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Ramadan Autoimmune Health Survey (including vasculitis)
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details đ
https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details đ
Suzi70
Administrator
in
Vasculitis UK
2 months ago
Lupus centre of excellence
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Morning all, can anyone advise if they have been referred to a Lupus centre of excellence outside their area? If so was the referral done by GP?Many thanks
Jenfy34
in
LUPUS UK
2 months ago
Hello everyone, question about gluten and globus (feeling of lump in throat) ?
Hello everyone, question about gluten and globus (feeling of lump in throat) I also have painful tongue, chronic constipation, bouts of diarrhoea, I've had rashes that look like little spots/patches over the years, burning mouth, tongue, oesophagus, sore stomach, and tingling/vibrating in stomach and
Hello everyone, question about gluten and globus (feeling of lump in throat) I also have painful tongue, chronic constipation, bouts of diarrhoea, I've had rashes that look like little spots/patches over the years, burning mouth, tongue, oesophagus, sore stomach, and tingling/vibrating in stomach and
Suffering_sunny
in
Gluten Free Guerrillas
3 months ago
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lupus rash?
does this look like a lupus rash? I have a lot of symptoms of lupus
does this look like a lupus rash? I have a lot of symptoms of lupus
Ell4132
in
LUPUS UK
3 months ago
Paleontology Diet â By Dr Barry Durrant-Peatfield
Excerpt from the transcript of a talk given by the late Dr Barry Durrant-Peatfield at one of TPA's Annual Conferences several years ago.
I'm posting this here because we've recently had a few questions/posts about extreme diets such as the carnivor diet. Personally, I think what Dr Peatfield
Excerpt from the transcript of a talk given by the late Dr Barry Durrant-Peatfield at one of TPA's Annual Conferences several years ago.
I'm posting this here because we've recently had a few questions/posts about extreme diets such as the carnivor diet. Personally, I think what Dr Peatfield
RedApple
Administrator
in
Thyroid UK
10 months ago
autoimmune and Hashimotos
I feel like I am on a one woman crusade in Scotland to get Hashimotos recognised for what it is an autoimmune disease, I now have four autoimmune diseases Hashimotos, Pernicious Anaemia, Coeliac disease, Hyperparathyroidism, and am being referred for testing for rheumatoid arthritis. I get treatment
I feel like I am on a one woman crusade in Scotland to get Hashimotos recognised for what it is an autoimmune disease, I now have four autoimmune diseases Hashimotos, Pernicious Anaemia, Coeliac disease, Hyperparathyroidism, and am being referred for testing for rheumatoid arthritis. I get treatment
Filicatlasy
in
Thyroid UK
3 months ago
Not PCa but related. Imuno therapies keeps getting better.
On April 4, 2024, Candel Therapeutics, Inc. (the âCompanyâ) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
On April 4, 2024, Candel Therapeutics, Inc. (the âCompanyâ) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
Scout4answers
in
Advanced Prostate Cancer
3 months ago
Do the NHS test for active b12 aswell a total b12?
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
I wonder because my sister was diagnosed with pernicious anemia years ago but now they say her b12 levels are really high normal.
Cesca-K
in
Pernicious Anaemia Society
3 months ago
Covid Injections for April 2024
Hi Everyone. Has anybody received a letter yet about their April Covid jab? You follow the NHS App and it brings up an out of date link telling you about Autumn 2023 jabs. It then tells you further down that the page will be updated in 2026. I just looked on my personal NHS account and nowhere can
Hi Everyone. Has anybody received a letter yet about their April Covid jab? You follow the NHS App and it brings up an out of date link telling you about Autumn 2023 jabs. It then tells you further down that the page will be updated in 2026. I just looked on my personal NHS account and nowhere can
Blackwitch
in
NRAS
3 months ago
Weakness
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Hello,I've had rheumatoid arthritis 28 years been on different drugs over years ,I have been methotrexate 25mg weekly for years folic acid I've been on rituximab every 6 months first course then 2 weeks later 2nd course for 4 year ,I'm starting to feel very weak I'm normally won't let it beat me ,I feel
Justlucy
in
NRAS
3 months ago
Rheumy Nurse?
I am puzzled. This site has many references to apparent support teams. I am delighted if that is general. For myself the only contact with the NHS I have is my GP. It is alleged that there is a very overdue appointment with a consultant. Maybe I shall be able to elicit information about some kind
I am puzzled. This site has many references to apparent support teams. I am delighted if that is general. For myself the only contact with the NHS I have is my GP. It is alleged that there is a very overdue appointment with a consultant. Maybe I shall be able to elicit information about some kind
Colaba
in
NRAS
3 months ago
HRT Raises Rheumatoid Arthritis Risk âŠ
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine âŠ. I know a lot of US use HRT and thought this article might be of interest. I donât have the actual magazine its online subscription⊠sorry. This link might actually get you to this article! https://www.wddty.com
I found this article last week about HRT and rheumatoid arthritis risk in my online magazine âŠ. I know a lot of US use HRT and thought this article might be of interest. I donât have the actual magazine its online subscription⊠sorry. This link might actually get you to this article! https://www.wddty.com
Batty1
in
Thyroid UK
3 months ago
Test Result Guidance Please đ
To the wise oricles and sages in the group, please could you guide me with my Atrophic Autoimmune Thyroiditis. Despite waiting soooo long to get a private test result, I had been preparing myself for "within range" results. (How sad is that?) I know I probably should be happier with the results, but
To the wise oricles and sages in the group, please could you guide me with my Atrophic Autoimmune Thyroiditis. Despite waiting soooo long to get a private test result, I had been preparing myself for "within range" results. (How sad is that?) I know I probably should be happier with the results, but
SarahFrmKent
in
Thyroid UK
10 months ago
thyroid results
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadnât had my thyroid levels tested for nearly 5 years with my GP, itâs as if theyâd
Could someone please help me understand my blood results which I had done by Medichecks (home testing kit) I have had underactive thyroid for the past 25years The doctors are always changing the brands I take I hadnât had my thyroid levels tested for nearly 5 years with my GP, itâs as if theyâd
Horsemadlindy21
in
Thyroid UK
3 months ago
What were your first symptoms?
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
Over the last couple of months I've been getting pain in my fingers and toes, it happens several times a day but only lasts a minute or two at a time at the moment. I have autoimmune thyroid disease, and suspected autoimmune cause for my early menopause, and I'm acutely aware that autoimmune diseases
WitchingHour2point0
in
NRAS
3 months ago
drug induced lupus
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Hi, My husband has drug induced lupus from inflixmab infusions which he was having for Chrohns disease. He has been in hospital twice from the lupus and they suspected the lupus was causing pericarditis. They also suspect he has psoriatic arthritis. He has been on steroids to control the drug induced
Denny39
in
LUPUS UK
3 months ago
Advice
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myselfđ! many thanks, elaine
Hi! I have Srogrens, which lead to Rheumatoid Arthritis, which had resulted in ILD. on methotrexate but now in addition been offered Nintedanib. ANY advice please as the only thing I'm worried about is pooping myselfđ! many thanks, elaine
elainenorman
in
Lung Conditions Community Forum
3 months ago
Skin ulcers
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
Hi fellow lupus warriors I have had a wound on my leg for at least 6 weeks that is growing and won't scab or heal. I am not on steroids at the moment (just plaquenil) and don't have any other signs of a possible flare. Has anyone ever had something like this? Is it related to Lupus or just a coincidence
lupus_paradise
in
LUPUS UK
3 months ago
Diagnoses
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
3 months ago
Haematologists consultant
Hi Iâve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasnât deficient!! , my dr didnât
Hi Iâve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasnât deficient!! , my dr didnât
Windyway
in
Pernicious Anaemia Society
3 months ago
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