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Oxygen therapy
I have been referred for this and told I would get a visit at home. Just had first chest infection and inpatient stay, 3 days. Antibiotics worked super well, plus excellent ambulance crew. What is involved with oxygen at home, is it a small mobile cylinder? Do I take it everywhere. How does it work
I have been referred for this and told I would get a visit at home. Just had first chest infection and inpatient stay, 3 days. Antibiotics worked super well, plus excellent ambulance crew. What is involved with oxygen at home, is it a small mobile cylinder? Do I take it everywhere. How does it work
grahame151
in
Lung Conditions Community Forum
3 months ago
Recently diagnosed and trying to work out what to do! All advice gratefully received.
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
welshsky
in
Prostate Cancer Network
3 months ago
Another day
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
Hidden
in
British Heart Foundation
3 months ago
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9 year old son with Emotional Outbursts
My older son who just turned 9 today has ADHD and does well at school, but can often times during the week at home can say some terrible things to my wife and I and even his 7 year old younger brother.. We started him on Guanfacine and thought it was having a good effect but as we upped his dosage we
My older son who just turned 9 today has ADHD and does well at school, but can often times during the week at home can say some terrible things to my wife and I and even his 7 year old younger brother.. We started him on Guanfacine and thought it was having a good effect but as we upped his dosage we
acfowlie
in
CHADD's ADHD Parents Together
3 months ago
Recurrence
I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences but want to share that so far I’ve been knocking them back with various treatments, whether it be chemo, radiation, targeted therapy, immunotherapy
I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences but want to share that so far I’ve been knocking them back with various treatments, whether it be chemo, radiation, targeted therapy, immunotherapy
Leniko
in
My Ovacome
3 months ago
Recurrence
I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences but want to share that so far I’ve been knocking them back with various treatments, whether it be chemo, radiation, targeted therapy, immunotherapy
I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences but want to share that so far I’ve been knocking them back with various treatments, whether it be chemo, radiation, targeted therapy, immunotherapy
Leniko
in
My Ovacome
3 months ago
Nice to be here
I have just been diagnosed with severe chronic pancreatitis. I am really scared, even though I've had bad symptoms for some time. I'm on enzyme therapy and recently had to increase the dose. Would like to talk to people that have had experience with this. Thank you and I look forward to meeting you
I have just been diagnosed with severe chronic pancreatitis. I am really scared, even though I've had bad symptoms for some time. I'm on enzyme therapy and recently had to increase the dose. Would like to talk to people that have had experience with this. Thank you and I look forward to meeting you
Corinne777
in
Couch to 5K
3 months ago
Speech production technology
Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to consider it since we cannot understand my husband any more. Thanks
Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to consider it since we cannot understand my husband any more. Thanks
TourEiffel
in
PSP Association
3 months ago
Bayer and AskBio report data from Parkinson’s disease therapy trial
The bilateral infusions of AB-1005 were well tolerated, without any SAEs linked to the gene therapy or contrast agent. AskBio Parkinson’s and MSA Scientific chair Krystof Bankiewicz said: “These early findings are encouraging and show AB-1005 to be well tolerated in this study in patients with mild
The bilateral infusions of AB-1005 were well tolerated, without any SAEs linked to the gene therapy or contrast agent. AskBio Parkinson’s and MSA Scientific chair Krystof Bankiewicz said: “These early findings are encouraging and show AB-1005 to be well tolerated in this study in patients with mild
Farooqji
in
Cure Parkinson's
3 months ago
CRISPR 13 (what? you thought I abandoned CRISPR?): very promising proof of concept - Targeting HOXB13 in mPCa by CRISPR/Cas13d- nanoparticle
And people thought it was undruggable....they have already filed for a patent 😲 Researchers developed nanoparticles that can deliver a special type of gene therapy directly to cancer cells in the liver. This system uses a CRISPR technology, not to edit DNA, but to block the RNA of the HOXB13 protein
And people thought it was undruggable....they have already filed for a patent 😲 Researchers developed nanoparticles that can deliver a special type of gene therapy directly to cancer cells in the liver. This system uses a CRISPR technology, not to edit DNA, but to block the RNA of the HOXB13 protein
Maxone73
in
Advanced Prostate Cancer
3 months ago
constipation
years of laxative abuse leaves me with slow bowel going shortly for biofeedback as have no anal function, have to evacuate myself now I’m passing some stool with interference but so bloated and in pain, am I impacted? Starting laxido today, and a stimulant, swore never to laxative use again but scared
years of laxative abuse leaves me with slow bowel going shortly for biofeedback as have no anal function, have to evacuate myself now I’m passing some stool with interference but so bloated and in pain, am I impacted? Starting laxido today, and a stimulant, swore never to laxative use again but scared
Dudders123
in
IBS Network
3 months ago
Is it a waste?
How do you know when you stop making progress? If i keep going to these group therapy sessions and hanging out with my family, but have my head ducking down, into my phone or look at the ground to avoid social interactions....does it still count as a visit? i mean i'm not as bad as im describing i do
How do you know when you stop making progress? If i keep going to these group therapy sessions and hanging out with my family, but have my head ducking down, into my phone or look at the ground to avoid social interactions....does it still count as a visit? i mean i'm not as bad as im describing i do
EricJones
in
Anxiety and Depression Support
3 months ago
Major depressive disorder
I was with my ex for 36 years before I foiled for a divorce. We remained close . December 2023 was 1 year for our divorce. He had at least 3 affairs that I proved, I believe he had at least 3 or 4 more that I couldn’t prove. He asked me to move in with him February this year, I did because I thought
I was with my ex for 36 years before I foiled for a divorce. We remained close . December 2023 was 1 year for our divorce. He had at least 3 affairs that I proved, I believe he had at least 3 or 4 more that I couldn’t prove. He asked me to move in with him February this year, I did because I thought
raisin44
in
Anxiety and Depression Support
3 months ago
Change in inhalers
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
spookylou
in
Asthma Community Forum
3 months ago
Excessive Sleeping
My husband was diagnosed in early 2020 with MSA. The decline was rapid - he is now on PEG for feeds, intermittent urine catheter, flatus tube for bowel movement, and a tracheotomy with ventilator on at night He has speech therapy, physiotherapy, occupational therapy that fills up his days However
My husband was diagnosed in early 2020 with MSA. The decline was rapid - he is now on PEG for feeds, intermittent urine catheter, flatus tube for bowel movement, and a tracheotomy with ventilator on at night He has speech therapy, physiotherapy, occupational therapy that fills up his days However
binnyrox
in
Multiple System Atrophy Trust
4 months ago
Feeling paranoid
I'm at group therapy and I'm feeling really paranoid right now. More than usual. I'm afraid that someone will notice my paranoia and shame me for it ...thoughts?
I'm at group therapy and I'm feeling really paranoid right now. More than usual. I'm afraid that someone will notice my paranoia and shame me for it ...thoughts?
EricJones
in
Anxiety and Depression Support
4 months ago
Oxygen therapy
I am helping to look after my 88 year old sister at present. She has been prescribed ambulatory oxygen therapy following a diagnosis of pulmonary hypertension, I think related to her Protein S Deficiency. She is frail and even the small oxygen cylinders are heavy and difficult for her to use but oxygen
I am helping to look after my 88 year old sister at present. She has been prescribed ambulatory oxygen therapy following a diagnosis of pulmonary hypertension, I think related to her Protein S Deficiency. She is frail and even the small oxygen cylinders are heavy and difficult for her to use but oxygen
mozart27
in
Lung Conditions Community Forum
4 months ago
thanks you brilliant freinds!
thanks for all your replies means the world.as usual im picking my battles should i be proud to say im getting good at it?no way,but there you have it.sean and myself have hilarious exchanges with my "speech therapy"sessions.when i visited yesterday had my fur teddy coat.sean insisted on wearing...you
thanks for all your replies means the world.as usual im picking my battles should i be proud to say im getting good at it?no way,but there you have it.sean and myself have hilarious exchanges with my "speech therapy"sessions.when i visited yesterday had my fur teddy coat.sean insisted on wearing...you
Dogsabighelp
in
Headway
4 months ago
Real-World Outcomes of First-Line Ribociclib Plus Aromatase Inhibitor in Patients With HR+/HER2− MBC
"
First-line ribociclib and AI
therapy
for patients with HR+/HER2− MBC is effective and safely deliverable in the real-world setting, albeit with high rates of dose reduction."
"
First-line ribociclib and AI
therapy
for patients with HR+/HER2− MBC is effective and safely deliverable in the real-world setting, albeit with high rates of dose reduction."
Hazelgreen
in
SHARE Metastatic Breast Cancer
2 years ago
No meds no symptoms
I was told a week ago to stop all my medication due to a chest infection and WBC being too low. I've been off my hydroxychloroquine and methotrexate for over a week now and weirdly my joints and swelling has been the best it's been for over 2 years. I feel perplexed has a 2 year flare just finished
I was told a week ago to stop all my medication due to a chest infection and WBC being too low. I've been off my hydroxychloroquine and methotrexate for over a week now and weirdly my joints and swelling has been the best it's been for over 2 years. I feel perplexed has a 2 year flare just finished
Sunshine634
in
LUPUS UK
4 months ago
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