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CBD decline
Hi, Don’t often post as time gets away with me, but coming on hear to vent a bit ;-) So mum has CBD diagnosed 2020 so has probably had symptoms for 4+ years. Speech has got a lot worse lately and we were struggling but managing to understand her. She has a habit of being settled in bed but then gets
Hi, Don’t often post as time gets away with me, but coming on hear to vent a bit ;-) So mum has CBD diagnosed 2020 so has probably had symptoms for 4+ years. Speech has got a lot worse lately and we were struggling but managing to understand her. She has a habit of being settled in bed but then gets
Araucana
in
PSP Association
4 months ago
Good Morning 🩷 new to the group....
Hello! I've just been recently diagnosed with APS after a fall down concrete stairs broke my left fibula (lower leg) January 11/24.When I was able to get the fracture clinic 2 weeks later (I live in a small northern Ontario Canada small town and the clinic is 1hour and 15 minutes away, not easily done
Hello! I've just been recently diagnosed with APS after a fall down concrete stairs broke my left fibula (lower leg) January 11/24.When I was able to get the fracture clinic 2 weeks later (I live in a small northern Ontario Canada small town and the clinic is 1hour and 15 minutes away, not easily done
NorthernShel
in
Hughes Syndrome APS Forum
4 months ago
radiation damage to the bladder
my husband has had 4 rather benign treatments of Pluvicto at the recommended 6 week intervals. Treatment #5 is Schilz’s in about 10 days. All of a sudden he is having hematuria and bladder spasms. Can anyone tell me what kinds of treatments are used for radiation burns or irritation to the bladder? Thanks
my husband has had 4 rather benign treatments of Pluvicto at the recommended 6 week intervals. Treatment #5 is Schilz’s in about 10 days. All of a sudden he is having hematuria and bladder spasms. Can anyone tell me what kinds of treatments are used for radiation burns or irritation to the bladder? Thanks
Mcrpca
in
Advanced Prostate Cancer
4 months ago
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Great purchase
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
constipation!!!
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
bungi1961
in
Bowel Disease Support
6 months ago
Bariatric surgery, what do you think?
I've been thinking about doing a stomach reduction surgery (gastric sleeve) because I can't lose weight. Since I have problems with my thyroid (RAI ablation in 2012) I gained 25 kg(90 kg in the past and now I've 115/1,87 cm)), I have tried all the treatments(ndt, synthetic) that have not yielded results
I've been thinking about doing a stomach reduction surgery (gastric sleeve) because I can't lose weight. Since I have problems with my thyroid (RAI ablation in 2012) I gained 25 kg(90 kg in the past and now I've 115/1,87 cm)), I have tried all the treatments(ndt, synthetic) that have not yielded results
adin
in
Thyroid UK
9 months ago
Low or high stomach acid? this is the question!
I recently spoke to my Gp saying I think I have low stomach acid rather than too much (symptoms are similar for both) I was prescribed Lansoprazole which I only taken rarely. She said she would swap me onto pantoprazole (aren’t they the same drug?) I have a stomach hernia so I have to be careful. When
I recently spoke to my Gp saying I think I have low stomach acid rather than too much (symptoms are similar for both) I was prescribed Lansoprazole which I only taken rarely. She said she would swap me onto pantoprazole (aren’t they the same drug?) I have a stomach hernia so I have to be careful. When
Bollieforme
in
Thyroid UK
9 months ago
not PA, next steps
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
AJackson21
in
Pernicious Anaemia Society
5 months ago
I don't have a magic wand
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
Peppermints
in
LUPUS UK
5 months ago
Can I take malaria tablets?
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
Silky1
in
British Liver Trust
5 months ago
Can I take malaria tablets?
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
Silky1
in
British Liver Trust
5 months ago
Heart Palps after eating
Does anyone get Heart palpitations after eating ? I get them no matter what I eat protein only, prot & carbs or carbs (tested this) … This isn’t new but its becoming more pronounced and I can’t figure out the issues or if it’s hypo related but just seems odd to hit only after eating (morning) is the
Does anyone get Heart palpitations after eating ? I get them no matter what I eat protein only, prot & carbs or carbs (tested this) … This isn’t new but its becoming more pronounced and I can’t figure out the issues or if it’s hypo related but just seems odd to hit only after eating (morning) is the
Batty1
in
Thyroid UK
4 months ago
Apixaban
I wonder if there is anyone here who is over 80, weighs less than 55kg and is on Apixaban? I was on warfarin but due to my INR being very unstable and also my forgetting to take it sometimes, my cardiologist switched me to Apixaban which I found a great improvement in that there were no more diet restrictions
I wonder if there is anyone here who is over 80, weighs less than 55kg and is on Apixaban? I was on warfarin but due to my INR being very unstable and also my forgetting to take it sometimes, my cardiologist switched me to Apixaban which I found a great improvement in that there were no more diet restrictions
Greenhilldrive
in
Anticoagulation Support
4 months ago
Thyroid Antibodies
Just read a post from Thyroid UK about antibodies. The raised TPO connection seems clear, but then It says “The next group is the TG Ab. These levels rise as well as the TPO Ab levels in autoimmune thyroiditis, but to a lesser degree...” I don’t understand what this is saying…does it mean that BOTH
Just read a post from Thyroid UK about antibodies. The raised TPO connection seems clear, but then It says “The next group is the TG Ab. These levels rise as well as the TPO Ab levels in autoimmune thyroiditis, but to a lesser degree...” I don’t understand what this is saying…does it mean that BOTH
JoJoloveschocolate
in
Thyroid UK
5 months ago
My GCA Update
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
Lenore58
in
PMRGCAuk
9 months ago
pulsatile tinnitus
hi I’ve had pulsatile tinnitus for almost 2 years. It came on all of a sudden not long after I’d had covid and had been a bit unwell with migraine for a week or so. A nurse said I had an ear infection but antibiotics made no difference. I was quickly sent for an MRA which was clear. I also had an ENT
hi I’ve had pulsatile tinnitus for almost 2 years. It came on all of a sudden not long after I’d had covid and had been a bit unwell with migraine for a week or so. A nurse said I had an ear infection but antibiotics made no difference. I was quickly sent for an MRA which was clear. I also had an ENT
Pinkbarbi
in
Tinnitus UK
4 months ago
tinnitus on rapid head rotation
Does anyone else experience a sound/vibration when shaking their head quickly from side to side? What I hear is a vibration of frequency about E flat (about 610Hz)? I have recently had an attempt at micro suction to remove ear wax and this has only started since then and I am wondering whether there
Does anyone else experience a sound/vibration when shaking their head quickly from side to side? What I hear is a vibration of frequency about E flat (about 610Hz)? I have recently had an attempt at micro suction to remove ear wax and this has only started since then and I am wondering whether there
SandraMarric
in
Tinnitus UK
4 months ago
Orgovyx and Zytiga with adding Prozac, good or bad?
Poollover wants to know if adding Prozac would cause a problem with androgen deprivation drugs?
Poollover wants to know if adding Prozac would cause a problem with androgen deprivation drugs?
Poollover
in
Advanced Prostate Cancer
4 months ago
Help!
I'm at the end of my tether. I'm 74 and have had UTIs since 16 - usually 1-2 a year, easily treated. A couple of years ago they were getting more frequent and GP gave me standby px for Macrobid and with this I've managed to self treat at the 1st symptom. 5 months ago I had a bad flare up which took several
I'm at the end of my tether. I'm 74 and have had UTIs since 16 - usually 1-2 a year, easily treated. A couple of years ago they were getting more frequent and GP gave me standby px for Macrobid and with this I've managed to self treat at the 1st symptom. 5 months ago I had a bad flare up which took several
Lunadoo
in
Bladder Health UK
4 months ago
Thanks for letting me join
I found out today I have to have injections into my right eye for macular, left eye is dry macular. not sure what’s happening on that one, I’m absolutely petrified, I didn’t ask any questions as I was too scared, I just wanted to get out. Can anyone tell me what will happen please. I had both cataracts
I found out today I have to have injections into my right eye for macular, left eye is dry macular. not sure what’s happening on that one, I’m absolutely petrified, I didn’t ask any questions as I was too scared, I just wanted to get out. Can anyone tell me what will happen please. I had both cataracts
marysuds
in
Macular Society
4 months ago
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