Search
Search
About
Log in
Join
Experiences with
Combination therapy
Posts
Communities
16,190 public posts
Filter results
Failed RP & SRT; Negative PSMA PET
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
Greetings. I had a radical prostatectomy that failed and then salvage radiation therapy that appears to have failed as well. A recent PSMA PET scan showed no signs of recurrent prostate cancer or metastases. By way of background: NOV 2010 - Dx at age 52; positive DRE, Gleason 3+3, PSA 5.0; prostate
dans_journey
in
Advanced Prostate Cancer
3 months ago
QoL Rest Ye Merry Gentlemen/women :-)
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one š or just copy the image Here are
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one š or just copy the image Here are
dockam
in
Advanced Prostate Cancer
5 months ago
happy holidays ā¦. And a quick update
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, Iām off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, Iām off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
PGDuan
in
Advanced Prostate Cancer
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hypo book recommendations please UK
Hi, please can someone recommend a book to start to understand likely hypothyroidism? A UK publication please. I joined yesterday and am just trying to get my head around it all. I have lots of symptoms and my TSH is creeping up with TS4 and especially TS3 scratching the bottom of the normal range
Hi, please can someone recommend a book to start to understand likely hypothyroidism? A UK publication please. I joined yesterday and am just trying to get my head around it all. I have lots of symptoms and my TSH is creeping up with TS4 and especially TS3 scratching the bottom of the normal range
Fizzwhizz
in
Thyroid UK
5 months ago
Radiation PSA, Orgovyx, Bone density
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
alperk
in
Advanced Prostate Cancer
5 months ago
A question on 'high' dosage
So I'm currently on 150mcg of levo and 30mcg T3 and my latest results were still only 65% and 62% respectively. I've just started HRT so I may well continue to see improvements but I'm curious about my dosing. I'm 6'1" and roughly 65kg so I'm on the cusp of underweight. I know we need what we need
So I'm currently on 150mcg of levo and 30mcg T3 and my latest results were still only 65% and 62% respectively. I've just started HRT so I may well continue to see improvements but I'm curious about my dosing. I'm 6'1" and roughly 65kg so I'm on the cusp of underweight. I know we need what we need
WitchingHour2point0
in
Thyroid UK
5 months ago
Does The Thyroid Affect Potassium Levels?
Hi! A bit of a random question but Iāve recently had some bloods taken by my GP surgery and my potassium levels have come back a little low (3.2 range 3.5-5.3) My TSH is 3.06 (range 0.27-4.20), which I think is a little too high although in range, so it got me thinking if there is a link at all between
Hi! A bit of a random question but Iāve recently had some bloods taken by my GP surgery and my potassium levels have come back a little low (3.2 range 3.5-5.3) My TSH is 3.06 (range 0.27-4.20), which I think is a little too high although in range, so it got me thinking if there is a link at all between
Hidden
in
Thyroid UK
5 months ago
HRT v ataxia
I'm looking for advice I've come off HRT but got terrible aches and pains 1 dr as said for my bones and muscles I would be better staying on it but my big worry is breast cancer with HRT dont know what to do for the best any advice pÄŗease
I'm looking for advice I've come off HRT but got terrible aches and pains 1 dr as said for my bones and muscles I would be better staying on it but my big worry is breast cancer with HRT dont know what to do for the best any advice pÄŗease
Tazwaz
in
Ataxia UK
5 months ago
help -does ferritin rise in 6months - mine went from 35 to 134 but not sure liver issues - please see recent results am I over medication??
crp is normal and White blood cells low for third month on high dose of t4 112mcg and 35 T3 results 24 hours after t4 and 11 hours after t3 xx Re ferritin - last test 6 months ago was 35 not on supplement at all but eating beef small amount most days for a month but I think this is a false
crp is normal and White blood cells low for third month on high dose of t4 112mcg and 35 T3 results 24 hours after t4 and 11 hours after t3 xx Re ferritin - last test 6 months ago was 35 not on supplement at all but eating beef small amount most days for a month but I think this is a false
Chouchou1234
in
Thyroid UK
5 months ago
Utrogeatan and Hashi-soybean lecithin issues?
Hi everyone, I recently started with bioidentixal HRt (oestrodose and Ultrogestan(progesterone). I have hashimotoes so do not eat soy or gluten. Having taken it for about a month I noticed the corners of my inner eyes red and inflamed which is what I get when I consume allergens. On researching I found
Hi everyone, I recently started with bioidentixal HRt (oestrodose and Ultrogestan(progesterone). I have hashimotoes so do not eat soy or gluten. Having taken it for about a month I noticed the corners of my inner eyes red and inflamed which is what I get when I consume allergens. On researching I found
Dinkki
in
Thyroid UK
5 months ago
ERLEADA brain dead
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
icanwintwice
in
Advanced Prostate Cancer
5 months ago
Once again it's time to help keep Malecare afloat and thriving. Please give.
It's the time of the year when people put aside differences and unite for common causes. Aren't the holiday seasons wonderful? I really don't know who coined the phrase "It's the season of giving," but I do know the words ring true. Much of Malecare's operating budget comes from individual donations
It's the time of the year when people put aside differences and unite for common causes. Aren't the holiday seasons wonderful? I really don't know who coined the phrase "It's the season of giving," but I do know the words ring true. Much of Malecare's operating budget comes from individual donations
Hidden
in
Advanced Prostate Cancer
5 months ago
Managing menopause webinar 23 January 2024
Hello All This is to let you know about a webinar we are running in the new year. You can join leading menopause expert and member of Ovacomeās expert advisory panel Dr Louise Newson for a webinar on menopause and ovarian cancer. It is taking place at 11.30am on 23 January 2024. Dr Newson will be
Hello All This is to let you know about a webinar we are running in the new year. You can join leading menopause expert and member of Ovacomeās expert advisory panel Dr Louise Newson for a webinar on menopause and ovarian cancer. It is taking place at 11.30am on 23 January 2024. Dr Newson will be
OvacomeSupport
My Ovacome Team
in
My Ovacome
5 months ago
Prostate-Kidney and BPH Decision for treatment.
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Seminole0412
in
Advanced Prostate Cancer
5 months ago
Symptoms of thyroid issues but tests normal
Hi, can anyone help me understand please? My thyroid tests keep coming back as normal but I have symptoms which Iām trying to unpick from menopause symptoms. Iām on HRT but still feel cold, get crashing fatigue, have missing outer third of eyebrows, brain fog, low mood etc. My folate came back as low
Hi, can anyone help me understand please? My thyroid tests keep coming back as normal but I have symptoms which Iām trying to unpick from menopause symptoms. Iām on HRT but still feel cold, get crashing fatigue, have missing outer third of eyebrows, brain fog, low mood etc. My folate came back as low
Fizzwhizz
in
Thyroid UK
5 months ago
New results. I'd be grateful for some input!
So, after 3 years of testing every 8 weeks or so, I still don't trust my interpretation. š Latest results on 150mcg T4 and 30mcg T3 are: TSH: 0.01 T4: 18.5 (12 - 22) 65% T3: 5.4 (3.1 - 6.8) 62% Previous results on 125mcg levo and 30mcg T3 were: TSH: 0.01 T4: 17.8 (12 - 22) 58% T3: 5.1 (3.1 - 6.8)
So, after 3 years of testing every 8 weeks or so, I still don't trust my interpretation. š Latest results on 150mcg T4 and 30mcg T3 are: TSH: 0.01 T4: 18.5 (12 - 22) 65% T3: 5.4 (3.1 - 6.8) 62% Previous results on 125mcg levo and 30mcg T3 were: TSH: 0.01 T4: 17.8 (12 - 22) 58% T3: 5.1 (3.1 - 6.8)
WitchingHour2point0
in
Thyroid UK
5 months ago
Can Biased Beliefs Play a Positive Role in Some Circumstances?
A mother who comes, with only a stick, to the rescue of her child being attacked by a mountain-lion may be willing to believe sheāll drive the animal away even if objectively the odds are not in her favor. She draws her strength from her biased belief. So, depending on circumstances and what is at
A mother who comes, with only a stick, to the rescue of her child being attacked by a mountain-lion may be willing to believe sheāll drive the animal away even if objectively the odds are not in her favor. She draws her strength from her biased belief. So, depending on circumstances and what is at
deValentin
in
My OCD Community
5 months ago
Brain lesion
anybody here who experienced brain lesions that might be from PCa? Current PSA is 0.025. Itās just confusing that after ADT works to remove all the symptoms including bone pain from bone mets, my dad was diagnosed with brain lesion after an MRI since he had mild stroke symptoms(slurred speech). Does
anybody here who experienced brain lesions that might be from PCa? Current PSA is 0.025. Itās just confusing that after ADT works to remove all the symptoms including bone pain from bone mets, my dad was diagnosed with brain lesion after an MRI since he had mild stroke symptoms(slurred speech). Does
dnmrk
in
Advanced Prostate Cancer
5 months ago
HRT for Peri Menopause
Hi, Is anyone on HRT for perimenopause? What symotoms were you getting to prompt you to go on HRT and has it helped? Thanks
Hi, Is anyone on HRT for perimenopause? What symotoms were you getting to prompt you to go on HRT and has it helped? Thanks
MSJT
in
Menopause and Perimenopause Support
5 months ago
Treatment and Prevention Strategies for Cognitive Function in PCa
Treatment and Prevention strategies for cognitive function in men being treated for advanced prostate cancer. Mild cognitive impairment (ābrain fogā chemo-brainā) is common and widely recognized in those being treated with ADT and androgen signaling drugs, as well as with taxane chemotherapy. I am highlighting
Treatment and Prevention strategies for cognitive function in men being treated for advanced prostate cancer. Mild cognitive impairment (ābrain fogā chemo-brainā) is common and widely recognized in those being treated with ADT and androgen signaling drugs, as well as with taxane chemotherapy. I am highlighting
MateoBeach
in
Fight Prostate Cancer
5 months ago
1
...
50
51
52
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4366 results
Thyroid UK
2373 results
Endometriosis UK
1841 results
View top 10 communities
Sort by
Most Relevant
Newest