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Prednisolone for Lupus Flare
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530
Chris5530
in
LUPUS UK
5 months ago
Calprotectin 452, Colonscopy and missing symptoms
Hi folks, I recently had a repeated Calprotectin test come back as 452 (previously 72). I have extreme weight loss (I’m currently a 34 year old female, 5’4” and 43kg) and have been experiencing months of daily waking to instant intense cramping and typically unpleasant bowel movement. I’ll continue
Hi folks, I recently had a repeated Calprotectin test come back as 452 (previously 72). I have extreme weight loss (I’m currently a 34 year old female, 5’4” and 43kg) and have been experiencing months of daily waking to instant intense cramping and typically unpleasant bowel movement. I’ll continue
Chaucer89
in
IBS Network
9 months ago
hydroxychloroquine and stuffy itchy nose with occasional bleeding.
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
My rheumatologist added hydroxychloroquine to my methotrexate regiment for my rheumatoid arthritis. After a few weeks on the hydroxychloroquine, my nose has become itchy and stuffed up, especially when lying down and I am having trouble sleeping. Has anyone else had this problem?
Apm2626
in
NRAS
5 months ago
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Liver disease, mast cells and antihistamine
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
I’ve just seen a post on X about mast cells and Covid-19 which mentioned a link with autoimmune diseases of the gut and the use of antihistamines as a treatment.. I wondered if anything was known about autoimmune liver diseases, mast cells and antihistamines. I found this 2017 research paper https://
Readlots
in
PBC Foundation
3 months ago
hearing aids
hi I’m Hegg suffered with tinnitis for years off and on am now 68 and after taking amitriplin have got worse tinnitis constant I had a hearing test which showed 50% loss in left ear I bought expensive hearing aid has not helped the tinnitis and still have hearing problems. Anyone els had similar &
hi I’m Hegg suffered with tinnitis for years off and on am now 68 and after taking amitriplin have got worse tinnitis constant I had a hearing test which showed 50% loss in left ear I bought expensive hearing aid has not helped the tinnitis and still have hearing problems. Anyone els had similar &
Hegg
in
Tinnitus UK
4 months ago
Remission
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
Preacherball
in
PMRGCAuk
4 months ago
Advice re dizziness 5 days post op
I'm day 5 post first lap and still feel really spaced out and dizzy after GA. Pain is getting better I'm off the strong meds but was on morphine for a couple of days. Moving around better but after a couple of hours out of bed I'm straight back wiped out. Is this normal? I did have a lot done in terms
I'm day 5 post first lap and still feel really spaced out and dizzy after GA. Pain is getting better I'm off the strong meds but was on morphine for a couple of days. Moving around better but after a couple of hours out of bed I'm straight back wiped out. Is this normal? I did have a lot done in terms
DarkStar85
in
Endometriosis UK
4 months ago
cutaneous lupus
Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my scalp. Have you tried dermovate hair and scalp liquid? My consultant prescribed it to me and it’s actually worked really well. It even worked on my skin. i really hope this helps you.
Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my scalp. Have you tried dermovate hair and scalp liquid? My consultant prescribed it to me and it’s actually worked really well. It even worked on my skin. i really hope this helps you.
Beryl2485
in
LUPUS UK
5 months ago
Thyroid Antibodies
Just read a post from Thyroid UK about antibodies. The raised TPO connection seems clear, but then It says “The next group is the TG Ab. These levels rise as well as the TPO Ab levels in autoimmune thyroiditis, but to a lesser degree...” I don’t understand what this is saying…does it mean that BOTH
Just read a post from Thyroid UK about antibodies. The raised TPO connection seems clear, but then It says “The next group is the TG Ab. These levels rise as well as the TPO Ab levels in autoimmune thyroiditis, but to a lesser degree...” I don’t understand what this is saying…does it mean that BOTH
JoJoloveschocolate
in
Thyroid UK
4 months ago
Advice for pelvic pain please!!
I'm a 29 year old female who has been suffering with issues with my bladder for around 5 years. I've not had any children and never been pregnant. 5 years ago I started getting re- occuring UTI's quite regularly and was referred to a urologist. I, then, started to get bladder incontinence- I was sent
I'm a 29 year old female who has been suffering with issues with my bladder for around 5 years. I've not had any children and never been pregnant. 5 years ago I started getting re- occuring UTI's quite regularly and was referred to a urologist. I, then, started to get bladder incontinence- I was sent
DisneyLover1994
in
Pelvic Pain Support Network
4 months ago
Faulty batch of Sperm wash solution - help please worried about FET transfer
Hello ladies, I am a bit worried and would like to speak to anyone else who have received the same message from their clinic as I am really lost and need some help. I had my eggs removed earlier last month and been informed the sperm wash solution used to create embryos was a faulty batch with low
Hello ladies, I am a bit worried and would like to speak to anyone else who have received the same message from their clinic as I am really lost and need some help. I had my eggs removed earlier last month and been informed the sperm wash solution used to create embryos was a faulty batch with low
Clementine2021
in
Fertility Network UK
4 months ago
CBD decline
Hi, Don’t often post as time gets away with me, but coming on hear to vent a bit ;-) So mum has CBD diagnosed 2020 so has probably had symptoms for 4+ years. Speech has got a lot worse lately and we were struggling but managing to understand her. She has a habit of being settled in bed but then gets
Hi, Don’t often post as time gets away with me, but coming on hear to vent a bit ;-) So mum has CBD diagnosed 2020 so has probably had symptoms for 4+ years. Speech has got a lot worse lately and we were struggling but managing to understand her. She has a habit of being settled in bed but then gets
Araucana
in
PSP Association
4 months ago
psoriatic arthritis
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Beata0102
in
NRAS
5 months ago
Very low blood sugar - anyone had anything similar ?
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Sleepman
in
Thyroid UK
5 months ago
Good Morning 🩷 new to the group....
Hello! I've just been recently diagnosed with APS after a fall down concrete stairs broke my left fibula (lower leg) January 11/24.When I was able to get the fracture clinic 2 weeks later (I live in a small northern Ontario Canada small town and the clinic is 1hour and 15 minutes away, not easily done
Hello! I've just been recently diagnosed with APS after a fall down concrete stairs broke my left fibula (lower leg) January 11/24.When I was able to get the fracture clinic 2 weeks later (I live in a small northern Ontario Canada small town and the clinic is 1hour and 15 minutes away, not easily done
NorthernShel
in
Hughes Syndrome APS Forum
4 months ago
radiation damage to the bladder
my husband has had 4 rather benign treatments of Pluvicto at the recommended 6 week intervals. Treatment #5 is Schilz’s in about 10 days. All of a sudden he is having hematuria and bladder spasms. Can anyone tell me what kinds of treatments are used for radiation burns or irritation to the bladder? Thanks
my husband has had 4 rather benign treatments of Pluvicto at the recommended 6 week intervals. Treatment #5 is Schilz’s in about 10 days. All of a sudden he is having hematuria and bladder spasms. Can anyone tell me what kinds of treatments are used for radiation burns or irritation to the bladder? Thanks
Mcrpca
in
Advanced Prostate Cancer
4 months ago
High Cholesterol
Hi everyone, this is my first post. I have been experiencing symptoms of underactive thyroid and requested a blood test to look into it (this was done 2 days ago). I got a text message last night saying my routine blood test shows I have high cholesterol and advise going on statins. No mention of my
Hi everyone, this is my first post. I have been experiencing symptoms of underactive thyroid and requested a blood test to look into it (this was done 2 days ago). I got a text message last night saying my routine blood test shows I have high cholesterol and advise going on statins. No mention of my
RedorBed
in
Thyroid UK
5 months ago
Heart Palps after eating
Does anyone get Heart palpitations after eating ? I get them no matter what I eat protein only, prot & carbs or carbs (tested this) … This isn’t new but its becoming more pronounced and I can’t figure out the issues or if it’s hypo related but just seems odd to hit only after eating (morning) is the
Does anyone get Heart palpitations after eating ? I get them no matter what I eat protein only, prot & carbs or carbs (tested this) … This isn’t new but its becoming more pronounced and I can’t figure out the issues or if it’s hypo related but just seems odd to hit only after eating (morning) is the
Batty1
in
Thyroid UK
4 months ago
Apixaban
I wonder if there is anyone here who is over 80, weighs less than 55kg and is on Apixaban? I was on warfarin but due to my INR being very unstable and also my forgetting to take it sometimes, my cardiologist switched me to Apixaban which I found a great improvement in that there were no more diet restrictions
I wonder if there is anyone here who is over 80, weighs less than 55kg and is on Apixaban? I was on warfarin but due to my INR being very unstable and also my forgetting to take it sometimes, my cardiologist switched me to Apixaban which I found a great improvement in that there were no more diet restrictions
Greenhilldrive
in
Anticoagulation Support
4 months ago
previous question
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
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