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B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
5 months ago
Wednesday's Word
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
following last post
Objective: Platelet activation and aggregation play major role in the pathophysiology of atherothrombosis. Mean platelet volume (MPV), a determinant of platelet function, is a newly emerging risk factor for atherosclerosis. The present study was designed to evaluate levels of MPV before and after the
Objective: Platelet activation and aggregation play major role in the pathophysiology of atherothrombosis. Mean platelet volume (MPV), a determinant of platelet function, is a newly emerging risk factor for atherosclerosis. The present study was designed to evaluate levels of MPV before and after the
Mostew
in
MPN Voice
4 months ago
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accidental overdose,
has anyone taken too many sotalol, I felt unwell with extreme heat ,legs like jelly and breathless, Later realised I had taken 4x80 mg of sotalol instead of 2. Can anyone advise wether these are the symptoms of taking too much or could have been something else entirely. Looking forward to some helpful
has anyone taken too many sotalol, I felt unwell with extreme heat ,legs like jelly and breathless, Later realised I had taken 4x80 mg of sotalol instead of 2. Can anyone advise wether these are the symptoms of taking too much or could have been something else entirely. Looking forward to some helpful
Hatten28
in
Atrial Fibrillation Support
4 months ago
Buzzing… how do you get used to it? Or rather ignore it!
Hi I’ve had tinnitus for about 5 years. It started with the hissing sound. After trying sound therapy treatment, I became aware of a tune in one ear. It gradually faded and I was told I had wax in that ear. I think wax helped block my sound as I had it removed and 8 months on it is just starting to
Hi I’ve had tinnitus for about 5 years. It started with the hissing sound. After trying sound therapy treatment, I became aware of a tune in one ear. It gradually faded and I was told I had wax in that ear. I think wax helped block my sound as I had it removed and 8 months on it is just starting to
TishL
in
Tinnitus UK
4 months ago
Multiple periods while on the PO pill
Hey everyone! I've been on Desogestrel (progesterone only pill) for about 5 weeks now to try and control my pain and bleeding while I wait for my excision surgery. I've had a lot of spotting but yesterday I came on a very heavy period only 8 days after finishing my last period and I'm wondering if
Hey everyone! I've been on Desogestrel (progesterone only pill) for about 5 weeks now to try and control my pain and bleeding while I wait for my excision surgery. I've had a lot of spotting but yesterday I came on a very heavy period only 8 days after finishing my last period and I'm wondering if
endo_the_stigma
in
Endometriosis UK
4 months ago
Further info on blood panel
Hello! I posted a couple of weeks back with some questions about low B12 investigations and was about to have a very full and detailed blood panel. I've got some further info from my blood tests. I don't have a copy yet, they're on the way, so I'll have to be vague about actual numbers for some of them
Hello! I posted a couple of weeks back with some questions about low B12 investigations and was about to have a very full and detailed blood panel. I've got some further info from my blood tests. I don't have a copy yet, they're on the way, so I'll have to be vague about actual numbers for some of them
Onefish
in
Pernicious Anaemia Society
9 months ago
Fibre in the diet
I have probably written about this before, but I am really unsure where to go. So it appears that lots of things play up with my stomach particularly fibre. I tried porridge (smooth quick cook) this within half an hour will give me stomach ache and many trips to the toilet tmi. I then tried peanut
I have probably written about this before, but I am really unsure where to go. So it appears that lots of things play up with my stomach particularly fibre. I tried porridge (smooth quick cook) this within half an hour will give me stomach ache and many trips to the toilet tmi. I then tried peanut
huggit
in
IBS Network
9 months ago
MyLupus mobile phone app aims to help patients in care decisions
MyLupus, a new mobile phone app that’s meant to be used between doctor visits, was designed to help people with moderate to severe lupus make more-educated healthcare decisions. The free application was developed by a team of scientists — including rheumatologists at the University of Alabama at
MyLupus, a new mobile phone app that’s meant to be used between doctor visits, was designed to help people with moderate to severe lupus make more-educated healthcare decisions. The free application was developed by a team of scientists — including rheumatologists at the University of Alabama at
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
soft, sticky stool which is hard to pass - any advice?
I feel embarrassed describing my poop but am at the end of my rope with my gut issues. I’ve had IBS for 25 years but the last 5 years have been non-stop, daily issues. Over the last 4 years I have had endless tests. A colonoscopy and gastroscope in 2019 which was clear, a clear ct scan later that year
I feel embarrassed describing my poop but am at the end of my rope with my gut issues. I’ve had IBS for 25 years but the last 5 years have been non-stop, daily issues. Over the last 4 years I have had endless tests. A colonoscopy and gastroscope in 2019 which was clear, a clear ct scan later that year
rustydog
in
IBS Network
9 months ago
Stopped taking Linaclotide (Constella/Linzess) for chronic (idiopathic) constipation, a new medicine for me to try.
So I finally had my consult ('second opinion') in Leuven (Belgium) at the gastroenterology unit of the university hospital, after I did see a specialist at the gastroenterology unit of the university hospital in Groningen (The Netherlands) beginning this year. The specialist I spoke with also doesn't
So I finally had my consult ('second opinion') in Leuven (Belgium) at the gastroenterology unit of the university hospital, after I did see a specialist at the gastroenterology unit of the university hospital in Groningen (The Netherlands) beginning this year. The specialist I spoke with also doesn't
Meleber
in
IBS Network
9 months ago
Can you help me with an advice, please
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Hello everyone! I am diagnosed with hypothyroidism and take Levothyroxine 100mg. I don't feel well at all, but I also have other health problems: lupus, Sjogren's, Henoch's purpura, neutropenia... I have a lot of symptoms and pains that I don't know where they are coming from, but fibromyalgia and depression
Geoegeta
in
Thyroid UK
5 months ago
Migraine and Tinnitus
Hi, I am a 64 year old man and suffered with severe migraine since childhood, about four years ago I started with Tinnitus which has been permanent since, I have tried Botox and many different migraine medications throughout the years, I have recently been given Anjovy which I am reluctant to try due
Hi, I am a 64 year old man and suffered with severe migraine since childhood, about four years ago I started with Tinnitus which has been permanent since, I have tried Botox and many different migraine medications throughout the years, I have recently been given Anjovy which I am reluctant to try due
beaverwood
in
National Migraine Centre
4 months ago
AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
5 months ago
Rapid Decline - anyone experience this?
I am an 82 year old woman who was diagnosed two years ago with SCA6 which my mother and grandmother also had. For the last two years tho I was dizzy all the time, my speech increasingly slurred, and I had eye problems and issues with balance, I still walked three miles a day, drove (sometimes 1 1/2
I am an 82 year old woman who was diagnosed two years ago with SCA6 which my mother and grandmother also had. For the last two years tho I was dizzy all the time, my speech increasingly slurred, and I had eye problems and issues with balance, I still walked three miles a day, drove (sometimes 1 1/2
Hickox
in
Ataxia UK
4 months ago
Bit old fashioned...
I discovered that a castor oil pack really helps with knee pain. It's horrible sticky oil, but it works topically (for me at least). I have bad memories of this stuff from my childhood. Any hint of sickness and out came the bottle. I would not recommend injesting it! 🤮 it's better than the deep heat
I discovered that a castor oil pack really helps with knee pain. It's horrible sticky oil, but it works topically (for me at least). I have bad memories of this stuff from my childhood. Any hint of sickness and out came the bottle. I would not recommend injesting it! 🤮 it's better than the deep heat
Blackberrywine
in
NRAS
4 months ago
clear cell update
I just finished my second round of immunotherapy, which is Opdiva and Yervoy . After one month my CA, 125 dropped from 133 to 53. I’m truly astounded and hope it keeps working on my clear cell tumor. If you’re OVCA is clear cell, you should inquire to your oncologist about this.
I just finished my second round of immunotherapy, which is Opdiva and Yervoy . After one month my CA, 125 dropped from 133 to 53. I’m truly astounded and hope it keeps working on my clear cell tumor. If you’re OVCA is clear cell, you should inquire to your oncologist about this.
Leniko
in
My Ovacome
4 months ago
possible recurrence…
Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am having an MRI scan today and have had a CT scan, my symptoms are a little bit of bloating and pain in my tummy and other areas since September last year when my ca-125 started increasing from 66, going up and up and now at 650
Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am having an MRI scan today and have had a CT scan, my symptoms are a little bit of bloating and pain in my tummy and other areas since September last year when my ca-125 started increasing from 66, going up and up and now at 650
sarah040866
in
My Ovacome
5 months ago
Tinnitus and visual disturbances?
Does anyone else suffer from both tinnitus and visual disturbances? I don't mean synchronised in any way, just generally. I get classic visual migraines (with aura) every few weeks but get other visual disturbances more regularly that can occasionally be quite dramatic. My visual migraines pre-date my
Does anyone else suffer from both tinnitus and visual disturbances? I don't mean synchronised in any way, just generally. I get classic visual migraines (with aura) every few weeks but get other visual disturbances more regularly that can occasionally be quite dramatic. My visual migraines pre-date my
Fridays_Child_62
in
Tinnitus UK
4 months ago
Gastritis
I had a gastroscopy this afternoon after experiencing stomach and back pain, for over 2 years the consultant said I had gastritis and took biopsies for a urease test I've been taking ppi's for years and they've been no help I'm wondering if the test comes back normal have I got to look forward to this
I had a gastroscopy this afternoon after experiencing stomach and back pain, for over 2 years the consultant said I had gastritis and took biopsies for a urease test I've been taking ppi's for years and they've been no help I'm wondering if the test comes back normal have I got to look forward to this
Barneymiller
in
IBS Network
9 months ago
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