It's been sometime since my last post and I am just writing for some advice and information,because I do not think that I am taking my CLL Seriously enough and just hoping it will go away. I am 71 yrs and was diagnosed with CLL last year. I have had six months of Chemotherapy which was two days a month of BENDAMUSTINE/OFATUMUMAB I finished the Chemo in January this year when my blood count went down from 150 to 15 . Since then I have experienced pain in my bones and muscles which my consultant says may not necessarily be the Chemo (which I think it is) I had further blood tests to see what else could be wrong and all seems fine except for my kidneys which the Dr says there might be a problem but nothing to worry about yet.
So I deal with my pain and since January when my WBC got down to 15 it has slowly increased. My consultant said I might need Chemo or something else but to just watch and wait. I tasked if I could go away on holiday for awhile and they said OK.
So here !I am in Thailand, been here a month. Body pains, fatigue and a general feeling of wellness still plauge me but trying to ignore it and get on with life. I have just had a complete blood count here in Thailand and this is what I want help with!!!!!!
RBC. 3.30x10. 6
BLAST CELL 5% LEUKAEMIA
Can anybody enlighten me???? How am I doing, should I go home????
Thanks for any help