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Collapsed lung
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What a week!
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Where do i start? Went up to hospital for angioplasty stent to ensure heart was pumping like a racehorses for eventual double lung transplant. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision. Eyes surgeon and neurologist
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
My precious baby lost her battle💔😪
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
My beautiful 26yr old daughter lost her battle at 3.44am 14 Jan 2022 . It doesn't feel real. She should have only been in hospital for 5 days for IV antibiotics. She had severe lung disease (PPFE) and was waiting for a double lung transplant. 3 hospitals were looking at her xrays and scans , the Sussex
Kcn3
in
Lung Conditions Community Forum
2 years ago
Treatment has stoped working - next steps
Hi, Mags here. Well, after 20 months of combination Pemetrexed and Pemulizimab my latest scan shows some further growth in the lymph nodes, although the primary tumour in the lung is fairly static. My oncologist has decided that as the current treatment - i.e. neither the immuno or chemo therapies, are
Hi, Mags here. Well, after 20 months of combination Pemetrexed and Pemulizimab my latest scan shows some further growth in the lymph nodes, although the primary tumour in the lung is fairly static. My oncologist has decided that as the current treatment - i.e. neither the immuno or chemo therapies, are
magstherunner
in
The Roy Castle Lung Cancer Foundation
2 years ago
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Accessing second course of Immunotherapy
Hi all I'm posting on here in the hope to find someone who has been able to access a second course of immunotherapy treatment. My mum was diagnosed in 2015 with stage 4 lung cancer. She went straight onto chemotherapy which made her very poorly and didn't do much to her cancer at all. Her consultant
Hi all I'm posting on here in the hope to find someone who has been able to access a second course of immunotherapy treatment. My mum was diagnosed in 2015 with stage 4 lung cancer. She went straight onto chemotherapy which made her very poorly and didn't do much to her cancer at all. Her consultant
nlg1405
in
The Roy Castle Lung Cancer Foundation
2 years ago
Extrapulmonary small cell cancer
Hi everyone, My wife was recently diagnosed with extrapulmonary small cell cancer which presented in the breast. After having PET scan and brain MRI the cancer was thankfully no where else in her body. This type of cancer is very rare and the treatment is typically the same as for small cell lung cancer
Hi everyone, My wife was recently diagnosed with extrapulmonary small cell cancer which presented in the breast. After having PET scan and brain MRI the cancer was thankfully no where else in her body. This type of cancer is very rare and the treatment is typically the same as for small cell lung cancer
Mitski
in
Lung Cancer Support
2 years ago
Pneumonia Recovery Issue
I just recovered from viral pneumonia after being diagnosed on 11-11-2022. Is it common, after all this time to have good and bad days (meaning feeling well then the next day feeling like a truck hit me) and also my breathing hasn't quite returned to normal either. It's not real bad, but it is noticeable
I just recovered from viral pneumonia after being diagnosed on 11-11-2022. Is it common, after all this time to have good and bad days (meaning feeling well then the next day feeling like a truck hit me) and also my breathing hasn't quite returned to normal either. It's not real bad, but it is noticeable
slram
in
Lung Conditions Community Forum
2 years ago
Looking for someone going through something similar to me! Metastatic lung cancer spread to lymph nodes and spine?
I’m 40 and have stage 4 lung cancer which has spread to my lymph nodes and spine. Anyone else in the same situation? I’m interested in what treatment you are getting or had that has proved successful? Thank you Kate
I’m 40 and have stage 4 lung cancer which has spread to my lymph nodes and spine. Anyone else in the same situation? I’m interested in what treatment you are getting or had that has proved successful? Thank you Kate
Guddamc
in
The Roy Castle Lung Cancer Foundation
2 years ago
New Year, new lungs?
Entering 2022, I'm not disappointed to be waving goodbye to 2021. Covid ruled over us all in the early part of the year and then reared its ugly head again at the end of the year to add further anxiety and stress. However, for someone who up until March was having to shield, in reality it never really
Entering 2022, I'm not disappointed to be waving goodbye to 2021. Covid ruled over us all in the early part of the year and then reared its ugly head again at the end of the year to add further anxiety and stress. However, for someone who up until March was having to shield, in reality it never really
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Molnupiravir
Hi all , I had a single lung transplant 5 years ago , this is my only lung as the other has been completely removed. New years eve I tested positive for covid 19 understandably I absolutely papped my pants and rung my transplant consultant at Newcastle freeman hospital who straight away arranged for
Hi all , I had a single lung transplant 5 years ago , this is my only lung as the other has been completely removed. New years eve I tested positive for covid 19 understandably I absolutely papped my pants and rung my transplant consultant at Newcastle freeman hospital who straight away arranged for
Hidden
in
Lung Conditions Community Forum
2 years ago
Advice regarding stopping smoking please.
Happy new year to everyone, I have a question I hope can be answered, I stopped smoking completely after a left lung Lobectomy. this was in august, but I am finding my legs are aching badly, Ihave had a doppler test which was fine, the nurse advised this was due to stopping smoking and was normal, has
Happy new year to everyone, I have a question I hope can be answered, I stopped smoking completely after a left lung Lobectomy. this was in august, but I am finding my legs are aching badly, Ihave had a doppler test which was fine, the nurse advised this was due to stopping smoking and was normal, has
beaverwood
in
The Roy Castle Lung Cancer Foundation
2 years ago
Staging questions
If lung cancer is contained to both lungs is it still considered Stage 4? My mom's doctor just ran a PET Scan and confirmed other suspicious areas outside her lungs are negative or benign - does that change her diagnosis? They didn't mention...
If lung cancer is contained to both lungs is it still considered Stage 4? My mom's doctor just ran a PET Scan and confirmed other suspicious areas outside her lungs are negative or benign - does that change her diagnosis? They didn't mention...
ajk44
in
Lung Cancer Support
3 years ago
Is there a better PET tracer for NSCLC than F-18?
My mom was recently diagnosed and her F-18 PET showed a 6cm tumor in her left
lung
. Her lower pulmonary lobe is
collapsed
, and the MO is thinking that the pleura might also be involved. She's afraid of having a Thoracoscopy and asked me if there is a more precise PET available.
My mom was recently diagnosed and her F-18 PET showed a 6cm tumor in her left
lung
. Her lower pulmonary lobe is
collapsed
, and the MO is thinking that the pleura might also be involved. She's afraid of having a Thoracoscopy and asked me if there is a more precise PET available.
V10fanatic
in
The Roy Castle Lung Cancer Foundation
2 years ago
New Member
He has sepsis,
collapsed
lung
and currently on dialysis too so he has a lot against him.
He has sepsis,
collapsed
lung
and currently on dialysis too so he has a lot against him.
Hidden
in
ICUsteps
3 years ago
What are the side effects of immunotherapy?
Hello, I have been diagnosed with stage IV lung cancer and the recommended treatment is immunotherapy, as the biopsy showed 90% compatibility with immunotherapy. What kind of side effects should I expect?
Hello, I have been diagnosed with stage IV lung cancer and the recommended treatment is immunotherapy, as the biopsy showed 90% compatibility with immunotherapy. What kind of side effects should I expect?
Kika1
in
Lung Conditions Community Forum
3 years ago
Lung cancer and depression and anxiety
Is depression particularly linked to lung cancer, over and above the obvious cause of having a life limiting/ threatening condition ?
Is depression particularly linked to lung cancer, over and above the obvious cause of having a life limiting/ threatening condition ?
Hidden
in
The Roy Castle Lung Cancer Foundation
3 years ago
Upset With Local Hospital
Bloods etc.] it was found that not only did I have a
collapsed
lung
and phneumonia but that I have a problem with my vertibrae and both cortoid arteries blocked which the medics have found that I have had more than one life threatening stroke.
Bloods etc.] it was found that not only did I have a
collapsed
lung
and phneumonia but that I have a problem with my vertibrae and both cortoid arteries blocked which the medics have found that I have had more than one life threatening stroke.
Wheesy
in
Asthma Community Forum
3 years ago
What a couple of weeks…😡
Following double lung transplant assessments they have now discovered i have coronary stenosis but cannot make a final decision until a further report is prepared and discussed with the cardiologist. These tests are so thorough as only the fittest( ironic eh!) can be put forward. Depending on the grade
Following double lung transplant assessments they have now discovered i have coronary stenosis but cannot make a final decision until a further report is prepared and discussed with the cardiologist. These tests are so thorough as only the fittest( ironic eh!) can be put forward. Depending on the grade
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Radiotherapy burns
Hi guys After having my whole right lung removed I was doing very well and walking up to 20 minutes at a time. Since having 10 days of radiotherapy a couple of weeks after I have developed very shortness of breath and can’t walk a few yards without gasping for air I had a bronchoscope as there though
Hi guys After having my whole right lung removed I was doing very well and walking up to 20 minutes at a time. Since having 10 days of radiotherapy a couple of weeks after I have developed very shortness of breath and can’t walk a few yards without gasping for air I had a bronchoscope as there though
acedog
in
The Roy Castle Lung Cancer Foundation
3 years ago
6 monthly assessment
Quick update regarding a question I had a couple of months ago. I was worried that I would not be able to perform the walk test at my my 6 monthly check up for my lung transplant. I took your advise, gritted my teeth and increased my oxygen. I managed 4 minutes of slow walking, rested and then completed
Quick update regarding a question I had a couple of months ago. I was worried that I would not be able to perform the walk test at my my 6 monthly check up for my lung transplant. I took your advise, gritted my teeth and increased my oxygen. I managed 4 minutes of slow walking, rested and then completed
mary1956
in
Lung Conditions Community Forum
3 years ago
Confused
I have pf for the last 6 and half Yr its really confusing me or maybe I'm in denial my dr says I'm in the end stages and put me on 2.5ml of morphine, I havnt had a infection for ages now touch wood,I'm on oxygen wise 6lt and 2lt at rest ,I can't really read my breathing test but I think my last one was
I have pf for the last 6 and half Yr its really confusing me or maybe I'm in denial my dr says I'm in the end stages and put me on 2.5ml of morphine, I havnt had a infection for ages now touch wood,I'm on oxygen wise 6lt and 2lt at rest ,I can't really read my breathing test but I think my last one was
Dion50
in
Lung Conditions Community Forum
3 years ago
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