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Calquence
I just was diagnosed with sll after getting an mri on my back for back pain showed a swollen lymph node on my spine. Ct and biopsy showed sll. I am supposed to get a pet scan this week and then start calquence. I am normally a very active person and am wondering what my tolerance to physical activity
I just was diagnosed with sll after getting an mri on my back for back pain showed a swollen lymph node on my spine. Ct and biopsy showed sll. I am supposed to get a pet scan this week and then start calquence. I am normally a very active person and am wondering what my tolerance to physical activity
1reb
in
CLL Support
2 months ago
Short-term tactics to keep PSA in check
Good morning fellow warriors. My docetaxel adventure was without side effects but gave an ineffective response. The cabazitaxel/carboplatin combo was effective but brutal in its attack on my immune system. Having had no treatment at all while my body tries to recover, I'm currently being considered by
Good morning fellow warriors. My docetaxel adventure was without side effects but gave an ineffective response. The cabazitaxel/carboplatin combo was effective but brutal in its attack on my immune system. Having had no treatment at all while my body tries to recover, I'm currently being considered by
CrocodileShoes
in
Advanced Prostate Cancer
6 months ago
recently diagnosed with 3.5cm acoustic neuroma
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going in my right ear a couple of years ago, and thought nothing of it, until now. The ringing, buzzing and sounds of crickets is getting slightly worse
Longtallsally22
in
Acoustic Neuroma Support
2 months ago
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FDA approved Inavolisib for PIK3 mutation
I am back on here and I wanted to share that my blood biopsy last month showed a PIK3 mutation. Then, since I am a reader, I found out that Inavolisib has just been approved to be taken with ibrance and fulvestrant I currently take ibrance and letrozole. It seems the Inavolisib has less side effects
I am back on here and I wanted to share that my blood biopsy last month showed a PIK3 mutation. Then, since I am a reader, I found out that Inavolisib has just been approved to be taken with ibrance and fulvestrant I currently take ibrance and letrozole. It seems the Inavolisib has less side effects
Godbeforme
in
SHARE Metastatic Breast Cancer
2 months ago
Seeking guidance with different Prostate Cancer biopsy results
My urologist had a local pathology laboratory perform the analysis of my biopsy and it resulted in a 4+3=7. I chose radiation therapy and went to a center of excellence and they performed another assessment of the biopsy which resulted in a 4+5=9. Finally we had Joh Hopkins assess the slides and they
My urologist had a local pathology laboratory perform the analysis of my biopsy and it resulted in a 4+3=7. I chose radiation therapy and went to a center of excellence and they performed another assessment of the biopsy which resulted in a 4+5=9. Finally we had Joh Hopkins assess the slides and they
Larry954
in
Prostate Cancer Network
2 months ago
First post
I joined the community over a year ago when i got a routine blood test back that was a bit high but below the threshold for further tests. Continued that way for 18 months until last week CLL was confirmed while doing a biopsy for a suspect mole and having a melanoma removed. So a double whammy. More
I joined the community over a year ago when i got a routine blood test back that was a bit high but below the threshold for further tests. Continued that way for 18 months until last week CLL was confirmed while doing a biopsy for a suspect mole and having a melanoma removed. So a double whammy. More
Mokoia
in
CLL Support
2 months ago
Chemo or no/not yet?
59 years old. Metastatic/high volume. PSA hit 366 before starting Abiraterone and Degarelix. Start Lupron next week. Negative on DNA test. Will see what PSA looks like next week after a month of ADT. My question chemo, no chemo or wait on chemo? Onco and Rad Onco both seemed to have a very soft attitude
59 years old. Metastatic/high volume. PSA hit 366 before starting Abiraterone and Degarelix. Start Lupron next week. Negative on DNA test. Will see what PSA looks like next week after a month of ADT. My question chemo, no chemo or wait on chemo? Onco and Rad Onco both seemed to have a very soft attitude
4tunate1
in
Advanced Prostate Cancer
6 months ago
lynparza
my dad failed zytiga and xtandi- he has a somatic BRCa 2 mutation and they are switching him To lynpraza- I am a nervous wreck and just wondering if anyone has a positive experience with a parp - he’s 81 some normal heart issues that are stable- he has bone mets and the last two Years they were stable
my dad failed zytiga and xtandi- he has a somatic BRCa 2 mutation and they are switching him To lynpraza- I am a nervous wreck and just wondering if anyone has a positive experience with a parp - he’s 81 some normal heart issues that are stable- he has bone mets and the last two Years they were stable
Chris52981
in
Advanced Prostate Cancer
2 months ago
Walsh's Folly?
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
VoxHope
in
Advanced Prostate Cancer
5 months ago
Pet scan shows stage 4
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
Cp014
in
Advanced Prostate Cancer
2 months ago
Pet scan shows stage 4
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
I just got diagnosis last week of prostrate cancer. My psa was 5.25. Had slight blood in pee sometimes. Major constipation in April 25. Went to er. They saw a 1.9 cm nodule on right lung. got biopsy. Cancer in 6 samples. One was Gleason 9. Another showed intraductal component. I always said if
Cp014
in
Advanced Prostate Cancer
2 months ago
PSA increasing
My Dad’s PSA started increasing 2.5 years after diagnosis. It was 0.008 in December, 0.024 at the beginning of March and 0.029 on yesterday. Please advise. Any suggestions are greatly appreciated. He is still taking Lupron, Abiraterone and Prednisone 10 mg that were started back in September of 2021.
My Dad’s PSA started increasing 2.5 years after diagnosis. It was 0.008 in December, 0.024 at the beginning of March and 0.029 on yesterday. Please advise. Any suggestions are greatly appreciated. He is still taking Lupron, Abiraterone and Prednisone 10 mg that were started back in September of 2021.
Simonapo
in
Advanced Prostate Cancer
6 months ago
estrogen cream
Hi! I’m wondering if any of you ladies have tried estrogen vaginal cream? My oncologist said it’s safe at the percent (I think .01? 1?) prescribed for menopausal women … apparently a study tenderly concluded that women with breast cancer are safe to use this medication to help with the symptoms of lack
Hi! I’m wondering if any of you ladies have tried estrogen vaginal cream? My oncologist said it’s safe at the percent (I think .01? 1?) prescribed for menopausal women … apparently a study tenderly concluded that women with breast cancer are safe to use this medication to help with the symptoms of lack
TwithBC
in
SHARE Metastatic Breast Cancer
2 months ago
Was there ever really a chance for a cure?
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
duxlubber
in
Advanced Prostate Cancer
6 months ago
8 years and counting.
well 8 years ago I got the sad face from my doctor. 50/50 chance of 5 years. Now as my wife would say I’m past my expectations date. On top of that just had hip surgery on both hips. Went in for one hip, left hip ball worn out, but x rays showed that the cancer had eaten all the way across the femur
well 8 years ago I got the sad face from my doctor. 50/50 chance of 5 years. Now as my wife would say I’m past my expectations date. On top of that just had hip surgery on both hips. Went in for one hip, left hip ball worn out, but x rays showed that the cancer had eaten all the way across the femur
larry_dammit
in
Advanced Prostate Cancer
2 months ago
Xtandi worked great
After radiation to prostate bed and to one pelvic metastasis, I was on xtandi and Lupton for three years and now have been on "vacation " for a year with PSA of 0.02 and testosterone at 4. No meds at all for last11 months!Had a heart attack in May '23 (which I attribute to covid shots) , doctors told
After radiation to prostate bed and to one pelvic metastasis, I was on xtandi and Lupton for three years and now have been on "vacation " for a year with PSA of 0.02 and testosterone at 4. No meds at all for last11 months!Had a heart attack in May '23 (which I attribute to covid shots) , doctors told
JAK2243
in
Advanced Prostate Cancer
6 months ago
Big company buys a clinical research company focused on Actinium 225 (and others) FPI-2265
astra-something buys a Canadian company because they hate Canadians...no, sorry...ok, I will sound like a financial advisor, but here it is: Astra-something has been working on other approaches to develop more targeted cancer treatments, including antibody-drug conjugates and RCs. "The deal has solid
astra-something buys a Canadian company because they hate Canadians...no, sorry...ok, I will sound like a financial advisor, but here it is: Astra-something has been working on other approaches to develop more targeted cancer treatments, including antibody-drug conjugates and RCs. "The deal has solid
Maxone73
in
Advanced Prostate Cancer
6 months ago
Phase 1 Clinical Trial of AGX101, a novel TM4SF1-Directed Antibody-Drug Conjugate for the Treatment of Solid Tumors
A new and hopefully potent ADC. Antibody-drug conjugates, not only for prostate cancer, are a hot topic now, so they should get better and better as competition rises. https://www.biospace.com/angiex-announces-first-patient-dosed-in-phase-1-clinical-trial-of-agx101-a-novel-tm4sf1-directed-antibody-drug-conjugate-for-the-treatment-of-solid-tumors
A new and hopefully potent ADC. Antibody-drug conjugates, not only for prostate cancer, are a hot topic now, so they should get better and better as competition rises. https://www.biospace.com/angiex-announces-first-patient-dosed-in-phase-1-clinical-trial-of-agx101-a-novel-tm4sf1-directed-antibody-drug-conjugate-for-the-treatment-of-solid-tumors
Maxone73
in
Advanced Prostate Cancer
2 months ago
3rd Biopsy
Hi All, I had my 3rd liver bI iopsy last Monday, This was in a matter of weeks. When I saw my liver consultant he told me I had liver cancer with a 3cm lesion. He is hoping to start me on radiotherapy once he gets the result from my 3rd liver biopsy. I have the attitude to fight this terrible disease
Hi All, I had my 3rd liver bI iopsy last Monday, This was in a matter of weeks. When I saw my liver consultant he told me I had liver cancer with a 3cm lesion. He is hoping to start me on radiotherapy once he gets the result from my 3rd liver biopsy. I have the attitude to fight this terrible disease
Mick1414
in
British Liver Trust
2 months ago
Stage four ….
I had chemoradiation for oesophogeal cancer in late 2023, not seen as suitable for operation. Now have metastases to ureter ( not v usual) and am about to start more Folfox with Nivolumab for three months. Seems the prognosis depends on how well I respond to this treatment. Anyone with similar
I had chemoradiation for oesophogeal cancer in late 2023, not seen as suitable for operation. Now have metastases to ureter ( not v usual) and am about to start more Folfox with Nivolumab for three months. Seems the prognosis depends on how well I respond to this treatment. Anyone with similar
Vitex
in
Oesophageal & Gastric Cancer
2 months ago
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