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I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
7 months ago
Neurological Disorders: How Regenerative Medicines Help in Treating Nervous System Diseases
In this insightful discussion, the revolutionary field of regenerative medicine and its profound impact on treating neurological disorders are being discussed. Discover cutting-edge techniques such as stem cell therapy, gene therapy, and surgical innovations that are reshaping the landscape of neurology
In this insightful discussion, the revolutionary field of regenerative medicine and its profound impact on treating neurological disorders are being discussed. Discover cutting-edge techniques such as stem cell therapy, gene therapy, and surgical innovations that are reshaping the landscape of neurology
Farooqji
in
Cure Parkinson's
4 months ago
AB-1005
By posting this I am not necessarily advocating this treatment just trying to find out more information on how it is made and how it is administered [u]Gene therapy AB-1005 found safe in Phase 1b Parkinson’s trial[/u] https://parkinsonsnewstoday.com/news/gene-therapy-ab-1005-safe-phase-1b-trial/?utm_source
By posting this I am not necessarily advocating this treatment just trying to find out more information on how it is made and how it is administered [u]Gene therapy AB-1005 found safe in Phase 1b Parkinson’s trial[/u] https://parkinsonsnewstoday.com/news/gene-therapy-ab-1005-safe-phase-1b-trial/?utm_source
Boscoejean
in
Cure Parkinson's
4 months ago
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NHS Endo - South East - Pro T3 - Three referral choices...
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
joey82
in
Thyroid UK
4 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
7 months ago
new immune therapy phase 1-2 trial: targeting NK cells
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
Maxone73
in
Advanced Prostate Cancer
4 months ago
Stopped Orgovyx two weeks ago and still having hot flashes? why is that? Also it is now 3 months since end of IMRT -still peeing 7 x a nite?
Stopped Orgovyx two weeks ago and still having hot flashes? why is that? Also it is now 3 months since end of IMRT -still peeing 7 x a nite? when does the "nocturia" settle down to baseline of 2 x per night?Thanking you in advance for comments and thoughts..62 -psa 10- imrt -20tx- 4 months orgovyx-Gleason
Stopped Orgovyx two weeks ago and still having hot flashes? why is that? Also it is now 3 months since end of IMRT -still peeing 7 x a nite? when does the "nocturia" settle down to baseline of 2 x per night?Thanking you in advance for comments and thoughts..62 -psa 10- imrt -20tx- 4 months orgovyx-Gleason
JWS13
in
Advanced Prostate Cancer
11 months ago
The relief of a tablet!
Well, I'm not one to moan about my health condition, but since June I've been suffering with terrible headaches ( cluster) they've been absolutely been brutal. I've been on a long term medication previously and it stopped working, and I've just started taking a new medication 💊, the headaches were so
Well, I'm not one to moan about my health condition, but since June I've been suffering with terrible headaches ( cluster) they've been absolutely been brutal. I've been on a long term medication previously and it stopped working, and I've just started taking a new medication 💊, the headaches were so
Cb1963
in
Anxiety and Depression Support
4 months ago
TRIMBOW HELP
Hello everyone , I need advice from those who use trimbow; I have COPD and have been living with only one lung for 5 years, I have never used bronchodilators but I have always relied on exercises, a good diet and of course no smoking or alcohol. I must say that I did very well, especially because
Hello everyone , I need advice from those who use trimbow; I have COPD and have been living with only one lung for 5 years, I have never used bronchodilators but I have always relied on exercises, a good diet and of course no smoking or alcohol. I must say that I did very well, especially because
pasquino
in
Lung Conditions Community Forum
4 months ago
Aetna appeal for Firmagon denial
My husband was diagnosed with high risk aggressive prostate cancer, Gleason 9. Plus one para rectal node positive. The doctor prescribed 2 years of ADT plus 5 weeks of IMRT. Had first 240 mg dose of firmagon on September 14 with no major side effects so far. Doctor used firmagon to avoid testosterone
My husband was diagnosed with high risk aggressive prostate cancer, Gleason 9. Plus one para rectal node positive. The doctor prescribed 2 years of ADT plus 5 weeks of IMRT. Had first 240 mg dose of firmagon on September 14 with no major side effects so far. Doctor used firmagon to avoid testosterone
Oatmeal2
in
Prostate Cancer Network
7 months ago
BioMax Red Light Therapy
https://platinumtherapylights.com/products/biomax-rlt Any users of these panels on here? Can apparently improve mitochondrial health so I’m seriously considering investing. Wondered if you thought worth your hard earned cash and time. General health benefits? Any noticeable PD improvements? And
https://platinumtherapylights.com/products/biomax-rlt Any users of these panels on here? Can apparently improve mitochondrial health so I’m seriously considering investing. Wondered if you thought worth your hard earned cash and time. General health benefits? Any noticeable PD improvements? And
JCRO
in
Cure Parkinson's
4 months ago
Feeling Right
Feeling Right Feeling Right... I'm a 73yo retired physician who's struggled with OCD most of my life. While initially tic like as a child, it has evolved into obsessive thoughts (like trying to figure out what time it would be if I interchanged the hands of a clock, constantly calculating exchange
Feeling Right Feeling Right... I'm a 73yo retired physician who's struggled with OCD most of my life. While initially tic like as a child, it has evolved into obsessive thoughts (like trying to figure out what time it would be if I interchanged the hands of a clock, constantly calculating exchange
Stratocaster78
in
My OCD Community
4 months ago
AAV-GAD Gene Therapy
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
JohnP65
in
Cure Parkinson's
4 months ago
concurrent salvage ADT with IRMT
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
live2play
in
Advanced Prostate Cancer
7 months ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
4 months ago
Finally!
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
Back in July I had a response to a FOI, which I challenged. I sent out numerous emails to different NHS governing bodies. I met a brick wall. Today an email turned up out of the blue from my Health Board. It only took them five months. The complaint was that the blood testing for thyroid did not
serenfach
in
Thyroid UK
4 months ago
Art and music therapy for kidney patients
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
Coping with kidney disease can be difficult. Sometimes you have to think outside the box! Have you considered music or art therapy? Listen today to hear Social Worker Melissa Fry and patient Steven Light share their experiences with using music and art as coping strategies. https://www.podbean.com/ep
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
4 months ago
Must be doing something right!
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
Attended for my annual supplementary oxygen therapy review today and wahooooo, the prescription doesn't need to be increased! This is first time it hasn't needed to be increased year on year for the last 7 years. Very chuffed. A great Christmas gift.....Long may it last.
PaulineHM
in
Lung Conditions Community Forum
4 months ago
Cold is good for you
Radio 4 currently has a series by Dr Michael Mosley, Cold Therapy. The third episode deals with exercising in the cold. One of his conclusions is that people who run reasonable distances for fun (as opposed to marathons, ultra runners, professionals) have their best performance at around 10-11C. Well
Radio 4 currently has a series by Dr Michael Mosley, Cold Therapy. The third episode deals with exercising in the cold. One of his conclusions is that people who run reasonable distances for fun (as opposed to marathons, ultra runners, professionals) have their best performance at around 10-11C. Well
Yesletsgo
Graduate10
in
Bridge to 10K
4 months ago
Looking to connect
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
Hello, I would like to connect with survivors with these combinations in their medical experience, please. Can you help? 1. Have had heart failure 2. Have had a dissection B 3. Havd had a torn aorta 4. Have had a lumpectomy or mastectomy on the LEFT breast 5. Have had radiation or PROTON therapy
AVOCADOtastes
in
SHARE Breast Cancer Support
5 months ago
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