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Treatment - radiation vs. surgery
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
TonyTx
in
Prostate Cancer Network
9 months ago
Virtual Reality Therapy Anyone?
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
Wtfisup
in
My MSAA Community
1 year ago
Testosterone and SHBG puzzle ...
Hello all, I am on HRT including testosterone replacement: what do you think of these results? High SHBG, high testosterone but sub-optimal Free Androgen Index, I was told by a menopause doctor that the index should be around 2.5 to be optimal and that is the most important indicator. I was put on a
Hello all, I am on HRT including testosterone replacement: what do you think of these results? High SHBG, high testosterone but sub-optimal Free Androgen Index, I was told by a menopause doctor that the index should be around 2.5 to be optimal and that is the most important indicator. I was put on a
Clara62
in
Menopause and Perimenopause Support
10 months ago
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Hip Replacement and RA
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Angie2212
in
NRAS
11 months ago
Prostap longer than 6 months?
Hi there. I’m currently on Prostap with Tibilone to manage my stage 4 Endo with adenomyosis, fibroids and an endometrioma. I’m 49 soon so prob perimenopausal. I’ve had a long history of open surgeries, laparatomy etc. so no stranger to surgery. My symptoms are currently very manageable although my
Hi there. I’m currently on Prostap with Tibilone to manage my stage 4 Endo with adenomyosis, fibroids and an endometrioma. I’m 49 soon so prob perimenopausal. I’ve had a long history of open surgeries, laparatomy etc. so no stranger to surgery. My symptoms are currently very manageable although my
Honeybeehappy
in
Endometriosis UK
10 months ago
cost of Forteo, Tymlos, Evenity, Prolia in USA
after being on HRT for a year my numbers have worsened and I now have osteoporosis in spine and both hips in the -3 range. In addition I need a biopsy for breast lump. Ugh. So I’m faced with choosing a new osteoporosis drug. Besides the side effects they all seem to have, I’m considering the cost as
after being on HRT for a year my numbers have worsened and I now have osteoporosis in spine and both hips in the -3 range. In addition I need a biopsy for breast lump. Ugh. So I’m faced with choosing a new osteoporosis drug. Besides the side effects they all seem to have, I’m considering the cost as
Kimada
in
Osteoporosis Support
10 months ago
help with charity/grant
does anyone know any other grants/charities that could help with an iPad for my son? His broke and now it is absolute chaos as he relies so heavily on it day to day for meltdowns communication ect and I’m not currently in the financial position to afford one, thanks
does anyone know any other grants/charities that could help with an iPad for my son? His broke and now it is absolute chaos as he relies so heavily on it day to day for meltdowns communication ect and I’m not currently in the financial position to afford one, thanks
Buddysgreatadventure
in
Mencap
11 months ago
Ugg, can we talk erections
So, even with Cialis I am having issues getting erect and certainly having an orgasm. Some questions for the group: 1. How much of this is the hormone therapy? Meaning, likely by now (more than 2mths on ADT) my testo has dropped very very far right? 2. Why doesnt Cialis help? 3. What is my outcome
So, even with Cialis I am having issues getting erect and certainly having an orgasm. Some questions for the group: 1. How much of this is the hormone therapy? Meaning, likely by now (more than 2mths on ADT) my testo has dropped very very far right? 2. Why doesnt Cialis help? 3. What is my outcome
Yzinger
in
Advanced Prostate Cancer
10 months ago
IVF medication following BFP for those with POF?
Hi everyone Hoping to find a consensus re: dates of stopping hormone treatment for those with premature ovarian failure going through IVF. Recently thrilled to get a BFP following D5 DE FET (still early days, only 4.5 weeks along). My clinic seem to adopt a 'one-size fits all' approach and stops progesterone
Hi everyone Hoping to find a consensus re: dates of stopping hormone treatment for those with premature ovarian failure going through IVF. Recently thrilled to get a BFP following D5 DE FET (still early days, only 4.5 weeks along). My clinic seem to adopt a 'one-size fits all' approach and stops progesterone
Buzzler
in
Fertility Network UK
10 months ago
Some recent info on PSMA PET from "Urology Times"
Greetings FPC folk, I thought I would put out some recent info from "Urology Times" relating to PSMA scans : https://www.urologytimes.com/view/overview-of-available-clinical-guidelines-on-psma-pet-imaging-in-prostate-cancer?utm_source=sfmc&utm_medium=email&utm_campaign=09282023_UT_LAN-23-URV0147_
Greetings FPC folk, I thought I would put out some recent info from "Urology Times" relating to PSMA scans : https://www.urologytimes.com/view/overview-of-available-clinical-guidelines-on-psma-pet-imaging-in-prostate-cancer?utm_source=sfmc&utm_medium=email&utm_campaign=09282023_UT_LAN-23-URV0147_
NPfisherman
in
Fight Prostate Cancer
10 months ago
TSH blood test results
Hi lovely people.I have just had my annual thyroid test. I have checked my results and my TSH was 2.3. Unfortunately I can't compare previous years as they are no longer on my online health records due to a system overhaul!! I am currently taking 75mcg of thyroxine which because I am unable to tolerate
Hi lovely people.I have just had my annual thyroid test. I have checked my results and my TSH was 2.3. Unfortunately I can't compare previous years as they are no longer on my online health records due to a system overhaul!! I am currently taking 75mcg of thyroxine which because I am unable to tolerate
Shaldon
in
Thyroid UK
10 months ago
Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
10 months ago
Does anyone know if you can take eltroxin along with progesterone and estradot patches / vagifem
I’m on thyroid meds /-eltroxin .I take these in the morning on an empty stomach I’m going on the above HRT meds . Shall I take them in the evening after food ? Eltroxin states on the leaflet that HRT may Interact ? Pharmacist says there should be no interaction ? Maybe I should get my bloods done
I’m on thyroid meds /-eltroxin .I take these in the morning on an empty stomach I’m going on the above HRT meds . Shall I take them in the evening after food ? Eltroxin states on the leaflet that HRT may Interact ? Pharmacist says there should be no interaction ? Maybe I should get my bloods done
Cecy69
in
Thyroid UK
10 months ago
Radiation treatment for gynecomastia? Anyone?
As we all know, ADT treatments can cause a side effect known as gynecomastia. I am experiencing gynecomastia after being on Orgovyx and am considering the radiation treatment for it. Has anyone out there done the radiation treatment for gynecomastia? How did it work out for you? Did you experience
As we all know, ADT treatments can cause a side effect known as gynecomastia. I am experiencing gynecomastia after being on Orgovyx and am considering the radiation treatment for it. Has anyone out there done the radiation treatment for gynecomastia? How did it work out for you? Did you experience
Explorer08
in
Advanced Prostate Cancer
10 months ago
Increased Levothyroxine dose or HRT
Hi It’s me again. I’m currently on 75mg of Levothyroxine and am still symptomatic but my GP won’t increase my Levothyroxine and has attributed my symptoms .. weight gain , aching joints, dry hair and brain fog down to hormones and has suggested HRT patches Does anytime have any advice regarding HRT
Hi It’s me again. I’m currently on 75mg of Levothyroxine and am still symptomatic but my GP won’t increase my Levothyroxine and has attributed my symptoms .. weight gain , aching joints, dry hair and brain fog down to hormones and has suggested HRT patches Does anytime have any advice regarding HRT
Gyp101
in
Thyroid UK
10 months ago
Emotional lability and LT ADT
At certain times of extra stress, like awaiting a PSA test result, I have gotten into wrist-slap trouble by making awkward humor and remarks to Clinic staff. They get PO'ed and tattle to my MO. It's really not like me and the latest incident prompted me to look into ADT and emotional SE's. Bingo!
At certain times of extra stress, like awaiting a PSA test result, I have gotten into wrist-slap trouble by making awkward humor and remarks to Clinic staff. They get PO'ed and tattle to my MO. It's really not like me and the latest incident prompted me to look into ADT and emotional SE's. Bingo!
Derf4223
in
Advanced Prostate Cancer
10 months ago
How the T4 and T3 bound on to thyroglobulin are released as free hormones
That is, T4 and T3 in NDT are more slowly taken into the circulation as their released form as opposed to native T4 and T3 in
combination
therapy
using chemically produced molecules.
That is, T4 and T3 in NDT are more slowly taken into the circulation as their released form as opposed to native T4 and T3 in
combination
therapy
using chemically produced molecules.
diogenes
in
Thyroid UK
2 years ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
No difference in SBRT vs conventionally fractionated radiation for intermediate risk patients
6-year update of PACE-B randomized trial continues to show no difference in outcomes. This month is my 13th anniversary getting cured with SBRT with no lasting side effects. https://www.prostatecancer.news/2019/02/sbrt-has-non-inferior-acute-and-late.html https://www.prostatecancer.news/2019/04/should-sbrt-be-preferred-treatment-for.html
6-year update of PACE-B randomized trial continues to show no difference in outcomes. This month is my 13th anniversary getting cured with SBRT with no lasting side effects. https://www.prostatecancer.news/2019/02/sbrt-has-non-inferior-acute-and-late.html https://www.prostatecancer.news/2019/04/should-sbrt-be-preferred-treatment-for.html
Tall_Allen
in
Prostate Cancer Network
10 months ago
Menopause
This is a post on behalf of my daughter who inherited her rls from me 😒She is peri-menopausal at the moment but thinking about hrt in the future. She has heard stories that some people have had their rls symptoms dramatically worsen when taking hrt. We were wondering if any of you have any thoughts
This is a post on behalf of my daughter who inherited her rls from me 😒She is peri-menopausal at the moment but thinking about hrt in the future. She has heard stories that some people have had their rls symptoms dramatically worsen when taking hrt. We were wondering if any of you have any thoughts
keiralee
in
Restless Legs Syndrome
10 months ago
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