily. Over recent nights I have been getting arrhythmias which my scan watch and omron devices don't classify as
Wilkie1
in
Atrial Fibrillation Support
4 months ago
fluoxetine
hi So I’ve asked before about Fluoxetine as treatment for my raynauds I’ve been told it’s extreme primary although they haven’t ruled out secondary. I’m anxious of taking drugs and wondered what experience anyone has had with fluoxetine. Effectiveness, side effects and is alcohol ok? Thanks all
hi So I’ve asked before about Fluoxetine as treatment for my raynauds I’ve been told it’s extreme primary although they haven’t ruled out secondary. I’m anxious of taking drugs and wondered what experience anyone has had with fluoxetine. Effectiveness, side effects and is alcohol ok? Thanks all
Enjoyswalking
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
cardioversion and Flecainide
An update - I had my cardioversion privately a week ago - all good, so far….. I feel so much better. HR now around 55-60 instead of 90-100 ( on high dose drugs) I was immediately taken off Digoxin and told to continue the BB Nebivolol 10mg a day. Then started on Flecainide 100mg daily, with the BB.
An update - I had my cardioversion privately a week ago - all good, so far….. I feel so much better. HR now around 55-60 instead of 90-100 ( on high dose drugs) I was immediately taken off Digoxin and told to continue the BB Nebivolol 10mg a day. Then started on Flecainide 100mg daily, with the BB.
Canteringon
in
Atrial Fibrillation Support
4 months ago
1
...
90
91
92
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5837 results
British Liver Trust
4487 results
Advanced Prostate Cancer
4404 results
View top 10 communities
Sort by
Most Relevant
Newest